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Brachy Therapy Experiences?

Feelingalone74
Posts: 236
Joined: Jun 2019

Hi all, my gynecological oncologist originally said I didnt need brachytherapy . However the radiologist at the center I'm treated at says that I do and that he consulted with another hospital and they agree however that radiologist does not do brachytherapy so I have to go for a consultation at another hospital tomorrow where there is a  radiologist who does do it. When I called my original and gynecological oncologist office and ask for him to consult with my current radiologist  he said to go to the doctor  for the consultation and he would consult with him . I asked the nurse if that meant he thinks I need it now and she said she did not know. It is so hard when when a doctor says something and then another doctor says something else and then you're like who to believe. And then on told to go with the doctor I trust. I have no trust in doctors after being passed off as premenopausal and now this is where I'm  at nor do I have the medical knowledge to make that kind of choice. I want to make sure that I'm treated well and that it does not return but I also don't want to be over treated. 

In also wonder how anyone whom had this tolerated it. I remember 1 person saying it was excruciating and then other saying with lidocaine it was tolerable. And not sure about the  dialator...doesnt sound fun nor does the whole experience.  

Any insight is appreciated! Thanks!

Feelingalone74
Posts: 236
Joined: Jun 2019

Just read an another thread on brachy . Sounds like mixed experiences with this kind of therapy. 

I'm sorry for those of u ladies  that had an overwhelming experience and wished yours had gone like other ladies who were able to tolerate it. Hoping if they decide I need ot that it will be done with as much ease as possible. 

 

janaes
Posts: 772
Joined: May 2016

I do understand your no trust in doctors.  I had a gynocologocal oncologist tell me not to even do chemo. I saw a couple more doctors and had a tumor board look at my cancer befor i decided what to do. Having others here helped very much too. 

Deciding on external radiation and bracytherapy is hard. I did only bracytherapy for a few reasons. My oncologist told me i got my uterine cancer because of the radiation i recieved for my cancer i had 20 years ealier. I figured more radiation can cause more cancer. It just wasnt worh the risk for me. Plus i had radiation 2o years ago near the same place i would have had to do it for uterine cancer and my doctor wouldnt do radiation because of that reason. 

I know lots of people who did external radiation though and it was right for them

You will make the right decision for you feelingalone. Take your time its okay. Its your body and its good you want to do what is right for you

take care

Janae

Feelingalone74
Posts: 236
Joined: Jun 2019

Hi Janae , thanks for your response.  I'm sorry u had cancer twice and I do hope your doing great now! I'm  also sorry to hear that 1 doctor told u one thing and then a entire board told u something different.  This sure makes it hard for the patient!It's so puzzling to me how there can be so many perspectives. 

I am currently in the middle of my external radiation treatment.  I had endometrial cancer and it was strongly suggested that I receive as well as chemo. I was reluctant because as u said radiation itself can cause cancer and they said in the future I could get bladder cancer. This is so scary to me! It's like fixing the problem now but can cause problems down the road. Now the radiologist is also saying to do brachy as well. My gyno oncologist originally disagreed now he's saying go for a consultation  I don't get it. It's going to be a hard decision that I don't want to make as ti whether I have the brachy. I'm also wondering if once u have brachytherapy can it only be given once. So I will be asking that tomorrow. 

Thank u, u take care as well!

Michelle 

 

Armywife's picture
Armywife
Posts: 315
Joined: Feb 2018

The hardest part of this is that it is ultimately your decision.  I agonized over radiation.  My gyn/onc and my second opinion (MD Anderson) agreed on chemo, and as I completed it, I met with the rad/onc about radiation.  I had looked and looked at research.  My gyn/onc wanted me to have both external and brachy.  When I talked to the rad/onc, I asked him straight up if he could show me any studies that indicated that radiation would improve survival rate in Stage IVB.  He said he couldn't, but that he would still do at least brachy.  I asked my second opinion doc, and she put it before the tumor board at MD Anderson.  They were split down the middle.  Finally the chair of that board said that she would probably reserve radiation to be used in case of recurrence.  I relayed that message to my gyn/onc and agreed that I'd do whatever she wanted since she had brought me that far.  Once she heard what MD Anderson's board had said, she decided we were finished with treatment.  Tomorrow will be the 2-year anniversary of the end of chemo, and thus far I have been NED.  I know the odds are against me, but I am comfortable for now with not having done radiation.  It is my understanding that you can only do it once.  Praying for peace for you.  I remember the panic and uncertainty over what to do.  It was a funny feeling to suddenly be "done" after fighting so hard for five months.  I felt a little lost.  All normal, I know now.  

