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YAY! Port removal.

Quilter_1's picture
Quilter_1
Posts: 83
Joined: Mar 2019

Had my port removed one week ago today.  Everything went well.  I finished treatment in March of 2019.  All is well.  Now, if only this damn virus would go away, I want to travel.

Molly110
Posts: 115
Joined: Oct 2019

Congratulations!!!

 

TeddyandBears_Mom's picture
TeddyandBears_Mom
Posts: 1659
Joined: Jun 2015

Congrats! I was so happy to get mine out as well. It bothered me the entire time I had it. The medical team thought it might be hitting a nerve.

I think we all want to be back to normal! I have a feeling we won't see normal for a long time though..... And, it's going to be a different normal....

Love and Hugs,

Cindi

Quilter_1's picture
Quilter_1
Posts: 83
Joined: Mar 2019

Hi Cindi,  my port never really bothered me, getting it flushed was sometimes inconvient. It did it's job, and, I'm really glad that I had it, but it's job is done.  I hope that I never have to have another one put in.  I feel great and have been getting good checkups and scans and am hopeful that this chapter of my life is closed forever.

Maxster
Posts: 31
Joined: Apr 2020

I was happy to see someone report on their port removal.  I hated it and always felt it on me.  Even now after its removal I can feel it and the scar it left.  It was such a reminder of my disease that I could not wait to get it out.  I had it removed just a few months after my last chemo. I know they wanted me to wait a bit but I felt like that meant I was waiting for a recurrence.  So I had it removed.  I hope this is the last of it.  I don't know why it bothered me so much but it did.

 

Molly110
Posts: 115
Joined: Oct 2019

Maxster, yes! That's it exactly. Leaving it in, for me, feels like waiting for a recurrence.          

NoTimeForCancer's picture
NoTimeForCancer
Posts: 2752
Joined: Mar 2013

Great news!  So happy for you!

Forherself's picture
Forherself
Posts: 382
Joined: Jan 2019

Another milestone reached.   Happy for you.  

Armywife's picture
Armywife
Posts: 394
Joined: Feb 2018

I remember when you had it put in! How time flies, and what a blessing we are all here to celebrate with you.

I had mine removed in December, doctor's orders.  It never bothered me a bit - never knew it was there, and liked going to see everyone at hem/onc when I got it flushed.  But got a new doc and she said, "out it comes."  The doc who removed it was unfortunately not as skillful as the one who put it in, and I ended up with a massive hematoma. I was the darkest shade of purple you could imagine from my neck down to include my whole breast and over to the middle of my chest.  It took months to go away and I still have a small lump under the incision and a very bumpy scar. I kind of wish I had just kept the port!

Quilter_1's picture
Quilter_1
Posts: 83
Joined: Mar 2019

Thank you all for your wonderful support. No understands these small milestones quite like you do.

jan9wils's picture
jan9wils
Posts: 112
Joined: Mar 2017

Hooray!

Yeo's picture
Yeo
Posts: 14
Joined: Nov 2019

I just finished chemo in the middle of April and plan to have mine removed after my 6 month scan in November.  Very exciting stuff!

vrsecond
Posts: 9
Joined: Jun 2019

I am looking forward to the day my oncologist says I can have the port removed.  It has been in there for a year and I have to get it flushed every 6 weeks and now with COVID19 they do a nasal swab every time I go in and I hate that more thatn everything else.  Does anyone know how they remove the port it is an outpatient surgery are you asleep I cannot recall how it was put in I want it out thanks

Molly110
Posts: 115
Joined: Oct 2019

Port removal varies from medical center to medical center. Some use "twilight sedation" as a matter of course. Some use no sedation and only numb the area. Some decide what to do through a discussion between the doctor and patient. I wish all did the latter. Unfortunately, mine offers only the numbing with no sedation, and I've delayed having my port removed as a result. 

My advice would be to ask for what you want and advocate for it. There was a recent discussion on the board about ports, and many women reported that their port removal was a snap. If your doctor wants you to keep your port for a while longer, you can ask about having it flushed less often. Due to covid, my cancer center delayed my flush for weeks, which they told me was perfectly safe. I looked it up, and there are good studies that say 3 months is fine. You could ask your doctor about those specific studies and see if you can get your schedule changed. 

vrsecond
Posts: 9
Joined: Jun 2019

Thank you for the reply. I did ask her she said she likes to leave the port in for a year from last pet scan which means June 2021 so I am bummed.  Yes I delayed the flush because it is a hassle every 4-6 weeks and they do the nasal swab for covid every time and that is more annoying than the flush.  I guess it is a psychological thing with me Ijust want it out but she suggests leaving it in oh well

Tamlen's picture
Tamlen
Posts: 253
Joined: Jan 2018

As Molly10 said, it varies by hospital and doctor. I had my port taken out 18 months after chemo because it hadn't been put in the right place originally and was starting to move down my chest wall. I had numbing only, no other sedation or anxiety drugs, and chatted with the surgeon removing it the whole time he worked. It was easy, no pain, healed quickly, and I was very glad to have it out. I hope yours is this easy whenever the time comes!

Maxster
Posts: 31
Joined: Apr 2020

I could not stand the port.  It was like I was waiting for recurrence.  Plus it was uncomfortable.  My oncologist did not say when I should have it removed.  I just said I wanted it out and she went along.  It was a simple procedure with local numbing.  I also talked through the whole thing.  I hope yours goes as easily as mine did.

