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Radiation on my neck

Lou Ann M's picture
Lou Ann M
Posts: 996
Joined: Feb 2015

i saw the radiaction oncologist today and will be starting radiation on Monday.  They did both the consultation and planning session both today so we wouldn't have to drive back another time this week.  Looks like it will be for 15 times.  They made me a mask to wear to keep head in one place and did a CT scan so they can plan.  I have never thought that I was closterphobic , but I guess I am. Being pinned down with the mask on my head and being stuffed into a CT scan machine sent me into a wild panic.  All I could do was scream for help and no one came for a while.  The technician finally came and ask if  I could stand it for 20 more second.  Those were the longest 20 seconds of my life.  For the,radiation on Monday they are going to cut eye, nose, and mouth holes, and I won't have to go into into the CT scan so maybe I can make it.  My daughter and a good freind both suggested that I ask for sedation or an anxiety med before.

Lou Ann

Nellasing
Posts: 529
Joined: Oct 2016

Lou Ann- you poor thing!!!  That made me hold my breath and started my heart pounding just reading that!  I am SO SO SORRY you had that happen and I hope that they give you something to help with that feeling in addition to the holes they are going to put in it- I can't understand why they didn't come right away when they heard you!  That isn't right- someone should come and at least let you know they haven't disappeared and that they heard you for pete's sake! 

We will sure be thinking of and holding you up in prayer on Monday- will they be 15 consecutive or????  Big ole (((HUGS))) coming your way- keep us posted <3

MAbound
Posts: 785
Joined: Jun 2016

I had no idea that's what you'd be facing with this type of radiation. I am amazed that they thought anyone could go through a CT with that kind of thing on. You'd think that they'd have some experience and would've known to cut the holes first and to offer some sedation before proceding. It just sounds inhumane what they put you through. When I had an MRI last year, they gave me a panic button to hold to let them know if I was freak'n and I wonder why they couldn't have given you something like that? Wow, just wow!  What time are your treatments scheduled for?  I want to be there, at least in spirit, when you start going through this next week. Visualize me holding your hand and praying with you and we'll do what we can to get you through this.

Hugs, 

Pat

MAbound
Posts: 785
Joined: Jun 2016

Hoping that today was easier than you were thinking it was going to be. ((LouAnn)). 

Editgrl's picture
Editgrl
Posts: 903
Joined: Jun 2015

Absolutely ask for some anti-anxiety meds.  This is one of those cases where it is absolutely appropriate.  No reason you should have to go through that kind of panic.

NoTimeForCancer's picture
NoTimeForCancer
Posts: 2522
Joined: Mar 2013

Lou Ann, I had never thought about how they do radiation to the head and neck until I started to read about it a few years ago.  I wondered if I would feel like you did and could see it is very possible.  I have no doubt you will ask them for something to help you relax or sedate.  You are in my prayers.  

TeddyandBears_Mom's picture
TeddyandBears_Mom
Posts: 1478
Joined: Jun 2015

Lou Ann, I agree with the others. Please ask for an anti-anxiety med... I panic even with covers over my head so I can only imagine what you went through. I hope the procedures are better with the holes and MEDS!

I'll be thinking of you LouAnn. Feel the hugs from all of us.

Love and Hugs,

Cindi

cindy0519
Posts: 173
Joined: Nov 2015

I agree with your family and others....ask for and take something to help relieve your anxiety. VERY warranted and no reason to "tough it out" despite feeling like you should.  Your in my prayers!

Soup52's picture
Soup52
Posts: 888
Joined: Jan 2016

Oh Lou Ann I'm so sorry!! Yes, ask for anti anxiety meds for sure.

janaes
Posts: 724
Joined: May 2016

Im sorry for the tough time you had.  Im hoping they give you a panic botton when they do it next time.  I had that for my MRI.  If you have to do it 15 times i would want you to be as compfortable as posible. 

