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Scan Day
 |
Apr 11, 2014 - 10:48 am
Hi All.!! I got to get going.. I am off to get scanned... well blood tests first... Catch up with you later... I won't get the results until next week.. but I am very positive.. I really feel better than I have in a while... I walked many miles in San Diego.. Ron |
Joined: Apr 2013
All the best with the tests!
Hey Ronnie, you are probably on route now, but just wanted to wish you all the best today. I am impressed with your energy, whatever you a running on Ron send me some:)
Djinnie x
Joined: Jan 2013
Thanks Dj, I am at Stanford
Thanks Dj, I am at Stanford now. Waiting to get needled
Joined: Jan 2013
Needle number one is done. We
Needle number one is done. We will see if I get contrast or not. Just got the word, no contrast today. I am next to be scanned
Joined: Feb 2014
Good luck
Good luck Ron,
Coincidentally, I thought of you as I was getting my motorcycle ready for a bath and an oil change. It looks similar to the one in your avatar on this site.
It's a 2003 Triumph Speed Four.
Joined: Mar 2014
Best of luck! Keeping fingers
Best of luck! Keeping fingers crossed for you.
Joined: Jan 2013
NBS
Ah, NBS, a Triumph Brit Biker..!! Way Cool..!!
Cheers..!!!
Ron
Joined: Oct 2013
Great attitude Ron~ Seems
Great attitude Ron~
Seems you got your "sexy" on today..brings me a smile!
You have a wonderful outlook. So here's wishing for the BEST!
Can't you get a copy of your report sooner than hearing from the doctor?
Or don't you want to know ahead of time?
Sending you continued wellness, with love,
Jan
Joined: Jul 2012
Hoping for the best scan results next week for you, sexy Ron.
Your little biker boy avatar needs a couple of friendly nurses to make him feel better.
Joined: Oct 2011
Go get 'em Ron
seems like "Scans are Us" week. You are due for a break. Where do I send the pizza and beer?
Joined: Oct 2013
The good scans are going to
The good scans are going to keep coming here! I can feel it!
Hugs,
Jojo
Joined: Jan 2013
Geeee...
OK so where do I start..?? OK, had pizza (no beer) the day before.. how is that for optimism..? And Alex again stirs the pot.. or something else... And JoJo... you can feel it... from afar..? Ooops..! Love you all..!! You all make the day a lot brighter... and help me get through my bad days... Yes I have them, but rarely right now.. You are my second family..!
Cheers..!!!!
Ron
Joined: Jan 2013
Let's see.. some good news
Let's see.. some good news today... saw my Cardio Doc.. she was very pleased and took me off of Amlodipine... my blood pressure is plenty low.. I told her about my Patient Advocate exploits and she beamed..! She stated they just do not have any patients or advocates at Cardio conventions, just vendors trying to sell their wares... So it was a good day there....
Had a big dinner with about 80 people... over half are college co-eds..... What a great day indeed..!!
Ron
Joined: Jun 2013
juju
Hey Ron,
I know you don't have results back yet but just wanted to send some good juju your way. I hope you had a super cute nurse doing the poking last week, I know how you like cute nurses!
Glad to hear your appt with cardio doc went well. No more hbp meds...that's fantastic! I noticed your cardio doc is a woman. Do you seek women doctors out? Just curious if being female is a criteria one must meet before putting their hands on you.
hehehehe
Anyway, let us know as soon as you know. Until then, I send you good juju.
Sindy
Joined: May 2013
Sending only good Karma!
Ron,
If attitude has anything to do with scan results, yours will be fantastic and I would want you at all of mine!! Wishing only the cutest nurses and great results for you!
Prayers for good health!
Brenda
Joined: Jun 2013
So pretty!
Love the new profile pic, Brenda!
Joined: Jan 2013
Sindy.. you are one cute and
Sindy.. you are one cute and funny lady..! My Pulmonary Doc is a male, and he is the one that referred my to my female Cardio Doc.. My Onc is another woman, but she is one of the best... She is my Doc because of her skills... And the nurses, well, I take what I can get..! Most are women and they all are cute to me..! (to me caring is also cute..). So, I guess I just continue to get lucky and get some awesome medical staff, most of which are women..! Now as far as any of them getting their hands on me.. well... wishful thinking..!
All that said... you are one special young lady around here.. and I really appreciate all the good juju as well..!! Please keep smiling..!
Ron
Joined: Jun 2013
Ron, you are a sweetheart!
Ron, you are a sweetheart!
I love that you think caring is a cuteness. So often it seems, if you aren't a blonde bombshell or built like a brick house, you're not given the time of day, so, it's a breath of fresh air to hear a man say "caring is cute". Just made my day!
Joined: Jan 2013
Sindy, sorry I was not
Sindy, sorry I was not clear.. You are double cute.! Ron
Joined: Mar 2012
Hey Ron! Have you gotten your
Hey Ron! Have you gotten your results back yet? Feeling very positive on my end! Let us know soon as you know! LOL
On a good note. Mom had her scans last week and we were pretty worried because she isn't feeling too good. Her scans were good. The one node she has is stable. And this time they even noted that it might be benign. Does that then make her NED? Who knows... We see her onc on Thrusday so will ask. All this and she is still on 200 mgs of Votrient. So all of those who want to know if the low dose does indeed work? Yes it does.
