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Guess who just called me..... BUZZARD!!!!!!!

idlehunters's picture
idlehunters
Posts: 1792
Joined: Apr 2009
Oct 26, 2011 - 11:57 am

Yep.... he FINALLY called me back! He said he has been and still is...sicker than a dog. He said that Folfiri is kicking his butt...BIG TIME! He said he is sick for 14 days..non stop....then has to go back and do it again. He is so sick to his stomach and tired that he just has to rest. He has had no strength to even get on his computer. He said to tell you all he is fine and he is sorry he made you all worry. He will post as soon as he can. He will be seeing his doctor in Nashville soon and a change of some kind HAS to be done.

So, we can all breathe a sigh of relief. Amen!

Jennie
karen40's picture
karen40
Posts: 211
 Joined: Aug 2011
Oct 26, 2011 - 12:10 pm

Jennie,
Thanks for taking charge and making the call. What a relief.
Sending up more prayers for him. He needs more good days.
Karen
here4lfe
Posts: 306
 Joined: Jan 2010
Oct 26, 2011 - 12:15 pm

I've been tracking Buzz, because my wife is on the same regime. And it is kicking her butt also. Praying it's worth it.

Best
Brenda Bricco
Posts: 579
 Joined: Aug 2011
Oct 26, 2011 - 12:15 pm

I am glad to know that he was able to call. Now, I just wish he flet better.

pepebcn's picture
pepebcn
Posts: 6352
 Joined: Aug 2010
Oct 26, 2011 - 12:17 pm

Will be praying for him!
Thank you Jennie!
dorookie
Posts: 1736
 Joined: Jul 2007
Oct 26, 2011 - 12:18 pm

Maybe you should be a Copper too....

HUGS
Beth
idlehunters's picture
idlehunters
Posts: 1792
 Joined: Apr 2009
Oct 26, 2011 - 12:25 pm

A copper huh Beth????? Ya.... all the investigating I done I sure feel like one....but it was worth it! Luv ya!

Jennie
HollyID's picture
HollyID
Posts: 951
 Joined: Dec 2009
Oct 26, 2011 - 12:46 pm

Poor guy!! Thanks Jennie!!

I'm glad he finally checked in with ya!

I'm still gonna say a few nice words to the man upstairs on his behalf.

Love ya, Buzz!!

Annabelle41415's picture
Annabelle41415
Posts: 6475
 Joined: Feb 2009
Oct 26, 2011 - 12:49 pm

Good to hear that he is still ok. Bummer to hear that he is so sick with this treatment program. I'm hoping he can surely get some relief as no one should be that sick constantly. Hope his doctor can figure something out. Thanks for the update.

Kim
johnnybegood's picture
johnnybegood
Posts: 1122
 Joined: Oct 2008
Oct 26, 2011 - 1:17 pm

hear he is ok but i am sorry he is so sick.that is what the oxy did to me.we all know how it feels to be so sick.Buzzard we still have a hold of that rope just hang on tight...Godbless...johnnybegood
Sundanceh's picture
Sundanceh
Posts: 4408
 Joined: Jun 2009
Oct 26, 2011 - 1:21 pm

I remember telling him that his regime (which was mine) had me SICK 24 out of 30 days out of the month. Each cycle about the 12th day to the 14th, I would feel slightly better than death, but the other days were just wasted, sick days.

It was no kind of quality of life at all. And when I got to the end, I said "No Mas."

I was hoping he would do better than I did, but it sounds like he and I are working off the same page, which means I'm sorry that he is feeling so bad right now. It's extra rough for some of us.

I told Buzzard recently when I was finishing up treatments, that my hands had slipped off of that rope. It's easy to do when you feel as badly as that.

Sounds like some reduced dosages are coming to an IV pole near him and I hope that the docs can ease the suffering for him to some degree. My guy went to 75%, but it still cooked my goose.

Hang on, Buzz!

-Craig

swimmer22
Posts: 60
 Joined: Oct 2011
Oct 26, 2011 - 1:40 pm

Being new, I was wondering what treatment regmine he is on. The inital post indicated Folfiri and I was under the assumption that isn't too, too awful. I've done Folflox before and start Folfiri this week. Now, I'm worried this treatment could actually be worse than Folflox.
idlehunters's picture
idlehunters
Posts: 1792
 Joined: Apr 2009
Oct 26, 2011 - 1:55 pm

Hi....... Yes, he is on Folfiri and the sickness part of it does hit some people like Buzz and Craig but not others. I was on Folfiri 2 years....got sick 1 time....not 1 day...1 time. However.... I did have the side effect of diarrhea.....bad diarrhea. It was well worth the 20+ tumors in cleared out of my lungs and liver. I have never done Folfox to compare but Sundanceh has. PM him and ask any questions you may have. Best of luck to you!

