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AnnissaP
AnnissaP Member Posts: 632

I have no idea if what I posted before even made sense lol. (thanks to all the meds). I just got home and will try this again...

The tumor had grown since being found in August. According to the CT scan images they should have been able to cut out a certain-sized wedge and see clean kidney. However, everytime they cut it was still tumor. It went deeper than the images had shown. They had to remove the whole kidney because not much was left after achieving a clear area.

I have walked as much as possible. The nausea was awful yesterday and the worst today. I have taken all of your advice and def appreciate it. I will be honest and say at times the pain has been excruciating. Certain movements are way more painful. It still is not reality that I have lost the kidney.

Thank you all for the encouragement and kind words. It adds strength!!! Every minute and every step is bringing me closer to a normal, healthy life again.

 

Anyone who is currently healing or about to experience this....take all the help and encouragement you can get. We cannot do this alone. All the best to you xo.

Comments

  • kiwi68
    kiwi68 Member Posts: 110
    Hello

    Annisa, glad to hear you are home and recovering.  The pain and nausea will pass.  The fact that they took the whole kidney is a shock, but I am sure in time that will settle with you.   So very glad that you through the worst of it (fingers crossed). 

     

     

  • icemantoo
    icemantoo Member Posts: 3,358 **
    Aneph already

    Annissa,

     

    Your recovery time has arrived.

     

     

    Icemantoo

  • Dsmith23
    Dsmith23 Member Posts: 8
    Annisa

    I’m so glad to hear that everything went well. I’m sorry that you are having pain and nausea. Thinking of the pain terrifies me. I’m ready to have mine done and behind me!

  • Wehavenotimeatall
    Wehavenotimeatall Member Posts: 488
    Annissa

    You are doing amazingly well  after your very tough ordeal

    The first Seven days are tough so hang in

    Now you are home you will be able to relax a little

    I know it has been tough but hopefully you will be feeling calmer now that the whole thing is gone

     

    Hugs

    Annie

  • AnnissaP
    AnnissaP Member Posts: 632
    Dsmith23 said:

    Annisa

    I’m so glad to hear that everything went well. I’m sorry that you are having pain and nausea. Thinking of the pain terrifies me. I’m ready to have mine done and behind me!

    Dsmith23

    When is your surgery???

  • AnnissaP
    AnnissaP Member Posts: 632
    I am def more relaxed and

    I am def more relaxed and comfortable at home. Thx for the message!

  • APny
    APny Member Posts: 1,995
    edited November 2017 #8
    Hang in there. The pain will

    Hang in there. The pain will definitely lessen. The first week is the toughest, especially getting in and out of bed. So sorry you had to lose the kidney but if he couldn't get clear margins that would have been way worse. You'll be so much better being home. Keep well!

  • randyradiohill
    randyradiohill Member Posts: 67
    It gets much easer...

    I'm glad you're home and on the mend. The pain meds made me nauseous too, so I wouldn't take them.  You'll feel much better, just listen to your body and get ready for the fatigue.  It has taken me a couple of weeks to get my energy back.  You'll do just fine....

  • foxhd
    foxhd Member Posts: 3,181
    I cannot stress enough

    that there is no advantage to pushing yourself too soon. Be kind and patient with yourself.

  • sandy23
    sandy23 Member Posts: 143
    So glad that you have this

    So glad that you have this surgery behind you!!  Being a worrier myself, I know how hard it has been.  Please get plenty of rest!!

  • ImNotDeadYet
    ImNotDeadYet Member Posts: 244
    edited November 2017 #12
    Glad you're home!

    And listen to Fox, and don't push too hard. As my favorite musician used to sing, "All good things in all good time." You've got this! 

  • Canadian Sandy
    Canadian Sandy Member Posts: 716
    Glad it’s all over. Get lots

    Glad it’s all over. Get lots of rest and exercise as much as you can.

  • foroughsh
    foroughsh Member Posts: 779
    The worst part is over,

    The worst part is over, wishing you speedy recovery

  • Jan4you
    Jan4you Member Posts: 1,327
    edited November 2017 #15
    Whew!! Glad its over and you

    Whew!! Glad its over and you are home and not on hospital staff's schedule!

    Have you tried ice?  ICE< ICE ICE~ And I used that lumbar wrap to hold and supportthose aching, sore abdominal muscles/tissues

    It helped me get UP from sitting and laying down. 

