1 year after colonoscopy
It seems not so long ago but 27th of January, one year ago, my dad had his colonoscopy that diagnosed him with cancer.
I remember that day. I couldnt sleep because I wanted to do my neurology exam to go well (at the end I failed by one point my favorite subject). I was not worried. Yes the previous treatments were not successful but the last colonoscopy was 2017 and all sources said that adenocarcinoma doesnt grow fast. Still when I called my parents to know how the colonoscopy went the words came "Comonoscopy was over soon. A tumor blocked the whole sigmoid colon". My mom was crying, my dad was devastated and I was sure that my dad will die and that I am way too young to lose my dad.
The results came back with adenocarcinoma, low grade and good position for surgery. I was so hopeful that it would be a sjrgery amd chemo after. But guess what: no! The CT showed liver metastases, tumor board. We cried a lot these days. Every source was negative. The German cancer blard basically said "you are dead".
But it got better. First it was just 2 metastases not like I expected a whole liver. They wanted to treat the liver first as in remove the metastases.
Afterwards there were still some fears. A similar patient with the same comorbidities as my dad died during chemo. He also had MS and cancer.
But I found this forum and even though it was hard, it got better. 4 chemos were enough for a partial response and he got his surgeries. They were challenging but successful. The chemos were good. My dad said "if I would not have the MS I would work".
So how is it now?
There were some emotional challenges for me. I was worried about the mutations, KRAS and MSS. The studies are not nice but my dad is not a study and then I found a study that I read that KRAS with mab decreases survival and my dad never got one.
I had oncomogy in my studies. One doctor said " we dont cure. We prolong survival". But one doctor was telling me that radiologist tend to be creative...
We will have a pet scan next week and thenthe 11th Feb is the talk with the oncologist. I am good. First of all if it is bad they could operate it but even though it is not my dads team is careful. I do have trust in the doctors and they are careful. Otherwise they could just chevk the liver with a MRI every 3 months but they wanted a pet. My teacher told me that liver pictures tend to be difficult to interpret. So even if it is just a hemangioma, what is thdir suspicion, I am in good mood my dad will be fine.
My dad is good. Sometimes the MS disturbs him but his markers are good and he got fat. The stoma is sometimes an issue but due to covid there is no rush.
Most importantly for me was this forum. Trubrit and Kim who are first line responders but if you stick around,there are stage 4 survivors who won (eg beaumontdave). Others are again good but dont want to be here, others lost their fight. Others are still kicking, beating the odds (eg NewHere). At some point you and so many others were all here for the girl who developed hypochondria (Edit I am talking about me here. You only get half of the times of it. So respect to my friend)
It was a long year, stressful but for now I am grateful. My dad has good doctors, he is in good spirits and I hope the pet scan will be negative.
PS I was paying attention in psychooncology. If you feel good in your doctors hands then it does improve the diagnosis. My family feels good where we are for now and I hope it stays that way.
PS There was a youtuber with stage 4 colon cancer. Her videos and positive spirit was refreshing. Unfortunately at time of diagnosis, the cancer was too advanced. She lost her battle at the beginning of the year! I am sure she is in heaven now.
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