any other stage 4 stomach cancer people out there doing ok?

have2believe
have2believe Member Posts: 134
edited February 2012 in Stomach Cancer #1
My mom was diagnosed w/ stage 4 stomach cancer and she has been doing well. She actually does not have any debilitating pain and knock on wood, no major symptoms, aside from when she's on chemo.

Anyone else out there?
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Comments

  • nwpassage
    nwpassage Member Posts: 1
    I was diagnosed in June/July
    I was diagnosed in June/July 2011 with stage IV stomach cancer, spread to my lymph, my omentum, and along the outsides of my bowels. I was only 32 (am 33 now). My only symptom was a long history of a "sensitive stomach" and then I got a horrible pain in my left side that led to my diagnosis. Since then I have done 11 rounds of chemo. For the most part I have been symptom free, other then as you say the symptoms from chemo themselves. A few weeks ago I did develop pain ascites (liquid buildup in the abdomen) but have had that drained & am back off any pain meds at the moment. Keep your spirits up, this is a horrible disease but it sounds like you mom is doing good at the moment & it's best to focus on that.

    I detail a lot of my experience on my blog: http://hollymariehill.blogspot.com
  • have2believe
    have2believe Member Posts: 134
    nwpassage said:

    I was diagnosed in June/July
    I was diagnosed in June/July 2011 with stage IV stomach cancer, spread to my lymph, my omentum, and along the outsides of my bowels. I was only 32 (am 33 now). My only symptom was a long history of a "sensitive stomach" and then I got a horrible pain in my left side that led to my diagnosis. Since then I have done 11 rounds of chemo. For the most part I have been symptom free, other then as you say the symptoms from chemo themselves. A few weeks ago I did develop pain ascites (liquid buildup in the abdomen) but have had that drained & am back off any pain meds at the moment. Keep your spirits up, this is a horrible disease but it sounds like you mom is doing good at the moment & it's best to focus on that.

    I detail a lot of my experience on my blog: http://hollymariehill.blogspot.com

    great to hear your doing well
    I looked at your blog briefly, but I have bookmarked it and will definitely take the time to read about your experiences. I've been meaning to start a blog and still plan intend to esp now since blogspot allows you to date the posts..just need to go through my journal and such. My mom gets scanned on Feb 20 so just keeping fingers crossed that it'll be good news. Definitely keeping spirits up is good, and I know atleast 5 stage 4 people who have been doing well - 3 who've had liver mets (1 currently has no active cancer/ remission fighting for 4 yrs, 1 off treatment at the moment- depends on scan- fighting for 4yrs, 1 diagnosed stage 4 in 09 and achieved remission and did surgery. TWO with distant lymph mets - one in lungs and lymph- diagnosed in 08 but has been in remission since 10 i believe, and one who was diagnosed with lymph and abdomen metsand achieved remission and went ahead and did surgery not too long ago-- he is also very young- mid 30s.

    Here's to hope!
  • Cpnqueen
    Cpnqueen Member Posts: 29

    great to hear your doing well
    I looked at your blog briefly, but I have bookmarked it and will definitely take the time to read about your experiences. I've been meaning to start a blog and still plan intend to esp now since blogspot allows you to date the posts..just need to go through my journal and such. My mom gets scanned on Feb 20 so just keeping fingers crossed that it'll be good news. Definitely keeping spirits up is good, and I know atleast 5 stage 4 people who have been doing well - 3 who've had liver mets (1 currently has no active cancer/ remission fighting for 4 yrs, 1 off treatment at the moment- depends on scan- fighting for 4yrs, 1 diagnosed stage 4 in 09 and achieved remission and did surgery. TWO with distant lymph mets - one in lungs and lymph- diagnosed in 08 but has been in remission since 10 i believe, and one who was diagnosed with lymph and abdomen metsand achieved remission and went ahead and did surgery not too long ago-- he is also very young- mid 30s.

    Here's to hope!

    Doing Well
    Here is another one for you. My husband, mid 40's has stage 4 stomach with bone as secondary and lymph mets. He was diagnosed 10/2011, has had 6 rounds of chemo and has done very well. Has not had to take pain meds in over 2 months! Our issue now is they can not do anymore of the type of chemo they were doing so we have to change things up. Hoping things stay on the good side! Hope your mom's scan comes back with good news!
  • Cpnqueen
    Cpnqueen Member Posts: 29

    great to hear your doing well
    I looked at your blog briefly, but I have bookmarked it and will definitely take the time to read about your experiences. I've been meaning to start a blog and still plan intend to esp now since blogspot allows you to date the posts..just need to go through my journal and such. My mom gets scanned on Feb 20 so just keeping fingers crossed that it'll be good news. Definitely keeping spirits up is good, and I know atleast 5 stage 4 people who have been doing well - 3 who've had liver mets (1 currently has no active cancer/ remission fighting for 4 yrs, 1 off treatment at the moment- depends on scan- fighting for 4yrs, 1 diagnosed stage 4 in 09 and achieved remission and did surgery. TWO with distant lymph mets - one in lungs and lymph- diagnosed in 08 but has been in remission since 10 i believe, and one who was diagnosed with lymph and abdomen metsand achieved remission and went ahead and did surgery not too long ago-- he is also very young- mid 30s.