    And I wonder if some of this pain is also related to that trapped gas.

    Yes, that hurts, a lot! BUT its gas and it will leave ...takes a few days unfortunately. 

    First week is a challenge.

    Sorry you lost your kidney, but now you have your LIFE!

    Cancer goes with that kidney was my mindset!  I'm nearly 4 years NED.

    Sending you healing hugs, kindness .. but please do not rush this recovery. 

    Jan

     

  • Angiebby75
    Angiebby75 Member Posts: 208
    edited November 2017 #16
    Wishing you a speedy recover.

    Wishing you a speedy recover. I have had a lot of nausea also. I ended up losing my entire kidney also. So I understand how your feeling. Your post and give me encouragement and have a better outlook

  • Supersum
    Supersum Member Posts: 109
    edited November 2017 #17
    Good you are home

    Hello AnnissaP it must be good to be home you can relax and breathe deeply and start the long and gentle road to recovery, little by little, step by step, no need to push too hard.

    Most ongoing pain for me (well over 4 weeks) was getting in and out of bed. You might have already read my post about it but here is the link in case you haven't.

    https://csn.cancer.org/comment/1601244#comment-1601244

    Try to think smart if you are having pain with other movements, think what you can do to minimise the pain. Have you sneezed yet? It's a killer. Press down in preparation, same for a cough.


    You also might be interested in reading my comment here where I come out of the PTSD-closet (is there such a thing?):

    https://csn.cancer.org/comment/1604042#comment-1604042

    Just by waking up each day you are further along the road to recovery as time weaves its healing magic. You are over the difficult part now things will start to get better.

    Bless you for a speedy recovery.

  • daisybud
    daisybud Member Posts: 521 **
    Wishing

    You a quick recovery!

  • AnnissaP
    AnnissaP Member Posts: 632
    Supersum said:

    Good you are home

    Hello AnnissaP it must be good to be home you can relax and breathe deeply and start the long and gentle road to recovery, little by little, step by step, no need to push too hard.

    Most ongoing pain for me (well over 4 weeks) was getting in and out of bed. You might have already read my post about it but here is the link in case you haven't.

    https://csn.cancer.org/comment/1601244#comment-1601244

    Try to think smart if you are having pain with other movements, think what you can do to minimise the pain. Have you sneezed yet? It's a killer. Press down in preparation, same for a cough.


    You also might be interested in reading my comment here where I come out of the PTSD-closet (is there such a thing?):

    https://csn.cancer.org/comment/1604042#comment-1604042

    Just by waking up each day you are further along the road to recovery as time weaves its healing magic. You are over the difficult part now things will start to get better.

    Bless you for a speedy recovery.

    Thank you for the kind words.

    Thank you for the kind words. The bed part IS the killer. Wow! I will read your posts. You are right about the ptsd part. Our bodies heal, but what about the mental and emotional aspect? For me, reality still hasn't settled in. Kidney cancer. Surgery. Yeah right!?! It is all too crazy. So good of you to bring that up in conversation. You could really help a lot of ppl. Thanks again.

  • AnnissaP
    AnnissaP Member Posts: 632
    edited November 2017 #20
    Laughing

    Holy sh*tballs!!! Laughing is so painful. How do you not laugh though when something is soooo funny? Everytime you think about it you crack up. Man is it hard!!!! Lol. I hope I never sneeze :-o

  • rdoyd2
    rdoyd2 Member Posts: 80
    edited November 2017 #21
    Sneezing is hard too. The

    Sneezing is hard too. The laughs hurt but man they made me feel good. you feel a lot better in a couple weeks.

  • Angie1496
    Angie1496 Member Posts: 154
    AnnissaP said:

    Laughing

    Holy sh*tballs!!! Laughing is so painful. How do you not laugh though when something is soooo funny? Everytime you think about it you crack up. Man is it hard!!!! Lol. I hope I never sneeze :-o

    Two days after my surgery I

    Two days after my surgery I felt a sneeze coming on... I went into full panic mode!!! I think God stepped in and made it stopped because it passed but MAN was I freaking out!!!  You are right laughing is painful!!

  • Supersum
    Supersum Member Posts: 109
    Hope things are going well

    Hello Annissa how are things going have you been going on any walks outside yet?

