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Coronavirus/COVID-19

What cancer patients, their families, and caregivers need to know about COVID-19.

For those just beginning the treatment journey

SophDan2's picture
SophDan2
Posts: 141
Joined: Jul 2017

Hi All,

When I was diagnosed with Stage 3C colon cancer back in April 2017, I found this site within the month of my first treatment. It was sooooo helpful to have this forum available to me; to be able to talk with people that truly knew what was heading my way was invaluable to me (as I had no idea what to expect). On occasion, I visit the forum, but don't always speak up. It is always sad to hear about those that have lost the battle, but it is always great to hear about the success stories, as I remember how I felt when I was going through Folfox 5FU treatment and thought "will I make it through".

I'm hear to inspire those that might be feeling the same way that I did in the beginning. Today, I met with my Onc to review my latest CT scan and blood test results. I have now been clean (NED) since November 2017.

I wish everyone the strength, will and support to fight the fight, as there can be a light at the end of the tunnel. Eat well (even if you feel that you can't), rest when you need to, I chose to use edibles instead of the prescribed anti-nausea meds (allowed me to sleep better and have an appetite), keep a sense of humor (so you can deal with people that mean well, but don't know what say), partner with the Onc, Onc nurse, Nurse Practioner and anyone else involved in your care/treatment. Remember, they're the medical team, but they learn from you as much as you learn from them.

Be well,

Barry

Trubrit's picture
Trubrit
Posts: 5047
Joined: Jan 2013

I know your Birthday isn't until the 12th, but this has to be the best present you could ask for. 

Tru

SophDan2's picture
SophDan2
Posts: 141
Joined: Jul 2017

Thank you Tru. It is a great birthday present, thx. It was great news to share with my wife and 2 college kids!

SnapDragon2's picture
SnapDragon2
Posts: 198
Joined: Nov 2019

Im in the last sprint of the marathon here to hopefully be NED!!!  Thank you so much for your post today.  I will find out wed when adjuvant folfox will begin.

SophDan2's picture
SophDan2
Posts: 141
Joined: Jul 2017

All you have to do is cross the marathon finish line!

 

SandiaBuddy's picture
SandiaBuddy
Posts: 1013
Joined: Apr 2017

Congratulations on the latest results and thanks for the words of wisdom.

Annabelle41415's picture
Annabelle41415
Posts: 6384
Joined: Feb 2009

Congratulations on the good news and the update.  It's always good to see members from the board come back and give an update to how they are doing.  Happy early birthday and enjoy your day - you deserve a special day.

Kim

th4rs
Posts: 13
Joined: Dec 2019

I just found out in December I have Colon Cancer stage 3C.  I will do cnemo #2 on Tuesday.  I am feeling a little run down went back to work and I see how tiring that can be and trying to run a houshold.  I am so glad to hear all is well with you!!

 

Thanks for your insperation.

 

Robin

SophDan2's picture
SophDan2
Posts: 141
Joined: Jul 2017

Hi Robin,

During the first 4 treatments I too went back to work, but as the cumulative effects of the chemo buit up, I made the decision to focus on my health. Fortuntately I did have long term disability (no short term), so it cost me initially, but it was worth it. After the treatments were over I went back to work.

You can only do what you can do, your body will let you know what you can do.

Goodluck Robin, onyour remaining treatments.

Barry

th4rs
Posts: 13
Joined: Dec 2019

Just want to say Thakn you Barry for the encoragement.

 

Take care and may you stay NED

 

Robin

danker
Posts: 1212
Joined: Apr 2012

Like you,I have been NED for many years(10).  Only I was 77 when dxed and soon to be 88.  Many of us are living proof that Cancer can be beat!  So just take it a day at a time and hope for the best.  Good luck to all!!!

Real Tar Heel
Posts: 52
Joined: Nov 2019

Wow, that's awesome

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