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anyone else tried GCMAF or got any good or bad stories about it UPDATED great nagalase result <0.9

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Comments

  • herdizziness
    herdizziness Member Posts: 3,624

    so what does my clear scan mean re nagalase testing and cea ?
    Dear friends,

    So is CEA an outdated test ?, will nagalase be the new bio marker for colorectal in the future ? what does my one blood test level mean. Its exciting to think i could be the first poineer here to find something of immense value to the colorectal community or i have just been duped of $170 aud for the nagalase test.

    but just imagine for a minute, a more accurate colorectal biomarker, it could change all clinical practice and guidelines overnight. the possibility is exciting. now if not nagalase, and at this point i hope it is the real deal. it will be another better test one day.

    i dream of blood tests with better specificity, more accuracy to help make better clincial decisions, in tighter timeframes. to save more lives.

    so i plan to do nagalase tests , side by side my cea. I will include all the results here.

    should i even tell me onc, i know she will say the test is alt garbage, not proven and she cannot make clinical decisions using it. i know the evidence based answers to well already.

    Now something deliberately controversial.

    i so agree about hating the charletons who take our money. almost everyday in my personal survival quest i get advice that i have to rigorously question and assess against my knowledge base.

    i often run the risk of being scammed or defrauded regarding my cancer treatments.

    i am confident in my understanding and judgement for my situation alone. i make the best decisions i can, we all do. of course they are different decisions, we all have different paths in our healing journey.

    we come together and share our longing for survival often our frustrations.

    my vent earlier , that got me into more trouble again, was aimed at the charletons. you see for almost everyone here going down the tried and tested conventional path you are protected from the charletons to a large extent. except when the cancer centers had the fake chemo, that i alerted you guys to months ago. that was greed at its worst, even conventional medicine is not safe from charletons and scammers and how long did the fda take to give the warning.

    Those who follow the alternative path, myself included, are exposed constatnly to the conartists, to buying over the net, to trusting references that maybe suspect. i have heard of some of my friends here being exploited and it makes my blood boil, i want revenge but i will not permit myself to explore the depth of rage i feel to those that exploit the weak.

    one day if you are really up for the discussion, and i don't have time for it right now. are our current onc's negligent about not recommending exercise to vulnerable cancer patients. as a professiona they have waited years to make such a daring advice to patients. still they have not yet. so that is callous, negligent breach of trust in my books. I empathise with those loyal trusting cancer patients.

    now consider the charletons that sell fake gcmaf or any other cancer scam, or come up with bogus studies.

    whats worse the negligent onc who fails his duty of care or the charleton ?

    my answer is the onc's are worse because exercise saves lives, its that simple. its as easy as a walk. how come the ACS is in a better position of advocacy than one of our most trusted professions.

    the onc failure here effects thousands more patients than the charletons. my reasoning is probably because most cancers patients don't have funds left to scammed out of.

    I raise the question of the failings of conventional oncology with respect to my case as an example.

    Why did not my conventional onc ask about gcmaf and recommended the nagalase test ?

    Why did my intergrative oncologist have to perform this function ?

    this is all just my opinion but conventional oncology has to adapt faster, too many lives are being lost. maybe nagalase will be the tip of the iceberg, maybe not. But exercise and simple walking is, and thats enough to convict the entire profession on.

    If nagalase is the real deal, I won't ask myself why its taken so long to be tested ? I may not like the answers and i won't think about where my health would be if I had started testing earlier and I will cry for many reasons.

    i have a sense of my duty of care to me and my friends here, i think its far more advanced than that i see in most oncologists with regard cancer therapies regarding healthy diet, exercise and supplements.

    those that seek out better ways than conventional, that seek to give themselves the best chance of life i appreciate and am grateful for, they are pushing the potential of cure. indirectly they are boosting my chances by sharing their experience.

    this thread is about gcmaf, but it brings together the issues around alternative and conventional as well as the responsibility we have for our own health given the limitations of the health system i am being treated in. Is it not sensible to see the limitations of my system and workaround them ?

    so i have a clear scan, but the words in the ct report "no changes found at this stage" bring home the fragile nature of my health and why i will be insisting on my gcmaf shot tomorrow.

    i wonder why my cea is rising ? I will ask my onc next week for the bone scan and the liver mri with contrast called primovist. its the worlds most accurate way of defining liver mets according to my little scanning team at sydney xray.

    i will also ask my colorectal surgeons to go and patch up my hernia and in the process have a poke around the liver and abdo to see if they can find something to cut out. I at least have to ask this question again, its been six months since i asked it. and this rising cea is a real bummer.

    the best thing about having a rising cea over eight months and NO tumours found on the scans is i have had an amazing window to try almost every alternative cancer treatment in the top 10. For the record none of them have killed me, or sent me broke. i have great health and now enjoy raw broccoli.