MAbound
Posts: 871
Joined: Jun 2016

Love the new picture. It will be a great help to those reading about your icing hack.Smile

Feelingalone74
Posts: 236
Joined: Jun 2019

Me too!Smile

Feelingalone74
Posts: 236
Joined: Jun 2019

Armywife, Happy 2 year Anniversary of being NED!!! :-) So happy for you!!! Im glad you sought a 2nd opinion and it seems you had a great team looking out for you!

Yes, the hardest part is definetly that the decision falls on the patient . The radioligist I saw yesterday for a consultation interesting enough said the long term effects of the brachy outweighed the % of benefit that I would get from the brachy therapy. I told him it was very hard when no one can agree on whats best for me. We ended the appt with him stating he'd consult with the other 2 radioligist in he practice and get back to me in a few days. 

Interesting I have read the comments of several ladies below and they said that brachy was ok and they arent experiencing any side effects.

Michelle

Thank you for wishing me peace! I hope in a few days the best decison has been made. I just want whatever is best for me.

Donna Faye's picture
Donna Faye
Posts: 253
Joined: Jan 2017

When I was diagnosed with UPSC 1A in 2017, I wanted to just do observation. My onc/gyn was adamant that I have chemo and 4 brachy. I did lots of research, read what ladies on this board said and finally decided to do it. In 2018 I had a recurrence on the vaginal wall - not the usual place. Again, after personal research and the cancer board, went for 25 pelvic rads and 4 more brachy! I am 18 mos. out from last treatment and other than some long term effects with bladder and bowel that can be controlled with being careful, I am feeling good. Today was my 3 mo. CT scan and my doc app't. is the 8th. Hoping I will still be NED. So, what I am saying here is the decision is finally yours. I am 79.6, no sex in the future, and decided not to dilate due to blood thinners causing bleeding.  The brachy itself was no problem but I do have the BEST rad doc on earth. Even the pelvic rads were OK - just needed lots of Immodium! I have decided that if cancer comes to call again, I will not fight it but much of that is my age and a life I have enjoyed. Our cancer is not as common as many so the research is just in its infancy. Do your own research, continue to ask questions and when you feel you are at peace with your choice, do it. It is a crapshoot for us. We can only do what our mind and heart tells us. Wishing you the best.

Feelingalone74
Posts: 236
Joined: Jun 2019

Donna Faye, I will be praying for you on the 8th that you continue to be NED!

Im glad that brachy itself was ok for you but sorry that you have some long term effects.

I think that is what the 2nd radioligist that I consulted with yesterday is most worried about the long term effects of brachy for me because I am ony 45. I will wait for the his phone call once he has consulted with 2 other radioligists and hope that the best decision will have beenmade for me.

I have completed 13/25 pelvic radiations so far. Immodium certainly has been my best friend but other that that I have gotten through the 1st half with ease.

Thank you for wishing me the best! I wish the same for you! Prayers on the 8th for god health for you.

Michelle

Primavera's picture
Primavera
Posts: 75
Joined: Mar 2019

I had stage 1a, grade 3, and I only had three sessions of mild radiation. The first one is very involved and there was a team of nurses (two women, one guy) and a doctor and another guy who did the measurements. It wasn't hard at all and the nurses made sure I was comfortable. The other two treatments were very easy and fast.

I didn't get any side effects from it and I didn't take anything before the procedures. It probably depends on the doctor and the patient. I was nervous even though everything had been explained to me fully and I did a lot of research at this site. It was the fear of the unknown. It is not that bad. There was an hour of waiting during the first session before they treat you. I fell asleep for that hour.

Feelingalone74
Posts: 236
Joined: Jun 2019

Primavera, I'm so glad that you didnt get any side effects! That's great! and Im relieved to hear the experince isnt that bad should it be decided I should in fact have the brachy.It seems to be what the consulting radioligist seems to be most worried about for me. 

Wishing you good health!

