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Complex Hyperplasia with Atypia/**New Diagnosis Post Op - Endometrial Adenocarcinoma Stage 1-A

Heatherlynn707
Posts: 20
Joined: Sep 2019

Hello All!  I am obviously new here!  Hoping that all of you are well in spirit and fighting with all of your might!!  I never thought the day would come that I would be worried about cancer!  I have been having extremely  heavy periods and going through all signs of perimenopause - sleeplessness, weight gain in my belly; despite making good food choices.  For the past two years, I would only have a cycle for about six months and then hibernate the other six months.  I thought... no big deal until May of this year......I have been bleeding non-stop since May!  The volume varies from heavy to light spotting to dark with odor.  Sorry....so gross!!  Long story short...my PCP (primary care physician) referred me to get a vaginal ultrasound and sent me to an OB/GYN.  Ultrasound came back normal.  Pap came back normal. Since my endometrium measures 14MM, my gynocologist scheduled me for a EB.  I received the results of Complex Hyperplasia with Atypia :(   I have since been referred to an Oncologist GYN for a radical hysterectomy.  My appt is 10/7 and I have never been so terrified!!  I have read that about 45% of people with this diagnosis are re-diagnosed at the time of thier hysterectomy with having Endometrail Cancer.  The wait is excruciating and I am so very worried that my constant bleeding is a sure sign that it is cancer and the biopsy didn't capture the cancer cells.  What is your experience - curios to know.  I am also concerned with going into surgery induced menopause....perimenopause is bad enough.  Again, I will fight like hell!  Thanks for your time and your thoughts!  Sorry so graphic but I want others who may be experiencing the same to know they are not alone.  

CheeseQueen57's picture
CheeseQueen57
Posts: 813
Joined: Feb 2016

Why didn‘t they do a D& C? That would give you a little more info. In my opinion endometrial biopsies are worthless. Rarely get enough tissue to tell you anything. 

Heatherlynn707
Posts: 20
Joined: Sep 2019

I did ask if further diagnostic tests such as d&c might be performed to get a larger tissue sample but my gyn indicated that they wouldn’t put me through an unecessary procedure....that being said, when I go to my onc gyn, I plan on askinG that question to see if that would be possible.  Thanks for mentioning that and I have added to my list of questions!!

Forherself's picture
Forherself
Posts: 223
Joined: Jan 2019

Welcome.  I'm glad you found this site because we do understand how you are feeling.  It is scary.  And we can help.  I read about complex hyperplasia with atypia.  It said about 30% of cases have a concurrent carcinoma.   That means 70% don't.   It's hard to see that with the emotions your are feeling.  So your chances are higher that you don't.  And it sounds like it is a precursor to endometrioid cancer, which is the better carcinoma type.  About 80% of endometrioid cancer is found at 1A stage.  And 1A endometrioid cancer does not usually have any treatment.  

I am so happy to see you have been sent to a gyneoncologist who is aggressively treating your condition.   Try and take a breath and wait for your hysterectomy results.  Your chances are good. And I know its so hard to do.  Feel free to express your emotions here.  I found it very hard to talk to friends and family.  They mean well but do not understand, unless they have had experience with this.   Many other women will respond.   And please keep us up to date on your treatment and outcome.   You can read my story by clicking on my name and read the blog.  

 

Heatherlynn707
Posts: 20
Joined: Sep 2019

Emotions suck!!  I am full of them!  Thank you for your post and I am also glad for the aggressive plan of action.  I am not happy about surgery but the alternative could be worse! :)  I am hopefull that my onc gyn will perform the least invasive and he is considered to be the best in town.  I will know more at my consultation appointment with him in a couple of weeks......until then I plan to stay busy and stay off the internet (LOL!).  It seems that everyone has a different opinion on what I should do.  My accupuncturist does not believe in Western Medicine at all.....I totally respect her and her practice but I am not willing to take the risk! 

Thank you for your words of wisdom and remider of the 70% that do not get diagnosed with cancer!  Fight on!

Kathy G.'s picture
Kathy G.
Posts: 210
Joined: Dec 2012

Hi Heather!

The waiting is the worst part of possibly...or having this disease.

I didn't come into this group until after my office biopsy confirmed I had uterine cancer. I learned later a D&C would have been much more accurate & informative.

That is why I love this site...the info is unbelievable!

I was referred to my gyn-onc based on biopsy results. He said it looked early stage & it was graded a 1...slow growing. However, only surgery will accurately tell your stage & grade...if you have cancer!

