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New member. Right kidney removed 2 weeks ago.

Chicksandhens
Posts: 4
Joined: Dec 2019

I just had my right kidney removed two weeks ago.  I have a six inch incision and three small incisions.   Test results came back positive for cancer but all margins were clear.  I only stayed one night in hospital after surgery.  I went home reluctantly but I passed all requirements to leave.  For the most part I am doing well and resting.  I still have some pain usually in the top three small incisions area.  It helps if I press on the incision area.  I think getting up out of bed hurts the worst.  I am an active person so all of this resting is tedious.  I am nervous about my diet now that I only have one kidney.  It seems like the food I like the most are no..no's.  Such as avocados, nuts, bananas, spinach, swiss chard, whole eggs and dairy.  

Do any of you follow a special diet after having a kidney removed?  Are there other limitations or things I  should avoid? TIA.

icemantoo's picture
icemantoo
Posts: 3236
Joined: Jan 2010

The first  few weekd are the hardest. I lostt lefty almoost 17 and 1/2 years ago. Ninety days ago they  took out  my Prostate as well.   At 76 and  1/2 I am going to try and stay away from Cancer.

 

How big was the little buggar.

 

Welcome to the club where no one volunteers to  join.

 

 

 

 

 

icemantoo

Chicksandhens
Posts: 4
Joined: Dec 2019

17 1/2 years ago...that is great news!  Sorry to hear about the prostate cancer.  The tumor itself was 4.5 cm.

stub1969's picture
stub1969
Posts: 812
Joined: Jul 2016

I'm happy you found us.  To answer your question, I don't follow any special diet since my surgery.  But--if your doctor has given you directions about what and what not to eat, please follow that advice.  If you do a google search, you'll get all kinds of recommendations and advice....many of which have no scientific value.  Moderation and common sense should be the driving force to your diet.  I'd also encourage you to drink plenty of water (I drink close to a gallon of water per day).

Beyond the diet--I'm curious about the details of your RCC.  Size, subtype, and pathology details.  Where are you being treated? 

Again--welcome! 

Stub

Chicksandhens
Posts: 4
Joined: Dec 2019

I have not talked to my surgeon yet, but I did get this information about my results online from the hospital.  BTW I had surgery at Huntsmans Cancer Hospital.  

 

I am not sure exactly what it all means, but here are the results: Radical nephrology chromophobe renal cell carcinoma test positive.  4.5 cm, margins negative.  Ckit/CD 117 test positive, value SPF1, amount removed 16 × 8 × 5.4 cm. Tumor pushed into renal sinus fat with possible gross invasion.  Primary tumor pT1b.

I am drinking plenty of water with lemon and trying to eat healthy.  Walking is my only excercise so far.  Looking forward to living cancer free from now on....

stub1969's picture
stub1969
Posts: 812
Joined: Jul 2016

I'm a chromie, too.  Chromophobe RCC (in general) tends to be indolent.  I was looking for words in your pathology that may suggest otherwise such as sarcomatoid features.  Since you don't have those listed, I'm assuming it was not in your pathology.  This is a good sign.  At 4.5 cm, and listed as stage 1, the odds are on your side.  It is vital to be faithful to your scans in the future.  Is your first one at 3 months or 6 months out?

Stub

FYI--if you click on a person's "name" you can read about their journey.  I'd encourage you to fill out your "About Me" information so others can read about your story.

 

Chicksandhens
Posts: 4
Joined: Dec 2019

Thank you for the information.  I did blood work this past week and I am having a CAT scan on April 13th.  I am going to have to find out more about the test results.  I will go in and update my personnel information in a day or 2.

 

Just reread my test results.  It said that sarcomatoid features were NOT identified.  

AliceB1950's picture
AliceB1950
Posts: 36
Joined: Jun 2019

If your incision is bothering you, I suggest a folded soft sock between it and your clothes.  My incision wasn't that big (I have no idea how they got a 7 cm tumor and a whole kidney through those small openings!), but it was near enough to my waistline that my clothes pressing there were uncomfortable at times.  That sock was my best friend!

donna_lee's picture
donna_lee
Posts: 908
Joined: Feb 2009

Yes, the surgery makes you hurt, and twisting your abdominal muscles even more so.  It will pass.  Warm, not hot showers with a finish of almost cool water to avoid stimulating the itch response helps.  As long as the incision is not draining, paper tape a large guaze pad over it to prevent it from rubbing on clothing.  The favorite foods, I can't help with-but eat a balanced menu, drink plenty of water to keep the remaining kidney going well; but avoid foods that constipate so you don't have to strain.

I was in your shoes 13 + years ago with a 14" slice that removed more than the R. kidney.  You have traded a kidney and a short amount of pain with boredom for a much longer life.  Considering all that, it's a pretty good trade.

Hugs and a nice, steady recovery,

donna_lee

a_oaklee
Posts: 465
Joined: Nov 2013

Im trying to figure out why the foods you listed are no-no's.  Who told you that?   They seem good to me.

The only huge no-no that I am aware of is Ibuprofen.  Dont take it.  And having only one kidney dont do a high protein diet.  Low sodium can be beneficial too.

APny's picture
APny
Posts: 1956
Joined: Mar 2014

Yes, I was wondering the same thing. I was only told to avoid Ibuprofen. No diet restriction.

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