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Drumroll......... **** UPDATE ****
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May 04, 2012 - 10:46 am
At St. Louis Univ Hosp NOW getting PET scan. Will have results by 3:00pm TODAY! So I will know if I am still NED or...... NOT :-( Keep your fingers crossed! Let ya'll know later!! Jennie UPDATE....... Sorry to keep you all waiting..... NOT good news. :-( I have 4 new mets..... 2 in each lung.... 1-2cm.... Minimal uptake.... The bad thing is one of the mets is in the Hilum area of the lung and that is an area that cannot be operated on or no RFA there (supposedly) that's the opinion of the rad onc. I cannot and will not have any more Cyberknife as I have too much scar tissue in my lungs from previous treatments and pnemonias. I had a pulmonary function test this morning before my PET scan and it shows too much function loss to lose any more to scar tissue so no Cyberknife for sure. I have been on Vectibix for several months....almost 7.... And I feel that this has kept things to a minimum but not GONE....obviously. I see my Onc on Tuesday and we will be discussing a new Chemo plan. He may want to take me off Vectibix or just add to it. I have very mixed feelings about this. I could go back and try Folfiri again since I have been off of it so long it may work again.... OR...I could try Folfox...never been on that....but that crap scares the crap outta me....PERMANENT nerve damage is what freaks me out.... I will inquire about that new drug that is due out...the one that starts with a Rog.....? have to look that up. I am also going to get a second opinion on what I can do about that met to the Hilum area. From Sloan..or Texas at Craig's people...or maybe elsewhere...not sure where...just sure I will be seeking more opinions. I have a lot to think about and decisions to make but I am definitely back in the fight again.I have had a nice "vacation" while being NED and I am grateful for that. I also started TCM a few months back and I don't think it has really had enough time yet to work the way I was hoping and my TCM doc is still tweaking my herbel treatments so I will be seeing him Monday for a new course of action to aide the attack! This is what being stage IV is all about.... You fall down...YOU GET UP....you fall down...YOU GET UP..... The hard part is keeping a smile on your face! Many of you know I lost my brother in law Wednesday to a stroke. He and my sister had been together almost 44 years.... He just turned 60. We bury him tomorrow. I will focus on that for now..... But next week?????? WATCH OUT CANCER...... I'M GONNA KICK YOUR ARSE!!!! :-). Now THAT makes me smile Love you guys!!! |
Joined: Jan 2011
Big Hug
Praying for you and wishing you the best news ever!
Joined: Apr 2011
fingers crossed
Fingers crossed
Wishing you the best.
Linda
Joined: Feb 2011
Best wishes for a great scan
Best wishes for a great scan :)
Joined: Jul 2011
Thinking of you ...
and praying for GREAT NEWS this afternoon. Sending you best wishes and lots of positive energy.
Joined: Sep 2011
good feeling
Praying your scans are great...have a good feeling. Jeff
Joined: Oct 2011
I am praying that you will
I am praying that you will remainNED.
Joined: Aug 2010
Praying for excelent results Jenny !
Hugs!
Joined: Jun 2009
"X"
"X"
Joined: Sep 2011
Jennie
Hoping for only the best.
Lydia
Joined: May 2011
Praying for Good Results on Scans
You have our prayers and positive thoughts. Have a good lunch while you wait and catch you later for good news.
NB
Joined: May 2011
Jennie
We have your back. Prayers and best wishes for NED...our best friend.
Cathleen Mary
Joined: Mar 2012
All the best
All the best wishes from germany!
Joined: Aug 2011
Fingers, arms, legs,....are
Fingers, arms, legs,....are crossed in support of your NEDness. Prayers your way too. It's 2:45, hope you already know you are NED.
Laura
Joined: Feb 2009
Results
Praying that you get that great news once again. We will be waiting.
Kim
Joined: Mar 2011
Jennie, it is 9 pm. I am a
Jennie, it is 9 pm. I am a wreck. Praying you are celebrating.
Hugs, Judy
Joined: Feb 2011
Judy I'm with you, I logged
Judy I'm with you, I logged on here to check Jennies update.
Joined: Feb 2012
Oops
Posted twice. Sorry.
Joined: Feb 2012
Fingers crossed here
And prayers sent up - hoping to hear back from you that you got good news.
Sandy
Joined: Apr 2009
Jennie
Also sitting here and worrying about you. Hope all is good.