Michelle

janaes
Posts: 772
Joined: May 2016

I agree with Donna Faye about bracytherapy being easy.  The procedure itself was a bit uncomportable but for me once it was over i had no problems no side effects or nothing. I had three treatments. One a week for three weeks. It was so simple compaired to chemo. 

Feelingalone74
Posts: 236
Joined: Jun 2019

Janae, Im so glad that though the procedure was a bit uncomfortable it was easy for you that you had no side effects or problems. I hope if it's decided for me to have brachy that I dont either.

 Wishing you continued good health

Michelle

Fridays Child
Posts: 70
Joined: Jul 2019

It is really hard to have the decision on our shoulders when we feel like there's so much we don't know. After my surgery in 2012 they suggested that I have brachytherapy but said it was up to me.  I had five treatments.  At my center you go in for the simulation, but rather than stay there while they do the calculations and then have treatment, they scheduled the first actual treatment for a different day. I'm sure if I had to travel a long distance they'd have done them the same day.

(And Donna Faye, we must have the same rad/onc because I think I have the best one ever!)

When I had the brachytherapy I got permission from my rad/onc to take probiotics.  The only time I had any diarrhea was right after I completed treatment when there was a death in the family and I forgot to take the probiotics for a couple of days.  They never advised me to use a dilator since I am married, although I know some doctors want you to use one anyway.   Best wishes to you with your consultation and decision.

 

 

Feelingalone74
Posts: 236
Joined: Jun 2019

Fridays child , it sure is hard! thank you for wishing best wishes . I will try to patiently wait for the consulting radioligist to consult with 2 others on what is best for me. Good to know that probiotics are a big help if needed. Im sorry for the death in your family.

Wishing you continued good health!

Michelle

Quilter_1's picture
Quilter_1
Posts: 48
Joined: Mar 2019

My brachy experience was not unpleasant.  Using the dilators is a nuisance, but, tolerable.  For now, I am not experiencing any ill effects from any of my radiation treatments, I guess time will tell.   I chose to do what my gyn/onc and rad/onc recommended, which was 32 pelvic IMRT and 6 brachy. Cheers to all of us for fighting the good fight, thank you all for the loving support and information provided here.

Linda

Feelingalone74
Posts: 236
Joined: Jun 2019

Quilter 1 , Im so glad that your ecperience was not unpleasant and that thus so far you havent aretn experiencing any side effects!!! I hope that continues for you!

CHeers to you as well and for yours and everyone elses loving support and sharing info and experiences on here!

Wishing you continued good health

Michelle

CancerFree4ever's picture
CancerFree4ever
Posts: 8
Joined: Sep 2019

Hi Linda,

I have a few questions about the Radiation experience and the Brach.

Did you have the CT Simulation? Which I know is standard

But,,, Did you also have an MRI to decide size of tumor?

Did you have the Brachy before the radiation, or after?

Did you have any side affects at all from the radiation........and where was your tumor in relation to near the bladder?

Thanks so much

 

Quilter_1's picture
Quilter_1
Posts: 48
Joined: Mar 2019

 Sorry it took me so long to reply, we were on vacation for several weeks.  I did have the ct simulation, before each of my 6 brachy treatments.  I also had 32 pelvic IMRT, but did not have an MRI prior to treatments.  I had a complete hysterectomy several months before and had already begun chemo.  My treatments were strictly for helping to avoid recurrence, I had UPSC stage 1a.  My treatments were pretty cut and dry, I trusted my doctors, and, so far so good.  I may have issues with all of the radiation I had in the future, but for now, I am well and thankful for that.  If problems present themselves in the future, I guess I will just try to deal with them as best I can.

Kaleena's picture
Kaleena
Posts: 1975
Joined: Nov 2009

originally I was not to have any radiation but after my chemo was done my oncologist wanted me to do pelvic and brachytherapy   However my radiation oncologist advised against the pelvic radiation and he indicated my risks of having pelvic radiation outweighed the risk of not getting it.  because I scar so much he indicated the pelvic radiation would cause issues later on.  Therefore I only had 3 HDR brachytherapy sessions.  That was back in 2006.  in 2014 approximately 8 years later I developed a blocked left ureter and tumor from the brachytherapy. I had stents put in for about a year and a half until I had a ureter bypass surgery.

