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Timing of diagnosis

Jim112
Posts: 2
Joined: May 2019

I am new here and would like some advice about the progression of my diagnosis.

4/23 went to doctor over cough I had for about 2 month. He ordered a ct scan same day that showed a mass in my right upper lobe.

5/1 had PET scan which showed multiple spots on lungs, lymph nodes and bones

5/6 had pulmonary function test

5/6 met with oncologist. He was unable to tell me anything specific without a biopsy, but ordered a brain MRI

5/7 met with pulmonologist who confirmed I had lung cancer based on PET scan and ordered biopsy

5/10 have brain MRI scheduled 

5/16 have biopsy scheduled

5/20 have appointment with oncologist to review biopsy results and plan treatment.

Does this seem like a reasonable time frame? I feel like everyone is moving things along as fast as they but would like some input from people who have been there. Thanks for any advice you can give.

Mk1029's picture
Mk1029
Posts: 1
Joined: May 2019

i’m no expert but your experience seems similar to mine. Mine might have taken longer. 

I was diagnosed last May and it seemed to take forever. 

jorola's picture
jorola
Posts: 229
Joined: Mar 2016

No offence and been there myself, you are focused on you so of course you want things to move along one immediately after the other. However consider you are involving 2 specialists, 2 specialized scans, a specialized breathing test and a minor operation, evaluation, diagnosis and treatment planning all done within 27 days and actually 19 business days. All the while they are doing the same for how many other people?

Bubbie7
Posts: 3
Joined: May 2019

 

My mom died of lung cancer 40 years ago but she smoked heavily.I am dealing with waiting for a diagnosis. I started having pain in my arm and shoulder and went to an orthopedist who did an mri. It took 2 weeks to get the results but I was referred to an orthopedic oncologist. He ordered ctscan and bone scans and I’m hoping to get results today or soon. i had been seeing an oncologist for lcis a few years ago and contacted her. Her nurse said she will consult with the other doctor and get me in ASAP if it shows cancer. Any advice? 

Jim112
Posts: 2
Joined: May 2019

Patience is nedeed, but it also pays to be proactive. We found following up with the  people doing the testing and reporting the results has been heLpful, as has been following up with insurance to ensure required pre approvals don’t hold up a test. I feel like everyone has been very cooperative in getting the results out, once the test is completed.  For me the bigger issue has been getting the tests scheduled timely. All imaging facilities seem to be really busy. Unless you can get your doctor to order the test stat,  my only advice is to be flexible about where you go for the test. Most facilities have multiple sites so i go  to whatever location  can get me in earliest, even if it is not the most convenient location. Good luck!

jorola's picture
jorola
Posts: 229
Joined: Mar 2016

I am Canadian so things work a bit differently here but most visitors are from the US. Your pro-active tips are great. They will help out others who come here looking for help.

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