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Jeff Anderson treatment update

janderson1964
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Jun 02, 2015 - 1:13 pm

So I have a very busy 6 weeks ahead of me as my plan has finally come together.

6/3 I do a trial run of SBRT to be sure everything is programmed right

6/5 I get my fist actual SBRT treatment

6/11 SBRT treatment #2

6/19 SBRT treatment $3

6/26 SBRT treatment and final treatment #4

7/9 back to Baltimore for more cryoablation on the lung nodule, possible rib nodule and maybe to touch up an ablation done in December.
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NewHere
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 Joined: Feb 2015
Jun 02, 2015 - 1:49 pm

Best of luck and wishes for the plan.  Looking forward to hearing some good news for you shortly.
Cathleen Mary
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 Joined: May 2011
Jun 02, 2015 - 10:22 pm

I will certainly be mentioning your name to God often....prayers that all goes well. Hang In. You're amazing!

CM
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Helen321
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Jun 02, 2015 - 10:39 pm

Let's hope your plan comes together and works well!
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Trubrit
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Jun 02, 2015 - 11:02 pm

Thats quite the schedule. You're in my prayers that all goes well. You're such a strong person, I know you'll fight your way through it. 

Sue - Trubrit
janderson1964
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Jun 04, 2015 - 8:58 am

Thanks Sue. Your prayers are appreciated. I will be fine.
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Easyflip
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Jun 02, 2015 - 11:07 pm

luck my friend. I feel good about what's coming up for you.

Easyflip/Richard
hippiechicks
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 Joined: Sep 2012
Jun 02, 2015 - 11:52 pm

Glad to hear your plan is coming together! Sounds like they are going at this with a good plan and wishing you the very best ... comfort and stregth.

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lp1964
Posts: 1240
 Joined: Jun 2013
Jun 03, 2015 - 3:23 am

Wow, by the time you get this you are doing it.

You will be on my mind, let us know how it's going.

Laz
janderson1964
Posts: 2215
 Joined: Oct 2011
Jun 04, 2015 - 9:03 am

Staying strong is all I/we can do. Although sometimes it's hard. I went for my SBRT test run and allowed an extra 15 minutes travel time for possible traffic. well that wasn't nearly enough as there was a bad accident. I am sitting on the highway watching the clock realizing I am going to be late to the appointment and having trouble staying awake due to the Xeloda. I had a brief moment of weakness when a voice inside me said "what am I going through all of this crap for, is it worth it". Needless to say I shook that thought off almost as quick as it came into my head.
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NewHere
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Jun 04, 2015 - 12:47 pm

Those crap feelings are tough indeed, glad you shook it off.  
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Maxiecat
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Jun 03, 2015 - 9:40 am

Thinking of you as you get all of this going!
jen2012
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Jun 03, 2015 - 9:56 am

Good luck Jeff!
janderson1964
Posts: 2215
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Jun 03, 2015 - 11:07 am

tHANKS ALL. I forgot to add that I am still doing Xeloda but will probobly stop after one more cycle to get my platelets up for the ablations.
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sdp
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Jun 03, 2015 - 2:28 pm

Wish u all the best 

Pl keep us updated
UncleBuddy
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Jun 03, 2015 - 3:46 pm

I hope you sail through all of this with no problems.

Lin
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PhillieG
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Jun 03, 2015 - 5:39 pm

It sounds like a very good plan. I've always found it helpful to have a set plan and then prepare yourself and go for it.
Stay strong!
janderson1964
Posts: 2215
 Joined: Oct 2011
Jun 04, 2015 - 8:57 am

Thanks Phil. as you know having a good plan even if you have to take matters into your own hands can certainly help your outcome. As you have probobly experienced when you have survived stage IV cancer this long it becomes a guessing game. It is so hard to do what you think is the right thing at the time without eliminating futures options as a result of what you do today.
MaggieCat
Posts: 54
 Joined: Dec 2011
Jun 07, 2015 - 8:39 pm

Cheering you on... and agree, guessing game ( and some smarts too) what to choose and what to leave for another day....hoping that NOW does what you need....

 
Fight for my love
Posts: 1530
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Jun 03, 2015 - 8:30 pm

Best luck with everything. Pray for you.
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annalexandria
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Jun 04, 2015 - 11:51 am

I'm really excited by your plan.  It's very hopeful.

Keep us posted!

