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evolo58, how are you?

barnyardgal
Posts: 217
Joined: Oct 2017

She hasn't been on the board since July. Is anyone in touch?

 

Veronica

Armywife's picture
Armywife
Posts: 310
Joined: Feb 2018

Somehow I didn't realize it had been that long since we heard from her.  

EZLiving66's picture
EZLiving66
Posts: 1354
Joined: Oct 2015

This is not good! She has UPSC and I think it was Stage IV. 

Love, 

Eldri

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TeddyandBears_Mom
Posts: 1549
Joined: Jun 2015

Time goes by so darn fast! I sure hope she is just taking a break from the board. :-(

Edit:

I just looked at her profile to remind me of where she was.... She had started a clinical trial in June after trying other chemos that caused her issues.... This just doesn't sound good....

SF73
Posts: 271
Joined: Oct 2017

I sent her a CSN email on August 18th about the treatment DerMaus told us about (https://www.fda.gov/news-events/press-announcements/fda-approves-third-oncology-drug-targets-key-genetic-driver-cancer-rather-specific-type-tumor) since the article was about the specific genetic defect she had (NTRK). I really hope that she is too busy with treatment to check the forum. 

Forherself's picture
Forherself
Posts: 217
Joined: Jan 2019

I send prayers for all our sisters doing battle right now.  

BluebirdOne's picture
BluebirdOne
Posts: 196
Joined: Jul 2018

Hope you are doing well. 

Fridays Child
Posts: 65
Joined: Jul 2019

Also concerned about Lulu, as well as the others noted.  Praying daily.

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