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Recently Diagnosed

pmurray151's picture
pmurray151
Posts: 6
Joined: Mar 2021

I am new to this site and to cancer.  I have urothehal carcinoma of the right kidney and it must be removed.  Still in shock, scare, uncertain of the future.  Would appreciate any tips, thoughts, encouragement. Thank you.

 

Pat

Bay Area Guy's picture
Bay Area Guy
Posts: 495
Joined: Jun 2016

I'm not familiar with this type of carcinoma, so I can't really comment about any specifics.  But, generally, I would suggest you not search the internet for information.  When I was diagnosed in late 2013, that was the first thing I did, and the result was I terrified myself.  What I found, after talking with both my primary care physician and the urologic oncologist to whom I was referred, is that many of the sites have outdated and, in some cases, just plain wrong information.  Trying to sort it all out ups the stress level and drives you crazy (or, in my case, crazier).

The other thing I have learned through my journey is that amazing progress has been made in the treatment of all cancers and new treatments are coming online all the time.

Ifyou could share a little more about your diagnosis (like how it was found, size, those kinds of things), I'm sure the people on this site will have information to share.

Lastly, if you have concerns or questions that you absolutely need answers to right away, call your doctors and ask.  A large part of successfully dealing with a cancer diagnosis is getting your mind in a position to cope with it.  The docs I've dealt with have been great with answering questions, even if it's by email.

Best wishes for a successful outcome and please know we'll all be here for you.

pmurray151's picture
pmurray151
Posts: 6
Joined: Mar 2021

Thank you so much for your response and encouragement. Yes, I will find out more info and post again soon.  Best wishes to you also.

stub1969's picture
stub1969
Posts: 888
Joined: Jul 2016

Scared??  Wow, that is an understatement...at least for me it was.  I remember feeling numb and having to practice breathing exercises just to gain some composure.  It's an absolutely terrifying experience to hear that you have cancer.  If you feel this way, too, please know it's normal.  Allow yourself time to grieve and come to terms with this.  Then, brush the dust off your pants, and get ready to take action.  Like Bay said above, try to stay away from searching prognosis and survivor rates.  Do spend your time on google building knowledge from people that have taken this journey before you--this is an excellent site and I'd recommend smartpatients.com.  Smart patients have a lot of stage 4 folks, but they also have a conversation category with your cancer variant.  Both of these sites will provide you with support.

Other advice I have, make sure you feel comfortable with your doctor.  I'd suggest finding one that specializes in the type of cancer you have.  A larger research hospital would be an excellent choice.  Don't be afraid to ask your doctor questions--but educate yourself and advocate for yourself.

Finally, seek out support for yourself.  Whether it's a spouse, significant other, clergy, or a support group; this is a life-changing event that would be difficult to tackle by yourself. 

I hope this helps.  Wishing you only the best!

Stub 

pmurray151's picture
pmurray151
Posts: 6
Joined: Mar 2021

Thank you so much Stub, this is great advice.  I will check out the website.  I am working on my support group, I am fortunate to have a great spouse, family and friends and I am learning to ask for help.  Best wishes to you and I will keep posting.

icemantoo's picture
icemantoo
Posts: 3317
Joined: Jan 2010

How big is the bugger?

 

icemantoo

pmurray151's picture
pmurray151
Posts: 6
Joined: Mar 2021

Thank you for your response, not sure, I just know that it is multifocal, stage Ta, so I think it is very early, which is good.

Deanie0916
Posts: 390
Joined: Nov 2016

Welcome, I know you will find so much support from this group. Good thing it's caught early.

pmurray151's picture
pmurray151
Posts: 6
Joined: Mar 2021

Thank you for the encouragement Deanie, I hope you are doing well.

Pat

 

eug91's picture
eug91
Posts: 307
Joined: Jan 2019

Sorry you had to join us, Pat, but I'm glad you found us. This is a great forum here. We've all been through what you're going through, so we know you're going to do great. We're here for you if you have questions or just need to vent. 

 

pmurray151's picture
pmurray151
Posts: 6
Joined: Mar 2021

Thank you so much for your response, it is great to have support.  Hope you are doing well.

Pat

jazzgirl's picture
jazzgirl
Posts: 187
Joined: Nov 2017

"Still in shock" - yes, that pretty much describes the early days - I remember it as a two-by-four between the eyes. I'll second what everyone has said - especially two things from Stub. 1. Be comfortable with your doctor. I asked for a second opinion just because I was so uncomfortable with the first doc. I had the luxury of being at a magor medical center where there were docs to choose from - I looked up their bios and specialties and watched videos of those who included them. I was/am extremely comfortable and confident in my second choice, the oncologist/urologist/ surgeon who did my partial nephrectomy and who I still see for followup (5 years this July). 2. Seek out support - you are lucky to find this group early. It was a year and a half after surgery that I stumbled in here. But my wife, extended family, my church, friends kept me sane - even my Irish friend who, because of the time difference, could correspond with through me the four nights in hospital when my mind was all over the place. And one big thing I want to reassure you - one kidney will serve you well. I stated out with only one since birth and now that's a partial and I'm doing fine. Hang in there - keep reaching out. Take care ~

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