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new member from the nederlands

m@rtin
Posts: 9
Joined: Sep 2020

hello everyone 

myname is martin 47 yaer old end i live in the nederlands . left kindney removerd two monds ago tumor stage 3a aggressivenes2 no metastases . in the nederland there is little information about kidney cancer so i hope to find a lot of infermation here .

i write my tekst with google translate . in the nederlans there is littje information about the chances of recovery about kidney cancer ,i would like to know what my chances are . what read on the internet is that it is high risk on return 

i signed themup for checkmate 914 now . 

best regards

m@rtin

icemantoo's picture
icemantoo
Posts: 3279
Joined: Jan 2010

What was the size of your tumor?

 

 

icemantoo

donna_lee's picture
donna_lee
Posts: 963
Joined: Feb 2009

3a says it hasn't involved the nodes or metastasized. But, you will need to be vigilant with follow up exams (computer tomography/CT's or chest x-ray with abdominal untrasound.  IF-a big IF, it shed a cell or two before it was removed, they can go anywhere once they get into the blood stream.

Mine would be considered a 4b (they added a new category after my surgey in 2006) as it had mets to the liver and a set of nodes.  It did reoccurr in 2 separate nodes in 2007 and 2008, which were both removed surgically.

Click on my user name to find out more about my experience.

Glad you found this board.  There are a bunch of long timers who can hold your hand and send air hugs.

donna_lee

m@rtin
Posts: 9
Joined: Sep 2020

tumor size was 10 cm the was in the area around the kidney but not outside the kidneycapsule . i signed up for the checkmate 914 study .  imuum therapy is then used preventvely to kill any remaining cancer cells. what i understand is that i have a high risk of cancer recurrence. thank you all for your messages

best regards

m@rtin

Mmoses25
Posts: 62
Joined: May 2020

sorry you had to come here try not to read to much on internet because it's old news just keep up with your scans and try not to worry I know it hard not to but if you have any questions just ask someone will answer you on here I was 3A and the size of mine was 4.1 cm

Biner
Posts: 53
Joined: Apr 2020

I'm pt3a too but grade 3, I had 2 oncologist opinions and I declined the trial checkmate

m@rtin
Posts: 9
Joined: Sep 2020

hello biner why did you refuse the checkmate study if i think may ask? iwas told that there is a 50% chance of the cancer returning  wich made me decide to participate in the study. i know side effects can occur but i hope that will not last. the idea suonds good to use imuum therapie as a preventive measure . 

best regards

m@rtin

Biner
Posts: 53
Joined: Apr 2020

No proof that it prevents recurrent, worst side effects can lead fails organs 

jag28
Posts: 3
Joined: Aug 2020

Hello.

I had a 17cm tumor. I lost my left kidney and the biospy was conducted after the surgery ... Stage III N0 M0. In October 2020, I have my 2 year check. In

In my surgery, the Kidney and 5 lymph nodes were removed. The lymph nodes were cancer free ... so no other threatment was recommended. I thought I would need ImmuneTheraphy. 

Can I please ask, what is this checkmate 914 study?

Thank You, John.

 

m@rtin
Posts: 9
Joined: Sep 2020

 Checmate 914 study is to use  imuumtherapie  as a preventieve measure  to kill remaining cancer cells.    Google checkmate 914

Best regards m@rtin

Biner
Posts: 53
Joined: Apr 2020

Yes, there are clinical trials such as the one you mentioned: ipi-nivo (dual immunotherapy) vs intravenous placebo (saline solution). You would have a 50% chance of getting either. Again, this is controversial. Do you need ipi-nivo now -- or would it be better to wait for such a time IF (IF!) your disease recurs. There is some scientific thinking that suggests that immunotherapy will work better if there is enough tumour in the body (vs what you might have now -- microscopic cells). So for this option as well I would suggest a second opinion before you sign up.

m@rtin
Posts: 9
Joined: Sep 2020

In melanomen ( skin cancer) i think onocologist  also use imuumtherapie as a preventive measure  ,and when the cancer returns  imuumtherapie can still be used  it still seems  to work.  I am only 47 years old and i will nog wat for the cancer to return,then i am still too Yong. I want to do everything i can to prevent it from returning .if  i was 70 years i might have waited  and not  participated  in the study.  I have already registeren for the stuy 

 

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