Level 3 Infiltrating Ductal Carcinoma

Options
124678

Comments

  • tommaseena
    tommaseena Member Posts: 1,769
    Options
    Spinnr1 said:

    oh yeah forgot to post what
    oh yeah forgot to post what she's taking

    Spelling sould be wrong here I was writing fast

    Herceptin, Carboplatan, and Taxol

    Belated Birthday wish
    Happy belated birthday Spinnr1.

    What is her treatment plan for this chemo cocktail?

    If she has been given anti-nausea meds to take she needs to take them as directed. She might not feel sick and might not want to take the anti-nausea pills but if she does get sick then it is too late. If direct to take every 8 hrs for 3 days then make sure she takes them.

    Taxol and Herceptin isn't bad but I don't know anything about Carboplatan.

    I was on A/C(adrimyacin/cytoxin) once every two weeks for 4 treatments.
    Now on Taxol w/Herceptin once a week for 12 weeks(one more treatment to go)
    Then Herceptin once every three weeks for one year starting in August.

    Good luck to your girlfriend--she has a wonderful man in her life who cares and loves her.

    Hugs to both of you,
    Margo
  • Spinnr1
    Spinnr1 Member Posts: 57
    Options

    Belated Birthday wish
    Happy belated birthday Spinnr1.

    What is her treatment plan for this chemo cocktail?

    If she has been given anti-nausea meds to take she needs to take them as directed. She might not feel sick and might not want to take the anti-nausea pills but if she does get sick then it is too late. If direct to take every 8 hrs for 3 days then make sure she takes them.

    Taxol and Herceptin isn't bad but I don't know anything about Carboplatan.

    I was on A/C(adrimyacin/cytoxin) once every two weeks for 4 treatments.
    Now on Taxol w/Herceptin once a week for 12 weeks(one more treatment to go)
    Then Herceptin once every three weeks for one year starting in August.

    Good luck to your girlfriend--she has a wonderful man in her life who cares and loves her.

    Hugs to both of you,
    Margo

    Here's where I look like a
    Here's where I look like a bad helper. I don't know what her anti-nausea meds are or how often she is supposed to take them.

    right now she is scheduled for 6 to 8 treatments, once every month of the herceptin, taxol, and carboplatan and herceptin every week between.

    Congratulations on the last treatment approaching, that is good news.

    Thank you for the good luck wishes, we both need them. and thank you for the compliment. I am just doing what I feel is right for someone that means the world to me.

    Good luck with the rest of your treatment and beyond.
  • Alexis F
    Alexis F Member Posts: 3,598
    Options
    Spinnr1 said:

    Here's where I look like a
    Here's where I look like a bad helper. I don't know what her anti-nausea meds are or how often she is supposed to take them.

    right now she is scheduled for 6 to 8 treatments, once every month of the herceptin, taxol, and carboplatan and herceptin every week between.

    Congratulations on the last treatment approaching, that is good news.

    Thank you for the good luck wishes, we both need them. and thank you for the compliment. I am just doing what I feel is right for someone that means the world to me.

    Good luck with the rest of your treatment and beyond.

    Spinnr1, you are so good to
    Spinnr1, you are so good to your gf. You are helping her so much. I wish you two only the best. I pray that her chemo goes smoothly for her. And, take care of yourself too!
  • Spinnr1
    Spinnr1 Member Posts: 57
    Options
    She had her second chemo
    She had her second chemo treatment today. they had said her medicaid wasn't going to pay for it, but they never said anything once we got there and never asked how it was going to be paid for so I figured all is well
    she shaved her head yesterday, rather she had me shave her head yesterday. easily one of the hardest things I have ever done in life. very emotional, but we both agree it's a small price to pay if it works and she gets better
    anyways, she got through the chemo without any trouble and she is up moving around right now so. keep the prayers coming
    p.s. how is everyone else?
  • Moopy23
    Moopy23 Member Posts: 1,751 Member
    Options
    Spinnr1 said:

    She had her second chemo
    She had her second chemo treatment today. they had said her medicaid wasn't going to pay for it, but they never said anything once we got there and never asked how it was going to be paid for so I figured all is well
    she shaved her head yesterday, rather she had me shave her head yesterday. easily one of the hardest things I have ever done in life. very emotional, but we both agree it's a small price to pay if it works and she gets better
    anyways, she got through the chemo without any trouble and she is up moving around right now so. keep the prayers coming
    p.s. how is everyone else?

    Good News
    Spinnr1, thank you for letting us know how your girlfriend is doing. She sounds like a real warrior. And you're right: being a bald girl for awhile is a small price to pay for beating cancer.

    I am sending you and your girlfriend positive thoughts and prayers as you navigate this journey. Please take care of yourself also as much as you can.
  • Moopy23
    Moopy23 Member Posts: 1,751 Member
    Options
    Spinnr1 said:

    She had her second chemo
    She had her second chemo treatment today. they had said her medicaid wasn't going to pay for it, but they never said anything once we got there and never asked how it was going to be paid for so I figured all is well
    she shaved her head yesterday, rather she had me shave her head yesterday. easily one of the hardest things I have ever done in life. very emotional, but we both agree it's a small price to pay if it works and she gets better
    anyways, she got through the chemo without any trouble and she is up moving around right now so. keep the prayers coming
    p.s. how is everyone else?