I lucked out with stage 1/grade 1 garden variety cancer. I only needed the hysterectomy. I was already in menopause so no problems there! I can say menopause was a piece of cake after all that heavy & irregular perimenopausal mess.

Hang in there & visit often for support & guidance.

Heatherlynn707
Posts: 20
Joined: Sep 2019

I have read so much on biopsy and the lack of information they provide....not enough tissue sample for a clear diagnosis.  I plan on asking my onc gyn at my consult if I were better suited to have a D & C to see if cancer is present although if I have pre-cancer, it seems that a hysterectomy will be needed at some point and I figure that I might as well have the surgery while I am younger (46) and better able to heal.  My current plan of action is to prepare my body for the blow that is to come......I am working with my acupunturist to prepare.

Glad to hear that you are on the mend and no further treatment was necessary!  Fight on and thank you for post! 

NoTimeForCancer's picture
NoTimeForCancer
Posts: 2591
Joined: Mar 2013

Heather, first, try to take a breath.  You found a good place and you are working with a gynecologic oncologist - exactly what you want.  First - beware or Dr. Google.  Stats online are OLD and I can say what I saw when I first started coming here to what is being done today are completely different - which is good.

Try not to get too far ahead of yourself here, take it a step at a time and figure out what you are dealing with.  We are here to help you through it with answers to all your questions.

Heatherlynn707
Posts: 20
Joined: Sep 2019

I love your picture!!  I agree NoTimeForCancer is absolutely right!  I have a rich full life and I really do not have time for this!  That being said, I will heed your warning and not try to obtain my MD via google!  So hard to do!  I think I keep looking for the magic answer that this isn't real!  

Thank you for your post!  I appreaciate it!  Fight On!!!

Northwoodsgirl
Posts: 536
Joined: Oct 2009

HeatherLynn707, Welcome to this forum. Glad you found us early in your journey. It is normal to worry about the possibility of cancer considering your symptoms.

Try to go into surgery with the expectation that you don’t have cancer. Easier said than done that is for sure!

I had light bleeding for 6 months and had normal ultrasound but biopsy showed endometrial cancer.

The waiting to be diagnosed is excruciating. Most likely you won’t have cancer. If it turns out you do have cancer there are many women on this board who will offer kind and educated support. Remember you are not alone and there are many of us who have braved the disease before you and will stand by you to help ease the fear of the unknown. Try to stay focused on the “now” which is all any of us have. Please post again so we know how your surgery goes and your results. I will keep you in my prayers dear one...

Lori

Heatherlynn707
Posts: 20
Joined: Sep 2019

Thank you Lori!  This site is amazing and rich with information!  Staying focused to prepare my body for the big day!  Constantly in the back of my head and everything I read, I end up feeling......psychosomatic much??  LOL!

I have my consult on 10/7 and will post my journey as I go!  Thank you for being here to help us newbies!  So appreciative!

 

Heather

Forherself's picture
Forherself
Posts: 223
Joined: Jan 2019

Precancer—Complex Hyperplasia with Atypia

Many women who have symptoms of endometrial cancer (vaginal bleeding after menopause or abnormal menstrual bleeding) may have a biopsy that shows precancerous changes of the endometrium, called complex hyperplasia with atypia. Risk is high that 25 to 50 percent of these women will go on to develop endometrial cancer. 

To reduce the risk, doctors usually advise women with this condition to have a hysterectomy (surgery to remove the uterus) if they are past childbearing years or do not intend to become pregnant. Many gynecologists refer these women to a gynecologic oncologist for their surgery because of the chance of finding true cancer at the time of the hysterectomy.

Sounds to me like the hysterectomy is done to prevent you from progressing on to cancer.    You are getting good treatment.

LisaPizza's picture
LisaPizza
Posts: 219
Joined: Feb 2018

A question to check with your gyn onc is whether he/she actually recommends a radical hysterectomy, or whether that is maybe a misunderstanding. The terms can be confusing to the uninitiated. A total hysterectomy means the cervix is included. A radical hysterectomy removes the uterus/cervix, but also the parametrial tissue (tissues around the uterus), and has more complications or harder recovery ... for example, many go home woth a temporary bladder catheter. Fortunately, normally for endometrial cancer we get a total hysterectomy, whereas the radical hysterectomy is used for cervical cancer. I guess it comes down to differences in the way they grow and spread.