    Here's to hope!

    Doing Well
    Here is another one for you. My husband, mid 40's has stage 4 stomach with bone as secondary and lymph mets. He was diagnosed 10/2011, has had 6 rounds of chemo and has done very well. Has not had to take pain meds in over 2 months! Our issue now is they can not do anymore of the type of chemo they were doing so we have to change things up. Hoping things stay on the good side! Hope your mom's scan comes back with good news!
  • have2believe
    have2believe Member Posts: 134
    Cpnqueen said:

    Doing Well
    Here is another one for you. My husband, mid 40's has stage 4 stomach with bone as secondary and lymph mets. He was diagnosed 10/2011, has had 6 rounds of chemo and has done very well. Has not had to take pain meds in over 2 months! Our issue now is they can not do anymore of the type of chemo they were doing so we have to change things up. Hoping things stay on the good side! Hope your mom's scan comes back with good news!

    great to hear
    actually, my mom told me that when she gets hungry or she's eaten too much, her stomach hurts but it is a fleeting pain and goes away. I am hoping it's the after effects of chemo. treatments take such an emotional toll.
    Best of luck with the new course of action. having options is good.
  • ambermaree36
    ambermaree36 Member Posts: 3
    I'm winning
    hi there,

    I hope your mum is doing well, I am managing to beat stomach cancer ...she can too.
  • ambermaree36
    ambermaree36 Member Posts: 3
    nwpassage said:

    I was diagnosed in June/July
    I was diagnosed in June/July 2011 with stage IV stomach cancer, spread to my lymph, my omentum, and along the outsides of my bowels. I was only 32 (am 33 now). My only symptom was a long history of a "sensitive stomach" and then I got a horrible pain in my left side that led to my diagnosis. Since then I have done 11 rounds of chemo. For the most part I have been symptom free, other then as you say the symptoms from chemo themselves. A few weeks ago I did develop pain ascites (liquid buildup in the abdomen) but have had that drained & am back off any pain meds at the moment. Keep your spirits up, this is a horrible disease but it sounds like you mom is doing good at the moment & it's best to focus on that.

    I detail a lot of my experience on my blog: http://hollymariehill.blogspot.com

    Hi Holly
    Just a not to let you know that I had stage 4 stomach cancer ....I'm now in my 5th year and you know what ??? no sign of cancer.... It can be done !!!.... It is a bloody hard road as I'm sure you know but there are survivours....I know this because Iam one of them... I was 33 when I was diagnosed... I still take oral chemo everyday to keep it away but it is a small price to pay.... Sending you good wishes from Australia...xxx
  • have2believe
    have2believe Member Posts: 134

    I'm winning
    hi there,

    I hope your mum is doing well, I am managing to beat stomach cancer ...she can too.

    glad to hear ambermaree
    Can you tell us a little more about your story? What mets did you have, and have you only been on chemo?
  • mslayd02
    mslayd02 Member Posts: 9

    great to hear
    actually, my mom told me that when she gets hungry or she's eaten too much, her stomach hurts but it is a fleeting pain and goes away. I am hoping it's the after effects of chemo. treatments take such an emotional toll.
    Best of luck with the new course of action. having options is good.

    have2believe, that was the
    have2believe, that was the only symptom my husband has had. Matter of fact that was the reason he ended up going to see the doctor and getting diagnosed.
  • mslayd02
    mslayd02 Member Posts: 9

    Hi Holly
    Just a not to let you know that I had stage 4 stomach cancer ....I'm now in my 5th year and you know what ??? no sign of cancer.... It can be done !!!.... It is a bloody hard road as I'm sure you know but there are survivours....I know this because Iam one of them... I was 33 when I was diagnosed... I still take oral chemo everyday to keep it away but it is a small price to pay.... Sending you good wishes from Australia...xxx

    ambermaree36
    ambermaree36, I would love to hear more of your story, if you dont mind sharing. For example what type of treatment you were on? Did you do any type of natural treatment? My Husband was just diagnosed with stage 4 stomach cancer and has mets on his liver. Thanks in advance.
  • danimuscolino
    danimuscolino Member Posts: 2
    My husband is stage IV and doing well!
    Hello to all! Stay positive!! My husband is doing well and has been in chemo since august 2009. Already has in his body 60 cycles of chemotherapy. He was diagnosed with gastric cancer and mets to the liver. He is 33 now and he is a very strong man! I am so proud of him! He taught me how to fight in this life and how to be positive!

