Might be back

dl650a
dl650a Member Posts: 37

It's been quite awhile since I checked in.  I had a nephrectomy for rcc over seven years ago.  A month or so ago, I was feeling fatigued and had the Dr order blood work which showed my homoglobin down at 8, so she ordered a CT scan as well as upper and lower GI checks.  The CT scan came back showing possibly some masses in the lymph nodes in the abdomen (on the other side fro the original surgery).  Biopsy was done last week and the results came through a couple of hours ago that the RCC is back.  Waiting to hear from urologist and oncology now.

 

I'll be in touch,

Ed

Comments

  • eug91
    eug91 Member Posts: 395 Member
    I'm so sorry-

    That's awful. It must be an absolute shock. Please be good to yourself tonight - then tomorrow, you can take it on. You got through once before, you absolutely can do it again. 

    Sending you prayers and positive thoughts. We're here for you - you've got this.

  • ChristineCD
    ChristineCD Member Posts: 11
    Sorry

    So sorry you are having to go through this again. I cannot imagine. Hope you and your doctors come up with great plan of attack.  What was the original size and grade and type? was it a full or partial nephrectomy? 

  • APny
    APny Member Posts: 1,995 Member
    I am so sorry you are facing

    I am so sorry you are facing this again. Wishing you the very best resolution for this.

  • daisybud
    daisybud Member Posts: 535 Member
    So very sorry

    Sending prayers

  • Dominick0711
    Dominick0711 Member Posts: 99 Member
    Hey

    Ed, thinking of you and hoping for the best!  Please come back and let us know how you are doing!  

  • Allochka
    Allochka Member Posts: 1,022 Member
    Very sorry to hear this...

    Very sorry to hear this... Good luck to you, this is a hard time for sure, but there are many possibilities to beat it these days

  • AnnissaP
    AnnissaP Member Posts: 632 Member
    I'm so sorry to hear this.

    I'm so sorry to hear this.

  • Bryn1108
    Bryn1108 Member Posts: 97 Member
    Prayers lifted up

    Praying hard for you,  I know how you feel , Aug 15th I was told I have a mass on my spine now.  Be strong , you can do this. 

  • Manufred
    Manufred Member Posts: 241 Member
    News?

    Ed,

    Obviously a difficult time for you.  Can you share any latest developments with us?  I'm four years out but still apprehensive.

    Best Wishes,

    Fred 

  • stub1969
    stub1969 Member Posts: 959 Member
    uff-da Ed

    This is a tough one to hear.  I'm sure your oncologist will develop a good plan for you.  Until that happens, educate yourself so you are part of the process to develop the plan.  I'm looking forward to hearing good results as you move forward.

    Stub

  • dl650a
    dl650a Member Posts: 37
    stub1969 said:

    uff-da Ed

    This is a tough one to hear.  I'm sure your oncologist will develop a good plan for you.  Until that happens, educate yourself so you are part of the process to develop the plan.  I'm looking forward to hearing good results as you move forward.

    Stub

    I am back

    Sorry that I haven't been on for a couple of months.  I think I was in denial.

     

    Anyways, my CT scan a week ago showed some growth from from the July scan.  As a result I will be starting Votrient sometime tihis week.  I'm waiting for the pharmacist to look over the most recent blood work and EKG.  From what I've read, I'm not particularly looking forward to the likely side effects.  But it sounds like that's in store for me for awhile.

    I''l be on the forum more often again and let you know how things go.

     

    Ed

  • citizenklaw
    citizenklaw Member Posts: 61 Member
    Sorry to hear...

    This is sobering. Especially for me after receiving my NED this past Friday. Have courage and strength. You'll pull through. A reminder that we all need to be vigilant.

  • eug91
    eug91 Member Posts: 395 Member
    dl650a said:

    I am back

    Sorry that I haven't been on for a couple of months.  I think I was in denial.

     

    Anyways, my CT scan a week ago showed some growth from from the July scan.  As a result I will be starting Votrient sometime tihis week.  I'm waiting for the pharmacist to look over the most recent blood work and EKG.  From what I've read, I'm not particularly looking forward to the likely side effects.  But it sounds like that's in store for me for awhile.

    I''l be on the forum more often again and let you know how things go.

     

    Ed

    if you haven't already-

    Consider signing up over at smartpatients.com. Posters there who have firsthand experience with Votrient and can share their experiences. 

    Good luck, Ed. We're with you. 

  • dl650a
    dl650a Member Posts: 37
    eug91 said:

    if you haven't already-

    Consider signing up over at smartpatients.com. Posters there who have firsthand experience with Votrient and can share their experiences. 

    Good luck, Ed. We're with you. 

    Thanks for the link

    Eug91,

     

    Thanks for the info.  I'll check it out.  This morning I took my first dose.  I think it'll take at least a few days to see if I feel any different.

     

    Ed

  • Deanie0916
    Deanie0916 Member Posts: 571 Member
    So sorry to hear this

    I hope and pray it all goes well.