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update for a bronscosopy

namedropper
Posts: 102
Joined: Dec 2014

Hi, now that they found breast cancer in the lymph node above my ear I have to get a advanced diagnostic broncosopy on Friday. It is called Super D.  Has anyone had this done? It is done in 3 D and there is a person there that can tell what kind of cancer it is while I am still on the table..  They test it at the time I am getting it done.   All of my doctors's  said that it could be from breast cancer or from MMMT uterine cancer.  They have had people that had both uterine and breast cancer.  I am not a happy camper. I go to the Cleveland Clinic so I know that I am in good hands but for a 75 year young lady that has RA and Sjogrens it is going to be hard.  I have to be there at 7am and the temp will be zero.  My son will take me since I don't have anyone else. He has been wonderful.   I will post on the weekend and let everybody what it is.   Any bets as to which cancer it is?  thanks for all of your kind remarks.  Sue 

 

Soup52's picture
Soup52
Posts: 903
Joined: Jan 2016

Prayers for you! I hope whichever cancer it is it can be taken care of.

EZLiving66's picture
EZLiving66
Posts: 1435
Joined: Oct 2015

Sue, I've never heard of that test - super D, but it sounds great since you don't have to sit around waiting on pins and needles to know what's going on.  Glad you have your son to take you especially in that cold weather.  It's supposed to get really cold here in Green Bay too.

Please keep us updated - will be interesting to see what kind it is!

Love,

Eldri

Kvdyson's picture
Kvdyson
Posts: 789
Joined: Jan 2016

Sue, I am so sorry that you have to go through that test but it sounds like you are in really good hands. Good luck to you and let us know how it goes on Friday. We'll all be thinking of you! Kim

Northwoodsgirl
Posts: 571
Joined: Oct 2009

Sue, You are in good hands as the 3D is the most cutting edge imaging. Some facilities have 3 D tomography for breast mammography. It should produce images easier for the radiologist to read. Will keep you in my prayers! ((Hug)   

TeddyandBears_Mom's picture
TeddyandBears_Mom
Posts: 1685
Joined: Jun 2015

Sue, will be waiting to hear back from you. Have a safe drive in that cold weather and please let us know what you find out. I'm glad you have your son with you for support!  (I had a 3D mammogram in July. It didn't seem any different than the other kind from a procedure point of view.)

Love and Hugs,

Cindi

 

Lou Ann M's picture
Lou Ann M
Posts: 996
Joined: Feb 2015

No waiting sure sounds good.  I have had a 3-D mamogram twice now, but didn't get the results until later.  It is interesting the new technology that is out there.  I am glad you have your son to take to take you.  Traveling in that kind of weather is no fun, but I do like the early appointments.  Our weather is also supposed to end up in the deep freeze with below zero temps by the weekend.  Sending hugs and prayers, Lou Ann

cindy0519
Posts: 173
Joined: Nov 2015

Sending prayers! Waiting on test results always, always, always....STINKS!

namedropper
Posts: 102
Joined: Dec 2014

Hi, everyone. I had to cancel the broncospy for this week. We are getting a bad snow storm on Thurs and Friday so I moved it to next Weds and Thurs. I few  days won't matter I don't think.  I will send a update next week.

DrienneB's picture
DrienneB
Posts: 186
Joined: Aug 2013

Can not guess about the cancer, but wishing you peace as they and you slay one dragon or another.

-j

Nellasing
Posts: 529
Joined: Oct 2016

Good not to be out in the weather when you don't have to.  We'll continue the prayers and wait with you <3  (((HUGS)))

tpiccin
Posts: 6
Joined: Oct 2009

Hey all, I am new at commented but have been reading your stories for a good while.  I personally do not have cancer, but work as a cytotechnologist and have had many many family members with this awful disease.  I added a little about me to my page.  Anyways, I wanted to comment a little on what the "Super D" is about.  First, a specific CT scan is ordered usually by a pulmonologist.  Then, the pulmonologist will decide which pathway to take in order to reach the target (or tumor).  All of that info is saved on a jump drive and transferred to a machine which is similar to a GPS in cars.  The patient lays on a magnetic board and those sticky pads are placed on the the chest of the patient.  These allow the doctor to see where he/she is going when entering the lungs along with a particular leed that is used during the bronchoscopy.  The pulmonologist will navigate into the choosen pathway and try to get about 1 cm or less away from the target.  Fine needle aspirations (FNA), biopsies, brushings and washings can be done. As a cytotechnologist, I get called on these procedures to assess adequacy of specimens.  While I am not a doctor, I have gained the trust of these pulmonologists and our pathologists.  I am not permitted to call malignant or benign or infectious.  However, I can ask for more of the specimen for other testing that may be needed. 

If I can help out in anyway, I will try.  My thoughts and prayers go out to you all.

 

Thanks

Theresa 

Kvdyson's picture
Kvdyson
Posts: 789
Joined: Jan 2016

Thanks for sharing that information, Theresa. It was very informative.