  • love_of_my_life
    love_of_my_life Member Posts: 77
    Hope you get well soon!

    Hope this recovery period is short and you are back on your feet in no time!

  • Rockspin
    Rockspin Member Posts: 77
    Glad you're home and now are

    Glad you're home and now are on the mend also thanks for the update. I had my right kidney out on September and the pain meds made me sick so I stopped taking them it helped. To DSmith 23 good luck to you. Hope all goes smoothly and that you're on the mend soon.

  • AnnissaP
    AnnissaP Member Posts: 632
    edited November 2017 #26
    Hi all!! Sorry I disappeared,

    Hi all!! Sorry I disappeared, but have been back to the hospital since Sunday. I was really weak and light headed. Passed out on Sat so ended up in this lovely place again lol. I was dehydrated. They did a thousand tests and everything is fine! I have been walking and feel back to life today. I should after having around 8 bags of IV fluid lol. Thank you for all of the comments and well-wishes! Will any of this ever seem real? For some reason I feel a bit anxious to get the results. Already had a shocker finding all of this out so who is to say another shock isn't in store?? Ugh...I hope it is a "good" shock xoxo.

  • randyradiohill
    randyradiohill Member Posts: 67
    edited November 2017 #27
    I know the feeling

    I know that anxious feeling very well.  My path report wasn't what I expected and it threw me for a loop.  You'll feel much better once you get the report and know what you'll be dealing with.  Make sure you drink lots of water and eat something even though you're probably no hungry.  I lived on chicken noodle soup and scrambled eggs for the first week out of the hospital.  It was 2 weeks before I even felt I could eat anything at all.  Get lots of rest...Ill keep you in my prayers.

  • Wehavenotimeatall
    Wehavenotimeatall Member Posts: 488
    AnnissaP said:

    Hi all!! Sorry I disappeared,

    Hi all!! Sorry I disappeared, but have been back to the hospital since Sunday. I was really weak and light headed. Passed out on Sat so ended up in this lovely place again lol. I was dehydrated. They did a thousand tests and everything is fine! I have been walking and feel back to life today. I should after having around 8 bags of IV fluid lol. Thank you for all of the comments and well-wishes! Will any of this ever seem real? For some reason I feel a bit anxious to get the results. Already had a shocker finding all of this out so who is to say another shock isn't in store?? Ugh...I hope it is a "good" shock xoxo.

    Hang In

    Great to know all well except your slight diversion

    Terrible ordeal waiting on the report

    Hope it is not too much longer

    Keeping it postitive

  • AnnissaP
    AnnissaP Member Posts: 632
    Thanks! It is hard to drink

    Thanks! It is hard to drink so much when I am used to being dehydrated my whole life ahahaha. So important though. I cannot remember if you posted your results but I hope everything is ok!

  • randyradiohill
    randyradiohill Member Posts: 67
    AnnissaP said:

    Thanks! It is hard to drink

    Thanks! It is hard to drink so much when I am used to being dehydrated my whole life ahahaha. So important though. I cannot remember if you posted your results but I hope everything is ok!

    Not as good

    My path report wasn't as good as we'd hoped.  The tumor had broken containment and was starting into the renal vien.  It diagnosed as a T3a...The good news is the margins were negative as was the fatty tissue around the tumor and nothing in the lymph nodes.  My surgeon is optimistic, but I'm still a little anxious.  I had my sit down meeting  with him yesterday and he showed me a study from Sloan-Kettering in New York which puts recurrance at 8%.  Hope your's is better.

  • AnnissaP
    AnnissaP Member Posts: 632

    Not as good

    My path report wasn't as good as we'd hoped.  The tumor had broken containment and was starting into the renal vien.  It diagnosed as a T3a...The good news is the margins were negative as was the fatty tissue around the tumor and nothing in the lymph nodes.  My surgeon is optimistic, but I'm still a little anxious.  I had my sit down meeting  with him yesterday and he showed me a study from Sloan-Kettering in New York which puts recurrance at 8%.  Hope your's is better.

    Sorry to hear that! It does

    Sorry to hear that! It does sound positive though (easy for me to say). Sounds like they got it just in time. Although it broke containment, everything was clear. Also, 92% chance of never coming back!!!!!! I should have my results on Nov. 28th.