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Sleeping..

mojogirl67's picture
mojogirl67
Posts: 247
Joined: Oct 2018

Wondering if anyone else has sleeping issues since having chemo. I have NEVER had such a hars time with sleep. My body is tired most nights but it doesn’t make a difference. Sleep will not come some nights. I have fought taking anything on a regular basis but I know how important rest is. I have tried melatonin, various natural supplements and teas. I walk 3 miles a day and I’m very active and limit computer or tv before bed. Nothing works. Tylenol PM seems to have a delayed reaction leaving me groggy for the first part of the morning and plus, I don’t want to tax my liver wit it. Part of me says after chemo, nothing could be any worse for wear. I meditate as well but sleep just seems to be hit or miss. When my husband was alive, he would laugh because I would curl up next to him and be dozing and snorting within 10 minutes as he watched sports recaps before bed.. lol.. how I long for those peaceful dreams again. I am scared of the Ambien and other stronger sleep aids. Any suggestions appreciated. Hugs, M

Steelkiwi686's picture
Steelkiwi686
Posts: 45
Joined: May 2019

MMJ may help if you are lucky enough to being in a legal state. 

SandiaBuddy's picture
SandiaBuddy
Posts: 878
Joined: Apr 2017

I have been doing a bit better on sleep lately, maybe it is the distance from chemo or maybe it is better strategies.  I take melatonin for its anti-cancer effect.  The usual dose is 20mg, something I worked up to.  But at that dose, it seemed to hurt my sleep, so I have backed off to 10mg.  I also take Magnolia Bark Extract at night which is supposed to make you sleepy, I really have not noticed that it works (once again, for the anti-cancer effect).  I like beer, but I drink red wine most nights (. . . once again for its anti-cancer effect).  It seems like that likely helps with sleep a bit too.  Sleep is essential.  Not to make light of it, but one of my slightly humorous sayings is, "the challenge of youth is getting a date.  The challenge of age is getting a good night's sleep."  Cheers.

abita's picture
abita
Posts: 606
Joined: Dec 2017

Wine has an anti cancer effect? I have been wondering how hard it is on the liver while I am on chemo. I would love to have a glass maybe once every two weeks. I am so worried about doing anything stressful to my liver since it will be getting chemo for so long. 

SandiaBuddy's picture
SandiaBuddy
Posts: 878
Joined: Apr 2017

Link

Colon cancer patients with a healthy body weight who engaged in physical activity, ate a diet high in whole grains, vegetables, and fruits and low in red/processed meats, and drank moderate alcohol had longer DFS and OS than patients who did not engage in these behaviors.

SandiaBuddy's picture
SandiaBuddy
Posts: 878
Joined: Apr 2017

https://cancerci.biomedcentral.com/articles/10.1186/s12935-019-0906-y

A number studies have supported the potential effects of resveratrol in CRC treatment. This polyphenol compound represents different properties including antioxidant, anti-inflammatory, apoptosis inducer, and anti-angiogenesis efficacy. Due to these significant effects, resveratrol is suggested as a novel therapeutic agent for cancers. Moreover, some studies reported that consumption of resveratrol in combination with other anti-cancer drugs can increase their effects and also decrease their side effects. Thus, this multi-tasking compound can be a new candidate in CRC treatment however, more human studies are needed.

abita's picture
abita
Posts: 606
Joined: Dec 2017

I can say sleeping is tough while on chemo. I actually signed up for help with my sleep. But I have always had sleep issues and the cancer anxiety has magnified it.

Ruthmomto4's picture
Ruthmomto4
Posts: 634
Joined: May 2013

two Tylenol pm‘s every single night, and I did for 12 years. Now I simply take 2 benadryl pills since that’s what puts you to sleep. I am horrible at shutting my mind off at night and need help. I usually take it by 9 pm every night and I am fine in the morning. Lunesta is good from what I have been told and less risky than Ambien.

JanJan63's picture
JanJan63
Posts: 2482
Joined: Sep 2014

I'm very lucky that I tend not to have trouble sleeping or getting to sleep. But I've heard that things like Benadryl, as Ruthmomto4 mentioned, or Gravol, or things that make you sleepy can really help. Even Nyquil helps my daughter sleep, she swears by it. 

I hope something will help, not being able to sleep is horrible.

Jan

Kazenmax's picture
Kazenmax
Posts: 349
Joined: Feb 2016

I have a really hard time going to sleep and staying asleep. I’m tired but i just can’t turn off my mind.

i take 10 mg melatonon and 1 benedryl every night. Sometimes it works and other times it does not. I’ve started reading a couplie chapters before I go to bed. Turn off the electronics and tv and just read for about a half hour. That seems to help.

while I was on chemo, my doctor gave me ambien. That definitely worked but I really don’t want to take drugs like that.

i don’t take any Tylenol pm or Advil pm because I don’t want to over stress my liver.

k

Trubrit's picture
Trubrit
Posts: 4827
Joined: Jan 2013

I found that, after chemo, I had to 'train' myself into a sleep routine. It didn't happen over night, but it did happen. 

I use Zen type music, and I literally had to force my mind to quiet.  During chemo, I did that with a guided imagery CD - and that worked miraculously for me.

A steady, consistent bedtime ritual may also help.  Turn off the TV & Computer at least an hour before bed. Read a book (not on an electronic), or have a bath. Meditate. Whateever works for you persoanlly to turn off your brain. 

I avoid OTC drugs at all costs.