DJinnie.. a note to you... if 400 mgs still gives you bad side affects, let them know my mom has been on 200 mgs for 16 months and it is still giving good results and the side affects are tolerable....
Ron, I was going to send you some pretty nurses but our on top of it and caring gal, Alex, beat me to it! :)
Joined: Oct 2011
Yea for mom!
Angec, that is great news. The Karma makes the rounds! Thanks for all your support to everyone. It comes around. I believe it.
Joined: Jan 2013
Angec, good news for sure..!!
Angec, good news for sure..!! Just goes to show that sometimes what is going on inside of us can be the opposite of what we think.. or fear..!! Let's hope the good news keeps on happening around here...
Ron
Joined: Oct 2013
Way to go, Ron! But be
Way to go, Ron! But be careful of those nurses, otherwise that blood pressure wll go right up there again!
Can't wait to hear about your scan results - I know they are going to be good!!
Hugs and smiles,
Jojo
Joined: Jan 2013
Hi All..! So, just had my
Hi All..! So, just had my Phlebotomy.. a newbie young pretty nurse.. she did an awesome job, and I complimented her.. She blushed every so nicely... ah to be young again.. oh well.. So that part is done.. waiting to talk to my Oncologist.. it is a nice sunny day here..! Hope you all are doing well..
Ron
Joined: Jan 2013
Just talked to my Oncologist.
Just talked to my Oncologist. But I already knew that my scans and pretty good. Stability in all the word today. Time for pizza and beer. Love you all. Ron
Joined: Nov 2011
Great News!!
Hey Ron,
Stability is great news. Yay Inlyta. I'm always one step behind you on this process. We're on the same path, so I hope I have good news too on my next scans May 1st.
I'm very happy for you!
David
Joined: Oct 2011
We have to believe
in improvement despite occaisional issues.
GO RON!
"I met him on a Sunday and my heart stood still...
A GO RON, RON, RON, A GO RON, RON....
Anyone beside Donna?
Joined: Jul 2012
Da do ron-ron-ron
Yeah, he looked so fine,
Yeah, I'll make him mine
Joined: Oct 2011
Da do ron-ron-ron
Yeah, although his kidney's gone
Yeah, although the blood works all wrong...
Joined: Jul 2012
Da do ron-ron-ron
Yeah, he's a biker and he rides with class
Yeah, his matzo balls are made of brass
He's retired and embracing change
And his BP is in normal range
Joined: Oct 2011
He's our Ron, Ron, Ron
He's our Ron, Ron, Ron
Thank You. thank you very much....
Joined: Jul 2012
Congratulations Ron!
Stable scans and a blushing nurse... Sounds like you had a great day.
Joined: Feb 2014
Happy news!
Glad to hear the good news on your latest scans :) I'm sure your positive attitude helps a lot!
Joined: Jan 2013
Oh you "guys"...!! Now I am
Oh you "guys"...!! Now I am the one blushing..! Yes, I was a tad dissappointed that there was no additional shinkage.. and yes two Lymph nodes had minor growth... but my main Oncologist only spent a few minutes... yes Inlta is still working.. no, no need to escalate the doseage,, see me is 6 weeks.. go home and be happy.. all is good... Of course the other doctor did a thorough check up... breathing normal, no nasty anything to be found...
Actually, the Pizza will wait a few days... but it WILL happen...
Thank you all..!!
Ron
Joined: Jun 2013
This just made my day, Ron!
This just made my day, Ron!
I am so happy to hear your good news. I'll keep the good juju flowing and maybe, just maybe, in 6 weeks you'll have that shrinkage.
And what a treat to be serenaded by the beautiful and talented fox and Alexandra! Life is GOOD!!
Sindy
Joined: Mar 2012
Way to go Ron, Ron, Ron! Way
Way to go Ron, Ron, Ron! Way to go Ron, Ron, Ron!
I think those scans are very good! I may be wrong but I did read that Inlyta sometimes the first scan doesn't project much. Stable is great, NO NEW METS is even better! Minor growth, as I was told could be an error in calculation and they allow for a small amount. And you feel pretty good which is nice! I am betting the next set of scans will be even better!
He sat on his bike and he took a ride
Dat be Ron, Ron, Dat be Ron, Ron!
He got good scan results, that are bonafide
Dat be Ron, Ron, Dat be Ron, Ron!
Keep up the good work Ron, and with that attitude, all the nurse are going to be a bomb! It all depends on how you see them!
Thanks for the good words Fox, Ron and others.. let's keep the Karma going...
Joined: Oct 2013
Way to go, Ronaldo! SO happy
Way to go, Ronaldo! SO happy for you!!
Hugs and Smiles
Jojo
Joined: Jan 2014
Great news!
Glad to hear your result and especially that you are feeling better. I get my first post IL-2 scan Monday 4/21 and get the results the same day.
