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Wanted to say hi

plh4gail's picture
plh4gail
Posts: 1238
Joined: Oct 2010

I wanted to say hi here and that I haven't forgot about my wonderful CSN family. The summer has been a fast one and full of memories. My kids and I have all done a lot and had some well deserved fun. Everything from the simple BBQ (just us and also backyard parties), weekend getaways, and a cruise to Mexico where we went para sailing, jet skiing, and zip line. This has been without a doubt the best summer of my life...feeling my body wake up from the chemo fog and at the same time adding my new normal life back into the activity mode. It feels so good to cook meals again! And I don't mean a grilled cheese or a can of soup. It will be awhile before any of us can eat that again. lol

The only thing that really dampened my joy of recovery was the issue of work. You may not remember but I lost my job because I was unable to work on chemo. It was held for as long as they said they could according to hospital policy. So when my disability ended in June and I had no job reality struck and tried to eat away my happiness. I had to reapply at the hospital but not till the end of July. I did apply at about 50 other positions in the surrounding area. I was very humbled in finding that 15 years as an ER RN was not an automatic open door, although I did have some interviews and did get an offer that I will not burn my bridges with I hope. I finally got an interview with my old dept. and yes I had to interview. I got the job on a night shift, I used to work days. I think I have been given the test of morality and tolerance now. My fellow co workers are having a hard time that I was not helped back into work and given a better shift. They know what I went through and don't like what happened. But I don't want to be encouraging them to talk, gossip, be negative, etc...so no matter how I truely feel I have to take a breath and find a different point of view redirect to a different way to see things happening. New possibilities.

I also saw a new onc yesterday and got a second opinioon on getting a PET scan, which my onc didn't want to order. He was very patient,listened, and explained a lot to me. He did order the PET and was very kind to me. He also told me he probably would have followed the same treatment as my other onc and only ordered the Cat Scan, but he said there are times when we have to follow our gut. And that is what it is with me. I need more proof and I think it's because of the way I was misdiagnosed for so long.

Also, my Folfox neuropathy is improving!! Yay!! I take lot's of vitamins and supplements and Lyrica. I know time has something to do with it but I really think all the meds I take is helping too..... My head is sprouting a whole new crop of hair. I ended up not losing it all but had a very short Halle Berry cut for awhile but quit wearing hats to let my head get plenty of air, sunshine and circulation to help with new growth.....And thank gooddness...my..umm...restroom trips are not as frequent. The only think with this is when I think I have found the key to keeping it predictable...BAM it sneaks up and surprises me. So I just do what I know helps most and it seems like its a 2 steps forward and 1 step back then 2 more steps forward... lol I'm working on making it work. But! I never go anywhere without my emergency kit, and I always know where the restroom is everywhere! lol

Soo.....that was a hello and an update. I hope it wasn't too long or boring :) I love and missed you all and it feels so good to read through all the posts that I could.

peace love and happiness to us all, Gail

p.s. did anyone deal with tendonitis while regaining their strength? My arms are killing me! I had to buy those arm bands and start taking Alieve.

Buckwirth's picture
Buckwirth
Posts: 1271
Joined: Jun 2010

And glad to hear you are doing well.

Nights beats unemployment, so even though you got the short end, I am happy they placed you.

BTW, you are much cuter than Halle!

Your friend,

Blake

wolfen's picture
wolfen
Posts: 1330
Joined: Apr 2009

So nice to see your smiling face again and to hear that things are getting better all the time. So glad you have become re-employed. Hopefully, you can bid for a day shift in the future.

Be Well,

Wolfen

plh4gail's picture
plh4gail
Posts: 1238
Joined: Oct 2010

Wolfen it feel good to be here again, although cns never went away, I just took a rest. It was healing time and I put a change on a lot of things I did.

hugs,gail

plh4gail's picture
plh4gail
Posts: 1238
Joined: Oct 2010

Thank you Blake, and you know...I'm wondering if I might like working nights better. No management to deal with and the pay is a little more. hmmm

hugs, gail

ron50's picture
ron50
Posts: 1729
Joined: Nov 2001

I am really glad that you are getting your share of quality time amongst the bad. Without the balance life is not much fun. I am glad you are working it is really important for your sense of worth. Best wishes for a healthy future. Ron.

plh4gail's picture
plh4gail
Posts: 1238
Joined: Oct 2010

Yep good times this summer. I hope all is well with you and all the flooding that went on over there.

hugs, gail

MrsJP
Posts: 157
Joined: Jan 2011

So glad to hear you've had a great summer with your family..Welcome back.

JP

plh4gail's picture
plh4gail
Posts: 1238
Joined: Oct 2010

and it has gone so fast, I want more. I guess I will just have to continue to live like every month is summer vacation!

hugs, gail

herdizziness's picture
herdizziness
Posts: 3642
Joined: Apr 2010

Hi Gail, it's so good to hear from you. Glad your back to work, even if it's the lousy shift, fingers crossed a day one opens up soon!!!
As for the arms killing you, I have the same problem, no solution though, wish I could help.
Take care and don't be a stranger!!!
Winter Marie

plh4gail's picture
plh4gail
Posts: 1238
Joined: Oct 2010

and to share some good things after all the rough ones. While I'm working this night shift I'm going to apply for other positions and be on the look out for something else. I really want to get my Bachelors so I'm going to look into that too.

hugs, gail

oh ya...the arm bands I got, they do seem to take some of the tension off the area! Have you tried them?

tootsie1's picture
tootsie1
Posts: 5065
Joined: Feb 2008

Hey, Gail!