Luv,
Wolfen
Joined: Mar 2012
praying
praying from Arkansas you had a great report
Joined: Sep 2011
this news
Sorry hearing the new dx that stinks...cancer go away and leave us alone. You have a great fighting attitude so that is do important in kicking this in the arse. Praying everything goes your way. Jeff
Joined: Jan 2010
Dear Jennie
So very sorry to hear that the scan shows more mets.
I know you are one who lets no grass grow under her feet when it come to Kickin' cancer's a$$.
Prayers for your sister, you and other loved ones as you deal with the loss of your brother-in-law.
And next week we will be looking to see you with your sh_t kicking boots on as you get to work on this new recurrance.
Hugs and love to ya!
Marie who loves kitties
Joined: Apr 2009
LOL Marie...
Love that boot comment!!!! Thanks for the support....you too Jeff!
Jennie
Joined: Jan 2010
Dear Jennie
Here is the ling Tara provided on a new drug therapy you may have been thinking of:
http://www.medicalnewstoday.com/articles/240536.php
Joined: Apr 2009
Dang Jennie!
Of course, this is not the news we've been waiting for. I see that you have it under control and already have that fighting cap back on. Now as for the boots, that's all I wear so I'll kick some $hit right along with you. That's my specialty.
So sorry also about your brother-in-law. My condolences to your sister and all of the family.
Luv,
Wolfen
Joined: Apr 2010
Well
Gol durn it!!! Oh well, as you said, fall down get back up, and I know you will get back up by kicking its royal arse. You go girl. Been thinking about you and your fam.
Winter Marie
Joined: Jan 2011
Thinking of you...
Jennie you are one of the strongest women I no! I'm so sorry for your loss and sad that your test didn't turn out better.
HANG IN THERE!!
jp
Joined: Sep 2011
Darn
not what we wanted to hear, Not about you or your brother in law.
There you go. KICK ARSE!!!!
Lydia
Joined: Oct 2009
Oh Jennie:
i'm sorry for your news. Crap. You are back in the battle and battle you will. Get a game plan in action and just do what you need to do. Sometimes the finish line seems so far ahead so just keep putting one foot in front of the other and keep moving forward.
Hugs my friend - Tina
Joined: Mar 2012
damn!
So sorry for this news. But you've the right attitude to kick this beast!
Joined: Mar 2012
.
double post
Joined: Jan 2011
Deep Sigh
Oh, Jennie... I checked this site so many times to find out the results, hoping and praying for you the entire time. I wish I could just give you a big hug. This really saddens me. I love your fighter attitude. That's what important. You have to keep fighting.
Much love!
Joined: May 2011
Take a deep breath....
Jennie, this is not the news you (or us, for you) were hoping for but there isn't a cancer out there that isn't intimidated by you. Your strength, attitude, and willingness to go the extra mile is formidable. I hate for you to have to do this again but I know that you can.
Prayers for you and for your sister. A lot to deal with at once.
Hugs,
Cathleen Mary
Joined: Apr 2012
Love your attitude...
Sorry about your news, but love your attitude. I'm still relatively new to this as a stage IV guy, been through 5 treatments of folfiri, and realize this is going to be a roller coaster. Riding high right now with my CEA down to 1.4, but knowing that it's gonna be one helluva battle. But you, my dear, are an inspiration. Good luck with whatever regimen that you and your onc come up with, and keep fighting the good fight! Hugs, Dan
Joined: Oct 2010
You are an amazing woman
You are an amazing woman Jennie! You remind me that making tough decisions is really just putting one foot in front of the other and getting it done when we really might feel like crawling in a hole and wish it would all go away.
Love ya, Gail
Joined: Mar 2011
O Jennie, I am so sorry. I
O Jennie, I am so sorry. I cannot post what my first thought was. I think you are one of the strongest broads i have ever "Met'. Prayers for you and your sister. Love you my friend, Now go kick cancer back to hell where it belongs.
Judy
Joined: Aug 2010
Fuc....ing cancer!
Just know you are not alone on this .Let's go to fight together!
Will pray for you today Jennie . HUGS!
Joined: Oct 2011
I am so sorry to hear about
I am so sorry to hear about the news. You have a great fighting attitude. Get that second opinion or even third opinion until you are satisfied with a good plan of attack.
