Newly Diagnosed with stage 4b MMMT
I just recently had a radical hysterectomy and the pathology report came in as Edometrial Carcinosarcoma Maligment Mixed Mulleran Tumor Carinoma componet high grade serous type Stage 4B. I have it lymphodes one ovary (removed) and in my Omentum...
It takes you back getting a diagnois like this. Makes you want to stop and semll the roses. I am terrified.
I am supposed to start chemo soon. I am not sure what to expect. Given the survival rate for this for what I have and my prognosis, I am not even sure I should go through with the Chemo. Quality vrs Quantity.
I Know that what I am saying sounds like I am on a real downer and negative...but I am not... I will go through what ever trial God wants me to go through....I am hoping I will feel his loving kindness as I go through this what ever it is. Not looking forwrd to Chemo...loosing my hair, throwing up...
But if it gives me another day to be with my Cat... and paint..I am the worlds worst artist...but I enjoy it.
What I am really wanting to know if there is anyone who has MMT...less than 1000 people are diagnosed in a year.
I started My Journey last May when I started bleeding. At first I thought I was just having a period. I went and looked on the internet when it did not go away after 5 days, and saw that it could be cancer.
I went to the OBGYN who was amazing by the way. She tried to do a byopsy but cuold not do it the pain
was excrusiating. So they tried an ultrasound with the same result. Then she got me into a OBGYN who was also amazing. They put in an IUD to treat it as pre cancer but the pathology came back as High grade edometrial spindal cell sarcoma. They sent me to the OBGYN oncologist and did my hysterectomy on the 19th and let me know the final pathology report on the 24th.
As soon as I heal from the hysterectomy we are supposed to strt the chemo process.
I have what seems like a million questions and issues to figure out. I am overwhelmed. This week is so much better than last week though. I started back to work, working from home and it has gotten my mind off my troubles..
Anyway that is my story, If anyone is going through the same cancer I would love to hear from you, about your journey. What to look out for. I feel like I am going hiking at night on a nigth with no moonlite or flashlite.
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