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Best radiation burn creams?

j3rey
Posts: 56
Joined: Apr 2010

Hi guys,
While hubby is doing ok nutrition wise, he has developed a pretty nasty radiation rash on his neck and upper chest/back. We have been putting on aloe from the yard - any other really good creams or ointments that anyone could suggest?
Thanks so much,
Jen

sweetblood22's picture
sweetblood22
Posts: 3230
Joined: Jan 2010

I used radiaplex from the begining. It is by perscription only and it worked great. My insurance would not pay for it tho. Found out about it from a HNC patient in Texas and had my RO here write me a persription for it.

D Lewis's picture
D Lewis
Posts: 1547
Joined: Jan 2010

Biafine - a prescription lotion that comes in a tube. I had to take a week hiatus from radiation treatments owing to extreme burning of my skin. They told me if I'd continued, I would have ended up with third degree burns. Biafine cleared it up in a week. My insurance paid for it, but I believe I had to pay a somewhat larger co-pay fee.

Deb

Skiffin16's picture
Skiffin16
Posts: 8104
Joined: Sep 2009

Jen,

Aquaphor is another and usually they can give you some samples to try. I didn't like it personally, but I know a few on here used it and liked it...

Mine just turned pretty dark, dried out and eventually peeled off.

Make sure if Mark goes out to try and stay out of the sun as much as possible right now also.

Best,
John

staceya's picture
staceya
Posts: 704
Joined: Jan 2010

I used aloe, aquaphor, biofine (which my insurance would not cover) and silvadene which it did cover..liked silvadene and biofine best. Still had bad burns, opened up like bed sores, needed debridement (which I did at home--ouch) Healed up pretty well, sort of discolored.
Good luck
Stacey

debbiejeanne's picture
debbiejeanne
Posts: 2590
Joined: Jan 2010

I also used Aquaphor and it worked magic for me. I was in a lot of pain until I put the
Aquaphor on, then no more pain. I hope you find something that works. Best wishes.

God Bless,
debbie

j3rey
Posts: 56
Joined: Apr 2010

Once again, you are all a wealth of information and inspiration. Thank you for sharing.
We have tried aquaphor and he doesn't like the 'greasy' way it makes him feel. I have tried mixing the aquaphor and aloe together as well. Will ask the doc tomorrow about the Radiaplex, Biafine, and Silvadene.
Thanks,
Jen

sweetblood22's picture
sweetblood22
Posts: 3230
Joined: Jan 2010

You are totally right about that. It's like water based vasoline. That's why I liked the Radiaplex. It went in like hand cream. Actually I may have a brand new one up at my parents. I could check and send it to you if you like. I think it was $40.oo

if you would want it pm me ur address. If not that's cool too. I would rather see someone get use of it.

sweetblood22's picture
sweetblood22
Posts: 3230
Joined: Jan 2010

You are totally right about that. It's like water based vasoline. That's why I liked the Radiaplex. It went in like hand cream. Actually I may have a brand new one up at my parents. I could check and send it to you if you like. I think it was $40.oo

if you would want it pm me ur address. If not that's cool too. I would rather see someone get use of it.

Skiffin16's picture
Skiffin16
Posts: 8104
Joined: Sep 2009

LOL, that thick greasy feel is exactly why I didn't like it myself.... I know I have read on another forum of the Silvadene Cream, but it was more for open and seeping burns. I actually think it's a cream they use for burn victims. But I did read in that particular forum that it worked extremely well.

Sorry that Mark is going through this, unfortunately another "short term" gift of the radiation. Eventually it to will pass, stinks in the mean time though.

John

Fire34
Posts: 353
Joined: Feb 2010

I or my wife used aquaphor with some neosporyn mixed in. It helped cool the burning and also helped soften the neck area. she then covered the area with believe it or not saran wrap to keep the mixture where it was needed. We did not do this until I got home as I did not have enough time during the day between radiation(twice a day) to apply anything.
I also had to debride and we used Domeboro soaks and that seemed to help with removing the dead skin. Inpatient they had a cooling bandage that worked wondering when the burining wouldn't stop.
I am like sweet if anyone needs some aquaphor I have like three jars still left at home. they gave us new jars every week of rads.
Best Wishes & prayers
Dave

j3rey
Posts: 56
Joined: Apr 2010

Hi all,
Radiation nurse gave us a tube of XClair cream this morning. She said it is by prescription only so she also wrote a RX for us to fill. We will give this a try for a few days.
Thank you Sweetblood! I will pm you if this cream doesn't help and will try your cream. I asked about Slivadene and was told that it is sulpha based and our doc doesn't like to use it because of many people reacting to it. (says it can burn worse in some people)
The education continues....
Thanks,
Jen

tabbyalford
Posts: 2
Joined: Jun 2010

My Husband doesn't like the greasy also.He's burns are so bad they postponed radition they have him on neosproin covered with destin for 5 days and then aquaphor covered with destin when he starts radition again does this make any sense to anyone. I'm new at this need all the help i can get hubby getting chemo and radition for neck and lung cancer.

