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diagnosed at 21

songbird09
songbird09 CSN Member Posts: 2
in Multiple Myeloma #1
I am a 21 year old female and I was recently diagnosed with Multiple Myeloma this past March. I had never even heard of this type of cancer until then. I have been in and out of hospitals for the past 8 years and the doctors all told me I had blood clots in my spinal area and legs but they never bothered to test for cancer. Finally a new doctor was given my case and he quickly suggested I see a specialist at the Austin Cancer Center.I am scheduled for Stem Cell Transplant next week. I am an opera performance major in my sophomore year of college. I always dreamed of traveling the world and performing. Now I'm terrified I may never be able to do so. I'm still in shock every day. I found this site while researching survivor stories and so far have found it very useful & uplifting. I hope to find comfort and to ease my mind in the future with this site.
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  • DadysGirl
    DadysGirl CSN Member Posts: 346
    #2
    Hi, my dad is also going in
    Hi, my dad is also going in next week 12th collection... Very scared but I hope and pray for all and both you and my dad to get through it without complications and hopefully get a cure and never get it back again... What'syour name? My Dad's name is Yunus, let's keep each other and everyone else in our thoughts and prayers...
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  • songbird09
    songbird09 CSN Member Posts: 2
    #3
    DadysGirl said:

    Hi, my dad is also going in
    Hi, my dad is also going in next week 12th collection... Very scared but I hope and pray for all and both you and my dad to get through it without complications and hopefully get a cure and never get it back again... What'syour name? My Dad's name is Yunus, let's keep each other and everyone else in our thoughts and prayers...

    You're very kind :)
    My name is Alexandrea. Thank you so much for your prayers.They really mean a lot. How old is your dad if you don't mind me asking. I have read about people who have survived after several different combinations of chemo and medication. But I don't know enough just yet to really go into details. The more I read about it the less I feel I know. Yunus is in my prayers :)
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  • elleon
    elleon CSN Member Posts: 1
    #4
    songbird09 said:

    You're very kind :)
    My name is Alexandrea. Thank you so much for your prayers.They really mean a lot. How old is your dad if you don't mind me asking. I have read about people who have survived after several different combinations of chemo and medication. But I don't know enough just yet to really go into details. The more I read about it the less I feel I know. Yunus is in my prayers :)

    You are very, very young to
    You are very, very young to be diagnosed with multiple myeloma, that is quite a shock. My husband has it, found out when he was 45, and that is considered young.

    Don't you worry, you have a long life ahead of you. The advancements made in the past decade hold promise for a wonderful future for you on stage, singing your heart out.

    If at all possible, I would seek out the advice of a multiple myeloma specialist, not just a regular oncologist. Because this is such a special type of cancer, you really need the see a doctor who works exclusively with this cancer. There are not a lot of them, but they are out there. Because you are so young, any of them would be intrigued to meet you.

    Good luck.
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  • DadysGirl
    DadysGirl CSN Member Posts: 346
    #5
    songbird09 said:

    You're very kind :)
    My name is Alexandrea. Thank you so much for your prayers.They really mean a lot. How old is your dad if you don't mind me asking. I have read about people who have survived after several different combinations of chemo and medication. But I don't know enough just yet to really go into details. The more I read about it the less I feel I know. Yunus is in my prayers :)

    Hi :) you still around
    Hi :) you still around sweetie?
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  • wrkoutgrly
    wrkoutgrly CSN Member Posts: 1
    #6
    Diagnosed at 22
    Hi Alexandrea! My name is D'Ann and I am a 22 year old girl who was diagnosed this January after breaking my back due to a plasmacytoma. The doctors did a spinal fusion surgery on my back and further tests revealed other lytic bone lesions. A bone marrow biopsy also confirmed myeloma cells present in the marrow. You are the first person I know of who is in their early 20's and has Multiple Myeloma too. I have found it very difficult so far to be able to relate to anyone with this cancer because most individuals are older. Please feel free to email me. I would absolutely LOVE to talk with you. buckaroo_21@hotmail.com is my email and I check it regularly. God bless you girl. We can fight this together and win :)
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