Kvdyson's picture
Kvdyson
Posts: 789
Joined: Jan 2016

I agree with everyone's post and you may also want to ask them ahead of time whether there is anything you can do to help mitigate some of the side effects of the actual treatments. My neighbor had radiation in the same area and experienced some short-term radiation burns in the area which made it hard to swallow for a little while. Hopefully your experience will be better since radiation treatments have come a long way these last few years but it's better to be safe than sorry. Good luck to you and know that I'm sending out positive thoughts and vibes your way! Kim

janaes
Posts: 724
Joined: May 2016

After I saw kims recent post it made me think about my cancer I had 20 years ago.  I did have radiation on my neck.  I did have trouble swallowing after words and they gave me a persciption that mumbed the inside of my throught and it made it feelbetter for a short time. It was something I drank and it made it a bit easier to eat. Maybe you wont have the side effects though because i had 20 daily treatments if i remember right.  It was at least that much.  It sounds like yours will be less.

Kvdyson's picture
Kvdyson
Posts: 789
Joined: Jan 2016

Lou Ann, I'm thinking about you today and hoping that your treatment went well! Kim

Lou Ann M's picture
Lou Ann M
Posts: 996
Joined: Feb 2015

Had another panic attack when they put the mask on and tightened it up.  I now have anxiety meds t take an hour before treatment.  We will try again tomorrow.  Lou Ann

Nellasing
Posts: 529
Joined: Oct 2016

You'd think in this day and age they could make this something less resembling torture - so sorry Lou Ann- keep us posted- we'll be praying  (((HUGS)))

janaes
Posts: 724
Joined: May 2016

Im glad you got the new medications.  Hope that works for you tomarrow.  I will be thinking of you

Editgrl's picture
Editgrl
Posts: 903
Joined: Jun 2015

I don't understand why they didn't suggest anti-anxiety drugs after your panic attack last week.  So sorry you had to go through that again.  Hope things are better for you tomorrow.

NoTimeForCancer's picture
NoTimeForCancer
Posts: 2522
Joined: Mar 2013

Ditto to Chirs' comments.  Thinking of you Lou Ann!

Soup52's picture
Soup52
Posts: 888
Joined: Jan 2016

Prayers Lou Ann!

MAbound
Posts: 785
Joined: Jun 2016

I am so sorry that you are still having such a hard time Lou Ann. I googled images of face masks for neck radiation to get a better idea of what it is you are dealing with and can't believe that anti-anxiety meds aren't SOP for undergoing this. I hope that the meds help you and that the actual time you have to endure wearing the mask is very brief, but understand even just the setup for each dose is not going to be easy for you. You are the strongest woman on this board with all you have already been through. Please just close your eyes during this and think of the good days you've had during earlier treatments....go to your happy place....anything but focusing on what's scaring you, as hard and impossible as that probably sounds right now. Sending my prayers and strength that this will get better for you.

TeddyandBears_Mom's picture
TeddyandBears_Mom
Posts: 1478
Joined: Jun 2015

LouAnn,

I agree with our other friends!

Hope tomorrow brings you to a calm place and that you get through the procedure with no issues.

We are right there with you!

Love and Hugs,

Cindi

Lou Ann M's picture
Lou Ann M
Posts: 996
Joined: Feb 2015

i took the prescription for an an hour bebire the treatment started and all went well.  They also played country hymns and that also helped.  The therypists were  very aware of the problem and some things set up ahaed of time so it didn't take as long as it could have.  Thanks for prayers and thoughts 

Lou Ann

Kaleena's picture
Kaleena
Posts: 1913
Joined: Nov 2009

Lou Ann,

Happy to hear that everything went well this time.  Hugs and prayers,

Kathy

TeddyandBears_Mom's picture
TeddyandBears_Mom
Posts: 1478
Joined: Jun 2015

Congrats! My previous post was a day late I guess.  So glad you made it through. I hope the side effects are very minimal for you.

