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Tough times

epicc's picture
epicc
Posts: 136
Joined: Nov 2012

Hello everyone

 

Going through some tough times.  My mom was scheduled for chemo and developed an infection and a blood clot. Things are not going well.  She did have chemo today but there is a good chance she won't pull through. This disease is very difficult to fight if you are elderly. Too many complications.  Thank you to everyone for the last few months of encouragement. It made a difference. 

Much love

Emily

jimwins's picture
jimwins
Posts: 1997
Joined: Aug 2011

I'm sorry your mom and you are having a tough time.  I know it's hard right now but this site is full of hope and proof miraculous things happen.  Sending warm hugs and positive energy to you and your mom.  I'm sure many others will join in on those thoughts.

The site has been really slow since the upgrade and many of us are having problems just getting on.  Please know our thoughts are with you and we are here for you.

Jim

epicc's picture
epicc
Posts: 136
Joined: Nov 2012

Jim, Thank you for your postive energy and thoughts.  I truly appreciate it.  This site has helped very much.  It is great to read about all of the success so many of you have had with your treatment. Also, all of the positive thoughs and prayers have been wonderful.  I am so happy so many of you are in remssion. 

I agree, the webiste has been so slow, that most days I have not been able to get on.  Again, I can't thank all of you enough for your thoughs and prayers. 

 

Emily 

 

 

 

po18guy
Posts: 237
Joined: Nov 2011

I began with a poor prognosis and dropped to very poor after an immediatel relapse. But, that was four years ago and providence has a way of stepping in. Prayers ascending on her behalf. 

epicc's picture
epicc
Posts: 136
Joined: Nov 2012

Po18guy,

 

Your story is an insipriation to all.  I wish my mom was younger.  I am happy she had a good healthy life.  Your prayers a very much appreciated. 

 

Thank you

Emily

vinny59's picture
vinny59
Posts: 1030
Joined: Nov 2006

So sorry about your Mom, this is never a easy thing to go through. Praying for the best...... Vinny

cnewtrn
Posts: 28
Joined: Nov 2012

Keeping my fingers crossed for you and your mom

epicc's picture
epicc
Posts: 136
Joined: Nov 2012

CNEWTRN,

 

Thank you.  I hope all is well with you. 

 

Emily

epicc's picture
epicc
Posts: 136
Joined: Nov 2012

Vinny,

 

My family and I are very grateful for the prayers. Thank you so much.

 

Emly

miss maggie
Posts: 929
Joined: Mar 2010

Dear Emily, I am so sorry for all you are going through. I probably missed one of your posts. How old is your mom?

There are always ups and downs. Right now you and your mom is having a rough patch. Some patients do very well with chemo, others do not. Please don't assume it's the end. Perhaps the doctor's will give your mom a new cocktail. I understand the chemo given the elderly is less toxic.

Positive energy and prayers.  Maggie

epicc's picture
epicc
Posts: 136
Joined: Nov 2012

Maggie, My mom is 82. They have decided to change her coctail. Something less toxic and given ever 28 days. However, it is most likely too late.  On December 26, her oncologist decided she was strong enough to receive chemo (r-CVP)  They set her date up for January 3.  I was not happy that they were waiting a whole week, but I'm not a doctor.  As the days went on, I noticed she was getting a little tired.  Then, 2 days before her scheduled chemo, we were told she had to have it as an inpatient due to insurance (she was currently in a rehab center).  Now we had to wait for a bed.  She was finally admitted on Friday, Jan. 4.  When she got admitted, they started to find some problems.  After a cat scan, they found a blood clot on the right pulmonary artery.  From there she aslo had an infection.  By monday things got worse.  She is now in ICU.  They gave her a new chemo, but she is not awake.  The ICU doctor spoke to us and told us there is a very good chance she will not survive this.  Her lymphoma is very rare and aggressive.   With her age, even though she had a perfect health record prior, make it very difficult for her to fight.

Watching my mom suffer is the most difficult thing I have ever gone through.  Also, watching my father is just so sad.  Thank you for the positive energy.  We will need to stay strong. 

 

 

onlytoday's picture
onlytoday
Posts: 585
Joined: Jun 2010

So sorry you are all going through this right now.  Sending prayers to all, especially your Mom and her doctors.  Thinking of you.

Hugs,

Donna

epicc's picture
epicc
Posts: 136
Joined: Nov 2012

Donna,

Your thoughts mean a lot during this difficult time.    Thank you for your prayers.

Love,

Emily

 

Max Former Hodgkins Stage 3's picture
Max Former Hodg...
Posts: 1037
Joined: May 2012

With your mother currrently unconscious, it may be that your most charitable course of action at the moment is to focus on your father.  From being severely ill myself twice in the past, I learned later that in many ways my loved ones had a harder time than I did.   Also, my mom was sent home ten years ago with terminal dementia following numerous strokes.  They said that she should pass within a day or so, but she fought (unconscious the whole time) for 11 days.  It was an agony every minute, for her and us around her.  It took us months to begin to recover.  It is critical that you take an occasional break for your own well-being.

I know that many of us pray daily for the needs of all of the sick discussed here,

Max

epicc's picture
epicc
Posts: 136
Joined: Nov 2012

My sister and I have been sleeping at the hospital and send my dad home.  We also want him to stay with one of us. 