Praying your PET scan is just a reassurance for you. No surprises allowed!

I'm glad you got your job back, albeit a different schedule. Hopefully an opening will come up for a daytime shift. Yes, you were treated badly, but it sounds like you have handled the situation with grace. In a perfect world, that grace should be rewarded.

*hugs*
Gail

plh4gail's picture
plh4gail
Posts: 1238
Joined: Oct 2010

Yes the job is going to be different but I think it will work out just the way it is supposed to.I still havent had the PET, waiting for authorization. I really think its going to be all good, but I hate that little doubt that hangs on over my shoulder.

hugs, Gail

Kathleen808's picture
Kathleen808
Posts: 2361
Joined: Jan 2009

Gail,
It is so good to hear from you. I love that your summer has been wonderful, you deserve it! It all sounds so fun! I think it is great that you are back at your hospital for work. I hope your shifts get better after awhile.
You take care.

Aloha,
Kathleen

plh4gail's picture
plh4gail
Posts: 1238
Joined: Oct 2010

It feels like such a relief and brings a good normal feeling to know I will be working again! I've missed you all!

hugs and love, Gail

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3908
Joined: Nov 2010

so glad your kicking *** so to speaak.

glad the neuropathy is imnprovng, mine is to.

goodluck on pet, you'll be fine.

hugs,
pete

plh4gail's picture
plh4gail
Posts: 1238
Joined: Oct 2010

and yes I did kick some *** this past year! lol

hugs, gail

plh4gail's picture
plh4gail
Posts: 1238
Joined: Oct 2010

It's so good to hear from all of you! I hope everyone is doing well and able to make some good memories this summer also. I can't believe it's almost time for my kids to go back to school.

Gail

Buzzard's picture
Buzzard
Posts: 3073
Joined: Aug 2008

Its always good to hear good news, one of us having good times be it with family friends or just alone time...Relaxed , uninterrupted, free time is a very high sought after commodity in this journey...Enjoy every second.........buzz

plh4gail's picture
plh4gail
Posts: 1238
Joined: Oct 2010

Have I ever told you my brother in law is called Buzz also? It was from back in his motorcycle riding days. This man is wonderful and I love him so much. Always has the family smiling and feeling connected.....must be something about you Buzz guys :)

hugs, gail

jjaj133's picture
jjaj133
Posts: 869
Joined: Mar 2011

i am so tickled to hear your good news. your summer sounds amazing and i know, there is nothing better than fun with family.
keep it going and i hope you get a better shift soon.
hugs, judy

plh4gail's picture
plh4gail
Posts: 1238
Joined: Oct 2010

It has been a good summer and my kids sure deserved it,... I missed your kindness on here! I'm going to work on the night shift thing. But you never know...I might like it. lol

Gail

jjaj133's picture
jjaj133
Posts: 869
Joined: Mar 2011

aww thanks. It will take some getting used to for sure. I should have had a night job. Mornings for me have always been awful. But at 2 am I was up cleaning. Now that i am older, i have about a 4 hour window before it is nap time again ; )

Sundanceh's picture
Sundanceh
Posts: 4408
Joined: Jun 2009

I need to learn to live more like you - I'm like one of those big ol' Saturn V rockets - poised to lift off from the launch pad - but lacking the fuel to make it into orbit.

Glad things are going so well for you.

-Craig

plh4gail's picture
plh4gail
Posts: 1238
Joined: Oct 2010

Well then lets get you going. Bring your wife and come my way and we will work on it :)You were/are always one of my big inspirations...along with a lot of others. I know you can do it dear brother..

love and hugs, Gail

ketziah35
Posts: 1154
Joined: Jun 2010

I am soo happy for you!

plh4gail's picture
plh4gail
Posts: 1238
Joined: Oct 2010

Thank you Ketziah :)it feels good to feel good! And the new normal is workable and changing for the better week by week (or so).

hugs to you, gail

lisa42's picture
lisa42
Posts: 3661
Joined: Jul 2008

Hi Gail,

Just got back from my cruise earlier today- we will have to talk soon and compare notes! It was amazing, wasn't it?!

Hugs to you- I'm so glad to hear you so happy and upbeat. Best wishes on the new job! When do you start?

We'll talk soon!

Hugs,
Lisa

RickMurtagh's picture
RickMurtagh
Posts: 590
Joined: Feb 2010

Gail,
The night shift is perfect for you! You never have to take off work for an appointment with a doctor! You will always be so tired you will be able to sleep in the waiting room no matter how uncomfortable the chairs are or how hot it is! You will be so tired when you finally get home, the fact that you have not eaten in 12 hours won't even matter! Wow, you must be the envy of all your coworkers!
Okay, maybe it is not the best situation, but I am so glad you got the job! Being jobless sucks!
My what a lot of exclamation points!

Best wishes!

Rick

Annabelle41415's picture
Annabelle41415
Posts: 6723
Joined: Feb 2009

Glad to hear from you and was just thinking about you the other day. Sounds like you have been busy in a good way. Glad you got your job back but sorry you had to go throug so many hoops to get it. Good news on your feeling better too, sometimes it just takes time. Thanks for checking in. We've missed you.

Kim

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