Take Care.

 

ConnieSW's picture
ConnieSW
Posts: 1407
Joined: Jun 2012

so glad you got through it, Lou Ann.  You are an inspiration for me.

MAbound
Posts: 785
Joined: Jun 2016

I'm sure it still wasn't easy, but I hope knowing you got through it today will make each successive treatment that much easier for you. Congratulations! Still keeping you in my thoughts and prayers every day that putting yourself through this accomplishes what its supposed to.

CheeseQueen57's picture
CheeseQueen57
Posts: 770
Joined: Feb 2016

Best news Lou Ann. Little things make such a difference. 

Nellasing
Posts: 529
Joined: Oct 2016

So glad your team finally got on board and fixed  things so it didn't take as long and that the meds worked.  Music is such an amazing thing and I have no doubt it helped bring you peace.  Continued prayers and warm (((HUGS)))

Soup52's picture
Soup52
Posts: 888
Joined: Jan 2016

Great news Lou Ann! I hope it will continue through your treatments!

ConnieSW's picture
ConnieSW
Posts: 1407
Joined: Jun 2012

Did you tell us what your schedule is?  Do hope it gets easier.  As MAbound did, I googled the masks.  Ugh!

Kvdyson's picture
Kvdyson
Posts: 789
Joined: Jan 2016

So glad to hear it, Lou Ann. Let us know how you're feeling now that the treatments have started and if there is any support we can provide to you. Sending positive vibes your way!

janaes
Posts: 724
Joined: May 2016

Im glad Lou Ann.  Thanks for sharing your updates.

Lou Ann M's picture
Lou Ann M
Posts: 996
Joined: Feb 2015

Only 2 more radiation treatments to go.  The meds are helping and I am listening to country hymns while I am pinned down.  Luckily it does not last too long.  They say I can take my mask along on the last day.  Not sure what I will do with it except to remind me never to complain about chemo again.  No side effects yet,but they say it takes awhile for the radiation to start working and that I might get a rather sore throat.  The meds make me sleepy so I sleep most of the way home and then most of tha afternoon.

Hugs and prayers, LouAnn

henhill's picture
henhill
Posts: 123
Joined: Aug 2016

I am praying for you, Lou Ann.  I had radiation last year and had dislocated one of my ribs during that time.  Oh, the pain of lying there I will never forget!  Two more and done, my friend, and you are a brave soul to keep going back.

Kvdyson's picture
Kvdyson
Posts: 789
Joined: Jan 2016

Lou Ann, you are an inspiration. Only 2 more to go! You can do this!

Nellasing
Posts: 529
Joined: Oct 2016

I am SO GLAD it is easier with the meds and music!  You are doing great  (((HUGS)))

Editgrl's picture
Editgrl
Posts: 903
Joined: Jun 2015

Put in a closet and don't think about it until October.  Glad to hear you are weathering the treatment and getting close to finishing it!

Chris

NoTimeForCancer's picture
NoTimeForCancer
Posts: 2522
Joined: Mar 2013

I agree, Chris.  I am a creative person so I would probably want to paint the mask and hang it somewhere.  I took the (what seems to be) glow in the dark dialators with me after my external radiation.  Joked with my friends that we would make them in to a string of "lights" to hang off the porch!  

SO happy to hear you are getting through this, Lou Ann.  We are all cheering for you.

Soup52's picture
Soup52
Posts: 888
Joined: Jan 2016

So glad the treatments are almost done! You are an inspiration!

janaes
Posts: 724
Joined: May 2016

I feel the way the others do.  glad you are almost done.  Love janae

TeddyandBears_Mom's picture
TeddyandBears_Mom
Posts: 1478
Joined: Jun 2015

Lou Ann - you got this! So glad you are almost done. Please let us know how this impacts you.

I'm looking forward to hearing that all those darn neck tumors are gone.

Love and Hugs,

Cindi

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