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Is there a kidney "cancer survivors network" facebook group?

Devastated Wife's picture
Devastated Wife
Posts: 52
Joined: Apr 2018

Are any of you in a kidney "cancer survivors network" facebook group? 

I don't know of any groups.  

If so, please share the group name or link so that I (and others) could find it and join.  Smile  Thank you.

icemantoo's picture
icemantoo
Posts: 3211
Joined: Jan 2010

 https://www.facebook.com/groups/58663571961/videos/

 

The problem with this and other Facebook Groups is that they are not anonomous, the questions and answers are superficial in that you have little background on the poster and each post gets lost with new ones very quickly..

 

 

icemantoo

Devastated Wife's picture
Devastated Wife
Posts: 52
Joined: Apr 2018

Thanks, icemantoo.   I agree with you.   Also, the group is "public" and not closed.  I like closed facebook groups so that it is more private and so that all my friends/family can't see my comments in the group.  If I were to make a comment or a "like" in a public group it would show up in all my friends feeds.

icemantoo's picture
icemantoo
Posts: 3211
Joined: Jan 2010

https://www.facebook.com/groups/58663571961/?ref=bookmarks

paintergrl's picture
paintergrl
Posts: 47
Joined: May 2018

Renal Cell Carcinoma Support Group. Its closed. https://www.facebook.com/groups/279630142502937/

msjax
Posts: 20
Joined: Dec 2017

Privacy is a concern for me, do you know paintergrl if this FB page is private where only I can see and post comments (not out there for others to see)

thanks,

MS

paintergrl's picture
paintergrl
Posts: 47
Joined: May 2018

It is a closed group so no one else can see posts or comments. Maybe I'll see you on there. :)

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