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Diet with one Kidney

Frank Fitz
Posts: 19
Joined: Jan 2010

Has anyone found diet suggestions and "no no's" for people with one remaining kidney?

The only obvious things I'v heard are to stay away from too much sodium and protein(but what is too much here?).

Thanks for any help.

Frank

puppetman
Posts: 53
Joined: Apr 2011

I have been home for almost 2 days now, the only thing the told Me was, stay away from dark stuff like drinks "cokes" stuff like that, stay away from table salt, high protein, the only thing I can say for now is, walk as much as You can, don't move fast and take thangs slow , DO NOT lay flat for the first week or so, trying to get up is painful "TRUST ME, IT IS VERY PAINFUL" and drink lots of water.

ejneary's picture
ejneary
Posts: 64
Joined: Mar 2010

Sorry Folks. I have been battling metastatic RCC and have not been back here for many weeks.

The pamphlet can be downloaded from:

http://home.comcast.net/~nearydom/docs/diet.doc (copy and paste into your browser location bar)

Thanks. Also, please realize that the guidance for protein intake is per the following equation:

1G Protein/1KG Body weight/Day
OR
1G Protein/2.2Lbs Body Weight/Day

I weight 160 lbs so I can eat up to 160/2.2 = 72 grams protein (From all sources) per day.

That is the limit. You need protein in your diet so some amount below this will be perfect.

I am not saying that this is right for everyone. This is what BOTH my dietician AND my Nephrologist recommended. Passing it on to you.

The pamphlet also talks about a well balanced diet which is helpful also.

Good Luck!!!

NWKeith
Posts: 8
Joined: May 2010

Hello folks. I'm 1 year past my radical nephrectomy of left kidney; like everyone else I continue to fine tune my diet. 2 suggestions to add to the great guidelines already mentioned. First, take a look at Dr. Andrew Weil's anti inflammatory diet. Just go to his website. Second, for dinner once a week try a small salmon fillet with vegetables and brown rice.
It's been a long road back. My metabolism will never be the same. I'm 61 years old, and the past year has been a humble reminder of the limits of the physical body. Good luck to all.

NWKeith
Posts: 8
Joined: May 2010

Hello folks. I'm 1 year past my radical nephrectomy of left kidney; like everyone else I continue to fine tune my diet. 2 suggestions to add to the great guidelines already mentioned. First, take a look at Dr. Andrew Weil's anti inflammatory diet. Just go to his website. Second, for dinner once a week try a small salmon fillet with vegetables and brown rice.
It's been a long road back. My metabolism will never be the same. I'm 61 years old, and the past year has been a humble reminder of the limits of the physical body. Good luck to all.

NWKeith
Posts: 8
Joined: May 2010

Hello folks. I'm 1 year past my radical nephrectomy of left kidney; like everyone else I continue to fine tune my diet. 2 suggestions to add to the great guidelines already mentioned. First, take a look at Dr. Andrew Weil's anti inflammatory diet. Just go to his website. Second, for dinner once a week try a small salmon fillet with vegetables and brown rice.
It's been a long road back. My metabolism will never be the same. I'm 61 years old, and the past year has been a humble reminder of the limits of the physical body. Good luck to all.

NWKeith
Posts: 8
Joined: May 2010

Hello folks. I'm 1 year past my radical nephrectomy of left kidney; like everyone else I continue to fine tune my diet. 2 suggestions to add to the great guidelines already mentioned. First, take a look at Dr. Andrew Weil's anti inflammatory diet. Just go to his website. Second, for dinner once a week try a small salmon fillet with vegetables and brown rice.
It's been a long road back. My metabolism will never be the same. I'm 61 years old, and the past year has been a humble reminder of the limits of the physical body. Good luck to all.

NWKeith
Posts: 8
Joined: May 2010

Hello folks. I'm 1 year past my radical nephrectomy of left kidney; like everyone else I continue to fine tune my diet. 2 suggestions to add to the great guidelines already mentioned. First, take a look at Dr. Andrew Weil's anti inflammatory diet. Just go to his website. Second, for dinner once a week try a small salmon fillet with vegetables and brown rice.
It's been a long road back. My metabolism will never be the same. I'm 61 years old, and the past year has been a humble reminder of the limits of the physical body. Good luck to all.