 

Removal of the ovaries is not actually part of a hysterectomy; it's named as a separate procedure that may or may not be done - oophorectomy. These days that's generally a salpingo-oophorectomy (salpingl means removing the tubes and not just the ovaries), because it looks like ovarian cancer actually starts there. So you have to ask to be sure exactly what is beong removed or not, and to what extent. Removing the ovaries is another area with debate, and there is evidence for not always removing them.

 

Same with lymph nodes. There's not a consensus on removing lymph nodes. They often will not sample any (assuming they look normal) if the introperative pathology doesn't show any cancer. If it does, they weigh things like grade and depth of invasion to determine how aggressive to be. Some docs take only a few (I only had 5), some take dozens. It's  balance between finding any spread, and causing possible lymphedema, so there's not one right answer. The trend now is toward sentinel lymph node biopsies.

 

But again, you won't know what's planned if you don't even know what to ask. And it may all be mute because chances are you don't have cancer ... but when they find out, you're under anesthesia and it's too late to take part in the decision-making or at least be prepared for the possibilities. You'll see all these types of surgery on your consent form. as "possible", just in case, but that shouldn't be the first time you hear about it, and you shouldn't have to decide without time to understand.

 

Some docs explain all this without prompting, and some just make their judgment call and only answer the questions you ask.

Fridays Child
Posts: 70
Joined: Jul 2019

With regard to the lymph nodes, individuals vary widely in how many lymph nodes they actually have in different parts of the body.  One person might have many more than another, so they might have more removed simply because there are more there to look suspicious or not.

Primavera's picture
Primavera
Posts: 75
Joined: Mar 2019

I was wondering, too, why a "radical hysterectomy" has been advised when there wasn't even a D&C performed yet? 

Heatherlynn707
Posts: 20
Joined: Sep 2019

There will not be a D & C performed.....

My gyn indicated that they will be doing a clean sweep......so maybe I utilized the incorrect wording in my post.

My consult with the onc gyn is on 10/7 - I have a long list of questions for him.....Trust me!!

 

Heatherlynn707
Posts: 20
Joined: Sep 2019

Thanks so much for the clarifiction.....I have a list of questions for my doctor to ask during my consult.

I have done so much research in the last few weeks and I have compiled a ton of information - probably too much!  LOL!

I want to ensure I am prepared and the Doctor can make decisions while I am under rather than going through multiple procedures.

I will know more and will update 10/7......I hate waiting!!

:)

Heatherlynn707
Posts: 20
Joined: Sep 2019

LisaPizza!

So my surgery is scheduled for 10/25.  My onc gyn indicated he will be removing uterus, cervex, tubes and ovaries.  They will perform intraoperative pathology while under and if cancer is present, they will remove lymphnodes.  He indicated that if he views any lymphnodes that appear to be suspect, he will remove regardles of pathology findings.  Thanks so much for your input, it was extremely helpful.

Will keep you posted!!

Fight on!!  

--H

MoeKay
Posts: 215
Joined: Feb 2004

I had a radical hysterectomy for my endometrial cancer, but my gyn-onc didn't make the decision on which surgical procedure I would be having until I was on the operating table and he was able to assess my situation.  My tumor arose in the lower uterine segment, close to the cervix, so my surgeon stated in his operative report:  "the nature of the tumor was such that it was decided to go ahead and perform this wide excision (Type II radical hysterectomy)."  When I signed my consent forms for surgery, both procedures were listed in the document, to allow for the most medically appropriate decision to be made at the time of surgery.  Of course, my surgery was 20 years ago, so perhaps things might be different today. 

It sounds like Heatherlynn has not yet had her consult with the gyn-onc, so I suspect he or she will talk to her about the various surgical options at her upcoming appointment.

Heatherlynn, best of luck to you!

NoTimeForCancer's picture
NoTimeForCancer
Posts: 2591
Joined: Mar 2013

MoeKay, my surgery was seven years ago and I signed for the option for the open incision.  My gyn onc said, yes, the plan is the DaVinci, but if he got in there and saw something, he wanted to option for full abdominal surgery.  I knew that and I told my friend the first thing I wanted to know when I woke up was what TYPE I ended up having.  

Heatherlynn707
Posts: 20
Joined: Sep 2019

Consult is on 10/7......until then, I wait and compile what will be an incredibly long list of questions!

There is really too much ifnormation and I am no new to this that all the differences in types of Hysterectomy differ from person to person......

To be honest......totally overwhelmed!!

Thank you for the support!