Jennie
swimmer22
Posts: 60
 Joined: Oct 2011
Oct 26, 2011 - 2:04 pm

Thanks Jennie, here's to hoping I can ride the Folfiri wave like you did. I am having Folfiri as my mop-up chemotherapy after my September resection for rectal cancer. I have a temporary illiostomy so at least I won't have the actual affects of diarrhea but have been warned to watch out for dehydration. Thanks again.

-dean
pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3908
 Joined: Nov 2010
Oct 28, 2011 - 9:29 am

hi dean,
i still had chronic diarrhea with the ilioostomy, that is until my diet and supplements got it sorted. i would consider eating a mal and having its contents in the bag in under 5 minutes diarrhea like. i ended up in er really bad once and had a few close calls. got anal about diet, gut relief powders, slippery elm and probiotics. good luck and post away if you run into any problems.

my onc always described the issues i was having as diarrhea while i had the bag on. she had another in intensive care as a result. you cannot let it get out of hand.

hugs,
pete
ddpekks's picture
ddpekks
Posts: 162
 Joined: Sep 2011
Oct 26, 2011 - 1:43 pm

Thanks so much for sharing. I started crying when I read your headline! Been so very worried about him. I do hate that he is so very sick and totally understand him not posting. Will pray real hard that he gets through this phase soon. Love to the Buzz!!!!

Deb
thingy45's picture
thingy45
Posts: 633
 Joined: Apr 2011
Oct 26, 2011 - 2:05 pm

Hang on there BUZZ, it must get better. Thanks Jennie, for all your good work,
many prayers to all of you, one day at a time.
hugs Marjan
tootsie1's picture
tootsie1
Posts: 5056
 Joined: Feb 2008
Oct 26, 2011 - 2:18 pm

Oh, thank heaven! I have been SO worried!!! Thanks, Jennie, for being persistent on this. I was so afraid that something terrible had happened. Now we just have to pray he can get through this okay.

Thank you, thank you, thank you!!!!!

*hugs*
Gail
ketziah35
Posts: 1154
 Joined: Jun 2010
Oct 26, 2011 - 6:16 pm

Ditto!
geotina's picture
geotina
Posts: 2118
 Joined: Oct 2009
Oct 26, 2011 - 2:57 pm

Hang in there, this drug hit George much more than Folfox but it does work very well. Ask about a dosage reduction, it helped George. The fatigue and diarrhea can be just awful. Hang in there.

Jennie, thanks for letting us know.

Tina
Lovekitties's picture
Lovekitties
Posts: 3343
 Joined: Jan 2010
Oct 26, 2011 - 3:04 pm

Dear Jennie, thanks for your efforts to solve the 'missing Buzzard' puzzle.

Sorry to hear that he is feeling so bad and hope that he can get his docs to come up with some compromise on the dosage which will give him some relief and still kick cancer's butt.

Sending hugs to all,

Marie who loves kitties
wolfen's picture
wolfen
Posts: 1325
 Joined: Apr 2009
Oct 26, 2011 - 3:22 pm

Big sigh of relief here in Arizona. Thanks, Jen. I'm so glad he was able to call and give you an update. Keeping all my fingers and toes crossed for a better time for him soon.
He's such a great guy.

Luv,

Wolfen
tommycat's picture
tommycat
Posts: 790
 Joined: Aug 2011
Oct 26, 2011 - 3:39 pm

good job Jennie! here's to Buzz finding a new way to fight for his life.
lesvanb's picture
lesvanb
Posts: 911
 Joined: May 2008
Oct 26, 2011 - 4:23 pm

sure hoping a reduced chemo cocktail will help you out!

love, Leslie
christinecarl's picture
christinecarl
Posts: 545
 Joined: Sep 2009
Oct 26, 2011 - 4:51 pm

Thanks for the update, I am glad to know he is still alive and I hope the Onc can find a way to back off a bit on the treatments.
karguy's picture
karguy
Posts: 1024
 Joined: Apr 2009
Oct 26, 2011 - 5:01 pm