Big hugs~AA
janderson1964
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Jun 04, 2015 - 1:41 pm

Hope is certainly a good thing but cancer sure does test your hop in surviving at times.
danker
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Jun 07, 2015 - 3:11 pm

Only God knows the future, so all we can do is wait and hope.  Good luck!
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YoVita
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Jun 06, 2015 - 6:12 pm

Hoping that all goes well.  
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Annabelle41415
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Jun 06, 2015 - 10:49 pm

You are in my thoughts and prayers as all of this transpires.  Wishing you the best outcome and glad that you will soon have all this behind you.  May God step be with you every turn that comes your way.

Kim
janderson1964
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Jun 08, 2015 - 10:12 am

Thank you for your thoughts and prayers Kim.
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traci43
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Jun 08, 2015 - 11:45 pm

That's a busy, busy month for you.  I hope everything goes smoothly and you get those trouble spots taken care of.  Prayers for success, Traci
janderson1964
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Jun 09, 2015 - 10:59 am

Thanks Traci
janderson1964
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Jun 09, 2015 - 11:10 am

I did my first SBRT last week while I was still on Xeloda. The last 3 days were brutal. First real bad diarrhea followed by 2 days of constipation not to mention extreme fatigue. I won't be on Xeloda this week when I go for my second SBRT treat. So hopefully it will be better. I was so miserable yesterday. I didnt want to mov, talk, or eat when I got home from work. My wife was so sad. I hate this disease more for what it does to my wife than what it does to me. I also saw my oncologist yesterday. Just routine visit. My wife kept asking me if there was something I wasn't telling her from the visit. She was so worried and sad. She tried to cheer me up and make me laugh but I am not a good actor. I can't force myself to laugh or look happy. I don't complain about anything to here because it will only make matters worse unless she senses that something is wrong. It is so sad which I am sure most of you have experienced.

Times like last night I want to tell her I am thinking about giving up and let the disease take it's course. At least I will feel weel for a while with no brutal treatments of one form or another. Then I look at her face and I can't possibly say that. She asked me a couple of times over the past year when I was feeling down if I was thinking of giving up with this look of absolute fear on her face. I just can't do that to her. I just don't want her to have false hopes. I seem to keep beating the odds and bouncing back unexpectedly even when things seem real bad. Either with a stable scan, good bloodwork/liver function or just getting on my mountain bike and riding like I used to.

Anyway I just had to express myself to the ones that understand. Onward and upward.
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lilacbrroller
Posts: 412
 Joined: Jun 2012
Jun 09, 2015 - 5:44 pm

Laughing

push through the pain. You've got the right motivation. Eyes on the prize, or eyes on the eyes (your wife's). 

Hang in there. These treatments could be curative, right?

best of luck and I hope you start feeling like yourself again

karin 
janderson1964
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 Joined: Oct 2011
Jun 09, 2015 - 6:56 pm

Thanks Karin. I actully feel really good today. Had lunch with my wife and appologized for feeling bad yesterday. We just had a good time feeding and laughing at all of our animals.
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Trubrit
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Jun 09, 2015 - 8:19 pm

I know your wife wouldn't expect you to. She understands your bad days, even though they make her sad. 

We have a friend who has been living because his wife couldn't handle the thought of him passing. He has lived through many death scares just on that strenght. Sadly, his time is getting close, but he has fought well. 

SBRT will be over soon. Work you way through it, and I just know you'll bounce right back again. 

You have my prayers and all the good vibes I can send. 

Sue - Trubrit
janderson1964
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 Joined: Oct 2011
Jun 10, 2015 - 8:11 am

Your so kind Sue. I know she doesn't expect me to apologize and she said that. I just hate this thing stealing her joy. I think me apologizing was probobly a little selfish
hippiechicks
Posts: 509
 Joined: Sep 2012
Jun 09, 2015 - 7:53 pm

Sorry to hear you had a rough time this past tx. ... but I wonder if most of that was from the Xeloda?  I certainly remember telling my husband last time I was on chemo that I was not sure if I wanted to continue (actually both times I was on chemo) ... but, I like you looked at him and saw I could not do that. I have had two good years since then .. and although I am facing a rough summer, I am keeping my eye on these past few good years. Try to live each day at a time and on those days that aren't so good I just try to enjoy the smell of the air and the birds singing .. if that is all I can do .. then that I will.

It is tough while  feeling so crappy to feel positive .. but I really feel you've GOT this!  Push through .. get to the other side .. don't give in to the icky feeling if you have a chance to beat this! 