Each to his own, and these are only my thoughts and what has worked for me. 

 

Kazenmax's picture
Kazenmax
Posts: 349
Joined: Feb 2016

Tru,

Just curious. Why do you suggest avoiding OTC drugs? Is there a problem with them? I thought Benadryl was safe.

thanks for any info.

k

SandiaBuddy's picture
SandiaBuddy
Posts: 878
Joined: Apr 2017

There is some evidence that benadryl is linked in the long term with dementia/alzheimer's disease.  I used to take it liberally, but I have tried to cut back since my mother had alzheimer's and I have seen how miserable that disease is.

Trubrit's picture
Trubrit
Posts: 4827
Joined: Jan 2013

That was totally worded wrong. Thank you for pointing that out.

I shall change it to 'I avoid OTC at all cost'.  

Tru

Kazenmax's picture
Kazenmax
Posts: 349
Joined: Feb 2016

Tru, I wasn’t pointing out anything. I was asking why. i had heard about the link to dementia so I am going to cut back and try melatonin alone. Is there another reason to avoid?

thanks

k

SandiaBuddy's picture
SandiaBuddy
Posts: 878
Joined: Apr 2017

I think Tru is referring to the informal rule of etiquette on this board where we try to say what we do and why, but not to tell someone else what to do or why.

Trubrit's picture
Trubrit
Posts: 4827
Joined: Jan 2013

But if all else fails, try some CBD products. Just enough to chill you out to sleep.  

 

Some companies have just the right amount to induce sleep - one company is called SUTH and the product is called Nighty Night. Sugar Free Mints.

 

I have a trial pack sitting in my bathroom, but haven't used it yet. 

 

Good luck!  It is so hard to just lay there, waiting for sleep to take you.

 

Tru

myAZmountain
Posts: 256
Joined: Apr 2018

I found myself waking up often throughout the night and finally figured out it was a couple of lights that were disrupting my sleep--a very strong outdoor light of a distant neighbor, and the light on the alarm box--also the bedclothes were to heavy  for summer and I substituted a linen sheet--maybe there are some things like that stealing your slumber? I take melatonin 5 mg and sleep well now--have some crazy dreams though and I drink so much water all day I have several potty trips too. Sleep is so restorative I hope you can find the formula that works for you!!

Annabelle41415's picture
Annabelle41415
Posts: 6181
Joined: Feb 2009

I've taken Ambien since diagnosis.  I'm on a 5mg tablet and cut it in half and only take half at bedtime.  If I'm not able to get back asleep during the night after going the bathroom I'll take the other half.  It usually keeps me asleep the whole night.  My mind races constantly at night and have a hard time shutting it off.  Sometimes the TV works in the middle of the night, but most times I'll get interested in the program I'm watching and then end up never going to bed.

Kim

abrub's picture
abrub
Posts: 2094
Joined: Mar 2010

I've been sleeping through the night for the first time in YEARS.  It is by prescription as an anti-depressant, but in very low doses is used off-lable for sleep.  (My therapist recommended it, after we determined that Ambien and I could not be friends!)  I'm sleeping well, and awaking refreshed.  I take 50mg at bedtime.  (My husband uses 75mg at bedtime for restless leg and sleep.)  I was pleasantly surprised how well it seems to be working.

Alice

beaumontdave's picture
beaumontdave
Posts: 992
Joined: Aug 2013

 

Let's see, I used to take meletonin for sleep and anti-cancer properties but it was hit and miss, and I read articles that opposed it's use. I use benadryl occassionally, but I do wake a little groggy from it. If I have to sleep and can't, 2 of the .5 Xanax are a guaranteed good night's sleep, but more than occasional use will thwart it's effects. The best way for me to get sleep is to get the room cold and read or watch something technical, always puts me out. I don't sleep well in heat in any case. I don't recall how it was with chemo, but I'll soak my head and go outside for awhile to get cool enough to sleep, anytime I feel the need. I hear bad things about getting hooked on Ambien and the others of its kind, so I don't try them. Hang tough...................................................Dave 

Butt's picture
Butt
Posts: 299
Joined: May 2018

I was prescribed lozerepam 1 mg. Did its job.

SoCal42's picture
SoCal42
Posts: 41
Joined: Jul 2017

I know the Decadron steroid I take with my infusions make it very hard to sleep for the first three days. I haven’t really found a solution, except to be willing to nap during the days as needed and I’m catching my up on a lot of TV shows I never watched when I was working! The Decadron really helps my severe nausea, so I’m willing to deal with it.

Twinzma
Posts: 210
Joined: Jan 2018

He is now taking Remeron to get to sleep and it is working beautifully. I take Trazadone for my sleep issues, I have bad anxiety and my mind races at night. as Alice was saying it is an antidepressant but it works well for sleep. Someone else mentioned dementia with Bendryl and I have seen the studies on that myself and am very concerned with long term use, I have to take it quite often for my autoimmune condition. Funny though my body must be so used to it, I do not get sleepy at all from it anymore. And those that have ADHD, have the opposite effect and will get very wired. Talk to your doctor and see what they would recommend as there are so many options. Ambiem scares the bejesus out of me, and if it was me, I would not take it. My dad would sleepwalk when he was on it...Even tried to drive to McDonalds, thank GOD we had the car disabled because of his dementia I would hate to think what would have happened! I do have a friend that uses and is fine with it but.....as with all meds everyone reacts differently. Hope you find what works and get some rest! 

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