Last night when I came I noticed she started to wake up. Her calcium is better and her infection is under control. I'm 

Hoping she can get through this. Maybe all your prayers worked. 

 

Emily

hiccup (not verified)

Hi Emily,

 

You're right-- this is a hard disease to fight. But you just never know what may happen.. I'm sorry that your mom, you and your family have to deal with this. I'll be sending good vibes for your mom :)

 

-Nathan

epicc's picture
epicc
Posts: 136
Joined: Nov 2012

Hi Nathan,

 

Thank you so much for the positive vibes.  This website is not working properly.  I thought I replyed to you yesterday, but my message is gone. 

 

I hope you are doing well. 

 

Hugs,

Emily

anliperez915's picture
anliperez915
Posts: 746
Joined: Sep 2011

Hi Emily,

Sorry for the late response, I tried to post yesterday but the site was taking forever to load and I just gave up. I'm praying for your mom that she gets better. I know it's hard to stay positive but just keep hanging in there! Sending you lots of positive energy that you and your mom come out of this difficult times! (((Huge Hugs)))

Sincerely,

Liz

epicc's picture
epicc
Posts: 136
Joined: Nov 2012

Hi Liz,

I know exactly what you mean about his site.  Sometimes I cannot get on for days.  And when I do, it is very slow.  Thank you for the positive energy and hugs.  It is very difficult right now to stay positive.  I try my best for my family.  I hope all is going well wih you. 

 

Hugs

Emily

 

 

NANCYL1
Posts: 228
Joined: Jun 2012

Emily:

It is difficult to get on this website.  I have set the Lymphoma list of titles page with an icon.  Works a little better.

Try to stay positive.  I know it is difficult.  I got a diagnosis of B Cell Lymphoma in early May

of 2012. 

Am doing better.   Having Rituxan infusions.  It is scary being older and having to fight this.

I am sending you positive thoughts.

Nancy 

NANCYL1
Posts: 228
Joined: Jun 2012

Emily:

It is difficult to get on this website.  I have set the Lymphoma list of titles page with an icon.  Works a little better.

Try to stay positive.  I know it is difficult.  I got a diagnosis of B Cell Lymphoma in early May

of 2012. 

Am doing better.   Having Rituxan infusions.  It is scary being older and having to fight this.

I am sending you positive thoughts.

Nancy 

epicc's picture
epicc
Posts: 136
Joined: Nov 2012

Hi Nancy,

 

Thank you for the positive thoughts.  My mom was diagnosed October 22 with B cell lymphoma (intravascular) very rare and in the blood.  Also stage 4 because it is in the Bone Marrow.  It is causing alot of problems.  Blood is clotting,  calcium is dangerously high, sodium went very low, etc.  My mom receives her chemo approximately every 4 weeks or so.  Because of her age, they try and push it out a bit.  As soon as they go to the 4th or 5th week, the cancer starts causing all kinds of problems.  The doctors explained that at her age it is common that they do not get through their treatment.  I will try my best for myself and my  family to keep as positive as possible.  She was very healthy before this.  Never had anything,  We shall see. 

I hope you are feeling well.  Hugs, Emily

40yearsandcounting
Posts: 14
Joined: Dec 2012

Emily-

 

I join the others in sending you prayers. Been thinking about you and your mom all week. I'm a fairly new member of this site but I am already incredibly touched by the strength, courage, and compassion of this group. Just know that (as everyone has said) you are not alone. We are all right in there with you- take care, Erin

epicc's picture
epicc
Posts: 136
Joined: Nov 2012

Hi Erin,

Thank you so much for your prayers.  It has been a rough 3 months not to mention the shock when we found out about her cancer.  I'm sure everyone felt the same way.  Just being able to post my feelings and what my mom and my family are going through makes a difference.  I can't thank everyone enough for all their prayers and postive thoughts. 

I read your profile and your story truly is amazing.  I was happy to read how wonderful things turned out for you.  I volunteer time for an orgainzation that helps families with sick children.  We raise money to help with the financial burden of a sick child.  We see teenagers with cancers very often.  It is nice to hear when they are cured and we were a part of that.

 

All the best,

Emily

 

 

allmost60's picture
allmost60
Posts: 3162
Joined: Jul 2010

Hi Emily,

 As with others I also have had a hard time connecting to the site...hence the delay in responding to various posts. I'm so sorry your mom is having a rough go with treatment. CVP-R is one of the milder chemo's and the one I was given. I'm 20 years younger than your mom though, so I imagine it is not as easy as we get older. I will keep your mom in my prayers and think positive thoughts that her situation may turn out better than the doctors say. Keep the faith Emily and remember we are here for you. Much love...Sue

(FNHL-2-3A-6/10)

epicc's picture
epicc
Posts: 136
Joined: Nov 2012

Thank you Sue. It has been very rough  this week being the worse one yet. I'm trying to keep the faith for my family and especially my dad. She was getting some blood today. she was very tired today and slept most of the time. Her cancer being in the blood makes it very difficult to control. I think the new drug they are using might last longer. Thank you so much for the kind words. Everyone's prayers mean so much to me. 

Love Emily 

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