The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Thank you for being a part of the Cancer Survivor Network community. Survivors and caregivers like you have played a unique role in fostering an online environment that encourages connection among those needing support, community, and education. On May 28, the Network will be discontinued. More details are available here . If you have any questions, contact CSNSupportTeam@cancer.org. Thanks again for the support you’ve provided each other over the years. We remain committed to supporting you in other ways throughout your cancer journey.

ADULT Diffuse Intrinsic Pontine Glioma

Sammiesdad
Sammiesdad CSN Member Posts: 9
in Brain Cancer #1

Hi, anyone out there dealing with this rare insideous monster?  Was diagnosed 9 years ago with waitful watching due to location.  Looks like it finally woke up.

Would like to swap stories, symptoms, treatments, etc. 

Thanks

Like Care

Comments

  • Sammiesdad
    Sammiesdad CSN Member Posts: 9
    #2
    So there is no one in

    So there is no one in cyberspace that has this cancer?   Would really appreciate some feedback.

     

    Thanks

    Trent

    Like Care
  • Sammiesdad
    Sammiesdad CSN Member Posts: 9
    #3
    So there is no one in

    So there is no one in cyberspace that has this cancer?   Would really appreciate some feedback.

     

    Thanks

    Trent

    Like Care
  • LeslieLand
    LeslieLand CSN Member Posts: 49
    #4
    Sammiesdad said:

    So there is no one in

    So there is no one in cyberspace that has this cancer?   Would really appreciate some feedback.

     

    Thanks

    Trent

    Trent,
    I remember almost 3

    Trent,

    I remember almost 3 years ago now when my husband was diagnosed...I had a helluva time finding anyone else with DIPG. Are you to start radiation therapy soon?

     

    Leslie

    Like Care

Discussion Boards