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evolo58, how are you?

Posts: 274
Joined: Oct 2017

She hasn't been on the board since July. Is anyone in touch?



Armywife's picture
Posts: 452
Joined: Feb 2018

Somehow I didn't realize it had been that long since we heard from her.  

EZLiving66's picture
Posts: 1478
Joined: Oct 2015

This is not good! She has UPSC and I think it was Stage IV. 



TeddyandBears_Mom's picture
Posts: 1795
Joined: Jun 2015

Time goes by so darn fast! I sure hope she is just taking a break from the board. :-(


I just looked at her profile to remind me of where she was.... She had started a clinical trial in June after trying other chemos that caused her issues.... This just doesn't sound good....

Posts: 309
Joined: Oct 2017

I sent her a CSN email on August 18th about the treatment DerMaus told us about (https://www.fda.gov/news-events/press-announcements/fda-approves-third-oncology-drug-targets-key-genetic-driver-cancer-rather-specific-type-tumor) since the article was about the specific genetic defect she had (NTRK). I really hope that she is too busy with treatment to check the forum. 

Forherself's picture
Posts: 558
Joined: Jan 2019

I send prayers for all our sisters doing battle right now.  

BluebirdOne's picture
Posts: 437
Joined: Jul 2018

Hope you are doing well. 

Fridays Child
Posts: 211
Joined: Jul 2019

Also concerned about Lulu, as well as the others noted.  Praying daily.

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