NoTimeForCancer's picture
NoTimeForCancer
Posts: 2591
Joined: Mar 2013

Miss Heather, is anyone going with you to the consult?  Someone good at notes so you can sit and pay attention and they can just be your scribe?  A second set of ears might be helpful with everything that will be discussed, and your questions you want to ask.

Heatherlynn707
Posts: 20
Joined: Sep 2019

Oh yes....my husband and my friend!!  I figure between the 3 of us, we’ll get it right!!  I imagine it going something like this....please take it out....they put in for the authorization...wait for the approval and schedul!!  Hopefully, it will be that quick!!!

Fridays Child
Posts: 70
Joined: Jul 2019

When my brother went to consult about the possibility of a bone marrow transplant (years ago), he took a small dictation recorder and the doctor agreed for him to record the discussion so he could listen again later.  I was with him and we both took notes, but he was glad to have the backup.  It's even easier now with phones that can do the recording for you, if the doctor is agreeable.

Northwoodsgirl
Posts: 536
Joined: Oct 2009

HeatherLynn707, Seems like most gyn/oncologists are scheduled out about 2 weeks so don’t be surprised. You may want to contact “member services “ at your health insurance company and ask if the surgeon, hospital, anasthesiologist and even radiologist group are “in-network “ with your plan benefit package. Some of us incurred unexpected ”out -of-network “ costs because although the hospital and oncologist were “in-network” the radiology, anasthesiology, pathology groups practicing within the hospital were NOT “in-network “. I experienced  situation and paid thousands of dollars out of pocket. There has been some new legislation introduced at the federal government level to make this scenario transparent to us as health care consumers. Your Oncologist won’t know specifically who the individual anasthesiologist will be but they certainly know the name of the anasthesiology group who staff’s the oncology surgical cases.  The reason they can’t tell you a specific name is because the surgical schedule won’t be determined on the day you see your oncologist for your pre-op consult. I hope you are still managing OK through all you are going through. Keeping you in my prayers that you will not be diagnosed with cancer. 

((Hug))

Lori

Heatherlynn707
Posts: 20
Joined: Sep 2019

Thanks Lori for the great information!!  I will be sure to ask these at my appointment assuming we get straight into scheduling since I already know what I would like to do!  I also received word from a friend of mine who's a nurse indicated that I have the best doctor in town!!  She said he is amazing!!  Laughing

Northwoodsgirl
Posts: 536
Joined: Oct 2009

That’s so great that your RN friend has confidence in your Gyn/Onc surgeon. Nurses tend to know who the really good and not so good doctors are based on observation and experience. Typically their opinion is not just based on whom they ”like”. 

Having confidence and good communication with one’s physician and their nurse practitioner will make your overall experience more positive. 

Many of us on this forum are counting the days with you until your appointment.  Isn’t it strange how everyone else goes on with their daily routines and only those who are going through or have gone through a health crisis feel like all the clocks should stop or speed up to make the unknown diagnosis known. Any emotion or feelings you are having are “normal” as you approach Oct. 7.  Remember the women on this discussion board are here to support you and help you no matter what your diagnosis is. Keep strong! 

((Hug))

Lori 

Heatherlynn707
Posts: 20
Joined: Sep 2019

Hello all!!  Met with the oncologist gynecologist today.....radical hysterectomy scheduled for 10/25.  Happy with my Dr. and my staff!  I did a ton of research and my Dr. indicated that I was an easy patient and honestly anticipated my questions!  Not too excited about the amount of bowel prep.....oh and....my surgery is set for 3:30pm :(.  I will starve!!  Oh well, I wanted the first available!!  Pathology will be performed during procedure and if cancer is found, he will go back in and take lymphnodes.  He Indicated that lymph nodes looked suspect, he will take them also for pathology.  He did indicate with my history and symptoms, finding cancer may be likely but he won't be sure until he is in there!  da'Vinchi approach with the option to go open abdomen if needed.  Will keep you all posted!  Thanks so much for all if you're support!!  Fight on!!

Armywife's picture
Armywife
Posts: 315
Joined: Feb 2018

Ok, girl - sounds like you've got a good plan!  My surgery was done with DaVinci, and the recovery was much easier than I anticipated!  Blessings!

MugsBugs
Posts: 109
Joined: Jan 2018

Heather:

Good luck with your journey!  The hysterectomy wasn't as bad as I anticipated.  The gals here provided me some very good advice on making the journey easier.  I am so glad they did because it made the surgery so much easier.

1.  Buy GasX and take it to the hospital.  They blow you up with gas and it can be painful after surgery.

2. Buy a Belly Band (I bought mine off of Amazon).  It provides support to you tummy after surgery and helps you feel more secure when walking.

