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Recently diagnosed

Kmose48
Posts: 1
Joined: Sep 2021

I was diagnosed with Colon Cancer on July 19, 2021.  I had surgery on August 24th to remove the tumor in my colon and a tumor was also found on my liver that was removed.  A CT scan was done prior to surger and a "likely cyst" was noted on my liver, well guess that was wrong.  So now facing Stage 4 colon cancer.  Still waiting on the pathology report, but I guess that won't tell me anymore than I already know, or will it? I had so much hope going into surgery since it appeared I was NOT stage 4. I go to my post op appointment on Thursday and to the oncologist on the 14th.  I made the mistake of looking up survival rates, what a setback.   I believe I will be starting chemo in October.  Can I survive this?  I am so scared.  What do I need to prepare for?  I need to hear success stories on how people beat this. 

SnapDragon2's picture
SnapDragon2
Posts: 582
Joined: Nov 2019

A good place to start would be going to colon talk and researching rp1954 post about steps to take and blood panels you need.  SOC is not what it seems especially for Stage IV in my opinion, very minimum.

Trubrit's picture
Trubrit
Posts: 5509
Joined: Jan 2013

Meet me, one of MANY Stage IV patients, who are beating the odds. 

Statistics are just that, statistics. You are a person, not a statistic. 

I think your chances or surviving Stage IV are as good as mine. As good as Dave's. As good as..... I could go on. 

You may ask why some survive and others don't. I can't answer that. Personally, I don't think it has anything to do with religion, food, exercise, positive attitude, so on and so forth. I think it is luck of the draw.  Just MY opionon, doesn't mean its right - its just right for me. 

So, go into this thinking 'I WILL be one of the survivors'.  Do what makes YOU feel like you're 'doing everything to beat it', which is such a individual thing.  If that means praying, cutting out sugar, chanting 'I will survive', etc..  

But I will say, DEFINITELY go in with the attitude that you will be the one who does survive, while undrestanding that it could go either way. 

Stick with us and we'll stick with you. We're a good bunch of people here. 

Tru

beaumontdave's picture
beaumontdave
Posts: 1170
Joined: Aug 2013

Welcome to the forum, sorry you're needing to be here! I'd just copy and paste Tru's response under my name, if I knew how. She covered it well. Click on the avatar names to get backstories, it is scary and it is survivable, you just have to have some faith that your one who will beat it back. Optimism is the most useful outlook, living in the moment, focusing on each day without staring too hard or too often down the road, the better way to find some joy or contentment in the little [and big] stuff. Let us know how the appts. go..................................................Dave

DanNH's picture
DanNH
Posts: 155
Joined: Feb 2021

You are among the best group of people brought together under terrible circumstances. My wife is stage 4. I am hoping that she gets the surgery you had. In my mind you are ahead of the game in getting that stuff out of your body. 

Pathology will identify what the tumors are which is helpful in knowing how to treat it. We went to Mass General Hospital and my wife Pam got a Gardent 360 blood test. The test identified the variants and types of mutations in the tumor cells circulating in her blood. We are treating with chemotherapy as well as integrative medicine, supplementation, and some other thing- throwing everything at it. Every cancer is different and every patient is different. Pam has neve entertained the thought that she won't get through this. Truebrit is right about that. 

These forums are a treasure trove of information that can help you avoid the unknowns of chemo and not needlessly suffer through something that someone else has and has an answer for. Chat gets going around 9:30ish EST. Stop by and you will welcomed to that family. It's a great place to chat about anything with people who understand what you are going through because they have been there or are currently there. 

Dan

BerniceOB
Posts: 12
Joined: Mar 2021

I am sorry that you are going through this.  Our story is a bit similar to yours.  I am the caregiver and my husband was diagnosed late last year with stage 4 colon cancer.  It was stage 4 because he had a tumor on his liver.  He was treated with chemotherapy first and had a good response to the chemo.  He did find it hard to go through chemotherapy but the tumor in his liver diseappeared and the one in his colon shrunk significantly.  He ended up only getting 9 out of 12 treatments and was moved to radiation with chemo pills.  He is now scheduled for surgery on Thursday to remove the tumor in the colon and they will remove as a precaution the part of the liver where the tumor used to be.  We have been told that they believe that he will be cured after his surgery and of course they will monitor him closely.

As a caregiver, I can tell you that I have noticed how much stronger he has gotten since the end of his chemotherapy.  It was difficult to go through but he has returned to his old self and getting stronger and stronger every day.

We did like you after his diagnosis and googled survival rates.  What we realized is that those are old statistics and that treatments have continued to changed over the last several years and they continue to work on finding new treatments for cancer patients. I believe that the survival rates for stage 4 is greater than what google says.

We have been advised by our medical team that my husband's prognosis is good and they are going for the cure with this surgery.  In the beginning, we cried a lot and had many sleepless nights.  But, we have both learned to live in the present and to think positively.  I truly believe that we are beating this and I have held on to the many stage 4 survivor stories that I have read.  There are stage 4 survivors out there.  As a matter of fact, I hung on to Wade Hayes' story about his fight with stage 4 colon cancer.  Google him if you want and you will see that he was diagnosed in 2011 with advanced stage 4 colon cancer and he is still doing well to this day.  Whenever my husband and I were feeling down or emotional I would google his story and remind my husband of Wade Hayes the country music singer who survived advanced stage 4 colon cancer.  

Whether any of the changes that we did in our lives helped or not, I will share that we have my husband on a mediterrean diet and we've tried to change any cleaning products to natural only products.  We will never know if this helped or not but what it gave us was something in our control to focus on.

I wish you the best with your treatments!  You are not alone!  Cancer patients and their caregivers are very compassionate towards others fighting this fight.  I truly believe that it can be fought.  

Bernice

 

 

Tom M.
Posts: 212
Joined: May 2019

Do not goggle too much about survival rates. You will only scare yourself to death and the cancer won't matter anyway. We are all different in how we react to the treatments which are pretty good today. Attitude is very important, keep a good one. Best of luck to you as you move forward in all of this. 

Kazenmax's picture
Kazenmax
Posts: 453
Joined: Feb 2016

When I was first diagnosed stage 3, I asked my oncologist what he survival rate was and he said not to think about that (not easy). and then after telling me about the chemo, I said well what is it you are working for? He immediately said, cure!

That was 2016. In 2018, I was diagnosed stage 4 because the cancer had come back to my left lung. My oncologist wanted to schedule a biopsy but I balked. I went to a thoracic surgeon and he confirmed that it was most likely a recurrence of the cancer but suggested a biopsy. I said well what about just cutting that sucker out and then do a biopsy. He said he liked that aggressive approach and he would ensure getting large margins as if it was small cell lung cancer rather than colorectal. I was ok with that.

No radiation, 6 months of chemo and I've been NED ever since.

So my advice is this... you will no doubt crunch the numbers on survival and come up with different projections but I say get yourself a team that is aggressive and is working for a cure, not survival rate.

good luck

k

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