you are NOT going to believe this one!

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heidijez
heidijez Member Posts: 441
edited March 2014 in Breast Cancer #1
another drama filled day at the cancer center. arrived for radiation, got changed and went to the waiting area. after a few minutes one of the technicians comes in and apologizes profusely. the machine is down. would i mind coming back after my pet scan. like i have a choice in the matter. go to have pet scan done. go back to radiation oncology - machine is back up but they are backed up (big surprise there!) as i am getting undressed again i notice that the skin along my scar is raw and peeling. after radiation the area is larger. so i get dressed and my friend and i walk over to the breast care center so i can talk to the nurse.

she comes out to get me and says that my radiation oncologist wants to see me. dr. w asked me if anyone had talked to be about the pathology from the gall bladder surgery. i said no and asked if i was going to need tissues. with tears in her eyes, she hands me the box and says you have breast cancer in the gall bladder. WHAT? HOW CAN THIS BE?? she is flabbergasted by this - there is a lot of pain in the bone on my right hip, she says this doesn't surprise her, but we have to wait until monday to know the full impact.

bottom line is i will have be on some kind of chemo for the rest of my life.

a year ago today, i had my first chemo treatment ever. this was not the way i wanted to celebrate this milestone.

i don't know what to say or feel at this point.
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Comments

  • Jean 0609
    Jean 0609 Member Posts: 2,462
    #2
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    Oh no Heidi,
    Sorry to hear this dear friend. I don't know what to say. I will definitely keep you in my prayers and please let me know if I can do anything for you. Hugs, Jean
  • RE
    RE Member Posts: 4,591 Member
    #3
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    :-(
    Oh Heidi I am so sorry that you got such news today, I'll be keeping you in my prayers.

    Hugs,

    RE
  • sweetvickid
    sweetvickid Member Posts: 459 Member
    #4
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    Jean 0609 said:

    Oh no Heidi,
    Sorry to hear this dear friend. I don't know what to say. I will definitely keep you in my prayers and please let me know if I can do anything for you. Hugs, Jean

    Dear Heidi what can I say
    Dear Heidi what can I say but that sucks big time! Since joining this exclusive club I keep thinking of what Mother Teressa said once something to the effect that God will not give us more burdens than we can carry but she wished he didn't have so much confidence in her some times.
    My thought and prayers are with you.
    Vicki
  • sbmly53
    sbmly53 Member Posts: 1,522
    #5
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    Oh, Heidi,
    Words just cannot express how sad I am for your news. You are in my prayers. Keep fighting, dear sister. We are all behind you.

    Sue
  • meena1
    meena1 Member Posts: 1,003
    #6
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    sbmly53 said:

    Oh, Heidi,
    Words just cannot express how sad I am for your news. You are in my prayers. Keep fighting, dear sister. We are all behind you.

    Sue

    I also have IBC which has
    I also have IBC which has spread. I have also been told that I have been told that I may have to be on chemo for the rest of my life! Inflammatory Breast Cancer is very aggressive, I feared this when I read you post about your surgery. Right now I am on Taxatere and Carboplatin, Herceptin and zometa and I am responding well. I have sent you a PM, I am going to the country (if not worlds) expert in Inflammatory Breast Cancer in Philadelphia. He has helped me, there is hope for you, there is NOTHING he does not know about IBC. He may be able to help you. Please let me know how you are
  • New Flower
    New Flower Member Posts: 4,294
    #7
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    meena1 said:

    I also have IBC which has
    I also have IBC which has spread. I have also been told that I have been told that I may have to be on chemo for the rest of my life! Inflammatory Breast Cancer is very aggressive, I feared this when I read you post about your surgery. Right now I am on Taxatere and Carboplatin, Herceptin and zometa and I am responding well. I have sent you a PM, I am going to the country (if not worlds) expert in Inflammatory Breast Cancer in Philadelphia. He has helped me, there is hope for you, there is NOTHING he does not know about IBC. He may be able to help you. Please let me know how you are

    Heidi
    sorry that you are having a rough day and disappointed news. Please do not loose hope. We will stay by your side.
    Hugs
  • CypressCynthia
    CypressCynthia Member Posts: 4,014 Member
    #8
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    Heidi, I am so sorry to hear
    Heidi, I am so sorry to hear your news. God I hate this beast! Please know you are in my prayers. But also know that many can live a long, long time with mets. I was diagnosed in April 2009 with bone mets. I know I will probably die of this disease but I will LIVE every day that I can. Hang in there my friend. Your sister warriors are with you.
  • heidijez
    heidijez Member Posts: 441
    #9
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    meena1 said:

    I also have IBC which has
    I also have IBC which has spread. I have also been told that I have been told that I may have to be on chemo for the rest of my life! Inflammatory Breast Cancer is very aggressive, I feared this when I read you post about your surgery. Right now I am on Taxatere and Carboplatin, Herceptin and zometa and I am responding well. I have sent you a PM, I am going to the country (if not worlds) expert in Inflammatory Breast Cancer in Philadelphia. He has helped me, there is hope for you, there is NOTHING he does not know about IBC. He may be able to help you. Please let me know how you are

    in addition to IBC i am triple negative
    i already have received the lifetime max of taxotere. being triple negative means herceptin and zometa are not an option. got your pm, i know of whom you speak, we are already in contact with him.

    wiped out, but not giving up!
  • dyaneb123
    dyaneb123 Member Posts: 950
    #10
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    CypressCynthia said:

    Heidi, I am so sorry to hear
    Heidi, I am so sorry to hear your news. God I hate this beast! Please know you are in my prayers. But also know that many can live a long, long time with mets. I was diagnosed in April 2009 with bone mets. I know I will probably die of this disease but I will LIVE every day that I can. Hang in there my friend. Your sister warriors are with you.

