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Might be back

dl650a
Posts: 37
Joined: Feb 2012

It's been quite awhile since I checked in.  I had a nephrectomy for rcc over seven years ago.  A month or so ago, I was feeling fatigued and had the Dr order blood work which showed my homoglobin down at 8, so she ordered a CT scan as well as upper and lower GI checks.  The CT scan came back showing possibly some masses in the lymph nodes in the abdomen (on the other side fro the original surgery).  Biopsy was done last week and the results came through a couple of hours ago that the RCC is back.  Waiting to hear from urologist and oncology now.

 

I'll be in touch,

Ed

eug91's picture
eug91
Posts: 156
Joined: Jan 2019

That's awful. It must be an absolute shock. Please be good to yourself tonight - then tomorrow, you can take it on. You got through once before, you absolutely can do it again. 

Sending you prayers and positive thoughts. We're here for you - you've got this.

ChristineCD's picture
ChristineCD
Posts: 11
Joined: Aug 2018

So sorry you are having to go through this again. I cannot imagine. Hope you and your doctors come up with great plan of attack.  What was the original size and grade and type? was it a full or partial nephrectomy? 

APny's picture
APny
Posts: 1949
Joined: Mar 2014

I am so sorry you are facing this again. Wishing you the very best resolution for this.

daisybud's picture
daisybud
Posts: 461
Joined: Jan 2016

Sending prayers

Dominick0711's picture
Dominick0711
Posts: 90
Joined: Jan 2019

Ed, thinking of you and hoping for the best!  Please come back and let us know how you are doing!  

Allochka's picture
Allochka
Posts: 874
Joined: Nov 2014

Very sorry to hear this... Good luck to you, this is a hard time for sure, but there are many possibilities to beat it these days

AnnissaP's picture
AnnissaP
Posts: 631
Joined: Sep 2017

I'm so sorry to hear this.

Bryn1108's picture
Bryn1108
Posts: 83
Joined: Jul 2017

Praying hard for you,  I know how you feel , Aug 15th I was told I have a mass on my spine now.  Be strong , you can do this. 

Manufred's picture
Manufred
Posts: 239
Joined: May 2017

Ed,

Obviously a difficult time for you.  Can you share any latest developments with us?  I'm four years out but still apprehensive.

Best Wishes,

Fred 

stub1969's picture
stub1969
Posts: 800
Joined: Jul 2016

This is a tough one to hear.  I'm sure your oncologist will develop a good plan for you.  Until that happens, educate yourself so you are part of the process to develop the plan.  I'm looking forward to hearing good results as you move forward.

Stub

dl650a
Posts: 37
Joined: Feb 2012

Sorry that I haven't been on for a couple of months.  I think I was in denial.

 

Anyways, my CT scan a week ago showed some growth from from the July scan.  As a result I will be starting Votrient sometime tihis week.  I'm waiting for the pharmacist to look over the most recent blood work and EKG.  From what I've read, I'm not particularly looking forward to the likely side effects.  But it sounds like that's in store for me for awhile.

I''l be on the forum more often again and let you know how things go.

 

Ed

eug91's picture
eug91
Posts: 156
Joined: Jan 2019

Consider signing up over at smartpatients.com. Posters there who have firsthand experience with Votrient and can share their experiences. 

Good luck, Ed. We're with you. 

dl650a
Posts: 37
Joined: Feb 2012

Eug91,

 

Thanks for the info.  I'll check it out.  This morning I took my first dose.  I think it'll take at least a few days to see if I feel any different.

 

Ed

citizenklaw
Posts: 45
Joined: Mar 2019

This is sobering. Especially for me after receiving my NED this past Friday. Have courage and strength. You'll pull through. A reminder that we all need to be vigilant.

Deanie0916
Posts: 259
Joined: Nov 2016

I hope and pray it all goes well.

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