Jeff
Joined: Feb 2009
Sorry
I'm so sorry about the news but glad you got the fighting spirit back in you. You've dealt with a lot in the last couple of days. Hoping they can give you a new game plan.
Kim
Joined: Aug 2011
Well that news is crapola.
Well that news is crapola. But you, back in the fighting spirit already, you are a fighting spirit, so resilient, a strong opponent of cancer. Here's to kicking its sorry arse again!
Sending love, light and prayers your way.
Laura
Joined: Mar 2009
Arghhhh
%$&&***O<&M^&U& (me swearing) Dear Cancer, please leave Jennie alone. Kind regards Big hugs sis :-(
Joined: Sep 2010
Sorry
Oh hun I'm so sorry to hear this sending hugs Tina
Joined: Jun 2010
So sorry to hear about your
So sorry to hear about your mets. You're a fighter. Don't ever forget that. We will be sending you prayers from down south.
Ktz
Joined: Apr 2011
Oh Jennie.....
Hey....we are in this with you!!!
I had read about TrueBeam radiation. A number of places use it. I have no idea if it works better than other radiation, but it would be worth a look in to it. Maybe your oncologist could find out for you......heck don't most of these docs know (of) each other, or about what's happening at other centers.
Thinking of you at this time, too, with the loss of your brother-in-law.
Joined: Apr 2011
DARN.... Jennie
Just when you think you are done this beast rears up again.
However, YOU wil fight him Back. I am sure you can do it with the right attitude. Remember we are all in it with you, in good days and bad.
So sorry to hear about your brother in law. In your case when it rains it poors.
Hugs my friend.
Marjan
Joined: Oct 2009
Jennie
I am sorry to hear about your scans but...wow..you've got a great attitude. Holding you in the Light for strength to kick cancer's arse right outta here!
I am sorry about your brother-in-law. You and your sister are in my prayers.
~Audrey
Joined: Apr 2009
WOW You GUYS!!!
I signed on and look at all these responses...WOW...you guys sure know how to make a gal feel good!!! Thank you all for the encouraging words. When I hear you all say how strong I am I think... I am???? I just look at the situation..... HUNT for EVERY possible OPTION.... don't take any ONE persons opinion...and I value the experience from the "old timers" on this board...No, not the OLD people...like John23.... I mean OLD in cancer experience...oh wait thats John23 too!!!! Dang John...your arse is REALLY old in many ways!!! LOLOLOLOL!!! That "OLD" experience is worth millions!
For real tho..... I am happy ...so very happy...that I have this support group...because that is what you ALL do..... Support ME... Hold me up...Keep me strong. Thank you :-)
Jennie
Joined: Jul 2007
I love you Woman..
I am just sicken to hear this news, and so very sorry for the loss of your brother n law...Your entire family is in my prayers..but I am saying a very special one for a VERY SPECIAL lady, I am so proud to call my friend....I know this news sucks, but I have all the confidence in you and your strength, your heart, your smarts and I know you will not take this laying down....I admire you so very much, I truly wish I could wave a magic wand and make this crap all go away...I am sending you hugs my friend, and keeping you in my prayers, and always in my heart...
I will be calling you soon...
Love ya
Beth
Joined: Mar 2012
Thinking of You
Sorry to hear your results. When you "kick" use steel toe boots. They are very effective.
Please keep us updated.
Alice
Joined: Nov 2001
Think big
G'day mate,
Why do we keep getting picked on. How many times do we have to pick ourselves up and prepare to do it all again. I remember an old cartoon with two scientists watching a rat going thru a maze. At the end of the maze is a rat trap and one scientist says to the other "who said anything about it being fair".
Yesterday I went fishing in my tinny. The night before I rigged all of my gear because my hands don't work so good any more. Putting my rods in the boat and lost my balance. Pinned my self in the webbing between my thumb and forefinger with a hook . It broke the line so I finished packing the boat went inside and yanked it out with pliers. Went out in the morning ,it was a holiday weekend in aus. Got terrorised by ten million jet skiers,caught a heap of fish. Got back to the ramp in the afternoon,could hardly walk,needed the help of a good samaratin to get the boat back on the trailer. Back home ,wash the boat,clean the fish,stagger thru a shower and collapse in bed at seven pm. All night I dream,of what,winning the lotto and buying a bigger boat. The spirit is strong but the body is week. Just as well we get by on spirit. Jennie your spirit shines like a beacon,hugs and lots of luck.Ron.
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