NWKeith
Posts: 8
Joined: May 2010

Hello folks. I'm 1 year past my radical nephrectomy of left kidney; like everyone else I continue to fine tune my diet. 2 suggestions to add to the great guidelines already mentioned. First, take a look at Dr. Andrew Weil's anti inflammatory diet. Just go to his website. Second, for dinner once a week try a small salmon fillet with vegetables and brown rice.
It's been a long road back. My metabolism will never be the same. I'm 61 years old, and the past year has been a humble reminder of the limits of the physical body. Good luck to all.

garym's picture
garym
Posts: 1651
Joined: Nov 2009

Just wanted to get this back on the first page

carlkcs11
Posts: 11
Joined: Sep 2011

Thanks GARY

Carl

jennifer_slichter
Posts: 1
Joined: Oct 2011

hello i am not really a cancer patient I’ve had i few in my family this caught my eye because recently my younger brother had to lose his kidney and I’m about to be his guardian and i am trying to do as much research as i can so i can make sure he is doing everything he needs to stay healthy and I’ve been looking for a good diet for him so if there is any way some one can give me a link or an email with a good diet for some one with only one kidney i would be very thankful

jennifer_slichter@yahoo.com

Vve45
Posts: 1
Joined: May 2012

I lost my right kidney but the lumps were benign. My urulogist said to avoid dark liquids such as
cola.coffee and tea. He said that it is due to oxalates in them. Oxalates bind to calcium and causes
kidney stones. I researched oxalates and found several sites that list foods to avoid. Good luck to
your brother.

ams123
Posts: 71
Joined: Aug 2011

When I was diagnosed with kidney cancer I went on a vegan diet. I also try to limit my fat intake, but that happens naturally on a diet of fruits, vegetables, grains and legumes. I don't eat any processed food, so I avoid sodium. There is protein in the food I eat, but a much smaller amount than in an animal based diet. I was eating way too much protein before, as most Americans do.

I have read many studies that advocate a vegan diet for health reasons, and I feel better eating this way. If I can suggest one thing to anyone with cancer, or heart disease, or even healthy people - cut out dairy. Dairy products are the worst thing you can eat - milk, cheese, butter, sour cream, etc.

I also want to point out that there is huge difference between a dietitian and a nutritionist. If you are concerned about your diet, please ask your doctor to refer you to a dietitian, preferably one that will come to your home and go through your own food items with you.

These are all just my opinions, I am not a doctor or a dietitian, and I don't claim that anything I have said is a fact (except the difference between a nutritionist and a dietitian). These are just things I have come up with on my own from doing a lot of reading, but I hope it helps someone.

Linda

shep21
Posts: 1
Joined: May 2012

Linda - I had my right kidney removed in mid January due to RCC. Went vegan about a month ago. Curious to see how you have found it working for you? Any cautions, suggestions etc.? I'm concerned about how much protein I am or am not getting. Also concerned about the sodium, potassium and phosphorus.

Ken

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Texas_wedge
Posts: 2798
Joined: Nov 2011

Sensible to keep an eye on your Na K and P (which stand to be affected by renal insufficiency) but you're probably getting enough protein, even on a vegan diet, if it's a sensible one. The main thing you should be concerned about is vitamin B12 deficiency and you might be well-advised to take a B12 supplement to ensure you're getting enough of it.

Digger95
Posts: 59
Joined: Jun 2010

Hi Linda,

I couldn't agree more that a plant-based diet goes a long way toward keeping our solitary kidneys as healthy as possible. I am 49 years-old, 12 years post-nephrectomy, and have been following a near-vegan diet for over four years now. I just had my annual blood work last week. My creatinine is .78 mg/dl and my eGFR is over 100. My doctor told me that those numbers would be good even if I had two healthy kidneys, and I just have to believe that this is due in large part to my diet.

I eat no meat, dairy or fish whatsoever but I do include some eggs for use in recipes and the occasional breakfast scramble. My daily protein intake ranges anywhere from 40 to 70 grams per day but rarely does it go over that.

Jim

Texas_wedge's picture
Texas_wedge
Posts: 2798
Joined: Nov 2011

Wow, what an interesting bit of information. The treatments for cancer have burgeoned since your nephrectomy, but your prescription is as good now as it was then.

adman's picture
adman
Posts: 338
Joined: Jul 2012

I, too, believe that this is the key. I'm trying to move in this direction and have seriously limited my 'direct' protein intake. Trying to get it from non-meat sources. Some wild salmon, more veggies, whole grains, berries on oatmeal ( although instant - but organic ). No 'direct' dairy or non-dairy creamer.

I lost 60 lbs last year on a 'higher' protein diet. I ate a lot of veggies and used a lot of good olive oil. Although, I'm now reading that olive oil may not be as good for us as we have been led to believe.

I had my first appt with a neph DR last week and he said higher protein doets aren't bad if my GFR stays where it currently is ( 67 ). He said there is no empirical evidence to support these theories. Who knows what to believe.

Texas_wedge's picture
Texas_wedge
Posts: 2798
Joined: Nov 2011

The way you've changed your diet is good. Did you lose all of that weight (well done!!) on an Atkins diet, or something less lunatic?
May I ask where you've heard adverse comments on olive oil? I'd like to investigate.
In your shoes, I think I'd look for a better nephrologist, but your GFR is fine.