    hugs,
    pete

    What does rising CEA and clear scan mean?
    Pete, in all honesty I think it's your body screaming at you to quit some of the strange things you are doing to your body, maybe the rising CEA is trying to tell you that your body isn't happy with some of the stuff you are doing to it, if it ISN'T cancer as your scans tell you, then it must be something? Like you are abusing your body with so many alternative stuff that's it's trying to tell you knock it off? Just a thought to explain rising CEA, it's rising for a reason, maybe you should try backing off of some of what you are doing to your body.
    I like you Pete, but you are starting to really push some things that aren't proven, that give false hopes and then I feel like I must step in when you start to get pushy pushy with the scams and talk with a voice of reason.
    Pete stick with the healthy stuff, the foods, the walking, your meditation, etc., BUT please try and stop using the stuff that's been advertised for over 20 years as the cure all for all that ails the world.
    Your anti-oncologist rants and fear of cancer I think really suggest that perhaps you should maybe sit down and talk with a professional about your feelings and fears, I truly think it would help you from running with so much fear.
    Concerned,
    Winter Marie
  • manwithnoname
    manwithnoname Member Posts: 402

    After 20 years
    of selling it, if it was curing AIDS and cancer, I'm pretty sure it would have been BIG BIG NEWS. Every where I looked it was CURING AIDS. Give me a break. My brother died from AIDS and I'm sick of these scam artists trying to get you to buy what their selling with the promise of a cure. Yes, I'm going to believe something CURES not only AIDS,but CANCER AND MS too, whoop whoop. Sorry, you can go spend all you want on it,throwing your money away, but nothing you can say or show will convince me. Everything I found on the internet talking how great it is, was from people PROMOTING the sales of it. And of course they warn you on their site, it's just because big pharma can't make money off of it is why one knows about it, except you the researcher that has finally found them and can cure yourself of cancer and aids and a few other diseases if you spend your hard earned money on it.
    Pete, you are a scam artists dream.
    From their own web site:
    http://www.gcmaf.eu/info/index.php?option=com_content&view=category&layout=blog&id=20&Itemid=25
    Winter Marie

    20 years? more like 2 years...
    gcmaf.eu was registered 2 years ago.

    Hardly ANY cancer patients are using this, Im only here coz I found Pete through Google, most of the interest is from ME/CFS patients and kids with autism and a few renegade HIV patients, why don't you look at some of those and how people are doing with it?

    http://drbradstreet.org/

    http://forums.phoenixrising.me/index.php?threads/gcmaf-for-xmrv-gc-protein-derived-macrophage-activating-factor-anyone-taking-it.4892/page-125#post-274376

    http://forums.questioningaids.com/showthread.php?t=7588


    If you google 'gcmaf cancer treatment' you will find this thread and not much else, it's not like thousands of poor victims have been conned.

    This is cutting edge stuff (even after 20 years of research) kudos to Pete for testing it.
  • manwithnoname
    manwithnoname Member Posts: 402

    What does rising CEA and clear scan mean?
    Pete, in all honesty I think it's your body screaming at you to quit some of the strange things you are doing to your body, maybe the rising CEA is trying to tell you that your body isn't happy with some of the stuff you are doing to it, if it ISN'T cancer as your scans tell you, then it must be something? Like you are abusing your body with so many alternative stuff that's it's trying to tell you knock it off? Just a thought to explain rising CEA, it's rising for a reason, maybe you should try backing off of some of what you are doing to your body.
    I like you Pete, but you are starting to really push some things that aren't proven, that give false hopes and then I feel like I must step in when you start to get pushy pushy with the scams and talk with a voice of reason.
    Pete stick with the healthy stuff, the foods, the walking, your meditation, etc., BUT please try and stop using the stuff that's been advertised for over 20 years as the cure all for all that ails the world.
    Your anti-oncologist rants and fear of cancer I think really suggest that perhaps you should maybe sit down and talk with a professional about your feelings and fears, I truly think it would help you from running with so much fear.
    Concerned,
    Winter Marie

    Maybe your right or maybe you are wrong.
    First of all this has NOT been advertised as a 'cure' for cancer for over 20 years, that is completely false or show me otherwise.

    Second, Im going to talk with a 'voice of reason' how is Gc-MAF a scam?, all I have found are peer reviewed scientific papers that ALL say more research is needed, NONE are saying it's bull, ALL find it kills cancer.

