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mental and physical exhaustion after surgery

Tucdon
Posts: 19
Joined: Jun 2017

    I had surgery to remove my right kidney 5 weeks ago, and now t seems i am tired all the time and if  try an use my mind to for a while I get disoriented and extremely tired. I have pains but I figure they come with the surgery hopefully my Dr. s correc twhen he says they will get better. My right testicule is the worst. I am a service technician so the mind thing conerns me.Hope sme one can give a clue.

icemantoo's picture
icemantoo
Posts: 3260
Joined: Jan 2010

Tucdon,

 

I had just turned 59 when I was nephed almost 15 years ago. At 5 weeks and over 60 you are going to take a little longer than 5 weeks to recover. On the bright side I water skied 11 months later for my 60th birthday.

 

 

Icemantoo

Tucdon
Posts: 19
Joined: Jun 2017

Thanks for the support, it is nice to hear from someone else.

 

Tucdon
Posts: 19
Joined: Jun 2017

   Can't wait till I get where your at. Did you get back to work soon after surgery?

Steve.Adam's picture
Steve.Adam
Posts: 460
Joined: Oct 2016

I had my right kidney removed in February this year.  I was quite tired at first but got progressively better.  i was pretty much OK after 2 months.  I didn't have too much mental tiredness.  My right testicle was no longer sore after about a month but is still larger then the left.

Steve.

Tucdon
Posts: 19
Joined: Jun 2017

  Thanks Steve,

    I know I am trying to push it but sometims it just don't seem like I'm going anywhere.I'm still doing the breahting machine to try and keep my oxygen levels up. Hoping that would keep me more cognitive.  Thanks

Steve.Adam's picture
Steve.Adam
Posts: 460
Joined: Oct 2016

It sounds like your recovery is slower than mine was. My only suggestion is to eat good quality food and take things slowly while still tired.

Steve.

Jan4you's picture
Jan4you
Posts: 1325
Joined: Oct 2013

Sorry to hear about your struggles, Tucdon. Sometimes it can be the side effects of meds, including GENERAL anethesia which takes it time to be fully eliminiated. Sometimes we are more sensitive in processing our medications (not just pain meds) if you have a sluggish liver and now your one kidney.

BUT you could be anemic. If you are, it makes you really tired and sluggish too. Ask to have your iron checked. They sell Slow FE over the counter. I had to ask my surgeon to check my iron even though he thought I should be fine. It was low. 

This too shall pass. Make sure you are getting proper nutrients into your healing body as well.

Sending you healing vibes and hugs, 

Jan

Tucdon
Posts: 19
Joined: Jun 2017

   Thanks Jan,

     I am taking an iron supplement, and l am using the breathing exerciser making sure my oxygen els stay up. I know my age is a factor but I have a hard time adjusting to the mental part of getting so tired so quick. I am taking minimal meds no pain killers.   Thanks for huggs and Vibes                                                                                               Thanks again Don

Dutch1's picture
Dutch1
Posts: 152
Joined: Mar 2014

For me, sleeping in the afternoon was a normal thing for weeks after surgery.  This eventually went away for me after a while.  Your surgery will likely leave you with some long term limitations as compared to what you could and could not do before the surgery.  Those mystery abdominal pains will eventually go away, too.  Although, for me, that was a slower process.  It isn't a quick recovery.  Try to take your time.

Dutch

Tucdon
Posts: 19
Joined: Jun 2017

  Thanks Dutch,

    I maybe fighting the nap because I was  trying to get myself in my lf routine ,Dumb.I think I am realizing that it is  a process a long process.

 

Jan4you's picture
Jan4you
Posts: 1325
Joined: Oct 2013

Hi Don! Glad to hear you are on an iron supplement. My concern is if you are getting enough nutrients needed for healing. Try PROTEIN smoothies with fruit and veggies, but make sure you are adding protein to drink. AND no, you wont even taste the veggies. 

And are you exercising by walking? Sleeping ok? 

I would NOT blame everything on age. Rather it could be do to being de-conditioned. I have had 4 abdominal surgeries with multiple medical conditions that surgery could complicate my recovery.  I didn't not have the severe lack of energy, but that's me. Trust me, I am grateful. 

Not that we need to know, but I wonder if you are worried about anything, or anxious perhaps. THAT can zap your energy too.

Healing vibes and gentle hugs,

Jan

Tucdon
Posts: 19
Joined: Jun 2017

W    Jan, your right I have stuff on my mind ... ie regular life stuff, but I am trying to put it all on the back burner.

Retcenturion's picture
Retcenturion
Posts: 240
Joined: Mar 2017

Hey Don..a little younger and just alittle futher from surgery than you. The swelling took about a month to get back to normal for me. There is a recent thread on this topic that you might want to look up about the swelling. I have found that if I have a poor night of sleep I fade during the day..if I can fit it in I lay down for a bit. At 6 weeks surgeon said to continue what I did pre op and listen to my body if something is feels  wrong dial it back. Hope this helps.

Tucdon
Posts: 19
Joined: Jun 2017

 Thanks for the reply, it is hard to get a nights sleep but when I do it does make a differance,the nap thing I do when I get tired. I'm trying to get back in my routine as best I can. I was wondering if you could tell me where to find the article on the swelling issue. I guess my body and mind needs to get on the sam page huh.

icemantoo's picture
icemantoo
Posts: 3260
Joined: Jan 2010

Tucdon,

 

Most of the swelling goes down by the end of the first year. I still have what is left od a love handle after almost 15 years.

 

 

Icemantoo

Steve.Adam's picture
Steve.Adam
Posts: 460
Joined: Oct 2016

Use the keyword search feature to track down older posts that might interest you.