    Good News
    Spinnr1, thank you for letting us know how your girlfriend is doing. She sounds like a real warrior. And you're right: being a bald girl for awhile is a small price to pay for beating cancer.

    I am sending you and your girlfriend positive thoughts and prayers as you navigate this journey. Please take care of yourself also as much as you can.
  • Spinnr1
    Spinnr1 Member Posts: 57
    Options
    Moopy23 said:

    Good News
    Spinnr1, thank you for letting us know how your girlfriend is doing. She sounds like a real warrior. And you're right: being a bald girl for awhile is a small price to pay for beating cancer.

    I am sending you and your girlfriend positive thoughts and prayers as you navigate this journey. Please take care of yourself also as much as you can.

    You're right about the
    You're right about the "warrior" thing, I told her if anyone can beat this it's her.
    Thank you for the good thoughts and wishes. they are always appreciated
    p.s. love the picture of the dog (I do animal photography in my spare time)
  • Akiss4me
    Akiss4me Member Posts: 2,188
    Options
    Spinnr1 said:

    You're right about the
    You're right about the "warrior" thing, I told her if anyone can beat this it's her.
    Thank you for the good thoughts and wishes. they are always appreciated
    p.s. love the picture of the dog (I do animal photography in my spare time)

    Chemo
    Spinnr1, so glad to hear that your GF is hanging in there. No doubt that part of her success has to come from you being by her side! I remember when you first posted how frieghtened you sounded and today I pick up on the fact that you are much more confidant.
    I am also glad to see that you are still with us and keeping us up to date. Have you thought about sharing with your GF to come on the boards yet? We will continue to keep her and you in our prayers and thoughts!! :) Pammy
  • Spinnr1
    Spinnr1 Member Posts: 57
    Options
    Akiss4me said:

    Chemo
    Spinnr1, so glad to hear that your GF is hanging in there. No doubt that part of her success has to come from you being by her side! I remember when you first posted how frieghtened you sounded and today I pick up on the fact that you are much more confidant.
    I am also glad to see that you are still with us and keeping us up to date. Have you thought about sharing with your GF to come on the boards yet? We will continue to keep her and you in our prayers and thoughts!! :) Pammy

    A little more confident.
    A little more confident. just as terrified tho.
    I told her about this place and she reads over my shoulder alot, but she isn't much into forums or sharing with people. but believe me she is very appreciative of everyone here
  • Kylez
    Kylez Member Posts: 3,761 Member
    Options
    Spinnr1 said:

    A little more confident.
    A little more confident. just as terrified tho.
    I told her about this place and she reads over my shoulder alot, but she isn't much into forums or sharing with people. but believe me she is very appreciative of everyone here

    Maybe someday she will feel
    Maybe someday she will feel like she wants to post. But, if she doesn't, that is fine too. Praying for her and for you to find strength!
  • Akiss4me
    Akiss4me Member Posts: 2,188
    Options
    Kat11 said:

    HI Spinnr1, Sorry about your
    HI Spinnr1, Sorry about your friend. Looks like she has a good friend in you. I also have infiltrating Ductal Carcinoma. I can tell you, that you need to wait for more information. Some of this will come when she goes to the doctor. Make a list of questions or you will forget. I think there is some information right here on Questions to ask your doctor. Cancer always comes out of left field. The level is not the stage. She won't get her stage until after surgery. I am sure you will get a lot more information here than I can provide. Again so sorry for you and your friend, take care

    *****STOP******
    JUST WANTED EVERYONE TO KNOW THAT AORTUS STARTED A NEW THREAD FOR SPINNER SINCE THIS ONE WAS GETTING QUIT LOOOOOONG!!!! PLEASE GO TO THE THREAD "Hey Spinnr - best wishes to your GF and you!" THANKS EVERYONE!!!! :) Pammy
  • susie09
    susie09 Member Posts: 2,930
    Options
    Spinnr1 said:

    She had her second chemo
    She had her second chemo treatment today. they had said her medicaid wasn't going to pay for it, but they never said anything once we got there and never asked how it was going to be paid for so I figured all is well
    she shaved her head yesterday, rather she had me shave her head yesterday. easily one of the hardest things I have ever done in life. very emotional, but we both agree it's a small price to pay if it works and she gets better
    anyways, she got through the chemo without any trouble and she is up moving around right now so. keep the prayers coming
    p.s. how is everyone else?

    Her second chemo, she is
    Her second chemo, she is moving right along Spinnr.

    I am so glad that you posted an update about her and yourself!

    Don't concern yourself with money.

    Most hospitals and cancer centers will help you and so will the ACS, if you contact them

    You just stay strong for your g/f!