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adman
Posts: 338
Joined: Jul 2012

I went on a much 'lower' carb diet, nothing specific, using a plant-based vegan protein powder every morning with fruit to make a shake. I also ate protein bars and a sensible salad with wild salmon, veggies, etc.

I'll have to hunt for the link to the story on olive oil. I've been reading about inflammation and some who think 'oils' may contribute to disease. So much for the Mediterranean diet.

Texas_wedge's picture
Texas_wedge
Posts: 2798
Joined: Nov 2011

Thanks. If it worked for you, that's fine. Looking forward to reading the story on olive oil, whenever you can unearth it. Meanwhile, I'll go with the Mediterranean/Asian diet.

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adman
Posts: 338
Joined: Jul 2012

There are lots of stories out there on the risks of too much oil in a diet. Google it.
I'll keep looking for the specific story I read.

Texas_wedge's picture
Texas_wedge
Posts: 2798
Joined: Nov 2011

Please do.

There is a world of difference between the innumerable oils one can have in one's diet. David Servan-Schreiber's 'anticancer' book and video are highly informative. If you haven't watched the magnificent 1 1/2 hour video on YouTube, courtesy of MD Anderson, I urge you to do so. It's entitled ANTICANCER: a new way of life and I think it's mandatory for all cancer sufferers, as is a good dip into the site of another great man now lost to us - Steve Dunn.

Texas_wedge's picture
Texas_wedge
Posts: 2798
Joined: Nov 2011

Eliezer2 - how did you get right up there between 22/7/2011 and 16/2/2010? [European date format!]

I think the advice you've had is not the whole story. Maybe it was to combat paranoia about your new condition - people can go over the top with anxiety about post nephrectomy lifestyle. It's true that drinking plenty of fluids is important (and that can include tea and coffee) and that moderate alcohol consumption is OK (always given no other relevant conditions). But diet is very important nonetheless. A LITTLE of what you fancy does you good and being obsessive is bad. However, a balanced diet with emphasis on fruit and veg, pulses and grains and not too much animal protein is a good idea. Avoidance of processed meats and lowest possible salt intake are mandatory, in my book.

I continue to believe the 'anticancer' video is very helpful.

Digger95
Posts: 59
Joined: Jun 2010

Eliezer2,

I do agree that it's not good to obsess about diet to the point where we're not enjoying the life we do have, but at the same time I worry about doctors who say 'eat, drink and be merry'. My nephrologist was the same way... no restrictions whatsoever, no dietary recommendations, he didn't even care if I continued to smoke. He just said to go out and live my life like nothing had happened. Which I did for the next eight years. Heck, I even went on the Atkins diet for a while!

But then about four years ago I decided to make some major dietary and lifestyle changes to improve my overall health, and as a pleasant side effect found that my renal function improved as well. I had already been considering a vegetarian diet for other reasons so it wasn't a huge leap for me at that point, and I never push my diet on others. I only ever say what's worked for me in case somebody else might benefit from it.

In the end there is only one 'best' diet... and that is the one that works for you. We're all built a bit differently and we all react differently to different foods. I only hope that you find whatever works for you and keeps you in good health for many years to come!

Jim

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garym
Posts: 1651
Joined: Nov 2009

Hi Jim,

I think your attitude about diet and lifestyle changes is spot on. When these choices are driven by elements outside of our control they rarely work as well as when we commit to them from within.

Way to go,

Gary

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adman
Posts: 338
Joined: Jul 2012

I can't find a video on YouTube on this subject that's 1 1/2 hrs long. Many others.
Do you have a link?

adman's picture
adman
Posts: 338
Joined: Jul 2012

Found a link to the video -

http://www3.mdanderson.org/streams/FullVideoPlayer.cfm?xml=publicEd%2Fconfig%2FAnti-Cancer_cfg

Texas_wedge's picture
Texas_wedge
Posts: 2798
Joined: Nov 2011

Knew you could do it. Enjoy it and let us know what you think.

adman's picture
adman
Posts: 338
Joined: Jul 2012

http://www.washingtonpost.com/lifestyle/wellness/olive-oils-health-benefits-its-a-slippery-question/2012/09/10/09aca37a-e257-11e1-98e7-89d659f9c106_story.html

PiperPilot
Posts: 1
Joined: Sep 2012

Two years ago (May 2010) I had a left kidney nephrectomy due to a tumor, "the size of a grapefruit" being discovered inside it. The biopsy showed I had chromophobe cells. At that time there was no other cancer found in me. Subsequent CT scans done every 4 months were clear until this past July - when mets were found at the base of my spine (sacrum) and on my left femur (thigh).

