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Diagnosed 8/2017

MelBlessed's picture
MelBlessed
Posts: 71
Joined: Aug 2017

I’ve been following this board since I was diagnosed 8/2017 with full right nephrectomy. Mass was 4cm,  PT1a.   Urologist recommendation is 1 year ct scan and chest X-ray. I am concerned about waiting 1 year, just wanted  to get advice from all of  the experienced “RCCers” !! Thank you!

AnnissaP's picture
AnnissaP
Posts: 632
Joined: Sep 2017

Welcome! I too am quite new so do not have any advice. Just wanted to wish you well. You will get great info here.

icemantoo's picture
icemantoo
Posts: 3353
Joined: Jan 2010

Mel,

 

Welcome to the club which no one in their right mind would volunteer to join. There are all kinds of reasons for or against  an extra CT at 6 months, including Pathology, CT exposure, Insurance coverage, protocols and guidelines,  ect. No one right or wrong answer,

Hoss79's picture
Hoss79
Posts: 78
Joined: Nov 2017

I had surgery to remove my right kidney about 2.5 weeks ago. Protocol with my Dr is 3 month body scan. If all clear then go 6 months for a year. Then if all clear yearly. I Am pt1b grade 3. Again every Dr is different. I would be hestiant going yearly right after surgery, but that’s between you and your Dr.

MelBlessed's picture
MelBlessed
Posts: 71
Joined: Aug 2017

Thank you All for your response.  This site is helpful and has been reassuring throughout my recovery. Prayers daily for all going thru this.

Mary H.
Posts: 17
Joined: Sep 2017

I had an open partial nephrectomy in Feb. 2011.  Doctor wanted me to have a CT scan every 6 months for the first two years.  I had one at 6 months, then at one year.  He said everything looked fine so to come back in a year.  Had a scan a year later and was told to come back in two years.  Last spring, March 2017, I had a scan.  Everything still looks fine.  Hope everyone has the same luck I had.

MelBlessed's picture
MelBlessed
Posts: 71
Joined: Aug 2017

Thank you, so happy for you and wishing you continued good health.

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