Okay...more bad news...

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MAJW
MAJW Member Posts: 2,510 Member
Had my CT scan this morning...got " the call"....the chemo ( clinical trial drug) isn't working....:(. Going tomorrow for radiation simulation...they need to get the radiation started pronto! So I'm out of the chemo trial and will now start with 5 weeks of radiation....the clavicle node is pressing against a blood vessel causing my hand and arm to swell...Radiation here I come again....have no idea yet as to what will come after radiation....more surprises, no doubt....

I am soooooooo sick of this! No pun intended......I thought I was digging deep for strength and courage 6 weeks ago...whew! This has thrown me for a loop! But at least I won't feel like crap like I have since the last chemo 3 weeks ago...glass half full? And my poor one usable vein will get a rest...
As devastating as this is for me, my heart is breaking for my husband, kids and grands....my kids will be oaky...they have kids and all lead very busy lives...it's my husband.....we were high school sweethearts..we were 16 when we met..married at 18....and they said it wouldn't last..we just celebrated 42 years of marriage...I couldn't have asked for a better soul mate....

Okay, I feel a pity party coming on so I'll run for now....

Sending my prayers for all of who are battling this most hateful beast...
Hugs,
Nancy
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Comments

  • CypressCynthia
    CypressCynthia Member Posts: 4,014 Member
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    Nancy, I am so sorry to hear
    Nancy, I am so sorry to hear about your news. That is so unfair! I hate this sh***y disease. I wish I could come through this MB and give you a hug and make it better. I think you are amazingly brave and unselfish--always thinking of your family first. There is a reason why your marriage has lasted so long and I bet it is in large part because you are so incredible. PM me if there is anything I can do. (((Hugs))), Eileen
  • gami43
    gami43 Member Posts: 281
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    Wow - sorry to hear your
    Wow - sorry to hear your news. What a stinky Monday this is.
    Rest your body and we will pray the radiation will do its job.
    Sending you love and care. I am praying for you and your family.
    42 years is quite an accomplishment! I am proud for you two!

    Teresa
  • joannstar
    joannstar Member Posts: 403 Member
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    You are such an example
    of a true fighter! I always look forward to your posts, being that I too am a triple negative. Your attitude has more than once, brightened my day. And now that I am going back for a recall mammo/ultra sound and another blood test, as I start to give in to gloom and doom, I think of how brave you are!
    My prayers are with you.
    Big hugs,
    JoAnn
  • rainbow4
    rainbow4 Member Posts: 137
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    Prayers and good wishes
    All the good thoughts I possess are coming your way, Nancy, to help you and your family through this! I know life isn't always fair, but sometimes it's even MORE unfair than other times - make sense?
    Fight Like A Girl!
    -rainbow4
  • fauxma
    fauxma Member Posts: 3,577 Member
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    Nancy,
    I don't think this is

    Nancy,
    I don't think this is a pity party. It is hard to get this type of news and not feel shaken to your core. I feel the same way about my family. My daughter is married and has her children but my Den and I have been together for over 37 years. We are linked at the heart and soul. I hope that the rads will offer relief and that they will come up with any weapon to fight this. My prayers and my heart are there for you. Weep, rant, whatever works and then fight on.
    Stef
  • Sunrae
    Sunrae Member Posts: 808
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    rainbow4 said:

    Prayers and good wishes
    All the good thoughts I possess are coming your way, Nancy, to help you and your family through this! I know life isn't always fair, but sometimes it's even MORE unfair than other times - make sense?
    Fight Like A Girl!
    -rainbow4

    Dear Nancy, You are so much
    Dear Nancy, You are so much stronger than you realize. The fact that you can even come here and still set us an example of true courage makes you a winner. Sounds like you have a fantastic family that has much love and support for you. Do what you have to do to get thru this, fight with all your might and heart. And know we're always here for you too. Sending you much love and praying for you. Keep us informed when you can.
  • renee616
    renee616 Member Posts: 181
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    fauxma said:

    Nancy,
    I don't think this is

    Nancy,
    I don't think this is a pity party. It is hard to get this type of news and not feel shaken to your core. I feel the same way about my family. My daughter is married and has her children but my Den and I have been together for over 37 years. We are linked at the heart and soul. I hope that the rads will offer relief and that they will come up with any weapon to fight this. My prayers and my heart are there for you. Weep, rant, whatever works and then fight on.
    Stef

    Nancy
    I am praying that this

    Nancy
    I am praying that this round of rads fixes everything this time! Congratulations on being happily married for so long! It will be awesome to see that 50 year mark together! My husband and I were married right out of High School too, We just celebrated Our 30th.
    Hugs
    Renee
  • AMomNETN
    AMomNETN Member Posts: 242
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    Nancy
    Nancy I'm so sorry for this lastest round of bad news. Keep fighting and posting you give us all strength with this never ending battle.

    Janie
  • cavediver
    cavediver Member Posts: 607
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    Hope the radiation
    Hope the radiation treatments work some magic for you. I don't know why any of us have been given this plate....but deal with it we have no choice. You are strong and can get through this. You have my prayers and sending positive energy your way. Hugs
  • skipper54
    skipper54 Member Posts: 936 Member
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    cavediver said:

    Hope the radiation
    Hope the radiation treatments work some magic for you. I don't know why any of us have been given this plate....but deal with it we have no choice. You are strong and can get through this. You have my prayers and sending positive energy your way. Hugs

    Oh Crap!
    Sending prayers that the rads will do the job and take care of this new problem. It's not a pity party when you just need to vent. So sorry that you need to go through this. We're here for you!!!!!!!
  • VickiSam
    VickiSam Member Posts: 9,079 Member
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    AMomNETN said:

    Nancy
    Nancy I'm so sorry for this lastest round of bad news. Keep fighting and posting you give us all strength with this never ending battle.

