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3 months of Taxol/Avastin

henhill's picture
henhill
Posts: 123
Joined: Aug 2016

Hi everyone-

I have been taking this treatment weekly for 3 months and it has been pretty awful.  For some reason, the Taxol made my whole head miserable.  I've had horrible mouth sores, loss of taste, hair thinned out, and worst of all, sore throats and sinusitis so bad it eventually became infected!   At the end of the rainbow, however, all of my tumors have responded and I am "significantly improved" according to the doctors.  The interim doc said she is reccomending stopping taxane for a while, and leaving me on just the Avastin, so I am psyched.  I believe that it is the taxol that is causing me so much inflammation and consequently, pain.  But it is working, so I guess it has been a good thing for me.  I pray the Avastin will be enough.

PS I am reading posts, but just had nothing but misery to offer so I kept my mouth shut.  Has anyone heard from CHeese?  I pray she is ok

 

EZLiving66's picture
EZLiving66
Posts: 1479
Joined: Oct 2015

I'm so sorry you're having to go through this.  If it works though,  it all may be worth it. I sure hope the Avastin by itself makes those awful side effects disappear.

Love, 

Eldri 

MAbound
Posts: 1153
Joined: Jun 2016

Oh Henhill, I'm so sorry you've been suffering! We don't mind if you need to vent a bit while going through this kind of stuff. Who knows, maybe somebody would have had a suggestion that would've helped. In any case, it's good to hear that you're starting to think that it's been worth it. Hurray!! Cheese just posted yesterday, so she's still around. Smile

 

NoTimeForCancer's picture
NoTimeForCancer
Posts: 2911
Joined: Mar 2013

helhill, that taxol is a tough chemo and why they watch us closely when we get it, and clearly you are having a bad reaction with the sores.  I am so sorry.  I hope the Avastin alone is the ticket for you.   

CheeseQueen57's picture
CheeseQueen57
Posts: 936
Joined: Feb 2016

Sorry you’re having so tough a time. Hang in there. Sweet of you to be concerned about me. I’m still kicking!

derMaus's picture
derMaus
Posts: 561
Joined: Nov 2016

It's always good new to hear that something is working, especially when you need a payoff for all the misery you've been through! Crossing my fingers that the solo Avastin will keep beating back the cancer cockroaches... Best wishes, B

barnyardgal
Posts: 274
Joined: Oct 2017

I'm glad that treatment is working and that you can stop taking the Taxol. Hope you're feeling better soon.

TeddyandBears_Mom's picture
TeddyandBears_Mom
Posts: 1802
Joined: Jun 2015

Henhill, I'm glad you posted. And that is really great news too! I'm hoping you will be able to enjoy the holidays now that you are off of the Taxol. Thanks for letting us know what is going on with you. Always good to hear from our friends that are currently going through treatment!

Love and Hugs,

Cindi

henhill's picture
henhill
Posts: 123
Joined: Aug 2016

i appreciate the encouragement, especially from the "mets club" who continue to struggle.  I got the 'rest" of the story today..... and while my tumors have responded to the treatment, there was mets to the liver and a bone.  She says its under control. but I am concerned about that spread.  Damn

i was so sad to hear about Helen/daylady, whose symptoms were very similar to my own. God bless her and the rest of you here.

Glad you are okay Cheese!

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