    We live in Sag Harbor NY and we try to enjoy life everyday! now we are trying to get pregnant.. I know many of you and even myself will think that is creazy to add more stress in our lives but we have to keep living! this cancer cannot take all from us!

    My husband is taking herbal teas, chemotherapy in Sloan kettering every other week, and suplements. We changed our diet to most of all organic, not chicken, not meat!
    If you need any help send me a message and I am happy to let you know what are we doing to keep our body strong and keep beating cancer!

    It is tough! but you can do it! fight fight fight!!

    Love you all!!

    Daniela
  • have2believe
    have2believe Member Posts: 134

    My husband is stage IV and doing well!
    Hello to all! Stay positive!! My husband is doing well and has been in chemo since august 2009. Already has in his body 60 cycles of chemotherapy. He was diagnosed with gastric cancer and mets to the liver. He is 33 now and he is a very strong man! I am so proud of him! He taught me how to fight in this life and how to be positive!

    We live in Sag Harbor NY and we try to enjoy life everyday! now we are trying to get pregnant.. I know many of you and even myself will think that is creazy to add more stress in our lives but we have to keep living! this cancer cannot take all from us!

    My husband is taking herbal teas, chemotherapy in Sloan kettering every other week, and suplements. We changed our diet to most of all organic, not chicken, not meat!
    If you need any help send me a message and I am happy to let you know what are we doing to keep our body strong and keep beating cancer!

    It is tough! but you can do it! fight fight fight!!

    Love you all!!

    Daniela

    wonderful Daniela
    I'd love to know what you're doing....will send you a private message. COngrats on the baby! I honestly believe that having something to look forward to is what keeps my mom going. And w/ a baby, that will bring so many gifts of love and more good memories.
  • have2believe
    have2believe Member Posts: 134

    wonderful Daniela
    I'd love to know what you're doing....will send you a private message. COngrats on the baby! I honestly believe that having something to look forward to is what keeps my mom going. And w/ a baby, that will bring so many gifts of love and more good memories.

    oops read too fast
    sry, see now that you wrote trying for a baby. Hoping for success!!!
  • liveinhope
    liveinhope Member Posts: 83

    My husband is stage IV and doing well!
    Hello to all! Stay positive!! My husband is doing well and has been in chemo since august 2009. Already has in his body 60 cycles of chemotherapy. He was diagnosed with gastric cancer and mets to the liver. He is 33 now and he is a very strong man! I am so proud of him! He taught me how to fight in this life and how to be positive!

    We live in Sag Harbor NY and we try to enjoy life everyday! now we are trying to get pregnant.. I know many of you and even myself will think that is creazy to add more stress in our lives but we have to keep living! this cancer cannot take all from us!

    My husband is taking herbal teas, chemotherapy in Sloan kettering every other week, and suplements. We changed our diet to most of all organic, not chicken, not meat!
    If you need any help send me a message and I am happy to let you know what are we doing to keep our body strong and keep beating cancer!

    It is tough! but you can do it! fight fight fight!!

    Love you all!!

    Daniela

    Daniela,Ambamari,your
    Daniela,Ambamari,your stories give us hope and we would be happy to have more details of the chemotherapy given.I have not been on this site for the last 5 months since my son developed lymphnode mets.He was diagnosed in August 09,underwent 3 cycle before and after total gastrectomy at 30.Since October he is on irinotecan,leucovorin 5F_U and Erlotinib and responding well.I am interested in finding out more about maintenance chemotherapy and the drug doses and frequency.The road ahead is tough but we have to give it a good fight.Good wishes to you all and love from a mother from India.
  • liveinhope
    liveinhope Member Posts: 83

    I'm winning
    hi there,

    I hope your mum is doing well, I am managing to beat stomach cancer ...she can too.

    Sorry ambermaree36,got your
    Sorry ambermaree36,got your id wrong!
  • danimuscolino
    danimuscolino Member Posts: 2

    Daniela,Ambamari,your
    Daniela,Ambamari,your stories give us hope and we would be happy to have more details of the chemotherapy given.I have not been on this site for the last 5 months since my son developed lymphnode mets.He was diagnosed in August 09,underwent 3 cycle before and after total gastrectomy at 30.Since October he is on irinotecan,leucovorin 5F_U and Erlotinib and responding well.I am interested in finding out more about maintenance chemotherapy and the drug doses and frequency.The road ahead is tough but we have to give it a good fight.Good wishes to you all and love from a mother from India.

    Hi
    Mom from India,

    Keep up the good fight! your son is young like my husband and they have a lot of strength to fight this horrible illness! stay strong next to him. He needs you!

