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Finally approved

CRashster's picture
CRashster
Posts: 241
Joined: Mar 2017

You guys probably won't understand this. I have a friend who had kidney cancer years ago and it went to his brain. He has been a major help getting me through this. After my surgery, I had bad dizzy spells and always wanted them to scan my brain. Just once, to look and be sure. After 2 or 3 other attempts, it has finally been approved. I think this will bring me some peace of mind. Everyone is going to say that kidney cancer generally doesn't go to the brain. But, I've seen it happen.

Supersum's picture
Supersum
Posts: 108
Joined: Aug 2017

Great news I know where you're coming from good luck.

Wehavenotimeatall
Posts: 489
Joined: Aug 2017

I have the same problem

am a chromie so surgeon says not likely   but I keep asking

other tests are ok but that does not stop your mind 

praying for you

Annie

 

daisybud's picture
daisybud
Posts: 512
Joined: Jan 2016

I'm glad you finally got approved.

I'm sure it will give you peace of mind. 6 months after my surgery I ended up with bells palsy and had a scan. Definitely made me feel better.

Best wishes  

Kim

stub1969's picture
stub1969
Posts: 914
Joined: Jul 2016

CR--one only has to visit the "Smart Patients" website to know and understand that RCC travels to the brain.  Heck, not too long ago we had a post on here where a member talked about RCC as a growth on their face.  This is a very complex animal we deal with. 

I'm hopeful your scans come back clear.  Good luck!

Stub 

foxhd's picture
foxhd
Posts: 3183
Joined: Oct 2011

haven't been that uncommon. Our dear Brenda fought them. However even though I have epidural cord mets, they have stopped at the base of my skull.

I'm glad you will be scanned and put your mind at ease.

BTW, they responded well with radiation.

todd121's picture
todd121
Posts: 1449
Joined: Dec 2012

It's not that uncommon. One of my local good friends (before RCC even, we got it within a year of each other) has some.

BTW, I was preparing for a drug trial, and they did a brain MRI as part of the preparation to make sure I was staged correctly. So it is common that they do it for full staging. Generally they don't do it if you don't have symptoms. My understanding of the reason was that symptoms usually appear very early with brain mets.

Best of luck. Hopefully you'll find nothing (but your brain, of course!)

Todd

P.S. It did give me peace of mind.

hardo718's picture
hardo718
Posts: 853
Joined: Jan 2016

I'll keep you in nmy prayers and may you get the answers that will give you peace.

Donna~

foroughsh's picture
foroughsh
Posts: 779
Joined: Oct 2014

Good to you, I also wanted to make sure it wasn't metastasized at the time of diagnosis, my oncologist accepted my request and I had brain MRI and bone scan to peace my mind otherwise I'd be crazy over every pain and ache

 

Cinnamongirl's picture
Cinnamongirl
Posts: 199
Joined: Jan 2018

Good for you. Way to show perseverance. Keep us updated!

Allochka's picture
Allochka
Posts: 958
Joined: Nov 2014

Good luck with the scans! Of course it is better to know for sure. My husband had dizzy spells some time after the surgery. As he was Stage 1 Grade 1 nobody intended to do a brain scan. AFter some time he did have a scan due to totally unrelated reason anyway. It was clear and gave me peace of mind.

CRashster's picture
CRashster
Posts: 241
Joined: Mar 2017

Apparently, I have a 3cm cyst on the front part of my brain, right above my left eye. Not cancer related, but I get to go and see a brain doc. Also, not related to the dizziness. Great.

kiwi68's picture
kiwi68
Posts: 110
Joined: Oct 2017

It would bet better that they found nothing, but you know have somethingt to go forward with, and maybe it is related to your dizziness.   As an aside, what else have you investigated for your dizzyness - ear blockages, blood pressure, sugar levels, cardio health?   

Mighty Frog's picture
Mighty Frog
Posts: 152
Joined: Jul 2017

I also worried on this matter specially brain and bones..... did discuss with my doctor but he seem it is not necessary at this moment. He more focus on the lungs and the organs nearby the kidneys..... 

Anyway! Good News to you CRashster....

JoeyZ's picture
JoeyZ
Posts: 210
Joined: Mar 2018

I hope this turns out ok for you, CRashter. I know it's not what you wanted to hear, but if I understand correctly, it's not cancer.

Glad you went after this until you got it. We have to advocate hard for ourselves, sometimes. Your intuition was spot on here.

Recently, I've had every possible scan except for the brain scan, while getting the kidney tumor/cancer diagnosis. Since my Mother died of brain cancer, and since my own cancer had metastasized, I thought surely they would do a brain scan before surgery. But they didn't. Guess I'll ask next time I see the Oncologist.

So what is the next course of action on this for you? I hope you get it sorted out quickly so it can ease your mind a bit. I'm sure it's quite unsettling to say the least. All the best to you.

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