Almost that time again

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Mmoses25
Mmoses25 Member Posts: 327
in Kidney Cancer #1

One week till my scans again starting to worry again it's weird you feel fine then when your scans are due you start feeling pains again does it ever get easier 

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  • Deanie0916
    Deanie0916 CSN Member Posts: 628 Member
    edited September 2020 #2
    Hi

    I can only speak for myself but scanxiety does set in for me every time. I think the intensity or level of it has dropped a bit over the years. I do still feel pains and twinges in the areas affected. I think from reading the posts on this board is that it us a common experience. All that to say you're not aline in all this! My prayers go out to you. Let us know how it goes hopefully NED no evidence of disease!

  • Mmoses25
    Mmoses25 Member Posts: 327
    edited September 2020 #3
    Thank you

    Thank you

  • Bay Area Guy
    Bay Area Guy CSN Member Posts: 623 Member
    edited September 2020 #4
    i had my four year scan in

    i had my four year scan in June.  Agree that the scanxiety gets better.....minimally.....as the years pass.  The main anxiety this year was CoVid, as we were just getting out of lockdown mode.  But all went well.

  • Mmoses25
    Mmoses25 Member Posts: 327
    edited September 2020 #5
    Thank you

    Thank you I'll let you know how. It comes out

  • Allochka
    Allochka CSN Member Posts: 1,083 Member
    edited September 2020 #6
    Good luck with scans. For me,

    Good luck with scans. For me, scanxiety did get better with time. After year 4 post diagnosis, I think.

    Hold on and keep us posted!

  • donna_lee
    donna_lee CSN Member Posts: 1,059 Member
    #7
    I've had so many scans in 13 + years

    that I've stopped counting. It's not the scans, which are uncomfortable with the fun stuff to drink, etc., it's the wait for the results that makes me antsy.

    And for the past three years, I've come to the conclucion that I have been named the winner of the "Screw Up" contest.  If the scheduler, the hospital check in, the wait while ER patientents aare taken first (3 hrs.), the turnover of PA's at the Onc. office, having to have a virtual appt. with a stranger, to name a few; I've come to get annoyed with the whole process  This last one was the office submitted a request to Insurance for the test; but they only authorized it for being done 3 months prior to my next Onc. appointment.  They won't provide info on the results over the phone, so I stil have over a month to wait.

    So good luck with your tests and keep on doing well.

    Hugs, donna_lee

  • Mmoses25
    Mmoses25 Member Posts: 327
    #8
    Thank you Donna Lee

    After reading your luck I don't think I got it that bad I'm glad there are people like you I can talk to you made me feel better thanks again

  • eug91
    eug91 CSN Member Posts: 471 Member
    #9
    You've got this!

    You're gonna do great. Good luck! 

     

  • Mmoses25
    Mmoses25 Member Posts: 327
    edited October 2020 #10
    Thank you

    Go tomorrow very nervous thanks for the kind words

  • donna_lee
    donna_lee CSN Member Posts: 1,059 Member
    #11
    Had my scan 3 months ago and finally got the news

    Everything was NED; come back in 6 months.  I like those!  My new PA actually has a PhD in Nursing Care so I asked her what I was to call her.  She said, "Just Jodie."  Next up is an appt. with my Nephrologist with a UA and labs next week.

    Hope all went well with your test.

    donna_lee

     

  • Mmoses25
    Mmoses25 Member Posts: 327
    edited October 2020 #12
    donna_lee said:

    Had my scan 3 months ago and finally got the news

    Everything was NED; come back in 6 months.  I like those!  My new PA actually has a PhD in Nursing Care so I asked her what I was to call her.  She said, "Just Jodie."  Next up is an appt. with my Nephrologist with a UA and labs next week.

    Hope all went well with your test.

    donna_lee

     

    Happy for you

    Congratulations I'm so happy for you my test are tomorrow I will let you know

  • Biner
    Biner CSN Member Posts: 137 Member
    edited October 2020 #13
    Mmoses25 said:

    Happy for you

    Congratulations I'm so happy for you my test are tomorrow I will let you know

    cross fingers

    cross fingers

  • Mmoses25
    Mmoses25 Member Posts: 327
    edited October 2020 #14
    Biner said:

    cross fingers

    cross fingers

    Thank you

    Thank you hoping for great news

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