    My husband started with 5 FU, avastin, docetaxel and Cisplatin. After the 13th cycle of chemo, his doctor discontinued cisplatin because of an allergic reaction and now after long time with docetaxel, 5 Fu and Avastin his dr. decided to stop docetaxel to give him a chemo break. So in summary he is now with 5fu and avastin . The tumors reduced 85% in size since diagnose and now they are stable.

    He also, takes many supplements from dr. Block and dr. Dalzell and 4 herbal teas from dr. Wong.

    I hope this helps. Take care!

    Daniela
  • Godheals
    Godheals Member Posts: 6

    Hi Holly
    Just a not to let you know that I had stage 4 stomach cancer ....I'm now in my 5th year and you know what ??? no sign of cancer.... It can be done !!!.... It is a bloody hard road as I'm sure you know but there are survivours....I know this because Iam one of them... I was 33 when I was diagnosed... I still take oral chemo everyday to keep it away but it is a small price to pay.... Sending you good wishes from Australia...xxx

    Stage 4 stomach cancer
    Good morning Amber,
    I read your post, amazing!!! Praise God. My friend has been diagnosed with stage 4 stomach cancer Jan 2012, he has undergone 7 chemo sessions. He has lost almost 30kg. We are praying and believing. I desperately need any advice for them, please. I am also trying to find out any information regarding surgery. I pray and hope you are well. Blessings
  • Godheals
    Godheals Member Posts: 6

    My husband is stage IV and doing well!
    Hello to all! Stay positive!! My husband is doing well and has been in chemo since august 2009. Already has in his body 60 cycles of chemotherapy. He was diagnosed with gastric cancer and mets to the liver. He is 33 now and he is a very strong man! I am so proud of him! He taught me how to fight in this life and how to be positive!

    We live in Sag Harbor NY and we try to enjoy life everyday! now we are trying to get pregnant.. I know many of you and even myself will think that is creazy to add more stress in our lives but we have to keep living! this cancer cannot take all from us!

    My husband is taking herbal teas, chemotherapy in Sloan kettering every other week, and suplements. We changed our diet to most of all organic, not chicken, not meat!
    If you need any help send me a message and I am happy to let you know what are we doing to keep our body strong and keep beating cancer!

    It is tough! but you can do it! fight fight fight!!

    Love you all!!

    Daniela

    Stomach cancer stage 4
    Good morning Daniela,
    I have been reading your posts, I hope and pray your husband are doing well. I am asking help for a very dear friend of mine in South Africa. He has been diagnosed with stage 4 stomach cancer in Jan 2012. He has undergone 7 chemo sessions. Any advise for him and his family, please? He has lost almost 30kg, his family is devastated. I am also trying to find out why is surgery not an option? The cancer has not spread to any of his organs - praise God!! We are praying and believing, please help. Blessings.
  • have2believe
    have2believe Member Posts: 134
    Godheals said:

    Stomach cancer stage 4
    Good morning Daniela,
    I have been reading your posts, I hope and pray your husband are doing well. I am asking help for a very dear friend of mine in South Africa. He has been diagnosed with stage 4 stomach cancer in Jan 2012. He has undergone 7 chemo sessions. Any advise for him and his family, please? He has lost almost 30kg, his family is devastated. I am also trying to find out why is surgery not an option? The cancer has not spread to any of his organs - praise God!! We are praying and believing, please help. Blessings.

    Drs may prefer chemo first
    Many doctors do chemo and then surgery followed by more chemo and radiation. Also, it may not have spread to other organs, but if it has spread to the abdominal wall, peritoneum, distant lymph nodes, it is still stage 4. Weight loss is often an issue. My recommendation is to try to eat a little every few hours even if it's just a few bites. Try different foods to see what you can stomach, as your taste preferences will change/ have changed.
  • liveinhope
    liveinhope Member Posts: 83

    Hi
    Mom from India,

    Keep up the good fight! your son is young like my husband and they have a lot of strength to fight this horrible illness! stay strong next to him. He needs you!

    My husband started with 5 FU, avastin, docetaxel and Cisplatin. After the 13th cycle of chemo, his doctor discontinued cisplatin because of an allergic reaction and now after long time with docetaxel, 5 Fu and Avastin his dr. decided to stop docetaxel to give him a chemo break. So in summary he is now with 5fu and avastin . The tumors reduced 85% in size since diagnose and now they are stable.

    He also, takes many supplements from dr. Block and dr. Dalzell and 4 herbal teas from dr. Wong.

    I hope this helps. Take care!

    Daniela

    Hi Daniela,I haven't been on
    Hi Daniela,I haven't been on this site for months.Our son Atish lost his fight to gastric cancer on the 17th of this month.Though his body weakened his spirit was unconquerable and he smiled to the end.Left us a lot of happy memories.
    Love and good wishes to you and to your husband.
    Nisha-Mom from India!!