Keeping you in my prayers.

janderson1964
Posts: 2215
 Joined: Oct 2011
Jun 10, 2015 - 8:26 am

You are so right. My oncologist feels it had a lot to do with mixing the Xeloda with the radiation. He left it up to me to stop Xeloda for a while until I get through these treatments and ablations. Like you I had several long periods of NED. Especially the last one which was 4 years. I think back to that time a lot but I get sad and long for it again. Since then it has been over a year of non stop issues and various treatments and proceedures. The funny thing is I reflect mostly on that 4 year period more so than before I was diagnosed. I think that was the most happiest time in my life. 

Thanks for your support and you have a great attitude towards your situation as well.
hippiechicks
Posts: 509
 Joined: Sep 2012
Jun 10, 2015 - 5:00 pm

Wink  Good luck tomorrow!!
Cathleen Mary
Posts: 827
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Jun 10, 2015 - 9:28 pm

Jeff, blessings on tomorrow. What a roller coaster of treatment.  Your marriage sounds so loving and strong....each concerned for the other. 

Strength and better days.

CM
janderson1964
Posts: 2215
 Joined: Oct 2011
Jun 11, 2015 - 7:31 am

Thanks hippiechicks and CM. You are so thoughful to notice I have treatment today by reading my schedule above. It took me a minute to realize how you knew. It should be better. No Xeloda this time. My IR who does the ablations just told me that his scheduler shouldn't have put me down for 7/9. He has a seminar in Brazil that day. So I am trying to rescheule for 7/2 instead. My other choice would be 7/16 but I would rather get it over with sooner than later. Oh well I was hoping to feel good for the long July 4th weekend. Similar thing happened last year. I had y90 radiation done to my liver on the Thursday before the 4th. I will take that as a good sign.
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Easyflip
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Jun 11, 2015 - 3:31 pm

is always a hassle! Good luck in your upcoming procedures, I've got a scan July 9. We spend a lot of time laying down on medical tables don't we? Happy 4th my friend.

Easyflip/Richard
janderson1964
Posts: 2215
 Joined: Oct 2011
Jun 12, 2015 - 8:58 am

Thanks Richard. You are so right about the medical tables and time spent.
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Phil64
Posts: 835
 Joined: Apr 2012
Jun 24, 2015 - 11:43 pm

Jeff, your persistence and patience is an inspiration to me. Craig once said that a cancer battle is a marathon and you are running the race well. a You have my prayers tonight for the very best results!

 

Sending you Love and Light.

Phil
janderson1964
Posts: 2215
 Joined: Oct 2011
Jun 25, 2015 - 8:15 am

Thanks Phil. I was just thinking about you last night and wondering how you are doing. Tomorrow is my last SBRT treatment and then cryoablation next Thursday. I have a scan on August 3rd to see how the radiation and all of the ablations did and pray nothing new shows up.
jen2012
Posts: 1607
 Joined: Aug 2012
Jun 25, 2015 - 11:32 am

You are amazing Jeff.  We will all be with you hoping for a nice clear scan in August!
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Helen321
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Jun 25, 2015 - 1:13 pm

I second this Jeff, can't wait to hear the good news!
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Trubrit
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Jun 25, 2015 - 2:01 pm

How have you been feeling? How is is affecting you or is it? 

Good luck with the cryoablation. I had a thermal ablation, but I'm sure they are after the same thing. Freeze it or burn it, as long as it goes away. 

Sue - Trubrit
janderson1964
Posts: 2215
 Joined: Oct 2011
Jun 25, 2015 - 3:10 pm

The radiation has very little side effects. Just tome fatigue for  about 1 1/2 days. I feel great for at least 5 days a week as far as energy goes and no stomach or digestive problems except the first treatment but I think that was mainly the Xeloda. I just hope they can alliviate this pain on my right side 9th rib when I go for the ablations next week.
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Trubrit
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 Joined: Jan 2013
Jun 25, 2015 - 3:36 pm

That is really good that you are not having any severe side effects. 

Here's hoping the pain goes away with the ablated tumour. 

Sue - Trubrit
janderson1964
Posts: 2215
 Joined: Oct 2011
Jun 25, 2015 - 3:50 pm

Thanks sue
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annalexandria
Posts: 2573
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Jun 25, 2015 - 6:58 pm

Get that pain sorted out next and keep on keeping on!
hippiechicks
Posts: 509
 Joined: Sep 2012
Jun 25, 2015 - 10:28 pm

Very glad to hear you are doing relatively well.  Thinking of you and wishing you all the best for your last tx tomorrow. 

Getting that pain under control next week sounds like the last hurdle and hopefully on your way to a relaxing summer!

janderson1964
Posts: 2215
 Joined: Oct 2011
Jun 26, 2015 - 11:12 am

Last treatment officially done. Ablations in 6 days.

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