CSN Login
Members Online: 4

You are here

CSN Home › Discussion boards › Cancer specific › Brain Cancer

Gliomatosis Cerebri

jameshaan
Posts: 2
Joined: Mar 2015
Mar 12, 2015 - 12:07 pm

I am a 31 year old male and was diagnosed with Grade III gliomatosis cerebri in Oct 2013 and miraculously doing fine now with minimal symptoms.  I did 6 weeks of radiation and temodar followed by 12 months of "maintenace" temodar.  I'm off of all treatments and getting bi-monthly scans that show a stable, not growing tumor. 

 

I'd like to connect with other patients or families of patients.  God bless

 

Jim
Patricia_Franse's picture
Patricia_Franse
Posts: 2
 Joined: Aug 2015
Aug 25, 2015 - 10:15 am

Hi Jim,

 

I was diagnosed with GMC 4 weeks ago and desperatly looking for fellow patients as I do not know what to expect.

Hope you are still out there!

 

Regards,

 

P.
Fayard's picture
Fayard
Posts: 436
 Joined: May 2011
Aug 28, 2015 - 8:01 pm

Hello,

I have a friend who has just been diagnosed with this beast.

I am from the Uterine Cancer board, survivor thank to my dear GOD!

I am doing some research online and came accross this. I though you may want to read it http://www.virtualtrials.com/

I am sorry you have to go through this.
Fayard's picture
Fayard
Posts: 436
 Joined: May 2011
Aug 28, 2015 - 7:44 pm

Hello Jim,

Ho are you doing?
gmacc1956
Posts: 2
 Joined: Oct 2015
Oct 25, 2015 - 1:53 pm

Jim, my daughter is on a similar path as you.  She is finishing up her maintenace temodar. Would like know what to expect after that. Any information would be appreciated. Thanks for your time.
bighead
Posts: 1
 Joined: Oct 2015
Oct 28, 2015 - 11:36 am

Is the maintenance temodar the 5/23 treatment?

 
Subscribe to Comments for "Gliomatosis Cerebri "

The content on this site is for informational purposes only. It is not a substitute for professional medical advice. Do not use this information to diagnose or treat a health problem or disease without consulting with a qualified healthcare provider. Please consult your healthcare provider with any questions or concerns you may have regarding your condition. Use of this online service is subject to the disclaimer and the terms and conditions.

Copyright 2000-2019 © Cancer Survivors Network