I had no problems with the brachytherapy sessions.   The only thing was I got a little embarrassed at the first appointment when they had to measure you for the dialator.   The actual treatment was nothing.   Also I did not follow up with using a dialator at home eithe.   By the way I was 45 when I had my hysterectomy

Feelingalone74
Posts: 236
Joined: Jun 2019

Hi Kaleena, thanks for sharing your experience.  I'm glad the brachy experience itself for you was ok but sorry that had complications down the road. I hope that you are doing well now!

I've just completed 14/25 of pelvic radiation and I'm quite concern of the effects down the  road as I am if I make the decision to do the brachy. It's such a hard decision for the patient to make . The radiologist oncologist I went to for a 2nd opinion said he'd support either decision.  I want to decrease my risk of the cancer returning but I'm also afraid of the long term effects as well.

coloradocervicalcancer's picture
coloradocervica...
Posts: 1
Joined: Oct 2019

I had the Brachey and it was not to bad for me except that I had my legs in the air for ove 2 hours. I did not take pain meds for this or get put to sleep, I just did the therapy that lasted about 10 minutes to do the radiation part but the other hours were making sure it was in the right place and other things the doctor was looking for.

Feelingalone74
Posts: 236
Joined: Jun 2019

Thanks for your response colorado. I'm sorry that I had to deal with your legs being in the air for 2 hours . That must have been so uncomfortable for u. Glad the brachytherapy itself wasnt bad.

Hope you are well

Feelingalone74
Posts: 236
Joined: Jun 2019

Still trying to decide whether or not to do brachytherapy as the Doctor doing it will be. Calling me back for the 3rd time to get my answer I need to make the decision by tomorrow.  Ugh! I'm so worried about the long term effects. being I'm only 45 they say it's possible that I may or may not get the long term effects but it's sounds like because I'm younger than most whom get Endometrial cancer that I'm told  I may experience in  my lifetime than women in their 60's getting this kind of cancer. I also dont want the cancer coming back at my vaginal cuff and regret not doing brachytherapy.  I just dont know what to do! Im been given the info on both having vs not having. Neither seems like a good choice if either  way may cause difficulty. I hate the decision is on me and I'm so scared of what could happen if I do or don't have it done. My husband doesnt want to persuade me either way which I get because he doesn't want that put on his shoulders if the wrong decision is made for myself. Has anyone else had this done in their 40's? Kaleena it sounds like u maybe did? And then 8 years late had complications for which I'm sorry to hear.

Feeling scared and unsure.

Any input is appreciated. 

Michelle 

TeddyandBears_Mom's picture
TeddyandBears_Mom
Posts: 1552
Joined: Jun 2015

Unfortunately, this is a decision only you can make. I remember going back and forth before I made my decision. There is a thread 'Let's talk about radiation' that might help you. Several of us had a lot of discussion on making the decision. 

I did go forward with the brachy. Thankfully, I have not had major issues. I used the dialator 2 Xs per week for about 2.5 years. I haven't used it now for about a year. I do have sex about once a month and I do require lubrication.  Also, I have some itching on occassion and use a vitamin E suppository that takes care of it. I am glad that I had the treatment. It gives me a sense of doing everything I could do to fight this awful cancer. My goal was to do what I needed to do, to live. And, be able to put all of this in the rearview mirror. I have mostly succeeded in doing so.... Hope this helps. I know it isn't easy.

Love and Hugs,

Cindi

 

Feelingalone74
Posts: 236
Joined: Jun 2019

Cindi, thanks for recommending the thread.  I will read over it.

Yes, I too want to do all I can to prevent reoccurrence just worried about long term side effects. 

Do u mind me asking what age u had brachytherapy?

Wishing you good health

Michelle 

TeddyandBears_Mom's picture
TeddyandBears_Mom
Posts: 1552
Joined: Jun 2015

I don't mind at all.  I was 58. I am now 62.   I'm glad you are going to read the thread. I really do think it will help you.

Armywife's picture
Armywife
Posts: 315
Joined: Feb 2018

You've had a lot of decisions to make in the past few months.  I understand - I had to make the same ones, and I am the worst decision-maker on the planet.  I agonize over everything and procrastinate to avoid making decisions.  