    Third, maybe if you were given a few months to live you would be willing to take a medicine that has low or no side affects and might prolong your life or EVEN cure you for a few hundred dollars.
  • Sundanceh
    Sundanceh Member Posts: 4,392

    tony, the protocol, here goes this weeks
    sfn, mcp, avemar, minerals, vitamins, egcg, tumeric, q10, probiotics 4 types, slippery elm, glisodin, astralgus, spirulina, chorella, wheat grass, kelp, iodine, artemisinin, b12, fish oil, flax oil, udo oil, greenlip mussel oil, coconut oil, digestive enzymes 5 types, protein powders, alkaline water ph=9.5, tcm daily, shark cartlige , b17, resveratrol, grape seed, psp, psk, reishi, cordyceps, mushroom drops 3 types, vit d, vit c, vit k2, vit k3 and c, melatonin, milk thistle, gsh, nac, glycine, calcium d glucarate.

    currently doing iv c, sodium bicard, alpha lipoic acid 3 days a week.

    yoga, qigong, meditation, weightlifting, walking.

    diet raw vegan, with a few cheats. doing 4 veg juices/ green smoothies daily.

    my hobbies is reading research studies. in another life i am the worlds most enthusiastic underwater photographer.

    the i have made my liposomal vit c, but not yet curcumin. my friend has to extract the raw curcumoids using a patentable protocol he thinks. so if you want to try liposomal curcumin then source on the net. i have not looked into this yet. i am happy with inflavanoid from metagenics. google its , got lots of good cofactors boswellia to name one.

    i also don't waste a second on converting skeptics, our lives are to short.

    I have an amazing book, 80 pages on sfn and glisodin from the worlds best source, a personal friend almost and an amazing phd researcher, if you want to read why broccoli powder is first on my list, that book is the way to go. pm with an email if you or anyone else wants it. if you want the clearest understadning of free radical cascades and the antioxidant pyramid then its the book.

    hugs,
    pete

    `

    `
  • manwithnoname
    manwithnoname Member Posts: 402

    so what does my clear scan mean re nagalase testing and cea ?
    Dear friends,

    So is CEA an outdated test ?, will nagalase be the new bio marker for colorectal in the future ? what does my one blood test level mean. Its exciting to think i could be the first poineer here to find something of immense value to the colorectal community or i have just been duped of $170 aud for the nagalase test.

    but just imagine for a minute, a more accurate colorectal biomarker, it could change all clinical practice and guidelines overnight. the possibility is exciting. now if not nagalase, and at this point i hope it is the real deal. it will be another better test one day.

    i dream of blood tests with better specificity, more accuracy to help make better clincial decisions, in tighter timeframes. to save more lives.

    so i plan to do nagalase tests , side by side my cea. I will include all the results here.

    should i even tell me onc, i know she will say the test is alt garbage, not proven and she cannot make clinical decisions using it. i know the evidence based answers to well already.

    Now something deliberately controversial.

    i so agree about hating the charletons who take our money. almost everyday in my personal survival quest i get advice that i have to rigorously question and assess against my knowledge base.

    i often run the risk of being scammed or defrauded regarding my cancer treatments.

    i am confident in my understanding and judgement for my situation alone. i make the best decisions i can, we all do. of course they are different decisions, we all have different paths in our healing journey.

    we come together and share our longing for survival often our frustrations.

    my vent earlier , that got me into more trouble again, was aimed at the charletons. you see for almost everyone here going down the tried and tested conventional path you are protected from the charletons to a large extent. except when the cancer centers had the fake chemo, that i alerted you guys to months ago. that was greed at its worst, even conventional medicine is not safe from charletons and scammers and how long did the fda take to give the warning.

    Those who follow the alternative path, myself included, are exposed constatnly to the conartists, to buying over the net, to trusting references that maybe suspect. i have heard of some of my friends here being exploited and it makes my blood boil, i want revenge but i will not permit myself to explore the depth of rage i feel to those that exploit the weak.

    one day if you are really up for the discussion, and i don't have time for it right now. are our current onc's negligent about not recommending exercise to vulnerable cancer patients. as a professiona they have waited years to make such a daring advice to patients. still they have not yet. so that is callous, negligent breach of trust in my books. I empathise with those loyal trusting cancer patients.

    now consider the charletons that sell fake gcmaf or any other cancer scam, or come up with bogus studies.

    whats worse the negligent onc who fails his duty of care or the charleton ?

    my answer is the onc's are worse because exercise saves lives, its that simple. its as easy as a walk. how come the ACS is in a better position of advocacy than one of our most trusted professions.

    the onc failure here effects thousands more patients than the charletons. my reasoning is probably because most cancers patients don't have funds left to scammed out of.

    I raise the question of the failings of conventional oncology with respect to my case as an example.

    Why did not my conventional onc ask about gcmaf and recommended the nagalase test ?

    Why did my intergrative oncologist have to perform this function ?

    this is all just my opinion but conventional oncology has to adapt faster, too many lives are being lost. maybe nagalase will be the tip of the iceberg, maybe not. But exercise and simple walking is, and thats enough to convict the entire profession on.

