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What cancer patients, their families, and caregivers need to know about COVID-19.

My Turn

JTgreybeard's picture
JTgreybeard
Posts: 22
Joined: Mar 2017

Well Tuesday is my turn.  I am having a Robotic partial right side.  I want to thank all of you who have shared your journey with us.  They have helped answer lots of questions and  taken a little of the fear "of the unknown" away.  I think I know a little better what to expect.  Still having lots of emotions but I will get thru this thing with God's help.

ambava33's picture
ambava33
Posts: 74
Joined: Feb 2017

I will be two weeks post surgery tomrrow and I am doing pretty darn good at this stage in my recovery. My first week was a little rough, but not to bad. I wish you well and keep the faith, it will all workout just fine. 

Bay Area Guy's picture
Bay Area Guy
Posts: 391
Joined: Jun 2016

I had the exact same surgery in the exact same spot.  You'll do great!  Just remember to walk when they say walk.

Best wishes.

daisybud's picture
daisybud
Posts: 470
Joined: Jan 2016

Same surgery as I had too. Not as bad as I thought.  Just keep walking like Guy said. Makes a huge difference in how you feel.  

Best wishes ,

Kim

Allochka's picture
Allochka
Posts: 888
Joined: Nov 2014

Will keep fingers crossed ! Don't forget about breathing exercises after surgery to avoid pneumonia

GregP
Posts: 22
Joined: Mar 2017

JT....good luck to you....ill be right behind you...mine is scheduled for the 26th....can't wait to get this alien out...kick its *** brother!

 

Max57's picture
Max57
Posts: 165
Joined: Mar 2015

Good luck!

sandy23
Posts: 143
Joined: Jan 2017

on Tuesday.  You will just fine.  My husband walked 2 miles the day after his surgery.

Please update us when you have the chance.

BoondockSaint's picture
BoondockSaint
Posts: 242
Joined: Mar 2017

Go get em JT. You'll do just fine and will be back on here in no time telling us how well you feel.

Steve.Adam's picture
Steve.Adam
Posts: 460
Joined: Oct 2016

I hope it's a 100% positive experience for you.

Steve.

stub1969's picture
stub1969
Posts: 821
Joined: Jul 2016

It will be over before you know it.  Good luck, JT.

Stub

CRashster's picture
CRashster
Posts: 230
Joined: Mar 2017

I know a guy that had a radical six years before mine, I looked to him for advice. He described it best when he said "It's bad, but it isn't horrible". He was right.

APny's picture
APny
Posts: 1972
Joined: Mar 2014

All the best to you tomorrow. Mine was open partial and still wasn't nearly as bad as I had feared. As said, walk as much as possible, as soon as possible. And do use the breathing apparatus. Take a small pillow with you to hold against your incision if you need to cough, sneeze, or laugh. It also comes in hand for the ride home to put under the seat belt so it doesn't rub.

lobbyist0724's picture
lobbyist0724
Posts: 401
Joined: Sep 2016

My fear was 100x worse than my open surgery. With all the recent successful stories, I hope they give you the confident. I would suggest that you should plan ahead on what to do after the surgery now and recovery! Again, you will be fine :)

Carmen

JTgreybeard's picture
JTgreybeard
Posts: 22
Joined: Mar 2017

Already have my 6month celebration plans.  Already booked a cruise.  Now just have to recover so I can enjoy it.  

hardo718's picture
hardo718
Posts: 853
Joined: Jan 2016

are typically WAY worse than actual event.  That's the good news.  You can expect to be moving at a slower pace but fear not, given a few weeks you'll look back on it like a bad dream.  It'll be part of your past and you'll have a new sense of priorities.

God bless & best wishes,

Donna~

JTgreybeard's picture
JTgreybeard
Posts: 22
Joined: Mar 2017

Thank you all for your words of support.   Heading to the hospital now.  I will give updates once I am able.   Again thanks for all the support.

ambava33's picture
ambava33
Posts: 74
Joined: Feb 2017

Thinking and praying for you this morning! You will do great!

foxhd's picture
foxhd
Posts: 3183
Joined: Oct 2011

once in a lifetime experience. Sit back, do what you are told and expected to be able to do. Keep your eyes open and let the pros lead the way. I think it is funny when patients act like no one is paying attention to them. Often the reality is that it takes time to recover. Patients are being carefully monitored and all do fine. As long as there is no distress, pace yourself, walk often and stay hydrated. It's going to be a marvelous summer.

sandy23
Posts: 143
Joined: Jan 2017

Sending thoughts and extra prayers your way!!  Update us when you can.

Jan4you's picture
Jan4you
Posts: 1324
Joined: Oct 2013

JT glad you found us! Now I know you are already having your surgery or in recovery at the time I am writing this, but know, in spirit I am with you! Sending you healing vibes with a gentle hug!! Hope to hear from you when able to write us!

Jan

pepper43's picture
pepper43
Posts: 16
Joined: Dec 2016

Take it easy, put a pillow over your abdomen before you sneeze and laugh and pay attention to dr's orders. I had a full robotic nephrectomy. I'd say toughest part was 2 day hospital stay (I hate hospital beds!), but they had me on a push button morphine so it was a blur. It's the first week or so at home that'll be the roughest. 

Deanie0916
Posts: 262
Joined: Nov 2016

I am sure you will do fine, take teh expert advice of all the above lovely folks. Prayer for you and your family...hugs too. 

todd121's picture
todd121
Posts: 1425
Joined: Dec 2012

It's going to go well. Please let us know.

Todd

JTgreybeard's picture
JTgreybeard
Posts: 22
Joined: Mar 2017

Its two days post-surgery and I want to share my story.  Back in October 2016 I had bad lower left side cramps.  My doctor sent me for a CT scan to confirm diverticulitis and to make sure I did not have a blockage.  This CT scan found a 11 mm solid, enhancing mass in the lower pole of the right kidney represents a Bosniak 4 lesion and is highly concerning for renal cell carcinoma. Recommend urologic referral for further evaluation and management.  My urologist told me that it was small and that renal masses tend to grow slowly.  He recommended we give it a few months for my gut to heal and then do another CT scan.  On Feb 10, 2017 I had another CT scan done with contrast.  Results: Subtle lesions seen in the lower pole of the right kidney medial. It measures approximately a centimeter and I believe it enhances with contrast material. This is consistent with at least a Bosniak class IV lesion and is suspicious for a primary renal malignancy.  When reviewing this with my Doctor it was decided that he would remove this using robotic assisted surgery.  That surgery was performed on Apr 11, 2017.  He spend over 3 hours on this surgery and consulted 2 other urologist during the surgery.  He used the internal ultrasound directly on my kidney to locate tumor.  He did not find it.   God had already healed me and removed this tumor before the surgery.  Praise be to God.   I spend lots of time praying and my Christian friends prayed as well.  God answers prayers.  I have seven places in me were the robot was inserted and am very sore but I AM CANCER FREE.   GOD IS GOOD!!!!! 

rhominator's picture
rhominator
Posts: 233
Joined: Nov 2015

Amen!

lobbyist0724's picture
lobbyist0724
Posts: 401
Joined: Sep 2016

You are blessed! I am so so happy for you, that is the most wonderful news I have seen here for the past 9 months!

Party time and enjoy!

Carmen

BoondockSaint's picture
BoondockSaint
Posts: 242
Joined: Mar 2017

Cool

Good news!!! Good news!! Now just concentrate on getting back up to speed.

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