DLS5419's picture
DLS5419
Posts: 34
Joined: Jun 2010

Hi! My mom was burnt severely from the inside out from radiation. She used a cream by Estee Lauder during all 22 treatments and it was a MIRACLE CREAM. We had tried aquafor etc., but when she lathered this stuff on her neck/face/chest before and after radiation, it clinically helped her. We even tried to contact Estee Lauder to let them know to help others with radiation treatments know about this cream. It truly made a difference. She is asleep at the moment, but when she wakes up either later tonight or tomorrow I will reply with the official cream name. God bless and hang in there. Radiation burn was one of the most painful issues she experienced, literally it burnt her from the inside out, but this cream helped her tremendously. Let you know soon.

debbiejeanne's picture
debbiejeanne
Posts: 2590
Joined: Jan 2010

DLS, sorry your mom is going thru this. I will add you both to my prayers. I hope all is going well for your mom. Thank you so much for your post. It is greatly appreciated.
God Bless,
debbie

Pumakitty's picture
Pumakitty
Posts: 653
Joined: Mar 2010

Hi,

I am sorry you and your mom are going through this. I know how hard it is to see a parent having to deal with this. My dad just finished treatment for tongue cancer and it has been very stressful for me. He dad's biggest problem was radiation burns on the inside of his throat and tongue. He made it through treatment better then most do. I will pray for your mom and if you ever want to talk, just send me a private message by cliking on Pumakitty.

Prayers.

Kathy

Kent Cass's picture
Kent Cass
Posts: 1748
Joined: Nov 2009

And yes, John, it didn't cost me anything- samples all over the rad office. Looking back- probably shoulda asked for something better.

kcass

Greg53's picture
Greg53
Posts: 830
Joined: Apr 2010

And yeah it was a greazy mess. Ruined about 5 good t-shirts. It worked though.
Greg

schweet
Posts: 3
Joined: Apr 2010

Is your dad following a strict regismnt of moutcare. With baking soda, slat ad water. My sister has and has no problems so far. Look into gettting TENDEROL DROPS if you can.

Much Luck.

Sue Keith.

Fire34
Posts: 353
Joined: Feb 2010

The hospital actually let your Mom put creams on her neck before radiation? Mine was terrible about putting any creams etc before radiaiton. I had twice daily and was only able to put anything on after the afternoon treatment. Best Wishes & Prayers
Dave

Skiffin16's picture
Skiffin16
Posts: 8104
Joined: Sep 2009

I was just going to post a similar comment. I know that they warned me and highly advised me, not to put any creams or lotions on before radiation treatments.

JG

Chinasilk
Posts: 1
Joined: Jun 2010

The best radiation cream for me was called, Miaderm, you can only order online at their web site at http://www.miaderm.com. I went through 35 sessions of radiation last June, and I was the only patient in the department (Northwestern, Chicago) who didn't get burn for Head and Neck treatment, only a little flaky skin at the end for 3 days. You have to start 2 weeks before the treatment and use it very religiously twice a day, and continue for 2 weeks after the treatment. The nurses were so impressed with my skin condition that they have since call the rep and start to recommend to all radiation patients. I've recommend to several people, and they all told me it's been helping them even though some are in the middle of the treatments already.

cody456
Posts: 2
Joined: Jun 2010

I have used this Cream and product From Cellquest.com that works wonderful, as soon as I put it on Burn gone.

cody456
Posts: 2
Joined: Jun 2010

I have used this Cream and product From Cellquest.com that works wonderful, as soon as I put it on Burn gone.

schweet
Posts: 3
Joined: Apr 2010

Lather on Aquaphor and alternate with Aloe cream. Pure aloe not chemical additives. Must weear at least an SPF 30 sunscreen. Try California baby ( No chemicals in it ).

He must do this ever night religiously.

My sister is undergoing radiation and it has really helped.

Much success to you.

S. Keith

schweet
Posts: 3
Joined: Apr 2010

Please check out a site called Miaderm.com. This cream was developed by Radiation Oncologists and works very well. I got it for my sister.

Good Luck.

meinken's picture
meinken
Posts: 38
Joined: Jan 2010

During and after radiation, my neck was badly burned. I had cracks and pink showing through. My doctor prescribed SSD (1% Silver Sulfadiazine Cream) and my burns were healed about a week after radiation and the cream was soothing during treatment. Since the SSD was generic, the prescription cost was minimal and I used a lot of it.

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