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Mastectomy without reconstruction

GraceSalam
Posts: 1
Joined: Sep 2020

I would like to hear from someone who's had a mastectomy without breast reconstruction and tell me how it was for them

Sheila Mc
Posts: 21
Joined: Sep 2020

I did have reconstruction, but I have met many women in the 20 years since my mastectomy that did not have it for a variety of reasons. Some women wait until they have completed any planned treatments and are completely healed before they decide. If you have ANY concerns, you should do the same.

 If you were recently diagnosed, you have more important things to worry about, save that decision for later.

wallis2
Posts: 55
Joined: May 2019

I had a double mastectomy and I feel great.  I decided not to do reconstruction for the following reasons:  I didn't want to be cut again, I wanted my body to heal. my breast was already huge and I am taking advantage of not having any breast at all, and finally maybe years down the road I might have one, but right now I feel better not having to be cut again.  You make the decision and according to how you feel.  If I change my mind, my doctor said to call him, but I don't see it happening anytime soon. 

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Purple0501
Posts: 3
Joined: Sep 2020

I'm having one breast removed in 2 days How do you live a normal life with one breast I been depressed I would like to talk to someone that has had one breast removed 

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Primavera
Posts: 195
Joined: Mar 2019

I'm taking chemo now, until next year, in March, when I'll have a left breast mastectomy. I hope someone answers you before you go to your operation.

Because I had to rush into chemo, I'll have time to think about the mastectomy, and get used to the idea.

Purple0501's picture
Purple0501
Posts: 3
Joined: Sep 2020

I won't need chemo my cancer is DCSI unvasive I have had to surgery in less then one month so my doctor thinks It's best to just remove it 

 

 

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Primavera
Posts: 195
Joined: Mar 2019

This went very fast. I saw a surgeon first, who recommended I should go into chemo first and then we'll do the mastectomy with immediate reconstruction and sent me over to the plastic surgeon, who'll be there at time of operation to start reconstruction (which is not so "immediate"; it will take a while). So I got all kinds of info all at once and I have time to figure it all out because I was unlucky by the fact that it's aggressive and we need to stop this on its tracks. I had uterine cancer last year and that went well, even if it was aggressive.

I have a 3.2cm tumor of ductal invasive carcinoma, but it's on a top of an extensive area of ductal carcinoma, plus a lymph node is also positive for cancer.

You will always have time later to see how you feel and opt for reconstruction, I think. I'm thinking of doing it because insurance pays for it and I don't want to miss that.

You're lucky you won't need chemo. I know this is hard and scary, but I also feel lucky that unlike some other women I'm at possibly a stage 2, even if the cancer is grade 3. I just have to push forward and count my blessings. There are a million ways this could have gone totally wrong for me. This tumor grew from February to August to that size. I think what it would have been if there hadn't been a pandemic and I had gone to have my mammogram in March when it was due. But all I can do is think that I went in August and did not wait any longer. 

I hope it all goes well and that you find peace with your decisions. Nowadays there are a lot of options. I'll be thinking of you. 

Sheila Mc
Posts: 21
Joined: Sep 2020

I had one breast removed in 1999. There are so many options available now for reconstruction, implants (even breast augmentation for the unaffected one). Also available are inserts for your bra, they look and feel natural. 
Recover from your Mastectomy then speak to your physician, or several physicians, to decide which is best for you. 

Geminidiva72
Posts: 1
Joined: Oct 2020

 

 

I was also diagnosed with DCIS. I initially underwent a Lumpectomy in March, then unfortunately needed a mastectomy which I had back in May. I know how you feel. There were many days I didn't want to get out've bed. I decided to have reconstruction surgery. Thankfully my surgery date is finally approaching (next week). It's been a tough year but I know I'm blessed because it could've been much worse. That's what I keep in mind all the time.  

SnowLeopard
Posts: 2
Joined: Nov 2020

I'm sorry to hear you are going through this.  It was a shock for me to even be diagnosed because cancer does not run in my family.  I was told, it's just "bad luck."  My mastectomy was in March 2020 so I'm new to all of this.  The physical rehab was the best thing I did to gain the use of my arm back.  I have a difficult time with the numbness in areas that will always be there, but I'm adjusting.  I didn't even want to look at the scar for weeks.  Now it's getting better, but in a way, life has changed physically for me.  Depression I believe is normal - It's a "loss" of part of your body.  Being alive is more important to me, but again, I'm still adjusting.  I'm single, so I only have me to deal with.  When you're down, thank the good Lord for your now better health.  Live the best you can and do it one day at a time.........that's what I'm trying to do.  I have days of depression too because I know things will never be the same.  I hope by now you are acclimating to the "new physical" you.  You're still a women, you're still the same person.

 

Phoebesnow
Posts: 575
Joined: Apr 2011

I had double mastectomy and reconstruction the same day.  Recovery was easy...I love the new breasts.  You have the best results if you do it all at once.  I had radiation after 8 weeks and I did all the recommended protocols and it looks good.  

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anniemshe
Posts: 77
Joined: Oct 2017

I had a mastectomy and reconstruction together then chemotherapy followed by radiation but after radiation about 6 months down the road my great new breast implant became hard and uncomfortable and I found it very uncomfortable to sleep face down as my hardened implant hurt. 
I guess it's different for everyone! 

SnowLeopard
Posts: 2
Joined: Nov 2020

Hello............I had the mastectomy in March 2020.  I chose not to have the reconstruction for a few reasons.  One, my age and Two...I was in no mood to go through more surgeries.  Going to physical therapy was my life saver.  My therapist actually specialized in this.  The exercises helped so much to gain the use of my arm back.  I'm struggling with the loss of one breast and wonder sometimes if I'm still in some sort of denial.  It's hard to see the scar but I am considering a tatoo down the road.  I was fortunate enough to be Stage 1 and did not suffer through chemo or radiation, but it's always in the back of my mind that it will come back.  I do have a prosthesis that I wear when I'm out, but.....can't wait to take it off when I'm home.  Maybe I'll opt later for reconstruction - however, I'm single, older, live alone so it doesn't bother me too much.  If I was younger I would do the reconstruction because I think mentally it would make me "feel" better.  

 

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