TeddyandBears_Mom's picture
TeddyandBears_Mom
Posts: 1685
Joined: Jun 2015

Theresa, thanks for posting and being interested in what us patients have to deal with. I wish more in the medical profession would read some of the postings. It may help them be better caregivers. I am lucky to have great doctors and nurses but so many have had horror stories.

 

derMaus's picture
derMaus
Posts: 561
Joined: Nov 2016

That's very interesting, and I really appreciate hearing from another perspective. Will look forward to seeing your update on your page.

Editgrl's picture
Editgrl
Posts: 903
Joined: Jun 2015

Your sharing of that information is much appreciated.

DrienneB's picture
DrienneB
Posts: 186
Joined: Aug 2013

I too appreciate this, Theresa.

-jane

 

namedropper
Posts: 102
Joined: Dec 2014

Thanks Theresa for the information and thanks to everyone else for your comments.   Only a few more days and I will know whaat is going on.

tpiccin
Posts: 6
Joined: Oct 2009

You all are so very welcome.  I am just suprised more medical professionals dont take the time to see how patients are affected and all they have to go through.  My heart goes out to you all. 

namedropper
Posts: 102
Joined: Dec 2014

Hi, I had my broncosopy today and it went well so far but I have to wait and tell them I get a fever. They did biopsy by needle and by taking a piece and they did a wash but they have to send it to their lab to see if it is Breast cancer that I had in 2012  or MMMT that was found in 2014.  They said it would be 5 to 7 days and I know that they work over the Holidays too so all I can do is wait. Thanks again for your HUGS and PRAYERS.    I wish all of you a HAPPY HOLIDAY.

Lou Ann M's picture
Lou Ann M
Posts: 996
Joined: Feb 2015

is so very hard, especially over a holiday.  I am glad it went well and hope it will bring good results for you.  Sending hugs and prayers, Lou Ann

Nellasing
Posts: 529
Joined: Oct 2016

coming every single day til you hear and beyond <3 <3  (((HUGS))) and Merry Christmas to us all <3 <3

Soup52's picture
Soup52
Posts: 903
Joined: Jan 2016

Prayers for your wait. Have a Merry Christmas!

EZLiving66's picture
EZLiving66
Posts: 1435
Joined: Oct 2015

Sue, I agree with the other ladies - waiting is the pits!!  It seems all we ever do with this cancer is WAIT!  Waiting for test results; waiting for those three month exams, waiting for the other shoe to drop.  I hope you can enjoy Christmas - we're here for you!!

Love,

Eldri

Kvdyson's picture
Kvdyson
Posts: 789
Joined: Jan 2016

Sue, hopefully you will be so busy enjoying the holidays that you forget all about needing to wait for results. Wishing that your week be filled with good food, good friends and great memories! Kim

janaes
Posts: 800
Joined: May 2016

Namedropper, I wish you the best of holiday cheer. Janae

namedropper
Posts: 102
Joined: Dec 2014

 It is Breast cancer in the lung. I have a Dr. appt at 3pm on weds. He wants to discuss a new pill called Ibrance. I will keep everyone updated. I am  waiting for a call from my uterine cancer Dr. also.    Thanks for your support.

Nellasing
Posts: 529
Joined: Oct 2016

I'm so sorry - I hope your appt goes well- is that this Wed. as in tomorrow?  Sending (((HUGS))) and prayers as you make these appts and decisions. 

EZLiving66's picture
EZLiving66
Posts: 1435
Joined: Oct 2015

Wow, you sure are dealing with a lot right now!!  Please keep us updated on your new treatment and what your uterine doctor says.  (((Sue)))

Love,

Eldri

Lou Ann M's picture
Lou Ann M
Posts: 996
Joined: Feb 2015

Maybe this will Be easier to treat than a recurrence of Endomedria.  I have seen ads for Ibrance.  Hopefully it will work for you and you can get back to.your NED dance.

Lou Ann

NoTimeForCancer's picture
NoTimeForCancer
Posts: 2802
Joined: Mar 2013

Oh namedropper, I am so sorry to hear this.  You, like all the ladies, are always in my prayers.

TeddyandBears_Mom's picture
TeddyandBears_Mom
Posts: 1685
Joined: Jun 2015

Namedropper, so sorry to hear this! I hope Ibrance is the magic formula that works for you. Please let us know how you are doing and what the doc says.

Love and Hugs,

Cindi

Editgrl's picture
Editgrl
Posts: 903
Joined: Jun 2015

Like everyone here, I am sorry to hear this.  But I'm glad to know that your doctor is offering you options.  Please keep us updated.

 

Kvdyson's picture
Kvdyson
Posts: 789
Joined: Jan 2016

Sue, so very sorry to hear that diagnosis. Ibrance just received accelerated approval by the FDA because it was found to work so well. It is very hopeful that you qualify for it. I am sending you very positive energy to get through treatment again. You can do this!!

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