    If nagalase is the real deal, I won't ask myself why its taken so long to be tested ? I may not like the answers and i won't think about where my health would be if I had started testing earlier and I will cry for many reasons.

    i have a sense of my duty of care to me and my friends here, i think its far more advanced than that i see in most oncologists with regard cancer therapies regarding healthy diet, exercise and supplements.

    those that seek out better ways than conventional, that seek to give themselves the best chance of life i appreciate and am grateful for, they are pushing the potential of cure. indirectly they are boosting my chances by sharing their experience.

    this thread is about gcmaf, but it brings together the issues around alternative and conventional as well as the responsibility we have for our own health given the limitations of the health system i am being treated in. Is it not sensible to see the limitations of my system and workaround them ?

    so i have a clear scan, but the words in the ct report "no changes found at this stage" bring home the fragile nature of my health and why i will be insisting on my gcmaf shot tomorrow.

    i wonder why my cea is rising ? I will ask my onc next week for the bone scan and the liver mri with contrast called primovist. its the worlds most accurate way of defining liver mets according to my little scanning team at sydney xray.

    i will also ask my colorectal surgeons to go and patch up my hernia and in the process have a poke around the liver and abdo to see if they can find something to cut out. I at least have to ask this question again, its been six months since i asked it. and this rising cea is a real bummer.

    the best thing about having a rising cea over eight months and NO tumours found on the scans is i have had an amazing window to try almost every alternative cancer treatment in the top 10. For the record none of them have killed me, or sent me broke. i have great health and now enjoy raw broccoli.

    hugs,
    pete

    Done some digging on Nagalase as a marker
    I posted before that I wasn't 100% on this enzyme being a reliable marker of tumour progression or cancer state.

    These 2 studies pushed me over;

    http://www.ncbi.nlm.nih.gov/pubmed/19394758
    http://www.ncbi.nlm.nih.gov/pubmed/10940510

    evidence is starting to mount up (slowly)
  • Phil64
    Phil64 Member Posts: 838
    Sundanceh said:

    My Onc...
    has always talked about walking to help cancer...and he's said it more than once.

    He mentioned it to me during chemo as well....to just walk 5-minutes even when sick on chemo.

    Some doctors may or may not counsel on this...but as reasonably intelligent folks, we already know that exercise is beneficial to us with or without cancer.

    Mine has always been real good to stay on me to walk and lose weight. He told me last time to get a few more pounds off...so he is taking care of business.

    so did my onc
    he said eating healthy, exercising, at the vary least will help us fight the fight. He did say there is not clear evidence / research that supports a theory that a change in diet will help "cure" cancer. But he did say there is a lot of research that correlates an unhealthy diet / lack of exercise with getting cancer.
  • herdizziness
    herdizziness Member Posts: 3,624

    Maybe your right or maybe you are wrong.
    First of all this has NOT been advertised as a 'cure' for cancer for over 20 years, that is completely false or show me otherwise.

    Second, Im going to talk with a 'voice of reason' how is Gc-MAF a scam?, all I have found are peer reviewed scientific papers that ALL say more research is needed, NONE are saying it's bull, ALL find it kills cancer.

    Third, maybe if you were given a few months to live you would be willing to take a medicine that has low or no side affects and might prolong your life or EVEN cure you for a few hundred dollars.

    Exactly
    Your third part: I was given a few months to live myself, I didn't go running over to something that was unproven yet something that swore it would CURE me for a few hundred bucks, wasting what was left of my time on taking money from my family and throwing it essentially down a toilet, I admit instead I did conventional therapy and miracle of miracles I'm still here, two and half years later, go figure. Especially something that claims to CURE cancer, AIDS, MS and a few other things. Let's be sensible, really, a CURE-ALL one size fits all thing? Really?
    Do you really think if my brother, who died of complications of AIDS had taken GmMAF would be alive today? NO, he wouldn't, no more then GmMAF cures cancer. Nuff said.
    Winter Marie
  • manwithnoname
    manwithnoname Member Posts: 402

    Exactly
    Your third part: I was given a few months to live myself, I didn't go running over to something that was unproven yet something that swore it would CURE me for a few hundred bucks, wasting what was left of my time on taking money from my family and throwing it essentially down a toilet, I admit instead I did conventional therapy and miracle of miracles I'm still here, two and half years later, go figure. Especially something that claims to CURE cancer, AIDS, MS and a few other things. Let's be sensible, really, a CURE-ALL one size fits all thing? Really?
    Do you really think if my brother, who died of complications of AIDS had taken GmMAF would be alive today? NO, he wouldn't, no more then GmMAF cures cancer. Nuff said.
    Winter Marie

    No you have it all wrong
    Im talking about when ALL conventional therapy has failed (like my little boys case) AGAIN no one here ACCEPT YOU is saying this is a cancer cure, please read everything I posted again.
    As for your brother, I have no idea, and neither do you.
  • smokeyjoe
    smokeyjoe Member Posts: 1,425

    Done some digging on Nagalase as a marker
    I posted before that I wasn't 100% on this enzyme being a reliable marker of tumour progression or cancer state.

