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surgery for my husband is set for May 1st

Ruthmomto4's picture
Ruthmomto4
Posts: 706
Joined: May 2013

It’s going to be  a bit easier he is going to ablate (burn) the tumor in the hard to resect lobe. This much less invasive and traumatic to his system. Then he will resect the area of the liver with the larger tumor, hoping there is no scar tissue it should not be too difficult. He is hoping this way he won’t need to rebuild any bile ducts and a very tiny chance of needing a drain this way. So that’s much better.  He will still put in the hepatic artery infusion pump and he will receive chemo in that for 6 months, as well as repeating the systemic chemo again. He should be in the hospital for 5 days.  

i wasnt able to go with him today I had no coverage for our autistic son  so I was very nervois but it seemed to go well.


airborne72's picture
airborne72
Posts: 282
Joined: Sep 2012

It was only days ago when your future looked so dark.  Now there is a light.  Stay positive and committed.

Still praying for you.

Jim

Ruthmomto4's picture
Ruthmomto4
Posts: 706
Joined: May 2013

what difference time and second opinions can make! I am nervous but I feel we actualky have a future together again. 

I hope you are feeling well and recovering nicely from your surgery!

 

thank you Jim!

Pamcakes
Posts: 110
Joined: Jan 2018

So Happy tonhear your update!

Ruthmomto4's picture
Ruthmomto4
Posts: 706
Joined: May 2013

feeling much about this plan than the last one!

JanJan63's picture
JanJan63
Posts: 2482
Joined: Sep 2014

That sounds positive! Good for him!

Jan

Ruthmomto4's picture
Ruthmomto4
Posts: 706
Joined: May 2013

i hope you are resting! 

Cindy225's picture
Cindy225
Posts: 172
Joined: Feb 2017

Wonderful the appointment went well Ruth and there is a comprehensive plan! Deep breaths preparing for May 1... 

Cindy

Ruthmomto4's picture
Ruthmomto4
Posts: 706
Joined: May 2013

I feel much better about this plan it’s less risky!

BRHMichigan's picture
BRHMichigan
Posts: 368
Joined: Jul 2017

So happy you have a plan now. Onward and upward. I try to remember every day is such a gift after this diagnosis. Amazing what our bodies can endure. 

Hope you rest well now.  --Beth

Ruthmomto4's picture
Ruthmomto4
Posts: 706
Joined: May 2013

I am hoping this puts cancer a few steps behind us for a while. I am worried about you, I hope you get some good answers from your oncologist soon. 

BRHMichigan's picture
BRHMichigan
Posts: 368
Joined: Jul 2017

I see him in 2 weeks. Am feeling very strong and hope to work out a chemo schedule. It's time to try it again. I think I will tolerate it well at this point. Am going to ask for Avastin and no Oxylaplatin. Just read Radical Remission which I found very inspiring. Gave me many more ideas of things I can try on my own too. Staying positive!

Ruthmomto4's picture
Ruthmomto4
Posts: 706
Joined: May 2013

and your choice. My husband did 5fu, irinotecan (one treatment and got pancreatitis so he will not take it again), Avastin, and oxaliplatin. The oxy part was fine for the first few treatments but as you know it gets worse as it goes on. However he said it wasn’t the worst thing ever, once the tingling did not subside by the next week he made her stop. He got 8 at full dose, 9 at a half and the last two were without it. The inability to drink cold things at first was a few days then about a week. Also, the cold sensitivity was worse because it was winter in Connecticut.  However the minute he just went to 5fu & Avastin his tumors did not shrink and were only stable. 

I am not telling you this to try and change your mind just giving you information, I always like to know as much as I can. 

BRHMichigan's picture
BRHMichigan
Posts: 368
Joined: Jul 2017

No, I know that everyone's particular CRC is different. Or we fall into different categories. Mine wasn't responsive to chemo and radiation pre-surgery, so I'm a bit skeptical that it will be effective now. But I'm willing to try it for 3 months or whatever the Onc recommends. Hopeful I can still work and enjoy life. Still working on lots of natural things too. After all, chemo kills, so I will work on boosting my immunity as well. 

Praying the pump works for your dh! -Beth

lizard44's picture
lizard44
Posts: 409
Joined: Apr 2015

So glad that you and your husband got some positive news  and a workable plan to deal with the liver tumors. 

Grace/lizard44

Ruthmomto4's picture
Ruthmomto4
Posts: 706
Joined: May 2013

We are excited, but nervous!

Annabelle41415's picture
Annabelle41415
Posts: 6722
Joined: Feb 2009

I've been thinking about you and this is good news.  Where are you having this done?  I'm glad that they have a plan for him.  Sounds like things are going in the right direction.  You sound so much better in this post.  It's so difficult when things are so up in the air and no one is giving you answers.  I'm so glad that this will all be behind you soon.  Praying for the best outcome.

Kim

Ruthmomto4's picture
Ruthmomto4
Posts: 706
Joined: May 2013

i know it’s still a big surgery but it’s no where near as risky as he first planned so we are both better. It’s nice to see an end for a while in sight. He is having his surgery in NYC at MSK, with Dr Peter Kingham.

abita's picture
abita
Posts: 1072
Joined: Dec 2017

Glad to hear the happy news.

Ruthmomto4's picture
Ruthmomto4
Posts: 706
Joined: May 2013

we are both happy!

Canadian Sandy's picture
Canadian Sandy
Posts: 721
Joined: Jul 2016

Positive news.....prayers sent your way.

Ruthmomto4's picture
Ruthmomto4
Posts: 706
Joined: May 2013

prayers are always good and appreciated!

Trubrit's picture
Trubrit
Posts: 5512
Joined: Jan 2013

I know how silly that must sound to some. Plesed about surgery. But, when you've been told no surgery, and surgery is your best bet, then it IS good news. 

I have it down on the calendar and will be sending prayers and good vibes all the way. 

Tru

Ruthmomto4's picture
Ruthmomto4
Posts: 706
Joined: May 2013

it is weird to get excited about surgery but I know most here understand. Thank you Tru!!! I hope your wrist is healing well!

PamRav's picture
PamRav
Posts: 323
Joined: Jan 2017

that his surgery is a great success.  

All the best

pam 

Ruthmomto4's picture
Ruthmomto4
Posts: 706
Joined: May 2013

we are hopeful too!

darcher's picture
darcher
Posts: 304
Joined: Jun 2017

It's always good to read some positive news.  

Ruthmomto4's picture
Ruthmomto4
Posts: 706
Joined: May 2013

if you scroll down a bit Lily was looking for you a few days back she was worried about you! You were missed!

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