All that being said, I want to encourage you to pray about it.  God is wise and He loves His children - He wants to guide us.  Lots of times I have trouble hearing Him, but I think it's because I'm not consistent enough in my communications!  

Blessings to you.  It's all going to be ok.  You've gotten through the big hurdles!

Feelingalone74
Posts: 236
Joined: Jun 2019

Armywife,  yes I sure have and I have the same decision making problems as u. He k I cant decide which restaurant I want to eat let alone making medical decisions I know that I know nothing about. 

I'm trying hard to decide what's best . I have seeked God's answers but see sometimes feel I dont reach out to him for  answers more for nightly prayers. I will pray I'm making the right decision. 

Thank u for your blessings and stating it's going to be ok. I try to stay positive sometimes it's hard with all the decisions. We certainly all have so many hurdles on this health journey.  I thank you all for getting me through it!

I scheduled the measuring appt but will see my gyno oncologist Wednesday for 1 last opinion about it from him.

Wishing you good health 

Michelle 

mcarp0117
Posts: 14
Joined: Jul 2019

I am 44, diagnosed in May, hysterectomy, ovaries, tubes and cervix removed in June, tumor board reviewed my case and referred me to MD Anderson for lymph node removal. Stage 1B, Grade 2 Papillary Intermediate Endometrial cancer.  Lymph nodes were negative. 5 brachytherapy recommended. I chose to do them locally since I'm 2 hours from Houston.  Now everyone is different,  and some have had much better experiences. First one for me was not so good due to the fact that they do the fitting, planning and treatment all in one day and it took over an hour for the fitting/planning and I couldn't hold my bladder. Then their machine went down and I really couldn't hold it anymore nor let any urine out with the cylinder in.  They tried to catheterize me and couldn't and so they had to remove the cylinder. They did finish the planning before they had to remove the cylindar so once I got in the radiation room the treatment itself only lasted 10 minutes.  I was here for 5 hours though! I was so exhausted after I took a 3 hour nap and was nauseated and groggy all the next day and missed work. 2 days later I started feeling like I had a bad UTI, I was miserable, so at my second treatment I told the Dr. and they tested my urine and sure enough UTI.  I did a week of antibiotics and felt much better. Treatments 3-5 were much easier and only about an hour from start to finish with prep and actual treatment. Last treatment was Monday, and I'm having some tummy issues more frequently and not feeling too great today with stomach cramps and such, but could not be related to the treatment.  I pray for your experience to be much better and I feel they would have been different had I gone to Houston.

janaes
Posts: 772
Joined: May 2016

Feelingalone

Are you at the poiint where you will be starting the bracytherapy soon? Why do the doctors need to know tonarrow? Do you have to make the appointment tomarrow?

I just wonder because for me i remember going back anf forth with the dession to do bracytherapy also. I told my dad at one time i might not do it and then after talking to the doctor one last time I decided to do it. Like i said before i didnt do external radiation though. I felt i needed that extra reasurance that i had done all i could do. I dont think i made the desision though until i was almost ready to do it. 

I do understand the young age feeling. As i mentioned before i was 42 i think when going though treatments.  Its okay to take that into consideration. I did use the dilator a little not much though. I am single and not sexually active so i cant speeak about that but i can tell you that my pelvic exams seem to go okay. 

Its been 3 years this november since i did bracytherapy. No side effects.

I wish you the best in your desision. I know its hard but you can do it.

 

Feelingalone74
Posts: 236
Joined: Jun 2019

Hi Janae, yes I'm at the point I have to make a decision because I only have 7 more pelvic radiations left and they said they have to do the brachytherapy immediately following. 

Yesterday,  reluctantly I told the doctor I'd do it so atleast they could get the appts scheduled .I see my gyno oncologist Wednesday I will seek him for last opinion as he originally said I didnt need it but told me to go for a consultation. 

Thank you for wishing me the best in my decision making. 

I'm glad u haven't had any side effects so far and hope that you dont ever!

Do u mind me asking hold are u now?

Wishing u good health

Michelle 

janaes
Posts: 772
Joined: May 2016

Im 47 right now. Im glad your talking to your gyno oncologyst on Wednesday. This is what i was thinking? So ya you have made the appointment but after you have your apointment with your gynological oncologist if he says no or if you get the feelibg you shouldnt do bracytherapy you can always cancel your appointment. This makes me think again about when i was deciding to do chemo. I know you not deciding on chemo right now but mt sxperience might help.

