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Gliomatosis Cerebri

jameshaan
Posts: 2
Joined: Mar 2015

I am a 31 year old male and was diagnosed with Grade III gliomatosis cerebri in Oct 2013 and miraculously doing fine now with minimal symptoms.  I did 6 weeks of radiation and temodar followed by 12 months of "maintenace" temodar.  I'm off of all treatments and getting bi-monthly scans that show a stable, not growing tumor. 

 

I'd like to connect with other patients or families of patients.  God bless

 

Jim

Patricia_Franse's picture
Patricia_Franse
Posts: 2
Joined: Aug 2015

Hi Jim,

 

I was diagnosed with GMC 4 weeks ago and desperatly looking for fellow patients as I do not know what to expect.

Hope you are still out there!

 

Regards,

 

P.

Fayard's picture
Fayard
Posts: 436
Joined: May 2011

Hello,

I have a friend who has just been diagnosed with this beast.

I am from the Uterine Cancer board, survivor thank to my dear GOD!

I am doing some research online and came accross this. I though you may want to read it http://www.virtualtrials.com/

I am sorry you have to go through this.

Fayard's picture
Fayard
Posts: 436
Joined: May 2011

Hello Jim,

Ho are you doing?

gmacc1956
Posts: 2
Joined: Oct 2015

Jim, my daughter is on a similar path as you.  She is finishing up her maintenace temodar. Would like know what to expect after that. Any information would be appreciated. Thanks for your time.

bighead
Posts: 1
Joined: Oct 2015

Is the maintenance temodar the 5/23 treatment?

 

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