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Gliomatosis Cerebri

jameshaan
Posts: 2
Joined: Mar 2015
Mar 12, 2015 - 12:07 pm

I am a 31 year old male and was diagnosed with Grade III gliomatosis cerebri in Oct 2013 and miraculously doing fine now with minimal symptoms.  I did 6 weeks of radiation and temodar followed by 12 months of "maintenace" temodar.  I'm off of all treatments and getting bi-monthly scans that show a stable, not growing tumor. 

 

I'd like to connect with other patients or families of patients.  God bless

 

Jim
Patricia_Franse's picture
Patricia_Franse
Posts: 2
 Joined: Aug 2015
Aug 25, 2015 - 10:15 am

Hi Jim,

 

I was diagnosed with GMC 4 weeks ago and desperatly looking for fellow patients as I do not know what to expect.

Hope you are still out there!

 

Regards,

 

P.
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Fayard
Posts: 437
 Joined: May 2011
Aug 28, 2015 - 8:01 pm

Hello,

I have a friend who has just been diagnosed with this beast.

I am from the Uterine Cancer board, survivor thank to my dear GOD!

I am doing some research online and came accross this. I though you may want to read it http://www.virtualtrials.com/

I am sorry you have to go through this.
Fayard's picture
Fayard
Posts: 437
 Joined: May 2011
Aug 28, 2015 - 7:44 pm

Hello Jim,

Ho are you doing?
gmacc1956
Posts: 2
 Joined: Oct 2015
Oct 25, 2015 - 1:53 pm

Jim, my daughter is on a similar path as you.  She is finishing up her maintenace temodar. Would like know what to expect after that. Any information would be appreciated. Thanks for your time.
bighead
Posts: 1
 Joined: Oct 2015
Oct 28, 2015 - 11:36 am

Is the maintenance temodar the 5/23 treatment?

 
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