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9 Years NED Today

marbleotis's picture
marbleotis
Posts: 714
Joined: Mar 2012

To All,

 

Today is my 9 year NED from stage 3 signet cell colon cancer. Also known as my "other" birthday.

There are no words to express how I truly feel.  Lucky doesn't do it, blessed doesn't even do it, if I can give hope to someone currently going through this difficult time then I will take that. 

I remember when I was first diagnosed and found this CSN network I felt these people understand how I felt.  So many people were so kind to message me.  Many times this was late at night/early in the morning as sleeping was always a challenge.

So if you need me, IM me.

Keep pounding, keep fighting, keep supporting.

All my best,

marbleotis (Alice) 

Trubrit's picture
Trubrit
Posts: 5416
Joined: Jan 2013

Nine years is just wonderful.

running around emoticon

Tru

marbleotis's picture
marbleotis
Posts: 714
Joined: Mar 2012

Trubrit,

I always look forward each year to your dancing icons.  They make me laugh!

 

Thanks

marbleotis (Alice)

Canadian Sandy's picture
Canadian Sandy
Posts: 698
Joined: Jul 2016

Congratulations! Hope you have many more years being NED.

Andyb111's picture
Andyb111
Posts: 3
Joined: Feb 2021

Im just starting this cancer journey, was diagnosed on 20th Dec 2020 with stage 4 colon cancer. Was training for a duathlon, had some discomfort in upper chest, taken to the emergency department. told all my signs were great until the blood results then "boom" you have cancer.

Im into my second cycle of chemo. which is not realy an issue, but psychologically im all over the place. Sometimes upbeat, sometimes shattered with doubt. How do you get past that. Ok, im 59, but hell I have so much to live for and so much to do.................

Trubrit's picture
Trubrit
Posts: 5416
Joined: Jan 2013

I am sorry you have found yourself part of our every growing club. 

It sounds like you are a young, healthy chap, and that is a bonus when it comes to fighting Cacner. 

Can I suggest you visit our forum homepage here  https://csn.cancer.org/forum/128  and you could either copy and paste your post or start a new one. That way you can introduce yourself to the community members, and we can all give you adivice on 'How do you get past that?'

There are many Stage IV who are surviving. I myself am a Stage IV, and with a bit of luck (scans & blood work next week) I will celebrate SEVEN years NED - No Evidence of Disease - in April.  See, it can and will be done. 

Look forward to seeing you pop up on the forum home page. 

Tru

marbleotis's picture
marbleotis
Posts: 714
Joined: Mar 2012

Hi Andy and Welcome,

Sorry you are here but you came to the right place.  As Trubrit said there are many stage IV people on the site.  

I was diagnosed a stage 3 signet cell at 49 years old!  So I totally get how you feel - I was stunned and still remember that moment vividly.  If you read my bio you can see the journey.

You should work on adding yours, it will help you.  If I was having a "down" day I would read my bio and see where I was and how far I came.  I also kept a journal (just a Word doc) and when I was done I had over 100 pages of thoughts, feelings, questions and just ranting sometimes.

You ask how you will get throught this, well you don't realize but you gave yourself that answer..... "I have so much to live for and so much to do".

This network will also help you alot because everyone on here knows.  We know what it feels like to hear, "you have cancer", and not to hear a word after that word cancer.  We all know chemotheraphy, surgeries, scans, colonosopies, radiation, side effects from everything and anything else you could imagine.  No matter what time of night or day, there was always someone on the chat.

So Andy - I say welcome, you came to the right place.  Feel free to dm me.

marbleotis (Alice)

NewHere's picture
NewHere
Posts: 1328
Joined: Feb 2015

Welcome to the boards, sorry you have to be here.  But it is a great place with a lot of support/

When my cancer came back for the third time in three years, inoperable, in late 20017 (after having colon surgery, then part of lung removed), I started Triathlon Training.  Did one IM 70.3 then into radiation for tumors in spine two weeks later (they caused me to cramp durng the race), another one a year later while on chemo, with over 72 tumors in lungs  (I swam in high school.  Hate running my entire life and never did that, and biked occassionally.)  To be fair, I am BOP slow.  LOL.  Have done a bunch of sprint tris, a couple 1/2 marathons, bunch of 5ks also.

Each yard, mile I swim, bike or run is a middle finger to the cancer.  It is normal to get down.  But the best I can recommend is try to kick it off.  Do somethng for yourself.  Watch a silly comedy.  Grab a cup of coffee. Chemo can also mess with your head a bit (variation on chemo brain) and I get emotional certain days, finally figured out pattern.  This is my third different chemo, since i started. 

I will write some more, just got back from a scan, so catching up on things.

You can also introduce yourself to the group is you like by a post at the link below.  (Your question may be spotted by more to give some tips.)

https://csn.cancer.org/forum/128

 

Andyb111's picture
Andyb111
Posts: 3
Joined: Feb 2021

Just wanted to say thank you for your reply and inspiration. I have just had my third round of chemo and if I’m honest it’s not the reaction to the drugs that’s an issue, its just on that day when I return to the hospital and get hooked up. To me I just have to develop an tunnel vision and shut down completely with head phones on and trying to keep everything in check. Then when im done, just head home and jump on the spin bike and truly hammer it while the tears and emotion pour out. I guess it like you say, its that finger up to cancer. Just through reading your reply, I can see you have been through so much. So before I crash for the night, I would just like to say thank you, you are a true inspiration.

 

 

You may look at the time of this post and think, crash for the night? I’m based in New Zealand, originally from the UK where my family are. Although I have a beautiful wife and two fantastic adult children here and I have no intention giving into this beast.

 

Annabelle41415's picture
Annabelle41415
Posts: 6694
Joined: Feb 2009

Oh it is so good to see your post and so happy that you are still doing well.  It is so wonderful that you came back on to post your success so that newbies can see that others can survive and get through this. Thank you again for your awesome update.

Kim

NewHere's picture
NewHere
Posts: 1328
Joined: Feb 2015

 

And firewoks of course

 

Andyb111's picture
Andyb111
Posts: 3
Joined: Feb 2021

 

 

 

 

 

 

Fantastic, just fantastic news Cool

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