I think i mentioned that i saw a few doctors before deciding to go ahead with chemo. I will tell you though i stll remember thinking about if i should go ahead with it even just before. I had to find a sitter for my kids at the time. They were tweens so i wanted someone here while i was gone. I had to make sure that was going to work out before i could decide. I cant remember all the details. It might be written down in my past posts i remember i got my port put in the same day as my first chemo and it was the day after my birthday because i was not going to do it on my birthday. The nurse at my last doctors appointment wanted me to make the appointment right at the doctors office but i told her i needed to think about this. I still needed to make sence of it all. I went home went through my pathology report and got some answers. I remember coming here to this group for answers. I did end up calling and making that fist chemo appointment thinking i could cancel if i needed to. Of course i didnt but knowing it was my desision to cancel if i wanted to helped me be okay with making it.

Feeling alone you are doing so great. You are progressing wonderfly. Make sure you give yourself credit for your progress.   Im so proud of how far you have come. 

Feelingalone74
Posts: 236
Joined: Jun 2019

Hi Janae, thank you  for your encouragement and saying your so proud of me! Sometimes with all the certainties and decisions I do know I forget to give myself credit for how far I've come. So grateful for all of u walking me through this journey.

I'm proud of you as well. I was a single mother most of my son's life and sometimes just daily decisions  were hard so I know how hard it must have been for u making those hard treatment decisions .

Yes, as u  did I made the appts and figured I could always cancel them if needed after speaking to my gyno oncologist on Wednesday. It seems like so much treatment for prevention. 

Michelle 

 

Mercorby
Posts: 12
Joined: Jan 2017

Hi there,

The great thing about brachytherapy is that it targets exactly where the radiation needs to go and doesn't damage the other tissues.

The first time I had brachytherapy it was at the vaginal cuff after the hysterectomy.  It was not painful or even uncomfortable. It was just weird to have two radiology assistants and having the treatment in a special enclosed room for a few minutes.  After it was over, I think the worst side effect was vaginal dryness.  But even that isn't too bad with lotion.

The second time had had a tumor in stomach muscle where one of scars was.  The brachytherapy really got rid of that sucker!  It is nearly invisible in the scans. Yay!

Good luck with your decision. It is yours to make.  Do what you think feels right for you after you get all the info.

Feelingalone74
Posts: 236
Joined: Jun 2019

Thanks Mercorby for your response.  The brachytherapy I would have would be on the vaginal cuff. I'm glad your experience was was comfortable!!! I am worried about the uncomfortableness and I'm worried about the possibility of the long term effects.

Glad your scar is nearly invisible! I hope u are well now!!!

Thanks for wishing me good luck with my decision.  Ugh, I will decide after my appt with my gynecological oncologist tomorrow. 

Michelle 

Feelingalone74
Posts: 236
Joined: Jun 2019

Yesterday I saw my gynecological oncologist.  He stook his claim I didnt need brachytherapy as long as the external radiation was give close to the vaginal cuff. He said he'll talk to with the radiologist.  (A side note they dont work together .there at different hospitals being I'm getting treatment at a Center closer to my home). After radiation today I asked to speak to the radiologist oncologist. Told him what doc said yesterday. He's still staking  his claim I need brachytherapy. Ugh!!!!! I cant decide what to have for lunch or what to wear today nevertheless make HUGE health decisions I know nothing about. I wish it wasn't so complex and there was a more of a definite answer and docs didn't disagree a d leave the patient who has no medical knowledge make the choice. I'm horrible at decision making .

janaes
Posts: 772
Joined: May 2016

Im sorry both doctors cant agree. I wish i could tell you what to do on this one. The only thing i can think of and dont know really if this the answer but you could go see one more doctor to see what he or she might say. Then you would have two opinions on one side or the other. 

Have you had a chance to go back and read other peoples experience on this board. I remember reading other members experiences in deciding which was benificial to me

Keep up the good work feelingalone. We all love you here and believe in you. 

