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CAR-T firsthand accounts

ShadyGuy
ShadyGuy CSN Member Posts: 949 Member
in Lymphoma (Hodgkin and Non-Hodgkin) #1

Is anyone willing to share their experiences with CAR-T? Any recent news on the topic? I only know the little bit I have read in the media.

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Comments

  • po18guy
    po18guy CSN Member Posts: 1,557 Member
    #2
    A different case, but some indication

    Here is a thread in which the patient with ALL (NOT a good blood cancer at all) was placed in full response by CAR-T. The side effects were rather concerning, but all worked out well. Advancement is very rapid in CAR-T. Jeff Bezos (Amazon) funded an entire wing at the Seattle Cancer Care Alliance to care for patients and develop CAR-T.

    https://www.cancerforums.net/threads/56270-Car-t

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  • ShadyGuy
    ShadyGuy CSN Member Posts: 949 Member
    #3
    po18guy said:

    A different case, but some indication

    Here is a thread in which the patient with ALL (NOT a good blood cancer at all) was placed in full response by CAR-T. The side effects were rather concerning, but all worked out well. Advancement is very rapid in CAR-T. Jeff Bezos (Amazon) funded an entire wing at the Seattle Cancer Care Alliance to care for patients and develop CAR-T.

    https://www.cancerforums.net/threads/56270-Car-t

    thanks

    good info.

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  • Evarista
    Evarista CSN Member Posts: 336 Member
    edited August 2019 #4
    LLS Groups

    Shady, there is a CAR-T group on the LLS Groups website:  https://communityview.lls.org/sign_in  There are several people there who have andr who currently are sharing their CAR-T experiences.  Registration there is almost exactly the same as here and you can participate in multiple groups.  

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