Is there a kidney "cancer survivors network" facebook group?

Devastated Wife · April 2018

Are any of you in a kidney "cancer survivors network" facebook group?

I don't know of any groups.

If so, please share the group name or link so that I (and others) could find it and join. Thank you.

icemantoo · April 2018

Here is one

https://www.facebook.com/groups/58663571961/videos/

The problem with this and other Facebook Groups is that they are not anonomous, the questions and answers are superficial in that you have little background on the poster and each post gets lost with new ones very quickly..

icemantoo

icemantoo · April 2018

try this instead

https://www.facebook.com/groups/58663571961/?ref=bookmarks

Devastated Wife · April 2018

icemantoo said:
Here is one
https://www.facebook.com/groups/58663571961/videos/

The problem with this and other Facebook Groups is that they are not anonomous, the questions and answers are superficial in that you have little background on the poster and each post gets lost with new ones very quickly..

icemantoo

Thanks, icemantoo.

Thanks, icemantoo. I agree with you. Also, the group is "public" and not closed. I like closed facebook groups so that it is more private and so that all my friends/family can't see my comments in the group. If I were to make a comment or a "like" in a public group it would show up in all my friends feeds.

paintergrl · June 2018

Here is one

Renal Cell Carcinoma Support Group. Its closed. https://www.facebook.com/groups/279630142502937/

msjax · June 2018

Privacy is a concern for me,

Privacy is a concern for me, do you know paintergrl if this FB page is private where only I can see and post comments (not out there for others to see)

thanks,

MS

paintergrl · June 2018

msjax said:
Privacy is a concern for me,
Privacy is a concern for me, do you know paintergrl if this FB page is private where only I can see and post comments (not out there for others to see)

thanks,

MS

closed group

It is a closed group so no one else can see posts or comments. Maybe I'll see you on there.

The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Is there a kidney "cancer survivors network" facebook group?

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