    Janie

    Nancy ... My dear Fierce WARRIOR, so sorry
    to hear this news! I hate this stupid 'cancer' and the ugliness that invades our lives.

    Keep up your positive attitude and outlook on life, and we here on our board will provide support, laughter and strength.

    Gentle Hugs,

    Vicki Sam
  • survivorbc09
    survivorbc09 Member Posts: 4,374 Member
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    joannstar said:

    You are such an example
    of a true fighter! I always look forward to your posts, being that I too am a triple negative. Your attitude has more than once, brightened my day. And now that I am going back for a recall mammo/ultra sound and another blood test, as I start to give in to gloom and doom, I think of how brave you are!
    My prayers are with you.
    Big hugs,
    JoAnn

    So sorry Nancy. Strength
    So sorry Nancy. Strength and prayers to you!



    Hugs, Jan
  • cahjah75
    cahjah75 Member Posts: 2,631
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    Nancy
    so sorry to hear of your news in re clinical trial. Hope the radiation kicks butt! Don't worry about what comes next. You are strong and I'm sure after 42 years of marriage your DH is going to be right by your side no matter what. For now, we're keeping you in our thoughts and prayers.
    {{hugs}} Char
  • CAchick
    CAchick Member Posts: 277
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    Heroic
    Nancy, You and many of the ladies who are battling mets out there are my heroes. You should not have to go through this, and no words can express how much I wish you didn't have to...Sending prayers and best wishes as you continue your fight.
    You all are amazing!
    Sybil
  • Mitzi333
    Mitzi333 Member Posts: 511 Member
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    CAchick said:

    Heroic
    Nancy, You and many of the ladies who are battling mets out there are my heroes. You should not have to go through this, and no words can express how much I wish you didn't have to...Sending prayers and best wishes as you continue your fight.
    You all are amazing!
    Sybil

    Nancy... You're in my Thoughts and Prayer
    I'm sending positive vibes your way for the radiation to take care of the beast!!!

    Stay strong, You're a Fighter!!! We're all in your corner.

    Hugs~
    Mitzi ;0)
  • debi.18
    debi.18 Member Posts: 850 Member
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    CAchick said:

    Heroic
    Nancy, You and many of the ladies who are battling mets out there are my heroes. You should not have to go through this, and no words can express how much I wish you didn't have to...Sending prayers and best wishes as you continue your fight.
    You all are amazing!
    Sybil

    Nancy
    Nancy,
    I have to say I admire your "cup half full" attitude. You're such an inpiration. So sorry the trials aren't working, but praying the rads will take care of this "crappy crap" as I call it.

    Congrats on 42 years - awesome and such an accomplishment. Wish I could say the same for me, married at 16 - only managed to lasted 18 years.

    Lots of prayers and big hugs,
    Debi!
  • Aortus
    Aortus Member Posts: 967
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    So terribly sorry to hear this, Nancy
    I was hoping and praying that you were turning the corner in the GOOD direction. At least your medical team is on the ball and taking swift action to manage what's going on. By the time they have the clavicle node zapped into submission there will probably be something new in the arsenal... hopefully, something that will do the job. God bless you and all your family and your caregivers as you enter this new round of the fight!

    Love,
    Joe
  • butterflylvr
    butterflylvr Member Posts: 944
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    Aortus said:

    So terribly sorry to hear this, Nancy
    I was hoping and praying that you were turning the corner in the GOOD direction. At least your medical team is on the ball and taking swift action to manage what's going on. By the time they have the clavicle node zapped into submission there will probably be something new in the arsenal... hopefully, something that will do the job. God bless you and all your family and your caregivers as you enter this new round of the fight!

    Love,
    Joe

    Oh Nancy... my heart aches.
    Oh Nancy... my heart aches. This has not been a good Monday on the Pinks board. You have taught me so much and I know you will be just fine. You are one graceful and very classy lady to which I admire so much. I know your attitude will give you strength after you have time to process all this new information. I know you know we are all here surrounding you in love and prayer.

    Hugs,
    Lorrie
  • Lighthouse_7
    Lighthouse_7 Member Posts: 1,566 Member
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    Aortus said:

    So terribly sorry to hear this, Nancy
    I was hoping and praying that you were turning the corner in the GOOD direction. At least your medical team is on the ball and taking swift action to manage what's going on. By the time they have the clavicle node zapped into submission there will probably be something new in the arsenal... hopefully, something that will do the job. God bless you and all your family and your caregivers as you enter this new round of the fight!

    Love,
    Joe

    Nancy,
    Sending prayers and

    Nancy,
    Sending prayers and positive vibes for the radiation to work. God bless you on your long marriage, just shows what an awesome person you are!
    I just heard this recently but need to share it again:
    You never realize how strong you are until strength is your only option.
    Hugs,
    Wanda
  • BlownAway60
    BlownAway60 Member Posts: 851
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    So sorry.
    Sending Hugs and

    So sorry.

    Sending Hugs and prayers.

    Donna