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Mar 12, 2015 - 12:07 pm
I am a 31 year old male and was diagnosed with Grade III gliomatosis cerebri in Oct 2013 and miraculously doing fine now with minimal symptoms. I did 6 weeks of radiation and temodar followed by 12 months of "maintenace" temodar. I'm off of all treatments and getting bi-monthly scans that show a stable, not growing tumor.
I'd like to connect with other patients or families of patients. God bless
Jim |
Joined: Aug 2015
Gliomatosis Cerebri
Hi Jim,
I was diagnosed with GMC 4 weeks ago and desperatly looking for fellow patients as I do not know what to expect.
Hope you are still out there!
Regards,
P.
Joined: May 2011
Hello, I have a friend who
Hello,
I have a friend who has just been diagnosed with this beast.
I am from the Uterine Cancer board, survivor thank to my dear GOD!
I am doing some research online and came accross this. I though you may want to read it http://www.virtualtrials.com/
I am sorry you have to go through this.
Joined: May 2011
Hello Jim, Ho are you doing?
Hello Jim,
Ho are you doing?
Joined: Oct 2015
GMC
Jim, my daughter is on a similar path as you. She is finishing up her maintenace temodar. Would like know what to expect after that. Any information would be appreciated. Thanks for your time.
Joined: Oct 2015
maintenance temodar
Is the maintenance temodar the 5/23 treatment?