Thanks for the news,I will keep praying for him to get better.
tanstaafl's picture
tanstaafl
Posts: 1292
 Joined: Oct 2010
Oct 26, 2011 - 6:39 pm

to hear Buzz is back in contact.
jjaj133's picture
jjaj133
Posts: 869
 Joined: Mar 2011
Oct 26, 2011 - 8:56 pm

thanks, Jennie, i am so sorry he is so sick. But happy at the same time. prayers comin to Buzz.
Love ya,Judy
jjaj133's picture
jjaj133
Posts: 869
 Joined: Mar 2011
Oct 26, 2011 - 9:00 pm

thanks, Jennie, i am so sorry he is so sick. But happy at the same time. prayers comin to Buzz.
Love ya,Judy
jjaj133's picture
jjaj133
Posts: 869
 Joined: Mar 2011
Oct 26, 2011 - 9:00 pm

thanks, Jennie, i am so sorry he is so sick. But happy at the same time. prayers comin to Buzz.
Love ya,Judy
eibod
Posts: 160
 Joined: Mar 2011
Oct 26, 2011 - 9:41 pm

So glad that you heard from him. Hope he will be ok. He was one of the first that welcomed me to this board, so sorry that he is having such a rough time.
steveandnat's picture
steveandnat
Posts: 887
 Joined: Sep 2011
Oct 26, 2011 - 10:51 pm

I know how you feel...not wanting to even go on the computer. This really stinks but it will get better...stay strong. Thinking to best for you.
Jeff
steveandnat's picture
steveandnat
Posts: 887
 Joined: Sep 2011
Oct 26, 2011 - 10:52 pm

I know how you feel...not wanting to even go on the computer. This really stinks but it will get better...stay strong. Thinking to best for you.
Jeff
steveandnat's picture
steveandnat
Posts: 887
 Joined: Sep 2011
Oct 26, 2011 - 10:52 pm

I know how you feel...not wanting to even go on the computer. This really stinks but it will get better...stay strong. Thinking to best for you.
Jeff
schnauzerheads's picture
schnauzerheads
Posts: 53
 Joined: Jan 2011
Oct 26, 2011 - 11:33 pm

Keep rockin' Buzz
herdizziness's picture
herdizziness
Posts: 3642
 Joined: Apr 2010
Oct 27, 2011 - 12:57 am

Well, we all knew something was wrong, I hope it eases for him soon, dang, sounds rough as Craig has testified.
So glad you updated us, thank you so much Jennie.
Winter Marie
Kathleen808's picture
Kathleen808
Posts: 2361
 Joined: Jan 2009
Oct 27, 2011 - 2:27 am

Jennie,
First huge hug to you!
Second, thank goodness. I am sorry Buzz is so sick but glad he could call.
Buzz, you are in my prayers.

Aloha,
Kathleen

luvmum
Posts: 457
 Joined: Dec 2010
Oct 27, 2011 - 9:50 am

Thank you so much for your update! I'm so glad he is ok. I remember when my mum had the most severe side effects from chemo, she got the best result from that too!

Please ask him to hang in there!
Fight for my love
Posts: 1530
 Joined: Jun 2009
Oct 27, 2011 - 5:34 pm

Thank you,Jennie,you have been always so sweet,thank you for all your efforts to reach Buzz.Buzz,you can do it!Hope you recuperate soon!
lisa42's picture
lisa42
Posts: 3661
 Joined: Jul 2008
Nov 01, 2011 - 11:00 pm

Thanks, Jennie, for updating everyone on Buzz. I just read this post today (Nov. 2) since I've been occupied with my own major health concerns.
Buzz, if you're reading this, just wanted to say I'm glad to hear about you, sorry to hear that you've had such a bad time with the Folfiri, & I'm hoping that you either have by now or will very soon work something out with your oncologist so you can get some relief.

I've had a hard time myself lately with pneumonia and learning from a CT in the hospital that I've had significant tumor growth & now I can't do anything about it until I fully heal from the pneumonia (they say another 3 -4 weeks before I can do any kind of chemo treatment).
Buzz, remember that rope you used to talk about? Well, I've been trying hard to hang onto it- I hope you still are too, even as it's so very hard sometimes. I'm praying for ya...

Hugs,
Lisa
pscott1
Posts: 207
 Joined: Jan 2011
Nov 02, 2011 - 7:41 pm

Lisa...I'm sorry you're having a hard time also. I'll be thinking of you in your "off chemo" time. Hang in there...I'm pullin for both of you!

Pam
jams67's picture
jams67
Posts: 927
 Joined: May 2006
Nov 13, 2011 - 12:47 pm

Thanks Jennie, for being such a good detective! Jo Ann
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