3. Take a pillow with you to the hospital to use as a brace on the ride home.  The home wasn't bad but the pillow helps brace your belly on the ride home.

4. I wasn't going to take any pain meds, except for Tylenol.  They gave me Percoset.  I didn't want to take them because I had a beloved Aunt who was addicted to Oxy and overdosed.  After 16 hours at home I finally broke down and took one - it was wonderful and I slept like a baby.  I didn't need them anymore after 3 days.

5.  Talking about pain meds - make sure you have Docalax on hand to get ahead of the constipation which is caused by the pain meds - you don't want that.

6.  Listen to you doctor - no lifting for 6 weeks - which means no housework. 

Statistically, if you do have cancer it is probably early and the hysterectomy will take care of it.  I was one of the lucky ones that I didn't require any more treatment (except follow-ups) after the hysterectomy.

 

Good luck!

Kaleena's picture
Kaleena
Posts: 1975
Joined: Nov 2009

Don't forget to walk as soon as you can. It helps get everything moving!

Northwoodsgirl
Posts: 536
Joined: Oct 2009

Thanks for your update. It sounds like you have a plan and your doctor was able to answer questions and instill confidence. That’s so important. Keeping you in my thoughts and prayers for good outcome. Try to wear a comfy pair of yoga pants or something without a tight waistband. Even your bra should be extra comfy like a strech bra for after surgery because there will be swelling. Even consider wearing shoes that slip on so you don’t need to bend over to put them on. Also when they discharge you make sure you bring a couple of those blue nausea bags with you in the car.... just in case. They are handy once you are home too. Have clean sheets, pillowcases and pajamas to slip into once you get home. This is important for your comfort and for infection prevention. Yes, being nit able to eat or drink so late in day is not ideal but I’m with you in getting the surgery done as soon as possible. Take care and keep us posted . We are here for you HeatherLynn707! 

Lori

Heatherlynn707
Posts: 20
Joined: Sep 2019

Thank you Lori!!  Appreciate the support!

zsazsa1
Posts: 343
Joined: Oct 2018

Heatherlynn, my experience of the surgery was that it was very easy (total laparascopic hysterectomy with sentinel nodes).  Recovery was easy, and I'm about a decade older than you.  Look at it this way: there's a good chance they won't find any cancer, and then you never have to worry about uterine or ovarian cancer again.  And if they DO find cancer, it will probably be a very early stage, not advanced, and it may be all the treatment you need.  It will all probably be fine.  Hardest part is probably gonna be waiting for the surgery and pathology results.

Heatherlynn707
Posts: 20
Joined: Sep 2019

Hello Ladies!!

Received a phone call from my Dr. today.....great news!!  They had a cancellation and my surgery date was moved up to a week from tomorrow!  I received the first surgery of the day vs. a 3:30pm surgery time!!  I am excited and terrified all at the same time!  Thanks to all for your support!  So much gratitude!  I am hopeful that this will be the only treatment I need but if not, I know that I am not alone.  They will perform pathology intra operative with a full pathology to follow a couple of days later.  Keeping my fingers crossed and saying a bunch of prayers.  Fight on ladies!!  

Embarassed - Heather

ConnieSW's picture
ConnieSW
Posts: 1456
Joined: Jun 2012

delighted to learn your good news. 

Heatherlynn707
Posts: 20
Joined: Sep 2019

It's getting close so I am happy!  I am nervous but I know that all will be well!

Fight On!!

TeddyandBears_Mom's picture
TeddyandBears_Mom
Posts: 1552
Joined: Jun 2015

That's good news for sure Heather. And, having the first appointment is so much better. Please let us know how things  go!

Love and Hugs,

Cindi

Heatherlynn707
Posts: 20
Joined: Sep 2019

Thank you so much Cindi!  

Heatherlynn707
Posts: 20
Joined: Sep 2019

Hello ladies! Just wanted to check in and let you know that I am now two days post op. They did end up taking both ovaries both fallopian tube's cervix and uterus and they did actually take nodes.  I am assuming that nodes were taken because the frozen section was positive. I know Have to wait for the final pathology for any clear answers. The good news is is that I am feeling better each day and I don't regret my decision for a second. I will continue to keep you guys updated once I get my full pathology back.

Kaleena's picture
Kaleena
Posts: 1975
Joined: Nov 2009

Thanks for checling in And I am glad that you are feeling better.  Take care but don't over do it.  