    I'm so sorry to hear your
    I'm so sorry to hear your news Heidi. It sounds like Meena might be someone with some sound advice ..or at least experience dealing with this....and I know there are several others going through this now....Hang in there...
    Dee
  • jo jo
    jo jo Member Posts: 1,175
    #11
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    Heidi your news just made my
    Heidi your news just made my heart sink...im just in shock...as im guessing you are too. I just dont have any words right now...but i will continue to pray for you!
  • Bella Luna
    Bella Luna Member Posts: 1,578 Member
    #12
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    Sending BEAR HUGS to you
    Sending BEAR HUGS to you Heidi. I am so sorry to about your gall bladder having cancer. Words fail me. This is such a cruel disease. Please know that we stand firmly by your side dear sweet Sister. I will say a prayer for you and your family.
    BL
  • Texasgirl10
    Texasgirl10 Member Posts: 668
    #13
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    Bella Luna said:

    Sending BEAR HUGS to you
    Sending BEAR HUGS to you Heidi. I am so sorry to about your gall bladder having cancer. Words fail me. This is such a cruel disease. Please know that we stand firmly by your side dear sweet Sister. I will say a prayer for you and your family.
    BL

    I am so sorry
    Oh Heidi I am so sorry for this horrible news. I just don't know what to say except I'm sorry and I'm praying for you. Please stay strong and know that we are all here with you.

    God Bless,

    Dawne
  • linpsu
    linpsu Member Posts: 747
    #14
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    So sorry
    Oh Heidi - I am so upset by your news! Hang in there, dear sister. We are all fighting with you and for you, and sending lots of prayers and hugs your way.
    Linda
  • fauxma
    fauxma Member Posts: 3,577 Member
    #15
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    linpsu said:

    So sorry
    Oh Heidi - I am so upset by your news! Hang in there, dear sister. We are all fighting with you and for you, and sending lots of prayers and hugs your way.
    Linda

    Heidi,
    I am so sorry that
    Heidi,
    I am so sorry that this was the outcome of your surgery. Please know I will keep you in my prayers. Everytime I look at my angels I will think of you and say a prayer. There are others that are facing this as well and I know some have chimed in and others will. This is so not the news I wanted you to hear. Months after I had uterine cancer, I had my gall bladder out and asked if it was possible that it would be cancerous and I was told that it was unlikely. The pathology on mine was fine but now I can see that I was very lucky as it does happen. I can only say, try to take each day, each step one at a time. And that you are not alone. Countless sisters are here for you. Big hugs coming your way.
    Stef
  • ladyg
    ladyg Member Posts: 1,577
    #16
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    Sorry
    to hear that you now have another battle to fight. Do not give up. We are all in the fight with you. I will keep you in my thoughts.

    Hugs,
    Georgia
  • Lighthouse_7
    Lighthouse_7 Member Posts: 1,566 Member
    #17
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    ladyg said:

    Sorry
    to hear that you now have another battle to fight. Do not give up. We are all in the fight with you. I will keep you in my thoughts.

    Hugs,
    Georgia

    I'm so sorry for this news
    I'm so sorry for this news Heidi. All I can say is prayers are coming your way and if you need anything or to vent this is where we'll be.
    Hugs,
    Wanda
  • cavediver
    cavediver Member Posts: 607
    #18
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    Heidi, I am so sorry to hear
    Heidi, I am so sorry to hear your news and will keep you in my thoughts and prayers! I don't know what to say...but am sending you cyber hugs and positive thoughts...
  • aisling8
    aisling8 Member Posts: 1,627 Member
    #19
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    cavediver said:

    Heidi, I am so sorry to hear
    Heidi, I am so sorry to hear your news and will keep you in my thoughts and prayers! I don't know what to say...but am sending you cyber hugs and positive thoughts...

    Adding
    my prayers and good wishes along with everyone else. Your news is very disturbing and makes me sad. It makes me want to do something for you and there's nothing I can do.

    I'm thinking of you,
    Victoria
  • carkris
    carkris Member Posts: 4,553 Member
    #20
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    aisling8 said:

    Adding
    my prayers and good wishes along with everyone else. Your news is very disturbing and makes me sad. It makes me want to do something for you and there's nothing I can do.

    I'm thinking of you,
    Victoria

    Heidi this has been a tough
    Heidi this has been a tough go of it. Who would think it would be in the gallbladder! Glad they are consulting Meena's doctor and getting all opinions to stop this cancer in its tracks. I hope you are healing ok from your surgery and getting the rest you need. And hoping for some good news soon! Hugs Penny
  • jamiegww
    jamiegww Member Posts: 384
    #21
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    I'm praying for you.
    What a horrible experience! I too am triple negative and wish we had more treatment options. Try to keep busy so you aren't constantly thinking about it.

    Hugs!!!
    Jamie

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