Feelingalone74
Posts: 236
Joined: Jun 2019

Janaes thanks so much for your comtinued support and love. I love all of u ladies as well! I dont have a big support network of friends and family so coming on this discussion board and chatting with u ladies is so valuable to me. And u all can  speak from experience.  I also sometimes dont want to tell those I am close with details of my health journey as I don't want to worry them even more.

I did speak to 1 other doctor, the radiologist oncologist as he'd be the 1 doing it at yet another hospital as they dont do it where I get radiation treatment nor the hospital of my gynecological oncologist . He initially said no that called and said yes but he'd support me either way. The gynecological oncologist is suppose to reach out to both of them. My sizing appt I'd Wed if I go through with it so I need them all to consult asap.I'm just torn between having it done and having long term effects being I'm only 45 and not having it done and having it come back. I know I keep repeating myself but neither sounds like a good choice .and I will have had 25 external radiation treatments and worry about those side long term side effects from all the exposure and then to add brachytherapy on top of it.

I had endometrial cancer. I'm curious did u other ladies have that kind of cancer and get both external radiation and brachytherapy?

Feeling so blessed I have u to talk to and the other ladies on here!

I hope your all having a wonderful fall and pray for good health for u all everyday especially our friends that I know  are going through some things currently. 

Warmly, Michelle 

Fridays Child
Posts: 70
Joined: Jul 2019

Of course everyone is different and some women have very different experiences.  I had brachytherapy seven years ago after my original surgery for endometrial cancer, and 25 external radiation treatments a year and a half ago for my recurrence.  To date I have had no lingering effects from either one.  I was 56 when I had the surgery and brachytherapy. 

It is hard to make these decisions when we don't feel qualified!

janaes
Posts: 772
Joined: May 2016

IIm glad you have a week to decide what you want to do. Is one of the doctors going to call you back after they talk. I remember after i requested a tumor board look at my tumor. when deciding chemo. i anxiously waited for a call back to hear what they said. My doctor did call me back. I dont know that a call back would help you with your desion. 

I would say, since you have a week, to slow down. Maybe even put the desion aside for a bit. You got this!!!!

Feelingalone74
Posts: 236
Joined: Jun 2019

Hi Janae, that's exactly what I did. I put the decision aside this weekend and spent sometime doing some things I enjoy.

Yes , a doctor was calling me back. He called Friday and this a.m. already.

He had consulted with my gynecological oncologist.  Being it's not a homerun having treatment and I will have had 25 external beam radiation I'm quite concern about more radiation.  He says he supports me not having it done. I am respectfully declining with much hesitation and praying to god for no regret.  I feel I've given it to god now and will continue to pray I made the right decision for me.

Thanks for all your support!

Kindly, Michelle 

Armywife's picture
Armywife
Posts: 315
Joined: Feb 2018

A very wise friend told me when I made the decision not to have radiation, "Don't look back.  You're not going that way."  I have not looked back except with relief, and I hope you will have peace.  I do remember it was a very strange feeling to suddenly just be done with treatment, after I thought it was inevitable to continue.  You'll get your feet back under you soon.

Blessings!

Feelingalone74
Posts: 236
Joined: Jun 2019

Armywife,  I think that's great advice that your friend shared with u ! Thanks for sharing it with me! 

My 25 radiation treatments are done, respectively declined the brachytherapy as my gynecological oncologist said it wasnt needed, and only 2 more chemos left.  

Happy to say so far I'm feeling pretty good with only a little side effects. Hoping that continues!

Hope all is well with u!

Michelle 

janaes
Posts: 772
Joined: May 2016

You made your desision and thats great. You just move forward now to your next step and remember you made the best desision for your self. That will keep you going

good job

janae

 

Feelingalone74
Posts: 236
Joined: Jun 2019

Thanks so much Jane's for your support! I agree, moving forward is now what I need to do now that I made my decision. 

I have 1 more radiation  treatment and 1 chemo in Nov and 1 in Dec. Then I'm  hoping to get a clean bill of health and return to my beloved job and resume life as it was.

Kindly, Michelle 

janaes
Posts: 772
Joined: May 2016

You got this. 

Feelingalone74
Posts: 236
Joined: Jun 2019

Thanks so much Janaes!!!

Thankfully so far I'm feeling good with little side effects.  Hoping that continues for my last 2 treatments. 

I hope all is well with u!

Michelle 

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