Maybe try 'testicle' or 'swelling'.

Steve.

foxhd's picture
foxhd
Posts: 3183
Joined: Oct 2011

have had a major organ removed, it is fair to say you never saw the train that hit you coming. Now you know what it is like. There is a wide range of  variables each of us encounter. No one and no procedure is the same. There are so many physiological adjustments to be made it is best to be patient and deal with the impact as you find the new you. It hasn't been that long. The questions I would ask are, "What was your pre-neph fitness level? Are your expectations reasonable?"  It always takes time. 90 days with rehab, 3 months without. Until more time goes by, no big deal.

Tucdon
Posts: 19
Joined: Jun 2017

    Thanks Your are right is a whole different hit than anyone I have had up to this pin. Before surgery I was working ten hours a day and working aroun the house. It just seems now that my mental and physical stamina go away quick and I hope it wil get better as time goes on.

 

beemurguia's picture
beemurguia
Posts: 57
Joined: Mar 2017

Hello there...Im 5 weeks post neph and feel exhausted too!!! My energy levels are low but apparently also from being anemic.  Lost a lot of blood during surgery almost required a transfussion...so make sure your not anemic.  Some surgeries can involve a lot of blood loss and it takes a while to build up your hematocrit levels.  I have to take Iron supplements for now.  Good luck and take it easy.  

Tucdon
Posts: 19
Joined: Jun 2017

 Yeah they said that they almost lost me due to a thieman loss,so now I'm taking vitamin 12 complex. I lost the first seven days after the surgery. My mental and physical stamina seem to go away quick nd at the same time. It is also hard to oncentrate on things but it s getting better. hope all goes well with you.I am five weeks out myself but it s getting better every day.I do take an Iron supplemet as well.

DreamOnDeb
Posts: 112
Joined: May 2017

Hi Tucdon.  Would you mind sharing what type of kidney cancer you had?  Was it transitional cell carcincoma?  I'm praying you feel better soon.

Tucdon
Posts: 19
Joined: Jun 2017

 HI DEb,

  Yes it was transitional cell renal pelvic carcinoma early stage they said I would have like atwo year window it may come back .

 

DreamOnDeb
Posts: 112
Joined: May 2017

Thanks for replying, Tucdon.  My husband has to have a biopsy to determine if it is transitional cell or renal cell.  If it is transitional cell, his entire kidney, plus the ureter, has to be removed.  If it's renal cell, they can do a partial nephrectomy.  From what I understand, transitional cell carcinoma acts more like a bladder cancer rather than a true kidney cancer, so there's a possibility that this type of cancer can come back in the bladder.  It may never recur though, especially if it's caught early.

Tucdon
Posts: 19
Joined: Jun 2017

   Hi  Deb,

    Hope ur husbands comes out ok, it is just a little hic cup in the whle scope of things.The main thing is to ust keep praying and do what the doctors say. It is a schock when the c word hits home not only for him but everyone involved.

 

DreamOnDeb
Posts: 112
Joined: May 2017

Thanks, Tucdon!  The waiting and wondering is horrible.

JerzyGrrl's picture
JerzyGrrl
Posts: 760
Joined: Jun 2016

I found that being at home alone did weird things to my ability to focus and think clearly. Being exhausted also impacted that. Of course, getting out of the house, especially getting into the out-of-doors (whee!), was a great help towards my mind functioning better, but it was also a big energy (which I didn't yet have) drain as well.

It does take time, but you'll get there.

Tucdon
Posts: 19
Joined: Jun 2017

  Hi,

   I went back to work yesterday afer about 7 weeks. I was doing pretty good buti hit the exhaustion level at abot noon today both mind and physical scary but I took a rest and like you said when I got home to the country I got betterThaks

Steve51
Posts: 23
Joined: Oct 2016

It's never easy, but the tough times pass. In 2006 they took my left kidney, I was 54. After 5 weeks, I was still hurting and scared. The 10th week I was back to work. After 12 weeks, I felt reasonably normal and living normal. Hang in there. There some much good information here.

Tucdon
Posts: 19
Joined: Jun 2017

7  weeks went work yesterday and today,I hit the wall though went weak though both mentally and physically. It is getting beter everyday.

Thanks for you come back

todd121's picture
todd121
Posts: 1425
Joined: Dec 2012

It took months for me to feel normal. I went back to work after 6 weeks, but I got extremely tired by 4-5pm. I think the body takes a few months to adjust. Your outside heals faster than your insides. My theory is that it takes awhile for your body to get adjusted to the 1 kidney. Up to a year I had weird symptoms. I had something like vertigo a few times. I had numbness on my abdomen that is still there (but got better over time). I had tiredness for 3-4 months. I just didn't feel good for a long time.

I've heard transitional cell responds to more traditional chemo like bladder cancer and that treatments that are available may be more effective at getting rid of it.

Wishing you the best,

Todd

Iggyrip
Posts: 43
Joined: Sep 2016

Hi Tucdon, I had my right kidney removed in October of 2016. It was rough for the first month but little by little, I gained strengh. I did not have mental exhaustion, but I went into a depression which lasted for three months or so. It took some time to get over every thing and return to my life. You will get stronger. You just go to give it time.

Best wishes on your recovery.

 

Iggyrip

 

Ktmg
Posts: 24
Joined: Feb 2017

I was supposed to recover in 72 hours,and it took me about two weeks. We all heal at our own rate, and your body is trying to get you to slow down.

If it feels unnatural, talk to your doctor. At least you'll have an idea if another patient has has a similar issue.

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