    These 2 studies pushed me over;

    http://www.ncbi.nlm.nih.gov/pubmed/19394758
    http://www.ncbi.nlm.nih.gov/pubmed/10940510

    evidence is starting to mount up (slowly)

    Interesting.....it's all
    Interesting.....it's all soooo technical....
  • herdizziness
    herdizziness Member Posts: 3,624

    No you have it all wrong
    Im talking about when ALL conventional therapy has failed (like my little boys case) AGAIN no one here ACCEPT YOU is saying this is a cancer cure, please read everything I posted again.
    As for your brother, I have no idea, and neither do you.

    About my brother
    Yes I do, have an idea, absolutely that GcMAF would have made NO difference in his dying from complication of AIDS NO MATTER what GcMAF says about it, it's something they are selling to the vulnerable and desperate. AND GcMAF claims it's a cancer cure, you might not, but they do!!
    This is just ONE of their claims from THEIR site:
    "injection of minute amounts of Gc-MAF, just 100 nanograms (billionths of a gram), activates macrophages and allows the immune system to pursue cancer cells with vigor, sufficient to produce total long-term cures in humans."
    Winter Marie
  • manwithnoname
    manwithnoname Member Posts: 402

    About my brother
    Yes I do, have an idea, absolutely that GcMAF would have made NO difference in his dying from complication of AIDS NO MATTER what GcMAF says about it, it's something they are selling to the vulnerable and desperate. AND GcMAF claims it's a cancer cure, you might not, but they do!!
    This is just ONE of their claims from THEIR site:
    "injection of minute amounts of Gc-MAF, just 100 nanograms (billionths of a gram), activates macrophages and allows the immune system to pursue cancer cells with vigor, sufficient to produce total long-term cures in humans."
    Winter Marie

    Now I see why you have it all wrong...
    "This is just ONE of their claims from THEIR site:
    "injection of minute amounts of Gc-MAF, just 100 nanograms (billionths of a gram), activates macrophages and allows the immune system to pursue cancer cells with vigor, sufficient to produce total long-term cures in humans."

    That is from an article they have on their site that they took from the Internet, the SAME article that the cancer charity used which was written by people NOT AFFILIATED with Gcmaf.eu, granted the writers made wild claims for a 'cure' but it was just their opinion.

    HERE IS WHAT GCMAF.EU SAY on their home page;

    "Chronic herpes/acne takes about six weeks. Autism (85% respond), and those with CFS or HIV, (15% respond, most appear to have the VDR gene blocked) and stage 1to 2 cancer, (80% respond) take about 24 weeks. Late stage cancer, perhaps 20% responders, takes a year to 18 months. The more minor the disease, the easier it is for GcMAF and your immune system to eradicate. GcMAF needs normal levels of vitamin D to function strongly. But even in low responders, GcMAF usually appears to stop the advance of cancer."

    NOT ONE WORD ABOUT 'CURING' AIDS, CANCER OR ANYTHING ELSE.

    Did you read ANY of the papers written about this or is this a knee jerk reaction?
  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900
    smokeyjoe said:

    Interesting.....it's all
    Interesting.....it's all soooo technical....

    thanks tony, winter and smokey
    just a very quick update, i appreciate your interest in gcmaf and your care for me and of each other.

    i will read tony links soon, as i am being directed to take gcmaf by my integrative onc, i will discuss with him me scan result next tuesday arvo, i have the last appointment, this will be a two hour consult, discussing all the research papers at the previous weekends alt cancer conference.

    simply screeew cancer, it will never beat me while i have breathe, all my decisions are guided by medical professionals and confirmed by my research, the biggies i share here on csn. I have not made a fearful decision in a long long time, i thought you knew me better than that. i was diving and went head to head with an angry bullshark, my friends thought i was dead. i just said simple baby and took a great headshot. he turn at the last minute. no fear just exhilaration.

    fear is what i see in schools of fish when the sharks are attacking, the smart fish swim away from the pack. the sharks only attack the schools. i am the alternative cancer patient swimming away on my own path from a group i see as dominated by fear. just my opinion.

    i have faith in my doctors, what i have studied so makes me feel positive about gcmaf/nagalase testing.