Joined: Jan 2013
Thanks again all..!! I guess
Thanks again all..!! I guess I should give the rest of the story... True no growth or shrinkage in the Mets.. but two Lymph Nodes did grow slightly.. 2 and 4 MM respectively.. not a big leap in size.. My Doctor is not concerned.. of course not.. she is not the one with Cancer.. And true it is not much.. still tons better than the alternative.. Still I was really hoping for more shrinkage. Then the weight issue.. I knew I would get a stern talking to.. I lost another 8 pounds.. I am now down over 50 pounds post surgery... still in reality my weight is good.. but the fact that I keep losing weight is not good. Sorry to those that would like to lose weight... I am eating a LOT of food.. so it is not staying with me... I was advised to step up the Immodium and to add more fiber to my diet. I like the fiber idea more.. but will do both initially. And I think I will have a big steak... add some more fat to the diet... just a little bit more... next week, Pizza and beer..!!
I can not tell you how much I appreciate you all... and of course the staff at Stanford.. they treat me like a King..!!
Hang in there everyone..!! We are a team.. and we all fight together...
Ron
Joined: May 2012
Good to hear
Ron,
So glad to hear your news is mostly good. I will mention one thing on the weight loss though it is a long shot. Has your doctor checked your thyroid? My Oncologist only checks specific things in my bloodwork which does not include thyroid function. It was from my annual physical with my GP that we found I was hyperthyroid which can cause weight loss even when you eat more. They would need to check your TSH, T3, and T4. It would be a shame to assume it is the cancer or treatment if it turned out to be unrelated.
Kathy
Joined: Nov 2011
Dose
Ron,
Just curious, is there a reason your oncologist didn't consider increasing the dosage? You're at 5mg 2x day, right?
At least you have the option to increase the dose.
David
Joined: Nov 2013
congrats Ron
Ron! Congratulations on the great results. I think you should indeed celebrate and enjoy a few more calories!
David, that's a good question about the dosage of Inlyta. I'm curious about that too. David let us know how your scans turn out. My husband had his today. It's been a very long day. Results next Tuesday. 1 year on Inlyta with fantastic results so far.
Joined: Mar 2012
Ron, about the weight loss..
Ron, about the weight loss.. my mom keeps losing as well. But when you have constant runs it doesn't let you gain weight. She is taking Glucerna now and her weight is pretty stable. She doesn't eat much because she is always full. She tends to have concurrent UTI's. Has anyone else had this issue? I was going to ask if you can try "Boost", it will give you extra calories. Others make a big shake out of it and add lots of calories to it. Any little bit will help.
On the scan before last mom had a small growth of 2mm on her node, which they say was insignificant. This scan it was stable and was the size of the previous scan. The doc said that nodes get bigger in size if you are fighting a cold, which she did have. It is kind of hard to tell with nodes. But your scan was pretty good and the doctor was happy, and so am I.
Joined: Jan 2013
Thanks again everyone..!!
Thanks again everyone..!! Yes we did talk about controlling the diarrhea... So, I am making more changes to try and help that.. increase the Immodium and add more fiber... perhaps eating cardboard will help...j/k.
Later... got to work on the race bike again..!
Ron
Joined: Oct 2011
"and he went to the doctor
to control his squirts,..
messed his pants , but none of his shirts,
yeah, and when he walked back home,
He do do'd Ron, he do do'd Ron."
Sorry. Thought I was 12 for a minute. Take it all in stride Ron. Show everyone how to live positive. Whatever the inconvenience, take it in stride and move forward.
Joined: Jan 2013
Ah Foxster... no problemo..!
Ah Foxster... no problemo..! Heck you would have to do a lot better just to be in Alex's dust...!!
Bed time for this olde guy... Spent the last two days with my race bike on the dyno.. now have to fix what all broke...
Ron
Joined: Dec 2013
Weight
Ron:
is the 50 pounds your total weight loss since nephrectomy and how has it been between scans?
does your doctor have any other thoughts than diarrhea?
If the doc is not concerned and this is someone you really trust at one of the best places treating renal cancer, maybe it is simply adjustment to age, treatment and nephrectomy.
one would think that losing 50 pounds is sufficient for alarm BUT your doc's lack of concern is worth considering.
Sarah
Joined: Jan 2013
SAarah.. guess it needs to be
SAarah.. guess it needs to be in context.. This is over 2 plus years now. I lost a lot of it in the hospital.. I had a very large tumor plus the Kidney... I lost another 20 plus pounds since.. some due to the added exercize, some due to mostly Votrient, and now Inlyta. Yes my doctor is concerned, but I am still above my "fighting" weight. The main issue we think is the diarrhea, and I am on a modified regimen to help with that.. so far so good.. At this point I am not worried... I am somewhat active and feel pretty darn good lately..!
Thanks..
Ron
Joined: Dec 2013
just read some posts on smart
just read some posts on smart patient about Inylta and some have experienced weight loss.
that may be why your doc isn't too concerned.
Your weight loss seems to have some benign possibilities.
Sarah