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Cystectomy

Rosesforever's picture
Rosesforever
Posts: 31
Joined: Sep 2018

hello all,

does any one have info about radiation cystitis and cystectomy (bladder removal). Any and all information would be greatly appreciateD. Thank you in advance. Best wishes to all cancer survivors. Thank you in advance! 

Forherself's picture
Forherself
Posts: 162
Joined: Jan 2019

I hope that things have worked out for you.  YOur complications have been serious, and I pray that you find relief from this.   I think no one replied because your quesiton was do we have info.  I guess no one does.   Let us know how you are doing?   

Rosesforever's picture
Rosesforever
Posts: 31
Joined: Sep 2018

BTW. Love your horse. Sold my ranch about 4 years ago,,, I miss my horses. 

I‘be been told by uro gynecologist I probably will have to have my bladder removed due to radiation cystitis. I’m going to try Botox/collagen but the prognosis is poor. I’m currently having HBOT to decrease inflammation but again prognosis poor. I’d like to ask others about UTIs. I’m getting them about every 2/3 weeks. They are all different. Current one is ECOC. Has anyone else experienced frequent UTIs? And the rash is horrific. I read all the posts and hugs and best wishes to everyone who is challenged with the effects of cancer. Thank you again for the response. Much love to you all. 

Forherself's picture
Forherself
Posts: 162
Joined: Jan 2019

My husband was a family doctor.  I remember him saying the worst diaper rash he saw was a fungal infection.   Has that been considered?   And maybe an allergic reaction too.?   His older patients tended to get more bladder infections too.  I know you have much more going on, but sometimes theres more than one problem.   I hope. you can get some relief.   

That horse was my once in a lifetime friend and partner in so many good times.  I still have one Morgan.   

Rosesforever's picture
Rosesforever
Posts: 31
Joined: Sep 2018

I wonder if I have a fungus.  It would explain a lot. I’ll Try to check it out. All my docs and nurses just look and say “ oh how awful”,,,, not much Help. I have some powder I may try. Thanks for the suggestion   May I ask how you are doing ? Well I hope. Thank you again.  

Forherself's picture
Forherself
Posts: 162
Joined: Jan 2019

Immediately after my surgery when I woke up in the hospital room, I opened my eyes and had terrible pain.  I think the anesthesiologist taped my eyes shut and must have not closed my lid all the way and scratched by lens.  I could not open my eye becuase of sharp pain.   The nurses and staff were sorry but the pain medication wasnot working.  As mentioned, my husband is a family doctor.  HE said get her some eye drops that numb the eye.  I can't remember the name of the medication.   The nurse had never heard of this.  She went out and called the pharmacy and they did have it.  A few minutes later they put the drops in my eye, and I had immediate relief.   I mention this because each doctor has different skills and knowledge.  

I have my one year check on Tuesday.   It should go ok, I have nothing to report, but it still scares me.   I will report back.  

 

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