    this stuff is very technical, so smokey and all, just read and learn and be amazed at the research and ideas of other brilliant minds. you will know more about this than your onc, then educate them. together we may start a revolution that saves lives, worst you have read about something that hopeful got the blood flowing between a few brain cells.

    i will update this after my consult next week and i get my second gcmaf shot. as i see it, not having the gcmaf is a risk i would like to avoid. its only money and we cannot take it with us, if its a con then i will haunt them along time into the future.

    health and love to all.

    hugs,
    pete
  • annalexandria
    annalexandria Member Posts: 2,571

    my 2nd gcmaf shot was postponed as i may not need it.
    my seriously overworked integrative onc had only 5 minutes for me today.
    he said my nagalase result was exceptional, the lowest result in the country so far
    0.9

    this clearly puts me in the group who have no secondary cancers. as no relevant experience on csn with the tests relevance to cea test results.

    given my recent cea highscore of 46, which precipitated the gcmaf and the nagalase testing.

    its ironic that these results completely contradict the assumption of my doctors conventional and alternative that i am dealing with a slow growing recurrence.

    as mentioned the 1 ultrasound, 2 pets and 3 cts in the last 7 months have been all very clean.

    the ct scan next week will be interesting. if its bad on the scan then nagalase usefulness is compromised. if the scan is still clear then cea is likely not a good marker for my tumour growth and it will likely just be inflamation.

    i feel terrific, like 50kg has been lifted from my shoulders.

    all these daydreams and plans started rolling into my imagination.

    i actually knew this test result was going to be interesting, a game changer in ways i suspect.

    my integrative onc just could not stop smiling, he organised to get nagalase testing into the australia. how lucky am i. we covered alot in 5 minutes. i am proud of my health and these results. really overjoyed. i called all my closest friends. i know it not over and tomorrow is another day, but its a brighter day, i feel lighter and satisfied.

    this may just be the eye of the storm or a long smooth calm patch.

    i am committed to my vegan, juicing, meditating, exercising lifestyle with some supplements and qigong. i will start to plan wind back strategies.

    my integrative onc went to australia premier alt cancer conference last weekend.
    off the record here some things to ponder.

    no supps from china or japan
    best omega 3 nordic naturals
    no soy, diary, whey
    no b vitamin
    no folate
    check vit d ratios 3/1
    no growth hormone ie mine from natural weightlighting is ok.
    aged garlic essential
    1000mg tumeric not enough mayve my 2000mg is ok.

    have good protein but not to much ie p protein

    we are going to have a good two hour chat about the conference and as soon as i am cured officially i may start work with him or i may go diving with some sexy sharks and take some photos.

    my positive spirits maybe premature, but don't burst my bubble. please!
    our cancers are perfectly capable of bubble bursting!

    but in a healing journey full of challenges i think its essential to CELEBRATE loud and clear our successes. NO matter how large or small. NO matter how long or short.

    I am alive, you are alive and its been an absolutely wonderful day.

    hugs,
    pete

    ps saw my tcm onc tonight to get more herbs. guess who deleivered the conference address to 600 alternative cancer professionals on the weekend on tcm. yep thats it, my tcm doc. i am blessed with the best team, i have learned alot from them and i have tought them about difficult patients, thats too negative. lets say i have taught them about fantantical and obsessive patients with a will to live that reflects the beauty of life.

    Hey Pete-
    lots of interesting info here, thanks! Was wondering why no B vitamins? I was thinking about adding them as a supplement, after talking to a scientist friend who said they're important for repairing chromosome damage. Did one of your docs think it was bad to take it? Ann
  • manwithnoname
    manwithnoname Member Posts: 402

    thanks tony, winter and smokey
    just a very quick update, i appreciate your interest in gcmaf and your care for me and of each other.

    i will read tony links soon, as i am being directed to take gcmaf by my integrative onc, i will discuss with him me scan result next tuesday arvo, i have the last appointment, this will be a two hour consult, discussing all the research papers at the previous weekends alt cancer conference.

    simply screeew cancer, it will never beat me while i have breathe, all my decisions are guided by medical professionals and confirmed by my research, the biggies i share here on csn. I have not made a fearful decision in a long long time, i thought you knew me better than that. i was diving and went head to head with an angry bullshark, my friends thought i was dead. i just said simple baby and took a great headshot. he turn at the last minute. no fear just exhilaration.

    fear is what i see in schools of fish when the sharks are attacking, the smart fish swim away from the pack. the sharks only attack the schools. i am the alternative cancer patient swimming away on my own path from a group i see as dominated by fear. just my opinion.

    i have faith in my doctors, what i have studied so makes me feel positive about gcmaf/nagalase testing.

    this stuff is very technical, so smokey and all, just read and learn and be amazed at the research and ideas of other brilliant minds. you will know more about this than your onc, then educate them. together we may start a revolution that saves lives, worst you have read about something that hopeful got the blood flowing between a few brain cells.

    i will update this after my consult next week and i get my second gcmaf shot. as i see it, not having the gcmaf is a risk i would like to avoid. its only money and we cannot take it with us, if its a con then i will haunt them along time into the future.

    health and love to all.

    hugs,
    pete

    WOW
    Pete that is an interesting protocol you devised, totally agree with the SFN, trying myself to find a good source for it here, VERY interested in the book.
    Looks like you are going the alkaline path, Im still trying to find more info on that route, it's a minefield...