Quilter_1's picture
Quilter_1
Posts: 83
Joined: Mar 2019

My port was removed using numbing only, was a very easy procedure and took little time.  So nice to have it gone.

Molly110
Posts: 115
Joined: Oct 2019

Yay! Congratulations! How exciting to have your port gone -- another milestone!

 

You are clearly one of the brave ones in that you were comfortble having someone cut into you while you were wide awake. : ) 

yetti's picture
yetti
Posts: 15
Joined: May 2019

I have had my port since July 2018, my last chemo was March 2019 ! I have it flushed every 3 months   I keep it Bc of labs I'm not eastY to draw blood from my arm , several pokes. ive had issues yesrs before Dx , port has never really bothered me !  And Im not keeping it Bc I'm waiting for a recurrence Bc I will not do chemo ever again regardless!

MAbound
Posts: 1039
Joined: Jun 2016

I hope that you are being extra careful about who you allow to access your port. With the line going directly to your heart, sterile technique by someone who knows what they are doing and who appreciates what the risks are each time it's used is critical to avoiding a potentially life threatening complication. It's a big deal and I'd be concerned about letting anyone who's not an MD or chemo nurse touch it. 

EZLiving66's picture
EZLiving66
Posts: 1415
Joined: Oct 2015

I had my port removed after it became infected. I was only able to use it one time - the day after it was inserted. Finally, after trying for months to clear up the infection, they removed it with a numbing agent. Problem was, the skin around it was so degraded because of the infection, they couldn't get it closed. A half-hour procedure turned into a long afternoon as they tried to get it to stop bleeding. Long story short, six weeks after going to a wound care specialist, they got the infection cleared up but I have an awful scar. I've thought of having some plastic surgery to fix it because it still causes me pain but I'm afraid. File this under "if anything could go wrong, it will." LOL

Love,

Eldri

Armywife's picture
Armywife
Posts: 394
Joined: Feb 2018

Oh, Eldri - you surely have had some Murphy's Law!  My port went in smooth as glass, never a problem the whole time I had it, and then when they removed it I had a gusher under the skin and had a giant goose egg and the most huge purpleblack bruise I've ever seen from my neck to my waist - still have a lump and a scar 10 months later.  I was wishing I'd kept that port!

EZLiving66's picture
EZLiving66
Posts: 1415
Joined: Oct 2015

Wow!! My gusher was outside. The doctor was using my chest as a tray for his supplies and the blood ran under my arms. When they tried to get me to sit up, I was so woozy and it was running into my pants. LOL, I was a bloody mess. But at least I could take a shower! I can't imagine that much blood staying inside my body but outside my veins. 

Love,

Eldri

Primavera's picture
Primavera
Posts: 150
Joined: Mar 2019

Going to start really checking all your port experiences.

I got my timeline for chemo and start on Sept 22 and my new oncologist (breast cancer) said she doesn't think I need one if I have good veins, but I talked to other people who were doing my scans that day and putting IVs in and they all said I should get one.

Oncologist did say that I could get one later on.

Quilter_1's picture
Quilter_1
Posts: 83
Joined: Mar 2019

I LOVED having my port during treatment, never had a problem with it. I used a prescription numbing cream about one hour before it was accessed and had no pain when the needle was inserted.  It was removed about 16 months after my last treatment, my doctor likes to leave them in for a while.  Removal was very easy.  I had numbing injectlions and was awake while it was removed.  Took about one hour from beginning to leaving.  

Primavera's picture
Primavera
Posts: 150
Joined: Mar 2019

I'll probably do without for one or two infusions; I'm going to be new at this. But reading everywhere and here, and talking to hospital staff, I'm convinced I need one. 

I have 4 AC treatments every two weeks, and then one T weekly for 12 weeks and then Herceptin every 3 weeks for a year. I'm afraid for my veins.

But I'll probably be like Maxster and Molly...will want it out as soon as it's done its job. I haven't read anywhere...can it be put back if needed? Probably not the same place.

Armywife's picture
Armywife
Posts: 394
Joined: Feb 2018

My doctor told me I can get another one if needed.  I'm really regretting getting mine out when I did.

Molly110
Posts: 115
Joined: Oct 2019

Good luck tomorrow, Primavera. I hope everything goes smoothly.  

I still have the port because I'm axious about the procedure getting it removed. I think I will wait until after my next check up since it makes blood draws so easy. 

 

Take care,

Molly

els19
Posts: 33
Joined: Jun 2014

I kept my port in for 3 years and I don't recommend that to anyone. When I finally had it removed they asked me why I left it in so long as it's easily replaced. I was only numbed when it was removed and felt nothing. It went fast and I had no soreness afterwards. 
Now I'm in a recurrence and had my first chemo without a port and realized how much nicer it was having a port. I do IVs easily. But a port gives you so much more freedom of movement. And I want to keep my good veins and easy IVs. I'm getting a new port put in next week. Hopefully it will be easy!

Goodluck Primavera!

yetti's picture
yetti
Posts: 15
Joined: May 2019

Dear Primivera ,  I would suggest the port before I had any CHEMO. good veins or not it still wears on the the veins. And it starts to require more attempts to get as vein!  I also have them use my port for all labs and ct and pet scan IVs.  even the iv for the colonoscopy I had ! I would not have survived chemo without port, I have mine still since July 22 of 2018 !  thats a lot of IVs on the veins  my chemo was every three weeks ,  If it were me I would do NO CHEMO until I had a port !  

 

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