At that point I immediately went "mostly" vegan - that is, absolutely no meat (with the exception of some fish) and no diary products. I also began a regime of taking over 16 natural nutritional/anti-inflammatory/anti-cancer/hormonal supplements. Details of this approach are outlined in the book: "Life Over Cancer" by Dr. Keith I. Block. I highly recommend reading it. I also recommend looking into what the Block Integrative Cancer Center in Skokie, IL is doing. [No, I am not on their payroll. Nor do I sell any supplements, etc.]

However, I can tell you my own anecdotal testimonial about using supplements and changing my diet. Before I started taking these supplements I was in almost constant pain. I was walking with a slight limp and I could not walk up the stairs "normally" (I could only manage one step at a time). I could only control a constant dull, throbbing pain in my left thigh by taking the maximum dosage of Ibuprofen (400mg) every 6 hours. And even that would fail occasionally. However, a few days after I began following this supplement regime the pain started to recede. Soon I was able to stop taking any Ibuprofen at all. I became completely pain-free and have been ever since. That was over 2 months ago.

I also began taking Sutent (Sunitinib) over four weeks ago (50mg/day - 4wks on/2wk off). I had only one side effect from it. In the 3rd week I lost my sense of taste. But I attribute the fact that this was the only side effect I suffered both to taking supplements daily and to the (mostly) vegan diet that I adopted. BTW, the folks at the Block Integrative Cancer Center also suggested a supplement to take for this: 20-30grams of L-Glutamine mixed in water 2X/day. In a few days I got about 90% of my normal taste back. Right now I am in the middle of my 2wk break from Sutent so all taste is totally back to normal.

Just read the book: http://www.lifeovercancer.com/

I am happy to share the actual supplements I am taking. I am also taking a natural anti-angiogenic extract called TBL-12/Sea Cucumber. Go here and download the angiogenic research article about it: http://sea-cucumber.com/. It is now in a Phase II Clinical trial. [No, I am not on the payroll of these folks either.]

Digger95
Posts: 59
Joined: Jun 2010

Hiya Piper,

Thanks for sharing your story and all that you have done to improve your life after kidney cancer. I swear by my near-vegan diet and attribute my continued great kidney function to consuming a meat-free diet. I'll look into the links that you have posted and thank you very much for providing them. Best of luck on your continuing journey!

Jim

FrauDi
Posts: 2
Joined: Jan 2013

Thanks Piper for your story. I am still trying to get over losing my left kidney last year.

 

 

rosesbloom
Posts: 2
Joined: Aug 2013

Thank you Piper for sharing. How are you today?

Please keep in touch:  rosesbloom@hotmail.com

Phyllis in California

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NanoSecond
Posts: 653
Joined: Oct 2012

Hi Phyllis,

Thank you for asking.  I have now been taking Sutent @50mg/day for just over one year.  My latest scans show either shrinkage or stability in all the 3 areas I have bone lesions.  The lesions on my left femur (of most concern since it is weight-bearing) are also showing only new bone growth.

In all of this time I have still not suffered any significant side effects.  That, I feel, is mostly due to my diet and certain supplements that I take.  I will be directly emailing you a detailed explanation of the science and rationale behind what I have been doing and my experimental clinical trial of n=1.

BTW, I initially registered here under the pseudonym "PiperPilot".  But for some reason I was blocked. So I then re-registered as "NanoSecond".

Best wishes,

 

-Neil (how everyone else knows me).

 

NanoSecond's picture
NanoSecond
Posts: 653
Joined: Oct 2012

I forgot to add.  My diet has changed since I first posted back then.  I am no longer a "vegan fishnavore".  I have no major issues eating meat (if it is grass fed). I have made several changes to my diet as I have done further research and experimenting (on myself).

These changes, and others, are fully explained in the document I just sent to you.

 

FrauDi
Posts: 2
Joined: Jan 2013

Would like anyone to email me with a good diet plan for one kidney--what to eat and what not to.  Thanks.     di.harper@comcast.net

 

rosesbloom
Posts: 2
Joined: Aug 2013

 

Does anyone know the current recommendations for the one kidney diet?  What should we eat and what should we avoid. What medications should we avoid?  I heard that all sodas diet or regular should be eliminated;  water is best.

I had a cyst that became malignant 5.9cm tumor in 2006. Now have cysts on the right kidney. Please email me the plan rosesbloom@hotmail.com

Phyllis

Footstomper's picture
Footstomper
Posts: 1238
Joined: Dec 2014

Im very fond of steak and kidney pie

samidive
Posts: 2
Joined: Apr 2017

Firstly,let me wish all members the best of health for the new year and onward. In 6/2017 i had left kidney removed due to tcc.In 10/2017 i had cystostomy in office and dr, removed small tissue from bladder. Result came back as tcc,papillary . Presently awaiting results of hospital removal of 5 small bladder tumors. It is 10 days since procedure and urgency is improved though still have discomfort at start of urination.Does anyone know if this is common after this procedure? Was given perithrin but only took it once since i feel it could cause acute damage to remaining kidney.

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