    We got a visit from an oncologist the other day, (sometimes people go out of there way when it concerns a child) a very interesting Dr. who now works in palliative care for terminal patients (he did say though some of his terminal patients are refusing to die) ;-)
    he is very enthusiastic about this; http://www.natmedtalk.com/f27/4491-mms-dmso-cancer-protocol.html
    The Dr. is using this and finds it is working.

    also says we can use a cream instead of oral, we are starting this next week, will update.

    We are also starting virus treatment next week, remembered some trials had be done with colorectal, have a read; http://jnci.oxfordjournals.org/content/91/20/1708.full

    It's an old article and much more work has been done with this since 99, this treatment is very safe...
  • janderson1964
    janderson1964 Member Posts: 2,215

    thanks tony, winter and smokey
    just a very quick update, i appreciate your interest in gcmaf and your care for me and of each other.

    i will read tony links soon, as i am being directed to take gcmaf by my integrative onc, i will discuss with him me scan result next tuesday arvo, i have the last appointment, this will be a two hour consult, discussing all the research papers at the previous weekends alt cancer conference.

    simply screeew cancer, it will never beat me while i have breathe, all my decisions are guided by medical professionals and confirmed by my research, the biggies i share here on csn. I have not made a fearful decision in a long long time, i thought you knew me better than that. i was diving and went head to head with an angry bullshark, my friends thought i was dead. i just said simple baby and took a great headshot. he turn at the last minute. no fear just exhilaration.

    fear is what i see in schools of fish when the sharks are attacking, the smart fish swim away from the pack. the sharks only attack the schools. i am the alternative cancer patient swimming away on my own path from a group i see as dominated by fear. just my opinion.

    i have faith in my doctors, what i have studied so makes me feel positive about gcmaf/nagalase testing.

    this stuff is very technical, so smokey and all, just read and learn and be amazed at the research and ideas of other brilliant minds. you will know more about this than your onc, then educate them. together we may start a revolution that saves lives, worst you have read about something that hopeful got the blood flowing between a few brain cells.

    i will update this after my consult next week and i get my second gcmaf shot. as i see it, not having the gcmaf is a risk i would like to avoid. its only money and we cannot take it with us, if its a con then i will haunt them along time into the future.

    health and love to all.

    hugs,
    pete

    Thank you for being the
    Thank you for being the guinea pig for gcmaf. I am definately going to try it if i reccur.
  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900

    WOW
    Pete that is an interesting protocol you devised, totally agree with the SFN, trying myself to find a good source for it here, VERY interested in the book.
    Looks like you are going the alkaline path, Im still trying to find more info on that route, it's a minefield...

    We got a visit from an oncologist the other day, (sometimes people go out of there way when it concerns a child) a very interesting Dr. who now works in palliative care for terminal patients (he did say though some of his terminal patients are refusing to die) ;-)
    he is very enthusiastic about this; http://www.natmedtalk.com/f27/4491-mms-dmso-cancer-protocol.html
    The Dr. is using this and finds it is working.

    also says we can use a cream instead of oral, we are starting this next week, will update.

    We are also starting virus treatment next week, remembered some trials had be done with colorectal, have a read; http://jnci.oxfordjournals.org/content/91/20/1708.full

    It's an old article and much more work has been done with this since 99, this treatment is very safe...

    I use enduracell for sfn, I count the company owner as a friend
    Pm me your email, I will send you the sfn Book that will give hope.
    To Get the 200 DNA repair genes activated, at least read and we can discuss, it's just Gold.

    Hugs,
    Pete

    Ps my protocol for colorectal reflects heaps of care from lots of medical professionals and my own research.
    Thats the most positive comment about my protocol I have had said here, most think my protocol stupid, strange that what I would feel I did not do it, now I have educated myself. Without my protocol I would more than the 20 mg melatonin I take to get a good night's sleep.
  • tanstaafl
    tanstaafl Member Posts: 1,299

    WOW
    Pete that is an interesting protocol you devised, totally agree with the SFN, trying myself to find a good source for it here, VERY interested in the book.
    Looks like you are going the alkaline path, Im still trying to find more info on that route, it's a minefield...