Kathy

Forherself's picture
Forherself
Posts: 223
Joined: Jan 2019

Just a few more days to wait.   I am glad they did a full staging procedure.  I have thought all along you are getting really good care, and I still do.   So glad you are recovering well.  

TeddyandBears_Mom's picture
TeddyandBears_Mom
Posts: 1552
Joined: Jun 2015

Thanks for checking in! Glad that your surgery went well and they took samples. This will give you the best information for going forward.

Remember to walk, rest and don't lift anything over 10 lbs. Give your body time to heal. 

Please stay in touch. We will be here for you every step of your journey.

Love and Hugs,

Cindi

Heatherlynn707
Posts: 20
Joined: Sep 2019

Hello Ladies!!  The fog is lifting.....Final Pathology Report is in.....despite my doctor being on vacation and the office staff telling me I would have to wait until 11/25 (my follow up appointment) to receive my report!

I went down to the hospital and had my results within 5 minutes......it really shouldn't be this difficult for a patient to receive their own report and it is certainly rude to expect a patient to wait over a month to find out if they had cancer.  Keeping in mind that I came out of anesthesia poorly and needed to be sedated :( - apparently I came out fighting so it is all a big blur - this information may have been conveyed to me but I was totally out of it!!  

I love my Doctor but I am not a fan of his staff.......

Results below:

  1. Endometrial adenocarcinoma, endometriod type FIGO grade 1, limited to endometrium, arisingin association with polypoid EIN.
  2. Cervix with chronic cervicitis and squamous metaplasia, negative for dysplasia and carcinoma
  3. Serosa, bilateral fallopian tubes and ovaries with no specific pathologic changes, negative for carcinoma
  4. Left Pelvic Lymph Nodes dissection - six - negative
  5. Right Pelvic Lymph Node dissection - two - negative

Obviously this was the second best result desired!!  First being, no cancer, of course.  The relief I felt after receiving this information today is unexplainable and now I finally feel as though I can rest and start the healing process!!  

I am so grateful to all of you wonderful ladies for all of the support and well wishes!  I feel a million times better than I did yesterday and believe that I will fill even better tomorrow.  The bloating and swelling has finally disapaited and I have been off of pain meds since Saturday night.  I finally feel like I can breath and rest.  I have not been alone since my surgery - blessed beyond measure!!  Tomorrow will be my first day alone after my husband leaves for work and I am off work until 11/11!  I look forward to getting back to my normal self with a new focus on getting healthy and listening to my body.  I was able to see my accupunturist today and she will help me focus on healing my body!!  I am experiencing some neuropothy in my upper left thigh....Have any of you experienced this?  One last question.....upon follow ups, what should I expect?  Will they be scans or just pelvic exams???

Once again, thank you so much for all of the information, support and kindness!

Fight On!!

Heather

EZLiving66's picture
EZLiving66
Posts: 1357
Joined: Oct 2015

I am so happy to hear your report! I agree 100%, a month is WAY too long to wait for that all-important report. 

Love, 

Eldri 

MAbound
Posts: 871
Joined: Jun 2016

So glad that they caught and removed your cancer early! I had the same numbness in my left thigh that you are describing after surgery. I was told that it was from the position they put you in for the surgery. It will return to normal, but it may take a while. Enjoy the rest of your life!

pato58's picture
pato58
Posts: 102
Joined: Jun 2018
Heatherlynn707
Posts: 20
Joined: Sep 2019

Not positive about the wash....not sure it was done???  I will ask the Dr. at my follow up.  The LVI was "not identified" so I am assuming negative for carcinoma....but will double check.  Keep in mind, I am my own Dr. right now....I obtained my report on my own and am translating what I can identify.  I am pretty good at this after having been a part of too many people close to me with cancer!!  I am able to work my way through the report enough to know that I am in the clear and don't think that I will need further treatment other than follow ups to watch closely!!

 

pato58's picture
pato58
Posts: 102
Joined: Jun 2018

for sure. I was getting every 4 months only pelvic check-ups and he now decided that he can see me every 6 months, which gives me a little more anxiety. Enjoy the moment! 
LVI not identified is good!

 

LisaPizza's picture
LisaPizza
Posts: 219
Joined: Feb 2018

Fantastic second best result, as you say. Congratulations!

Forherself's picture
Forherself
Posts: 223
Joined: Jan 2019

I can't believe the office said you have to wait so long for pathology.  Good for. you not settling for that.   Great pathology report.  Thank you for coming back and sharing your good news.

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