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Optic Nerve Glioma

Posts: 1
Joined: Jul 2021

Hi all.  i was recently diagnosed with optic nerve pathway glioma.  i am being told it is a rare type of brain cancer and i am looking for anyone with this diagnosis to connect with.

I am scheduled to start a 6 week course of photon therapy at the end of july.  wondering about side effects and if anyone out there has or has had the same diagnosis? 

Posts: 34
Joined: Sep 2018

I learned this and it sounds promising: Although optic nerve gliomas are serious tumors, they usually grow slowly, have a high cure rate, and rarely cause blindness. Perhaps others can share their experiences here.

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