    We got a visit from an oncologist the other day, (sometimes people go out of there way when it concerns a child) a very interesting Dr. who now works in palliative care for terminal patients (he did say though some of his terminal patients are refusing to die) ;-)
    he is very enthusiastic about this; http://www.natmedtalk.com/f27/4491-mms-dmso-cancer-protocol.html
    The Dr. is using this and finds it is working.

    also says we can use a cream instead of oral, we are starting this next week, will update.

    We are also starting virus treatment next week, remembered some trials had be done with colorectal, have a read; http://jnci.oxfordjournals.org/content/91/20/1708.full

    It's an old article and much more work has been done with this since 99, this treatment is very safe...

    too alternative for me
    I would think twice and three times about not using MMS. First chlorite is incompatible with other alternatives that are antioxidants, and that covers a lot of territory. Second, DMSO is a supersolvent that needs to handled with knowledge and great care. Third, (salts of) chlorine dioxide generation and use has a snakey history where even industrial chemists wound up with egg on their face and shaking their heads over optimistic claims for industrial uses, much less human use.

    MSM (methyl sulfonyl methane, is not MMS mistyped!) is a common form of oxidized DMSO that most people use now with cancer and arthritis instead of DMSO. I would look for less dramatic chemicals than MMS-DMSO for personal uses or alt meds.
  • Minnesotagirl
    Minnesotagirl Member Posts: 141

    I use enduracell for sfn, I count the company owner as a friend
    Pm me your email, I will send you the sfn Book that will give hope.
    To Get the 200 DNA repair genes activated, at least read and we can discuss, it's just Gold.

    Hugs,
    Pete

    Ps my protocol for colorectal reflects heaps of care from lots of medical professionals and my own research.
    Thats the most positive comment about my protocol I have had said here, most think my protocol stupid, strange that what I would feel I did not do it, now I have educated myself. Without my protocol I would more than the 20 mg melatonin I take to get a good night's sleep.

    I admire your spunk Pete
    Hey Pete,

    Just wanted to tell you that I admire your spunk! I also admire your tenacity to think outside the box. Keep the information coming but please not at the cost of your own health.

    "Minnie"
  • manwithnoname
    manwithnoname Member Posts: 402
    tanstaafl said:

    too alternative for me
    I would think twice and three times about not using MMS. First chlorite is incompatible with other alternatives that are antioxidants, and that covers a lot of territory. Second, DMSO is a supersolvent that needs to handled with knowledge and great care. Third, (salts of) chlorine dioxide generation and use has a snakey history where even industrial chemists wound up with egg on their face and shaking their heads over optimistic claims for industrial uses, much less human use.

    MSM (methyl sulfonyl methane, is not MMS mistyped!) is a common form of oxidized DMSO that most people use now with cancer and arthritis instead of DMSO. I would look for less dramatic chemicals than MMS-DMSO for personal uses or alt meds.

    MMS= miracle mineral supplements
    TBH I would not of touched this stuff with a barge pole!!!! I did come across this a few years ago and dismissed it.

    HOWEVER the oncologist who recommended this has a 30+ year working experience in the cancer field he is a totally legit Dr. who has practised in the best hospitals here and UNBELIEVABLY he has a very open mind.

    I take his personal experience on using this with terminal patients as something I can't dismiss given our situation.
  • manwithnoname
    manwithnoname Member Posts: 402

    I use enduracell for sfn, I count the company owner as a friend
    Pm me your email, I will send you the sfn Book that will give hope.
    To Get the 200 DNA repair genes activated, at least read and we can discuss, it's just Gold.

    Hugs,
    Pete

    Ps my protocol for colorectal reflects heaps of care from lots of medical professionals and my own research.
    Thats the most positive comment about my protocol I have had said here, most think my protocol stupid, strange that what I would feel I did not do it, now I have educated myself. Without my protocol I would more than the 20 mg melatonin I take to get a good night's sleep.

    Email
    Hi Pete, still can't find the PM button...heres my mail [email protected] (replace dot with. )

    can't wait 4 the book.

    Pete, as for criticism it's part of the course EVERYBODY has an opinion and will tell you exactly how and what you should be doing, I admire you for using your brain and intuition and believing in what you are doing.

    For 3 years now I have spent most of my time (12+ hours per day) reading and reading, trying to find a solution, the task is huge, to cure a highly malignant very rare brain tumour, in my journey I have found a lot of hope and a lot of B.S. the path now is clear ONLY the immune system 'CURES' cancer, everything else is temporary or just tackling symptoms.

    Of course I don't except everyone to agree, I believe I have found the cause as well, Polyoma viruses and parasites, they are proven or implicated in almost every cancer. I can discuss this more (and the proof) if there is any interest here.