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Janet920's picture
Janet920
Posts: 9
Joined: Feb 2019

hello all.  I have stage 4 kidney cancer kidney Which has spread to other areas. im currently on immunotherapy opdivo every two weeks. I know im not alone but i feel so alone. I have no pain just very very tired. Just wanted to share. 

cubsfan9
Posts: 66
Joined: Oct 2013

Good Morning, Janet!

Welcome to the club nobody wants to join...but here we are!  I can't offer any insights about immunotheapy as my husband is on a TKI (Sutent) and has been for 6 1/2 years..  However, it does seem that many of the various treatments cause fatigue.  As time goes on you will find ways to modify/adapt your activities to deal with feeling tired.  Naps are acceptable!!!  It's all part of the New Normal.

eug91's picture
eug91
Posts: 120
Joined: Jan 2019

You're not alone. We're here if you have questions or want to just share or vent. 

Good luck with the treatment. We're with you. 

MelBlessed's picture
MelBlessed
Posts: 71
Joined: Aug 2017

I’m sorry you are here, but you will find this board is full of loving and supportive people.  Sending prayers for you and all.

Canadian Sandy's picture
Canadian Sandy
Posts: 484
Joined: Jul 2016

You will find lots of help here. Glad you found us.

 

AliceB1950's picture
AliceB1950
Posts: 28
Joined: Jun 2019

Welcome, Janet.  You'll find people here who are going through similar treatments who will offer support and advice, and people with different diagnoses and treatments who will offer friendship.  It's a good place.

Janet920's picture
Janet920
Posts: 9
Joined: Feb 2019

Since talking to you all I’ve  been in the hospital since Thursday. I came in severely dehydrated and very very low blood pressure. I developed other things as well. It’s just so tough. Im hoping to go home tomorrow. 

eug91's picture
eug91
Posts: 120
Joined: Jan 2019

Sending you prayers. Hope you recover soon! 

Tapman63's picture
Tapman63
Posts: 135
Joined: Dec 2017

And come back anytime you need to talk or vent.  The folks here are full of understanding and support!

Cybball
Posts: 111
Joined: Nov 2017

You are not alone.  We all have gone through that feeling.   This site helped me survive.   Stay strong.   

Janet920's picture
Janet920
Posts: 9
Joined: Feb 2019

Thank you all - i am truly feeling a lot better.  Being in the hospital sucks but it's where I needed to be.  I'm just getting use to my new routine, new meds. I still do immunotherapy every two weeks which has kept the tumors at bay. I spent the other day back to school shopping with my young granddaughter. It was a nice relief. I appreciate the kind words. 

Manufred's picture
Manufred
Posts: 225
Joined: May 2017

Janet,

I did Opdivo for 3 years as part of a trial, and have not had any signs of tumours now for about 2 and a half years.  Full details are on my profile page.  I hope you have a similar outcome.

Best Wishes,

Fred

Janet920's picture
Janet920
Posts: 9
Joined: Feb 2019

Thanks Fred. I read on your experience. Tomorrow i go for a CT Scan to see the progress. I am always a little nervous.  I’m hoping for the best. 

Deanie0916
Posts: 241
Joined: Nov 2016

Sorry that you are part of this club no one wants to join. Hope you're feeling better soon and adjust well to your new routine. Prayers for you.

Janet920's picture
Janet920
Posts: 9
Joined: Feb 2019

This board is a tremendous help. I appreciate the encouragement and prayers. I say the same to everyone here!

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