    Hugs, Susie
  • Noel
    Noel Member Posts: 3,095 Member
    Options
    Spinnr1 said:

    She had her second chemo
    She had her second chemo treatment today. they had said her medicaid wasn't going to pay for it, but they never said anything once we got there and never asked how it was going to be paid for so I figured all is well
    she shaved her head yesterday, rather she had me shave her head yesterday. easily one of the hardest things I have ever done in life. very emotional, but we both agree it's a small price to pay if it works and she gets better
    anyways, she got through the chemo without any trouble and she is up moving around right now so. keep the prayers coming
    p.s. how is everyone else?

    You shaving her head, I am
    You shaving her head, I am sure, made it easier for her. It is only hair, it will grow back. Keeping you two in my prayers always!

    Hugs, Noel
  • Spinnr1
    Spinnr1 Member Posts: 57
    Options
    Noel said:

    You shaving her head, I am
    You shaving her head, I am sure, made it easier for her. It is only hair, it will grow back. Keeping you two in my prayers always!

    Hugs, Noel

    You're right, she was pretty
    You're right, she was pretty upbeat about it. I had some trouble, but I put on a brave face. we had a yard sale this morning, and she sat outside without a wig or a hat with her little donations jar and kept telling women to be sure they got a mammogram. all with a smile on her face. I was so proud.
    she is pretty upbeat about it all though.
    Thank you for the prayers. God bless you
  • Spinnr1
    Spinnr1 Member Posts: 57
    Options
    Oncologist appointment today
    Oncologist appointment today... hopefully he can tell us why the redness is starting to come back. Hope it's not anything bad
  • DianeBC
    DianeBC Member Posts: 3,881 Member
    Options
    Spinnr1 said:

    Oncologist appointment today
    Oncologist appointment today... hopefully he can tell us why the redness is starting to come back. Hope it's not anything bad

    Good luck at the oncologist.
    Good luck at the oncologist. Let us know.

    Hugs, Diane
  • lanie940
    lanie940 Member Posts: 490 Member
    Options
    Akiss4me said:

    Possibility....but not always
    Yes, the grade is one factor in deciding if chemo will take place. At the momment this is a tentative treatment plan. I will have the lumpectomy (This will spare my breast) and also they will check my lymph nodes at the same time. Whenever you have a lumpectomy, radiation is a must to make sure any remaining cancer cells (Even if it is just one!) is taken care of. When they check my lymph nodes during surgery (Called a sentenial node biopsy) if it shows that there is cancer in the node as well, then yes, I will go through chemo also. This however will not be determined till after surgery. Since my cancer is estrogen and progerone possitive (Sounds like your waiting on that part of her pathology report still, make sure you ask for it) then I will also go through hormone therapy for 5 years. I know it sounds really bad when you hear "grade 3" but it doesn't always mean chemo will be part of the treatment plan. They will look at the overall picture and then the oncologist and her will decide on the treatment that is best for her. Remember, she will always have a say in everthing that goes on. That is why it is so important to find a good DR that you feel comfortable with and feel you can trust. Hope this helps and feel free to ask anymore questions you may have. :) Pammy

    Having Lumpectomy Thursday
    I also have IDC. I believe mine is Stage #1 It was caught early, I'm way past menepause But what I want to say is my very best girlfriend had breast cancer at age 25. She had a mastectomy. Back then they didn't pay for reconstruction. That was 1976. She was 3 yrs cancer free, got a reconstruction. She has had no reocurrances So, she's been CANCER FREE for 33 years.
  • rjjj
    rjjj Member Posts: 1,822 Member
    Options
    DianeBC said:

    Good luck at the oncologist.
    Good luck at the oncologist. Let us know.

    Hugs, Diane

    I think Aortus started another thread
    I will try to find itand bump it up.
  • lanie940
    lanie940 Member Posts: 490 Member
    Options
    Spinnr1 said:

    I just don't know
    she's not going to dallas for treatment the dr says she knows the oncologist there and thinks he would be fine for her. the thing is noone will rush to get anything done they are taking forever, and the dr's in dallas are pissed that they waited around so long. we can't afford to stay in dallas and I can't drive back and forth. I just don't know what to do. trust the dr that says Abilene is a good enough place. she said that the dr in Abilene used to work for the M.D. Anderson center, so I tend to think he would do ok. I just want to get started with SOMETHING before the end of the week

    Hi Spinnr1
    The oncology surgeon I am having do my lumpectomy is also involved with a cancer vaccine. I wanted to participate in his research, but he said my tumor wasn't large enough at stage one, the size of a little fingertip, a tad over 1 centimeter. He needs at least 3 centimeters early stage. He does a procedure called "radiofrequency ablation" basically "microwaves" the tumor, from that he also does the "sentinal node" whatever they call it. Then a week before the surgery an immune stimulating drug is injected into the killed tumor to see if the immune cells will migrate to the nodes that drain the tumor. It's had to explain this, but it hopefully will be promising in developing a vaccine some day.
  • Spinnr1
    Spinnr1 Member Posts: 57
    Options
    Oncologist appt monday
    Oncologist appt monday morning, he looked at her breast and saw the red was coming back and he said it looked like maybe an infection, she was feeling bad so he put her in the hospital for antibiotics etc. she stayed a few days and he said her platelettes were low and her red blood cells were low but her whites were good. yesterday he gave her 2 pints of blood and she was feeling better. he sent us home today after her herceptin treatment