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clinical trial for me, I think

jan9wils
Posts: 18
Joined: Mar 2017

Thanks to MABound and LuLu who opened my mind to genomic testing and clinical trials. I am screening for a trial of an immunotherapy drug. Same as LuLu, I'm MSS but have some mutations that make this look promising as a treatment for me. Hoping to stabilize or even better. If all goes as expected with screening I begin the Trial Tuesday after Memorial Day. 

I qualified for three trials but this one had an immediate opening and luckily enough was the one I was most interested in since more is known about this type of therapy. As I already knew with recurrent EC, the prognosis with standart treatments is poor, so I am thankful for having mutations.

ConnieSW's picture
ConnieSW
Posts: 1365
Joined: Jun 2012

You qualify and have great success with the trial. Will be waiting to hear more from you

MAbound
Posts: 723
Joined: Jun 2016

As NoTime recently said, "We all collectively get us down the road." The trial you are embarking on will be of great help to all of us presently here or yet to come. I really hope this works for you!

P.S. Do you think you could write your story on the about me page that we all go to when we click on each others screen names. You've told us a lot already, but it makes it easier to find when we can't keep everybody's details straight.

jan9wils
Posts: 18
Joined: Mar 2017

Okay I've completed the my story page and I apologize for all of the misspelled words! 

derMaus's picture
derMaus
Posts: 503
Joined: Nov 2016

Thank you for updating your About Me page! It really helps us better support one another if we have the facts close at hand. Gracias!

ConnieSW's picture
ConnieSW
Posts: 1365
Joined: Jun 2012

i wish everyone would do that. There are so many of us and sometimes I can't keep things straight. 

Armywife's picture
Armywife
Posts: 191
Joined: Feb 2018

Sure would love to hear more about this.  Thank you for sharing!

jan9wils
Posts: 18
Joined: Mar 2017

Armywife, it is an "open-label, phase 1b multicenter study of IBI308 in subjects with advanced/metastatic solid malignancies (CIBI308A102). The study agent is designed to stimulate the immune system to help it better recognize and attack tumor cells. i'll know more after Monday, fingers crossed my screening goes well. 

SF73
Posts: 238
Joined: Oct 2017

Just read your story. What a warrior you are! This clinical trial sounds very promising. Glad they had an immediate opening. Wishing you all the best! 

Lulu7582's picture
Lulu7582
Posts: 85
Joined: Jun 2018

I just finished my 2nd cycle and had a pelvic scan looks like the little beasts are decreasing in size....but get this somehow the radiologist thinks I have a uterus (CT was done in the middle of the night because I ended up in the hospital needing IV hydration but good now)!!! Haha unless there has been a miracle the uterus was removed back in 2017. Will have a chat with my gyn/onc....obviously someone wasn't awake when they read the scan...oops!!! 

Trial going ok having the usual side effects from the Taxol which is a pain but hanging in there one day at a time. 

So all the best! Keep us posted which trial.. xoxo

derMaus's picture
derMaus
Posts: 503
Joined: Nov 2016

Glad to hear from you, Lulu. May the little beasts continue to shrink...and shrink...and shrink into oblivion! That said, your magical, regerating uterus story reminds me of how we live and die based on these scans, holding our breath with every interpretation, sifting through details for any possible good to be found. Meanwhile, radiologists are seeing the same thing, day in and day out, to the point where they (apparently) see things that are no longer there. Wouldn't it be nice if it was the cancer that wasn't there, instead ?

Cool

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